A friend who is a psychologist ask me this and I thought you could help...

[Guest guest]

" I would be very interested if you turned up any info re: dyspraxia and

social skills...dyspraxia and the autism spectrum disorders... and

especially (since I'm working with a 19 yr old with a childhood dx of

dyspraxia) how dyspraxia looks " grown up " (in adulthood- i.e. how it affects

social/occupational endeavors). "

 

The only thing I can think of is to use information from Dyspraxiausa's long

list of adult symptoms based on Warren's view. I'd like a more positive

viewpoint as well. I will search back and see the postings on this that have

already been placed but anything new would be great also.

 

Thanks!

PEACE

a.k.a. - Dusty

a.k.a. - Wolflover

 

[Guest guest]

Dusty this probably won't help but does this psychologist know that

Harry Potter is a grown up with dyspraxia? We all know what it

looks like by watching him in the movies -that you can do magic! LOL

kate

>

>

> " I would be very interested if you turned up any info re:

dyspraxia and

> social skills...dyspraxia and the autism spectrum disorders... and

> especially (since I'm working with a 19 yr old with a childhood dx

of

> dyspraxia) how dyspraxia looks " grown up " (in adulthood- i.e. how

it affects

> social/occupational endeavors). "

>  

> The only thing I can think of is to use information from

Dyspraxiausa's long list of adult symptoms based on Warren's view.

I'd like a more positive viewpoint as well. I will search back and

see the postings on this that have already been placed but anything

new would be great also.

>  

> Thanks!

> PEACE

>

> a.k.a. - Dusty

> a.k.a. - Wolflover

>  

>

>

>

>

>

[Guest guest]

Yeah she's aware of Radcliff's recent articles. She is usually working

with Autistic children and adults as well as other issues such as anxiety,

family issues, caregiver training, etc...

 

I don't believe she has worked with a Dyspraxic Adult before (this patient is

19). I do not know anything about the specific difficulties he is having but can

try to find out more and post if anyone thinks that will help.

 

She is a old friend of mine so I'd like to help her ou on this but my knowledge

of Adult level issues and treatments is limted. I have sent her some info on the

symptoms of Adult Level Dyspraxia from (of all places, dyspraxiausa), but of

course ther is nothing there about treatment options.

 

She is looking for " how dyspraxia looks " grown up " (in adulthood- i.e. how it

affects 

social/occupational endeavors). "

 

Thanks,

Dusty

a.k.a.-wolflover

From: mykitkate <mykitkate@...>

Subject: [ ] Re: A friend who is a psychologist ask me this

and I thought you could help...

Date: Friday, August 29, 2008, 10:56 AM

Dusty this probably won't help but does this psychologist know that

Harry Potter is a grown up with dyspraxia? We all know what it

looks like by watching him in the movies -that you can do magic! LOL

kate

>

>

> " I would be very interested if you turned up any info re:

dyspraxia and

> social skills...dyspraxia and the autism spectrum disorders... and

> especially (since I'm working with a 19 yr old with a childhood dx

of

> dyspraxia) how dyspraxia looks " grown up " (in adulthood- i.e. how

it affects

> social/occupational endeavors). "

>  

> The only thing I can think of is to use information from

Dyspraxiausa' s long list of adult symptoms based on Warren's view.

I'd like a more positive viewpoint as well. I will search back and

see the postings on this that have already been placed but anything

new would be great also.

>  

> Thanks!

> PEACE

>

> a.k.a. - Dusty

> a.k.a. - Wolflover

>  

>

>

>

>

>

[Guest guest]

Hey !

do you mean dyspraxia in the UK sense or dyspraxia in the US

sense meaning you can call it apraxia or dyspraxia? The reason I ask

is that I can get you the contacts of a number of adult apraxics who

grew up with apraxia, but if you are looking for adults who have

dyspraxia that grew up with it you should look outside the US since

when Tanner was diagnosed with " apraxia or dyspraxia it means the

same thing " in 1999 that is what I was told as you you read in the

archives many times. Again from what I was told you can have motor

planning issues in the body but it's not unusual in those cases to

also have mild motor planning issues of speech -or you can have a

motor planning issue of speech but it's not unusual to also have a

mild motor planning issue of the body. Of course it's also possible

to have a motor planning issue of either just the body or of speech

but that's not as much the norm.

I just did a quick search but did you catch the Youtube adults who

grew up with apraxia that talk about how it effects them? If not

I'll repost it since there's only a few and I found a few other links

to help since this is a super easy question!

