Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 Rae wrote: > First, let me tell you why I'm on this list. The doctor who has been so > good at helping me with this CFIDS is Dr. Stevan Cordas in the Fort > Worth/Dallas area. He's been my doctor for sixteen years. A few weeks > ago he advised me to try this list. Now I see you advised him that this > list is only for patients! I'm disappointed he's not permitted on this > list. > > Ok, now some info about myself. I am a female who will turn 50 in a few > days (wow, half a century old). I have had CFIDS since 1990. I have > been unable to work for about five years now. I experience the aches > and pains and brain fog. Some days are better than others and I can > never figure out why. Some days the medications ease the pain, some > days they don't. You know how it goes. > Hello Rae and Welcome to the list! I am so sorry to hear about your disappointment with your dream of getting your nurses education and license. That is ONE of the cruel things about this rotten illness. It puts all your dreams on hold. I have been ill for 21 years and am facing the fact that all my dreams were young peoples dreams and not even realistic now. I have no new dreams other that to get well and we can't ever lose sight of that one! I also am glad to hear that you have a good Doctor. The short time Dr. Cordas was on our list, he seemed to be very concerned about CFS patients and diligently trying like all of us to find answers to relieve our own and others suffering. There is much to be learned on the list with all the experiences and knowlege being shared here, and don't forget there is much history already in the archives you can reach through the onelist website. Hopefully you will find some useful information and we would love to hear what you have tried for the illness that helps (or doesn't!) It always helps to know there are others here that understand your frustrations and know your pain. In fact there are nurses here on the list too, who I am sure can share in your frustration of losing those plans and dreams. Take care, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Kim! If you've already been looking through some of the posts, you know that your family is definitely NOT going through this alone! My 12 y/o son was diagnosed with OCD last fall; this group has been the BEST support group. It's like a weight has been lifted off my shoulders! What are some of Payton's behaviors, both ADHD and OCD? Did they begin recently? - single mom to (12) w/OCD and dysgraphia; (12-twin); Randall (16) a grouchy, moody teenager! - > Hi Everyone! My name is Kim and my son, Payton, just turned 4 last > month. 2 days ago he had his first visit with a psychologist due to > behavioral problems. The dr. didn't give him an offical diagnosis > due to his age but told me in no uncertain terms that he has OCD and > ADHD. This was not surprising to my husband or myself but we are > still " depressed " about it. I have had a rough 2 days trying to find > the strength within myself to deal with this. So, here I am - > looking for support. ) I'm looking forward to hearing from other > parents like me. Thanks for having me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi, Kim! Welcome to the group! I am the mom of a 15 yo who was dx with OCD about 1 1/2 years ago. I understand your depression regarding your son's situation. We have all gone through it. Mine currently waxes and wanes. My son formally was an identified academically gifted student who was also was musically, athletically and socially gifted. Although OCD has not changed his giftedness I am sure, the giftedness is having trouble sufacing right now. His compulsive exercising has stolen his athletic ability (he is so underweight and fatigued) and other compulsive behavior leaves little time for music or a decent social life. It IS sad and worthy of my depression! The first thing I did was listen to advice from this wonderful group and learned (OK, I'm STILL learning)to disengage and that has helped both of us a great deal. I have also learned to adjust my expectations for 's life. I realize the high class ranking, the scholarships, the best universities may not be in his future. That was a tough pill to swallow. However, I also believe that something good and very important will come out of this for him. I hope this group provides for you the same support, information and sanity it does for me. Keep us posted! Melinda S. Dallas > Hi Everyone! My name is Kim and my son, Payton, just turned 4 last > month. 2 days ago he had his first visit with a psychologist due to > behavioral problems. The dr. didn't give him an offical diagnosis > due to his age but told me in no uncertain terms that he has OCD and > ADHD. This was not surprising to my husband or myself but we are > still " depressed " about it. I have had a rough 2 days trying to find > the strength within myself to deal with this. So, here I am - > looking for support. ) I'm looking forward to hearing from other > parents like me. Thanks for having me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 hi kim and welcome. my name is amy and my 10yo daughter jordan has ocd. she was just recently diagnosed. will you be putting your son on meds and in behavioral therapy? the therapy is as effective if not more effective then meds alone. fortunately your son is young and should respond well to any therapy he may get. you'll learn alot here!