Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 oops! I meant July, 2007..... not 2008! [sPAM][ ] Re: Myomunchees? Thanks for the heads up. I was willing to try it so long as it would not hurt. I will run it by our new ST. It never occurred to me there would be debate over this. I mean I know generally that our OT said tone cannot be improved but rather worked around. I just thought that is what the myomunchee did. I better ask. The ST is working well for us so I don't want to mess that up. > > > > > > > > , > > > > > > > > Home from NACD now! Yes, we used a myomunchee daily for 15 > > minutes > > > a day for 3 months (chewing the whole while) to build muscle tone in > > > the cheek and jaw for Mark. He hated the taste but someone found > > > some flavored lemon (?) crystals or 'something' (use your > > imagination > > > since this is a great jaw workout) to put on theirs to make it > > > tastier! I cannot remember who but I am pretty sure that it was > > > someone on this board. > > > > > > > > Since Mark has 'global' dyspraxia, we have had to do the same > > thing > > > for his entire body.... not just the face. We needed to build > > muscle > > > tone everywhere, in the throat, jaw, cheek, lips and then we had to > > > work on oral motor skills. > > > > > > > > We have had to do this with his arms, legs, torso and to stimulate > > > his sense of 'feeling' with deep pressure to get his whole body > > > working properly. The areas that seem to take the longest to get > > > working properly are speech and fine motor skills..... with fine > > > motor being definately the worse of the two for my Mark. It is > > > because there are so many fine, small muscles in the hands and they > > > are responsible for so much work. We also begin remediation of fine > > > motor skills much later than we work on speech. We notice that our > > > child is a late talker by 2.5 or 3 years old and 'see' the problem > > > and then go to work to fix it. Unfortunately we don't really > > > comprehend the magnitude of fine motor issues in dyspraxic childrnen > > > until they are in grade 2 or so. Picture going through life with no > > > hands but having everyone expect you to operate as though you do! > > > That is what it is like to have dyspraxia. Mark calls it > > > being 'trapped' inside of a body that doesn't work. > > > > > > > > At our evaluation this week, Alison wants me to NOT think of Mark > > > as dyspraxic any more and to raise the bar of expectations. She > > > feels his issues are very minor and no longer considers him at risk. > > > Of course, I am not quite there since I 'know' that those hands need > > > more work and his speech is still slightly 'off' especially when > > > speaking to people he doesn't know well. He came up 14 months > > > improvement in maths this term and is just soaring along in his > > > academic abilities! > > > > > > > > So, please take heart..... we CAN beat global dyspraxia...... I > > > will not lie to you..... it is a tremendous amount of work, > > > dedication and commitment but even starting my 'WAR on dyspraxia' at > > > 11 which is darn late (not to say that we didn't do therapy just not > > > to the same level or desparation)...... BUT..... we did it so please > > > those of you with little tykes with global dyspraxia/apraxia who > > > feel frightened and overwhelmed, know in your heart that if an 11 > > > year old can come back and recover, so can your little one~! > > > > > > > > I promise.... > > > > > > > > Janice > > > > Mother of Mark, 13 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Actually, I should ammend this post because it is incorrect! Just scrap that whole fourth paragraph about practicing things wrong, okay? It is my own frustration speaking with my older child's ambi-dexterous behaviour that is 'complaining' here and this is not acurate in the least. I am re-reading my post and shuddering as I do so! My most sincere apologies my friends.... Obviously, if you have a young child who is speaking incorrectly, they need to continue to work it and practice.... So.... just ignore that entire paragraph and one day when we speak of the hands and ambi-behaviour in school-aged children, I'll bring that paragraph back in..... (with vigor)! But.... it does NOT apply to speech so..... again...... sorry! Maybe I just need to read today and not write..... Janice Mother of Mark, 13 [sPAM][ ] Re: Myomunchees? Thanks for the heads up. I was willing to try it so long as it would not hurt. I will run it by our new ST. It never occurred to me there would be debate over this. I mean I know generally that our OT said tone cannot be improved but rather worked around. I just thought that is what the myomunchee did. I better ask. The ST is working well for us so I don't want to mess that up. > > > > > > > > , > > > > > > > > Home from NACD now! Yes, we used a myomunchee daily for 15 > > minutes > > > a day for 3 months (chewing the whole while) to build muscle tone in > > > the cheek and jaw for Mark. He hated the taste but someone found > > > some flavored lemon (?) crystals or 'something' (use your > > imagination > > > since this is a great jaw workout) to put on theirs to make it > > > tastier! I cannot remember who but I am pretty sure that it was > > > someone on this board. > > > > > > > > Since Mark has 'global' dyspraxia, we have had to do the same > > thing > > > for his entire body.... not just the face. We needed to build > > muscle > > > tone everywhere, in the throat, jaw, cheek, lips and then we had to > > > work on oral motor skills. > > > > > > > > We have had to do this with his arms, legs, torso and to stimulate > > > his sense of 'feeling' with deep pressure to get his whole body > > > working properly. The areas that seem to take the longest to get > > > working properly are speech and fine motor skills..... with fine > > > motor being definately the worse of the two for my Mark. It is > > > because there are so many fine, small muscles in the hands and they > > > are responsible for so much work. We also begin remediation of fine > > > motor skills much later than we work on speech. We notice that our > > > child is a late talker by 2.5 or 3 years old and 'see' the problem > > > and then go to work to fix it. Unfortunately we don't really > > > comprehend the magnitude of fine motor issues in dyspraxic childrnen > > > until they are in grade 2 or so. Picture going through life with no > > > hands but having everyone expect you to operate as though you do! > > > That is what it is like to have dyspraxia. Mark calls it > > > being 'trapped' inside of a body that doesn't work. > > > > > > > > At our evaluation this week, Alison wants me to NOT think of Mark > > > as dyspraxic any more and to raise the bar of expectations. She > > > feels his issues are very minor and no longer considers him at risk. > > > Of course, I am not quite there since I 'know' that those hands need > > > more work and his speech is still slightly 'off' especially when > > > speaking to people he doesn't know well. He came up 14 months > > > improvement in maths this term and is just soaring along in his > > > academic abilities! > > > > > > > > So, please take heart..... we CAN beat global dyspraxia...... I > > > will not lie to you..... it is a tremendous amount of work, > > > dedication and commitment but even starting my 'WAR on dyspraxia' at > > > 11 which is darn late (not to say that we didn't do therapy just not > > > to the same level or desparation)...... BUT..... we did it so please > > > those of you with little tykes with global dyspraxia/apraxia who > > > feel frightened and overwhelmed, know in your heart that if an 11 > > > year old can come back and recover, so can your little one~! > > > > > > > > I promise.... > > > > > > > > Janice > > > > Mother of Mark, 13 > > > > > > Quote Link to comment Share on other sites More sharing options...
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