Here's a teen/adult talking about his dyspraxia who was diagnosed in

preschool with dyspraxia.

An adult female who also states everyone that has dyspraxia may

present different. Again she's doing this to outreach to others and

help

http://www.youtube.com/watch?v=say3psC9fp0 & feature=related

Here's another who had dyspraxia since he was born and still has it

today (he sounds like he has a bit of a speech issue)

http://www.youtube.com/watch?v=Lssy-TyuXwE & feature=related

http://www.bebo.com/Profile.jsp?MemberId=7567369884 Looks like a

support group and from the photos most look like adults and

the " about " section says the list owner was diagnosed with dyspraxia

at 4.

Another message board that is clearly for adult dyspraxics

http://www.bbc.co.uk/dna/mbouch/F2322273?thread=3802921

Ooooh gold mine! Didn't you say you wanted the positive aspects of

dyspraxia?! From Robyn's website (I'd contact her if I were you)

" My Dyspraxic Strengths

I was diagnosed with dyspraxia and disgraphia this time last year, at

which time I was in my third year of an English literature degree. It

was both a relief and a shock but ultimately it is just part of who I

am. I identify with everything I read in your messages and have tons

of my own idiosyncrasies and a long list of things I struggle with or

have no ability to do. Although in joining this group I was hoping to

find people who would understand these difficulties I was

disappointed in everyone's emphasis on the negative aspects of

dyspraxia, so I would like to tell you the positives that I feel I

get from dyspraxia in the hope that some of you may identify with me.

When I first found out I had dyspraxia I was annoyed as I thought

that it was a disability that would prove to limit my natural

abilities and talents, however, the more research I did the more I

realised that my strengths were a direct result of dyspraxia. The

psychologist who assessed me said I had one of the highest verbal

IQ's he had ever seen. In my initial despondency, this was the fact

that I clung to as I tried reassure myself. But it is true, I have

always had the highest reading age out of my school classes and Iv

always found great comfort in reading, especially in the idea that we

can communicate through literature, so that part of dyspraxia really

wasn't that bad, was it?

I am a naturally creative person. I was always an arty kid and I

thoroughly enjoy artistic expression. The more I looked into

dyspraxia the more I realise this was a common feature of all ND

thinkers. Van Gough, Picasso, Mozart, Beethoven, Jane Austin,

Dickenson are all believed to have had some form of ND, and from

personally studying literature I can tell you there are many more who

read as if they do. So that's certainly not a bad thing. Being

creative means I am an excellent problem solver, I find it very easy

to see other perspectives which is a massive benefit to many areas of

my life and I love that my creativity allows me to back up my flair

for the unconventional. I hope this is a positive that we can all

enjoy.

Finally the greatest positive that I take from dyspraxia is probably

the thing that caused me that greatest difficulty growing up. I'm

terribly over sensitive. I know that sound like a strange positive

and I can tell you it has caused me great pain at times. But it is

very simple, if I am sensitive enough to hurt then I am also

sensitive enough to sense others hurt, and to understand and help

where I can. I am very perceptive and can often pick up on things

that others miss, I can see when people need support and I can make a

difference to their day. I am currently working at a residential

school while I take a year out of uni. The kids we take in are some

of the most damaged and difficult in the country and I have excellent

relationships with most of them. Even with those who don't like me I

am able to work with as I can sense when to give them space and they

trust me because of this. One of my favourite girls told me that I

was a great member of staff and when I asked her why I was good she

said that it was because I'm a good listener and that she feels like

she can talk to me about anything. I would choose that compliment

over normality any day, despite the fact that it made me ball my eyes

out in public!

I hope that this message is not too long for every one! As my

attention span is my biggest problem I understand if this is too

convoluted for some of you. I assure you all that dyspraxia poses

plenty of difficulties for me as well, and I'm sure it will continue

to, but ultimately these difficulties are in areas that I do not

consider to be of great importance. Who cares if I walk into doors

and can't sit through a two hour lecture? The strengths that

dyspraxia provides me with are an intrinsic part of who I am. So

please, if you've read this far, join me in celebrating the positives

that we can find in having dyspraxia. I wouldn't change it for the

world.

Dyspraxia

23/12/05

Robyn Halley "

http://www.danda.org.uk/pages/danda-focus/my-dysphraxic-strengths.php

Also it's clear not all dyspraxics walk into doors!!!