(: Hi! I'm new > Hi Everyone! My name is Kim and my son, Payton, just turned 4 last > month. 2 days ago he had his first visit with a psychologist due to > behavioral problems. The dr. didn't give him an offical diagnosis > due to his age but told me in no uncertain terms that he has OCD and > ADHD. This was not surprising to my husband or myself but we are > still " depressed " about it. I have had a rough 2 days trying to find > the strength within myself to deal with this. So, here I am - > looking for support. ) I'm looking forward to hearing from other > parents like me. Thanks for having me! > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Kim, and welcome I too was a bit *depressed* when they diagnosed my daughter with OCD at the age of 6. Didn't know that children so young could have OCD. But the good news was that I knew that finally there was help out there, I didn't have to deal with her *behaviors* alone anymore. Good luck Steffie (ga) mom4payton@... wrote: > > Hi Everyone! My name is Kim and my son, Payton, just turned 4 last > month. 2 days ago he had his first visit with a psychologist due to > behavioral problems. The dr. didn't give him an offical diagnosis > due to his age but told me in no uncertain terms that he has OCD and > ADHD. This was not surprising to my husband or myself but we are > still " depressed " about it. I have had a rough 2 days trying to find > the strength within myself to deal with this. So, here I am - > looking for support. ) I'm looking forward to hearing from other > parents like me. Thanks for having me! > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 HI Kim, Paytons mom! A couple of things that might help you with the list: If you include where you live, either by city, state/province, or country, it can help you to make contact with others in your area! One of the best things you can do for yourself and your family is to meet with other people, like on this list, who are in similar situations! This also helps with duplicate names!! This list is a friendly, non-judgemental group. We encourage each other to ask questions, vent frustrations, and seek support. Regularly, those of us who are achieving any level of success will also post updates. If you havent yet, I suggest that you look for copies (library or purchase through the OCFoundation http://ocfoundation.org ) of books such as: CHANSKY, Tamar E. Ph.D. Freeing Your Child from Obsessive-Compulsive Disorder; 2000; Crown Publishers, New York, United States. GRAVITZ, Herbert L. Ph.D. Obsessive Compulsive Disorder: New Help for the Family. 1998; Healing Vision Press, California, United States. PENZEL, Fred Ph.D. Obsessive-Compulsive Disorders; A Complete Guide to Getting Well and Staying Well. 2000; Oxford University Press, New York, United States. One last comment: Take care of yourself! The main care giver will go through extreme stress. It is crucial that you take ME time on a regular basis - a few minutes at a time, or more if possible. It is hard, but worth it. You are the pillar, if you collapse, everyone falls with you! take care, wendy in canada moderator, social worker trained in cbt for ocd, parent and wife to 4 ocd+; presenter for the OCFoundation's annual conference! ============================================ Hi Everyone! My name is Kim and my son, Payton, just turned 4 last month. 2 days ago he had his first visit with a psychologist due to behavioral problems. The dr. didn't give him an offical diagnosis due to his age but told me in no uncertain terms that he has OCD and ADHD. This was not surprising to my husband or myself but we are still " depressed " about it. I have had a rough 2 days trying to find the strength within myself to deal with this. So, here I am - looking for support. ) I'm looking forward to hearing from other parents like me. Thanks for having me! _______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Hi Kim: Welcome to the list! Your feeling depressed is very normal. We have to grieve the loss of a healthy life for our kids when we find out they have OCD and other alphabet soup to cope with in their lives. Luckily OCD is very treatable, even if not typically curable. The younger a child gets the correct treatment, the better. You may find it quite hard to find a skilled cognitive behavior therapist (CBT practitioner) who can work with a young child. If you let us know where you live, there may be other parents on this list who can suggest someone suitable or ways to locate someone in your area. Do you have family or friends nearby who understand what you are going through and can give you love and support during these tough times? Most of us here have gone or are going through similar tough times and you and your family can find a lot of support and understanding here. Take care, aloha, kathy (h) kathyh@... P.S. My son Steve was dxed at 10 and sometimes tells us he can never remember not having OCD. Good for you figuring this out when your child is only 4. I wish we had been able to figure it out earlier. Steve is doing quite well right now after extensive CBT and an antidepressant for his MDD (major depressive disorder). K At 10:56 PM 07/13/2001 -0000, you wrote: >Hi Everyone! My name is Kim and my son, Payton, just turned 4 last >month. 