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Beth,

has had the MRI's done and she did good. She didn't like laying

there so long but the Tech let her take a break then back to it. Just let the

Tech know about her having JRA. If she feels uncomfortable have her signal you

in someway. I sat right there with while she was in the tube.

Robbin

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Beth - when Hunter (age 5 at the time) had her MRI they first attempted the

tunnel. She freaked out - they wanted to sedate due to the fact that she had

a large mass in her shoulder and they needed to rule out tumor so she had

to have the MRI. Finally they suggested the open MRI and she did fine - call

and see if it is an option. Sandi

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Beth,

I can't answer the mri questions...I hope that Hannah could just opt

for staying still...Seems like putting her out would be more

traumatic.

Just wanted to let you know that Aundrea and I saw Hannah's pictures

and she is quite beautiful. The blue cast looks like it would be

horribly miserable. I am glad that she is going to get it off soon

and hope that you get some more answers soon!

(aundrea 10 systemic)

-- In , Beth Yohnk <yohnkmom@...> wrote:

>

> The orthopedic clinic called me today to confirm Hannah's appt for

next week. They told me they are going to take the cast off and re-

xray. Then they'll " poke around " and she how she feels. She has

now had the cast for almost 3 weeks and the injury happened roughly

5 weeks ago. She is still having a lot of pain.

>

> Here's my question: They said they will almost definitely order

an MRI. I know some your little ones have been through this. How

did they do? I know when I had my spinal MRI a few months I was

fully in the tunnel. Is is safe to assume she only goes halfway

in? Do they kids lay still ok for 45 or do I opt for sedation?

>

> Any advice would be greatly appreciated. I want to be prepared

the this next round of appts.

>

> p.s. If you have not checked out the photos, I put one of

Hannah out there for all of you to " meet " her.

>

>

> Beth Yohnk

> Happy Thoughts..Be Well

>

>

>

>

>

>

>

>

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  • 1 year later...
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I wanted to ask if any of you have had an MRI done for your child and

the value in having one. Our Developmental Pediatrician has ordered

one, and I am trying to weigh positives and negatives. Any feedback is

welcome.

My almost 4 year old daughter was adopted from Russia, so there is no

background information. She has been in speech for a year and

according to the speech path she is a 'poster child' for apraxia.

Would an MRI give information that would possibly change treatment? I

don't want the poor child stigmitized with yet new information that

won't change the way we help her. She has been home 2 years and she is

making great strides.

Thanks so much!

Kim

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We just did one in NYC last week. My daughter is almost 7. She has one

every couple years. It will show the Neurologist if the brain looks

normal and might explain some of your issues. Here in NY they won't

use Chloral Hydrate in hospitals anymore, only General Anesthesia. Ask

for the reasons for doing one and what results they are looking for.

My dd was under for three hours but were home that afternoon.

>

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My child's MRI came back " normal " . My child has apraxia, dysarthria,

hypotonia in his tongue (as well as arms and legs), he has had double

hand surgery (syndactaly), and urology surgery (hypospadia), one of his

kidneys is mis-shaped but we only know because he has had renal

ultrasounds.

Basically what I am trying to say is my son has had almost every test

done that can be done (including metabolic genetic testing and he has

all his chromosomes) and we are always told while they realize he has a

severe speech disorder there is " nothing they can detect " .

An MRI may not tell you anything. Be prepared for that knowledge.

>

> I wanted to ask if any of you have had an MRI done for your child and

> the value in having one. Our Developmental Pediatrician has ordered

> one, and I am trying to weigh positives and negatives. Any feedback

is

> welcome.

> My almost 4 year old daughter was adopted from Russia, so there is no

> background information. She has been in speech for a year and

> according to the speech path she is a 'poster child' for apraxia.

> Would an MRI give information that would possibly change treatment? I

> don't want the poor child stigmitized with yet new information that

> won't change the way we help her. She has been home 2 years and she

is

> making great strides.

> Thanks so much!

> Kim

>

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What is Chloral Hydrate?

Is this the anesthesia they put in the IV and the child instantly goes to

sleep? My son had anesthesia that was put into his IV for his MRI. This was a

white colored liquid (looked very thick and chalk white).

They did not want to do general anesthesia for my son.since they only wanted

to be lightly sedated.

A word of advice about my sons recent experience with general anesthesia ( 4

wks ago for minor surgery to remove a cyst just below his eyebrow). If your

child is light complicted and blue eyed and blond haired ( in my sons case all

of the above). The anesthesia might affect them more. My son woke up vomiting

badly this time from the anesthesia (he was vomiting for the first 24 hrs from

it). Now my son was only under for all of his 20 minutes. No tubes no nothing.

Just enough to keep him asleep. Just something to keep in mind.

This was my sons third time under anesthesia. MRI, Tonsils and Adenoids and

the recent one.

My experience with the MRI was this. The results came back normal. But it did

show some form of brain damage. But they told me it was impossible to tell when

it occured and to what extent it would affect my son. The normal part was what

they were looking for . They were looking to see if they could find a reason for

my sons developmental issues. Poor growth, poor weight gain, very thin frame,

curvature of the spine, leg length decrepancy ( one leg is shorter than the

other Etc. Plus they were looking at the dyspraxia oral and verbal to see if the

speech area of the brain was the cause. Never really found out an answer.

For me i would think twice before getting another MRI done. I was not happy

with the results. I am still kind of confused about the brain damage

part.Although he did hve a period of lack of oxygen that required intubation at

birth due meconium and a nocial umbilical cord around the neck (wrapped four

times tightly).

Good luck

Jeanne and 9 yo

Maureen <mosense@...> wrote:

We just did one in NYC last week. My daughter is almost 7. She has one

every couple years. It will show the Neurologist if the brain looks

normal and might explain some of your issues. Here in NY they won't

use Chloral Hydrate in hospitals anymore, only General Anesthesia. Ask

for the reasons for doing one and what results they are looking for.

My dd was under for three hours but were home that afternoon.

>

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http://www.fluoridealert.org/health/bone/index.html

> We just did one in NYC last week. My daughter is almost

7. She has one

> every couple years. It will show the Neurologist if the brain looks

> normal and might explain some of your issues. Here in NY they won't

> use Chloral Hydrate in hospitals anymore, only General Anesthesia.

Ask

> for the reasons for doing one and what results they are looking for.

> My dd was under for three hours but were home that afternoon.

> >

>

>

>

>

>

>

>

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