(but do most have trouble tying shoes?!)

PS Kate I really think dyspraxics can do magic! I believe in them!

=====

[Guest guest]

Thank ...I will pass this on.

 

I just spoke with her and honestly I'm not sure this patient has Dyspraxia or

ever did. And I would say in the UK terminology because he was diagnosed at age

5, went through OT for 2 years and now has no motor skill isssues. He also does

not have any speech issues and never has. She did say he has handwriting issues

(but so do I <g>). Below is a little more info she sent to me but I think you

have provided enough already. I'll offer her the option on the contacting Adult

apraxics but it doesn't sound like that will be a fit for this one. I'll let you

know. Below is some additional info she sent to me:

 

" my 19 year-old was given a dx of dyspraxia at age 5, also ADD.  he is

extremely bright but very impulsive and parents felt Asperger-ish.  I don't

think he is, but would like to know if the dyspraxia could help explain why

he has trouble establishing and maintaining deep and long-term relationships

with people.  He is so smart, interesting and funny.  Some ADD stuff which

we know affects relationships (inhibition problems!), but he's actually

quite easy-going, mannerly and likable. Also has turned out to be very

athletic- very into weightlifing and health conscious. "

 

To me it sounds like he was mis-diagnosed with the Dyspraxia at age 5. I don't

see any indications here that is his problem now. Do you?

 

Thanks

a.k.a.- Dusty

a.k.a.- Wolflover

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: A friend who is a psychologist ask me this

and I thought you could help...

Date: Friday, August 29, 2008, 12:29 PM

Hey !

do you mean dyspraxia in the UK sense or dyspraxia in the US

sense meaning you can call it apraxia or dyspraxia? The reason I ask

is that I can get you the contacts of a number of adult apraxics who

grew up with apraxia, but if you are looking for adults who have

dyspraxia that grew up with it you should look outside the US since

when Tanner was diagnosed with " apraxia or dyspraxia it means the

same thing " in 1999 that is what I was told as you you read in the

archives many times. Again from what I was told you can have motor

planning issues in the body but it's not unusual in those cases to

also have mild motor planning issues of speech -or you can have a

motor planning issue of speech but it's not unusual to also have a

mild motor planning issue of the body. Of course it's also possible

to have a motor planning issue of either just the body or of speech

but that's not as much the norm.

I just did a quick search but did you catch the Youtube adults who

grew up with apraxia that talk about how it effects them? If not

I'll repost it since there's only a few and I found a few other links

to help since this is a super easy question!

Here's a teen/adult talking about his dyspraxia who was diagnosed in

preschool with dyspraxia.

http://www.youtube. com/watch? v=A1dBuS7- NYc

An adult female who also states everyone that has dyspraxia may

present different. Again she's doing this to outreach to others and

help

http://www.youtube. com/watch? v=say3psC9fp0 & feature=related

Here's another who had dyspraxia since he was born and still has it

today (he sounds like he has a bit of a speech issue)

http://www.youtube. com/watch? v=Lssy-TyuXwE & feature=related

http://www.bebo. com/Profile. jsp?MemberId= 7567369884 Looks like a

support group and from the photos most look like adults and

the " about " section says the list owner was diagnosed with dyspraxia

at 4.

Another message board that is clearly for adult dyspraxics

http://www.bbc. co.uk/dna/ mbouch/F2322273? thread=3802921

Ooooh gold mine! Didn't you say you wanted the positive aspects of

dyspraxia?! From Robyn's website (I'd contact her if I were you)

" My Dyspraxic Strengths

I was diagnosed with dyspraxia and disgraphia this time last year, at

which time I was in my third year of an English literature degree. It

was both a relief and a shock but ultimately it is just part of who I

am. I identify with everything I read in your messages and have tons

of my own idiosyncrasies and a long list of things I struggle with or

have no ability to do. Although in joining this group I was hoping to

find people who would understand these difficulties I was

disappointed in everyone's emphasis on the negative aspects of

dyspraxia, so I would like to tell you the positives that I feel I

get from dyspraxia in the hope that some of you may identify with me.

When I first found out I had dyspraxia I was annoyed as I thought

that it was a disability that would prove to limit my natural

abilities and talents, however, the more research I did the more I

realised that my strengths were a direct result of dyspraxia. The

psychologist who assessed me said I had one of the highest verbal

IQ's he had ever seen. In my initial despondency, this was the fact

that I clung to as I tried reassure myself. But it is true, I have

always had the highest reading age out of my school classes and Iv

always found great comfort in reading, especially in the idea that we

can communicate through literature, so that part of dyspraxia really

wasn't that bad, was it?