2 days ago he had his first visit with a psychologist due to >behavioral problems. The dr. didn't give him an offical diagnosis >due to his age but told me in no uncertain terms that he has OCD and >ADHD. This was not surprising to my husband or myself but we are >still " depressed " about it. I have had a rough 2 days trying to find >the strength within myself to deal with this. So, here I am - >looking for support. ) I'm looking forward to hearing from other >parents like me. Thanks for having me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 hi karen, my name is evelyn and i joined looking for support because my son has cystic fibrosis. you are sure to find many wonderful and very supportive people here. i look forward to talking to you again. evelynkaren371990 <Ksaun54653@...> wrote: My name is and I'm a 43 year old wife and stay-at-home-mom to an 11 year old daughter. I was diagnosed with petit mal epilepsy when I was 18 months old. I grew up not being able to talk about it. I was told that nobody needed to know I had it. Alot of people today don't even know I have it. I also have been anemic most of my life too. My anemia got severe right after Christmas, so my doctor put me on some vitamins with iron, and told me to eat alot of foods that are high in iron. I have had alot of problems with my knees for years now and different doctors that I saw could not figure out why I was having so much problems with my knees. Last year I went to my family doctor about my knees, because they were swollen and hurting so bad, so he told me he thought I had osteoarthritis, because what I had told him what was going on and he had to drain my knee. So I'm taking medicine for that also. So I hope to meet many of you and talk to others about what you are going thru. We live in North Carolina. S. in NC~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Thank you for the good welcome. I have been taking Naproxen for my knee pain.. It's mostly for the inflammation. I always have to put ice packs on my knees when they bother me. Both of my knees bothered me last week and it was very hard to get around and do anything. I can't even sleep good when my knees bother me, it's just so uncomfortable. S. in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Hi and welcome, although I'm always sorry to hear that anyone else has the symptoms with which so many of us are all too familiar. I hope the surgery will solve some of your problems, but am curious, to know why you are not opting for an osteotomy to correct the flatback now? Does your surgeon have experience in both fusion and in correcting flatback? If not, there is a list of possible surgeons in the files section of our site that might be of use to you. Hope you will find the sharing of information and support on this site helpful, and we look forward to hearing more from you. loriann -- In , " C M " <turtle_one@...> wrote: > > Hi group - > I'm new to the group - I'm 31 years old, and had surgery for scoliosis when > I was 13 yrs. old, then a revision when I was 16. I have had increasing > problems over the last two years, which have included leaning forward > stature, bladder leakage, bowel urgency, pain, and leg numbness. I was > diagnosed with flatback syndrome, compression of the cauda equina, and > degeneration. I'm to have a revision surgery (not ostonenomy), but fusion > of L4-5 in a few days. I will possibly need another surgery down the road, > including a full revision, but the thought was to provide relief for now. > I'm scared, but hopeful. Anyways, I'm looking forward to meeting some of > you! > > Chris > > _________________________________________________________________ > Buy, Load, Play. The new Sympatico / MSN Music Store works seamlessly with > Windows Media Player. Just Click PLAY. > http://musicstore.sympatico.msn.ca/content/viewer.aspx?cid=SMS_Sept192006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 Hi Welcome to Feisty! I’m sorry to hear you’re having such troubles these days. I’m also wondering about your surgical history and plans in that they seem a little different than many of the ‘stories’ posted here. In particular, if you have been diagnosed with flatback, I would think you would want to have that corrected sooner rather than later. In other words, why not have the osteotomy and restore your sagittal balance before it worsens? I remember wanting my surgeon to just do a little at a time, too, but he said he couldn’t if I wanted the best outcome possible. Of course, I know everyone is different, so your doc must have a good reason for addressing your problems in this way. Still, I think it’s a good idea for everyone to get a second opinion and I would recommend doing that if you haven’t already. There are a handful of surgeons known for their revision expertise and they would be reliable ‘second opinions.’ Please let us know if you want their names. I wish you the best of luck. Please let us know if you have specific concerns or questions about your upcoming treatment. I’m sure there’s someone here you will have some suggestions for you. Regards, Andy Concord MA Hi! I'm new Hi group - I'm new to the group - I'm 31 years old, and had surgery for scoliosis when I was 13 yrs. old, then a revision when I was 16. I have had increasing problems over the last two years, which have included leaning forward stature, bladder leakage, bowel urgency, pain, and leg numbness. I was diagnosed with flatback syndrome, compression of the cauda equina, and degeneration. I'm to have a revision surgery (not ostonenomy), but fusion of L4-5 in a few days. I will possibly need another surgery down the road, including a full revision, but the thought was to provide relief for now. I'm scared, but hopeful. Anyways, I'm looking forward to meeting some of you! Chris __________________________________________________________ Buy, Load, Play. The new Sympatico / MSN Music Store works seamlessly with Windows Media Player. Just Click PLAY. http://musicstore.sympatico.msn.ca/content/viewer.aspx?cid=SMS_Sept192006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 HI I am 31 years old as well. I just had my revision almost 3 month ago. I had my original fusion at 11. I had Luque rods that I think are gone now. I know it sounds terrible but I think the whole plan changed along the way with my surgeon becuase of my issues. I was a bit groggy in the hospital so keeping up was difficult. Not only did I have flatback but my scoliosis below and above the driginal T4-L4 fusion was/is severe. I leaned forward and to the right. I had a huge hump on my left side and wearing certain clothing was difficult. I think being 31 made recovery so much better.My recovery is going so well compared to others and I have to credit not only a great surgeon but my age as well. I do have a bald spot that I was not expecting. It is common from prone procedures that have a long duration. I am kind of an odd ball in that I was hugely excited about my surgery. I was really looking forward to getting my body back. At this point I have not even had my follow up but I already feel soooo much better that before the revision. I still have not gotten use to how good I look in most clothing. being 5'8 " and 135 lbs I feel like I just now anm getting the pay off for all the time I have spent on the treadmill for the past few years. Keep active up until the day of surgery, that will make a big difference. I would have so won the walker races if they had any. I think they should I so could have taken grandma in the next room. She was always taking the last jello in the comunal fridge. Jolynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hi! I just join a couple days ago. My son Jack (3 almost 4 years old) has been diagnosed officially with an Expressive Speech Disorder and PDD-NOS. But the speech therapists and doctor all say Apraxia if that makes any sense. LOL! We were in New Jersey for the beginning of all this and just moved in Southern California. We are in the process of getting set up with a doctor and a speech therapy clinic. His leader in Awana has a daughter with Apraxia and gave us the name of a really good clinic that also helps with insurance to get it covered. I'm open to any advice or helpful hints. **************One site keeps you connected to all your email: AOL Mail, Gmail, and Mail. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2008 Report Share Posted December 20, 2008 {{{{{{{{{{{{{{{{{{{{{{{{{{{}}}}}}}}}}}}}}}}}}} My dear friend-- I am so glad you're finally here! :-) Ladies-- this is , a good friend of mine. Shan-- the ladies here are wonderful, and you're going to get much out of the list. Bek In a message dated 12/18/2008 1:12:20 P.M. Eastern Standard Time, Cexytoga@... writes: Hi! I just join a couple days ago. My son Jack (3 almost 4 years old) has been diagnosed officially with an Expressive Speech Disorder and PDD-NOS. But the speech therapists and doctor all say Apraxia if that makes any sense. LOL! We were in New Jersey for the beginning of all this and just moved in Southern California. We are in the process of getting set up with a doctor and a speech therapy clinic. His leader in Awana has a daughter with Apraxia and gave us the name of a really good clinic that also helps with insurance to get it covered. I'm open to any advice or helpful hints. ************************<WBR>**One site keeps you connected to all your Gmail, and Mail. Try it now. (_http://www.aol.http://www.http:/ & icid=icid=<WBR>aolc & <WBR>ncid=emlcnt<WBR>nc id_ (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) ) [Non-text portions of this message have been removed] **************One site keeps you connected to all your email: AOL Mail, Gmail, and Mail. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) Quote Link to comment Share on other sites More sharing options...
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