I am a naturally creative person. I was always an arty kid and I

thoroughly enjoy artistic expression. The more I looked into

dyspraxia the more I realise this was a common feature of all ND

thinkers. Van Gough, Picasso, Mozart, Beethoven, Jane Austin,

Dickenson are all believed to have had some form of ND, and from

personally studying literature I can tell you there are many more who

read as if they do. So that's certainly not a bad thing. Being

creative means I am an excellent problem solver, I find it very easy

to see other perspectives which is a massive benefit to many areas of

my life and I love that my creativity allows me to back up my flair

for the unconventional. I hope this is a positive that we can all

enjoy.

Finally the greatest positive that I take from dyspraxia is probably

the thing that caused me that greatest difficulty growing up. I'm

terribly over sensitive. I know that sound like a strange positive

and I can tell you it has caused me great pain at times. But it is

very simple, if I am sensitive enough to hurt then I am also

sensitive enough to sense others hurt, and to understand and help

where I can. I am very perceptive and can often pick up on things

that others miss, I can see when people need support and I can make a

difference to their day. I am currently working at a residential

school while I take a year out of uni. The kids we take in are some

of the most damaged and difficult in the country and I have excellent

relationships with most of them. Even with those who don't like me I

am able to work with as I can sense when to give them space and they

trust me because of this. One of my favourite girls told me that I

was a great member of staff and when I asked her why I was good she

said that it was because I'm a good listener and that she feels like

she can talk to me about anything. I would choose that compliment

over normality any day, despite the fact that it made me ball my eyes

out in public!

I hope that this message is not too long for every one! As my

attention span is my biggest problem I understand if this is too

convoluted for some of you. I assure you all that dyspraxia poses

plenty of difficulties for me as well, and I'm sure it will continue

to, but ultimately these difficulties are in areas that I do not

consider to be of great importance. Who cares if I walk into doors

and can't sit through a two hour lecture? The strengths that

dyspraxia provides me with are an intrinsic part of who I am. So

please, if you've read this far, join me in celebrating the positives

that we can find in having dyspraxia. I wouldn't change it for the

world.

http://health. groups.. com/group/ Dyspraxia

23/12/05

Robyn Halley "

http://www.danda. org.uk/pages/ danda-focus/ my-dysphraxic- strengths. php

Also it's clear not all dyspraxics walk into doors!!!

(but do most have trouble tying shoes?!)

PS Kate I really think dyspraxics can do magic! I believe in them!

=====

[Guest guest]

I just found this too !

" Matt Alden-Farrow

I'm a 17 year old student with dyspraxia. I was bullied at school

from a young age, both by my fellow students and teachers. In 2000, I

was diagnosed with dyspraxia, and finally thought that my teachers

would understand my difficulties, and would stop picking on me.

Unfortunately, dyspraxia was and still is not well understood in

schools. Finally, in 2001, I was removed from school and home

educated for the next 5 years. During this time, I set up Matt's

Hideout to tell my story and offer support to others like myself.

Over the next couple of years, the website received an overwhelming

response, and it became increasingly clear that young people like me

were in desperate need of support. And so, Dyspraxic Teens was born

as a place for young adults with dyspraxia to socialise and share

stories and advice with one another. "

http://learning-alliance.org/default.aspx?pid=415 (may want to check

out the other speakers here since all would probably be a good

resource to explain why dyspraxia is not ADHD or autism)

Here's Matt's page " Matt's Hideout "

" By browsing the pages of this website you will be able to learn more

about Dyspraxia, how it affects those that have it and how I learnt

to cope. Unlike most other websites on the Internet, this site

records the thoughts and ideas of someone who has Dyspraxia rather

than facts written by a health professional who has studied the

condition, but actually doesn't understand what it's like to live

with it. "

http://www.matts-hideout.co.uk/

Interesting that in Matt's life he never had any issues prior to

starting kindergarten at 4 years old (which is the age they start in

the UK) but in Tanner's case the only time he had frustration and

tears due to his inability to speak prior to fish oil in preschool

years (since his verbal aspect was the primary issue at the time) and

once in school Tanner was and continues to be a social butterfly.

Also in spite of having trouble with things most don't know such as

tying his shoe without working really hard at it (and even then it

still isn't tied right) or being able to button his pants but it's

hard for him...Tanner LOVES football and basketball and swimming as

his favorite sports and hides those things he can't do from the rest

of the world which is fine. He does not bump into things or fall

down so the other things are easier to hide.

Here's what Matt says it was like for him in preschool years

" Life Before School

Up to the age of four and a half, before I started school, my life

was great. I remember my life was happy with my Mum, Dad and sister

and in photos I always was smiling. In those days I was a real fan of

the Tank Engine and many weekends were spent visiting Steam

railways. My mum didn't go out to work and was a full time mum

instead. She was always there for me and my younger sister Clare. We

visited our Nan and Grand-dad most Sundays and Grand-dad used to take

Clare and I to the nature reserve, Perivale wood, nearby his home. It

was here he introduced me to nature and showed me things like slow

worms and frogs, allowing me to gently handle them. He started to

teach me how important it is to care for our planet. He sometimes

took me down to his allotment to pick vegetables for Sunday roast. He

and Nan read lots of stories to us and our weekends were always great

fun. When I was growing up in the pre-school years the world seemed a

kind happy place and I never felt " different. "

http://www.matts-hideout.co.uk/mystory.php

You've got to read Matt's story however -it gave me chills. Isn't

everyone here so proud of him?!!

Here's how he and other teen dyspraxics describe dyspraxia

http://www.matts-hideout.co.uk/mhodyspraxia/

Notice Matt crosses off the word dyspraxic to say " Fantastic "

So more positives!

=====

[Guest guest]

No way does that sound like dyspraxia to me either. If anything

Tanner is like a pit-bull when he likes someone or something. He had

the same " girlfriend " for 2 years in preschool -and for a

few years his " girlfriend " was Emma (story about her below) But Emma

moved to another state and now they are just email pals. But...every

Valentine's Day Tanner uses his money to buy her a box of valentine's

candy -on his own. Not kidding. In his one school the school

psychologist told me did I have any idea how many girls have a crush

on Tanner -he didn't either. He only thinks of Emma. (even though

she's moved -but how cool is that -I mean the kid is only 12 years

old!)

I just want to be clear -I never suggest it -he insists on it and bugs me to

take him to the store and post office.

Below is a story about Emma from when he was 7 -and yes they still

exchange Xmas cards and photos too.

Tanner keeps the same friends from year to year and keeps making new

ones. School just started and he got a call from a new kid in his

class and they are going fishing tomorrow. I did tell the friend's

mom that when Tanner was little he tripped on the fishing pole and

got the hook stuck in his leg which was a nightmare -but you know how

they say " one day you'll look back on this and laugh " Well we both

laughed. Secretly however I'm not a huge fan of Tanner with a

fishing pole -guess I've got to get over that!

Archive from 5 years ago

Re: M.D. husband and ProEFA

Tammy you just give me the date and time for the candy shop -we may

just go there anyway! By the way yesterday Tanner's " girlfriend "

Emma's dad called and asked me if I thought Tanner would want to go

bowling. I said " Do I think Tanner wants to go bowling with

Emma?! " He was so excited he (at 7 years old) took a shower and on

his own picked out a cool outfit, brushed his hair and teeth and

then...ready for this? Put on some of Glenn's cologne! We were

cracking up! They had a great time -and then after that we went to

Universal for the Mardi Gras (with Donna Summer) like I told you

about. We did the Hulk twice and the Dueling Dragons both Fire and

Ice -some good results, but unfortunately still not the same effects

of just one trip on Mission Space -but fun anyway.

Boy if people think EFAs are out there! You know how I found out

by mistake ride therapy theory does work, not at all sure why yet -

vestibular system -flow -don't know why but it works as you can now

say too for . Proof is in the pudding as they say..

I know that is having great results from just the rides like

Thunder Mountain and can't do much of the others yet -but he will

soon. That's the thing with kids -they just keep growing!

And there will be rides we can't try yet either even if they have

stronger G Force. For example I hear Universal is going to premier

in June The Revenge of The Mummy which is supposed to be the next

stage of rides. There is no way Tanner's old enough for this one

yet even if he ready for the ride part.

http://www.themeparkadventure.com/Universal_Studios_Hollywood.htm

(click on this one to check out the ride online)

~~~~~~~~~~~end of archives

I can't believe at 7 I thought the Mummy ride was too much for

Tanner -it's one of our favorites!!

=====