A better day for my Addison

[Guest guest]

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into therapy and I called my mom crying and screaming, Why, Why,

Why! Then we went through the day , first o/t, then p/t, and finally s/t.

repeated the word to each therapist over and over but we could not get

it. Well tonight I took her hand to walk up the stairs, she pulled her hand away

and said " no bagaan " and started walking up the stairs alone. I finally got it!!

BIG GIRL DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

Oh, this had ME tearing up! 

I am glad to hear other parents have a 'poor me' day too ... I think I have been

in denial about my son's apraxia ... and what it means.  Will he ever talk

normally?  Now I am so scared and powerless feeling.  I know he is smart (and

very funny and very loving) but who else will see that?  Half the time I can't

understand what he is saying either, so I know others can't.

He is three and a half.  I asked my husbnad last night, how many words does L

have, really?  Hubby said oh 15 -20.  I said, oh?  What are they?

He could only  list Dada, Papa, Mama, Nana and munKEY (L loves monkeys).  I

think me and hubby have been way into denial about this.  L is in speech therapy

for 2x a week .. and is verbal now ... which is a huge improvement!  But now I

think of how far he still has to go. 

I got the ProEFA ... I need tips on getting it in him though!  It does not mix

well in milk (found that out this morning, when I tried a sip ... NASTY).

I AM SORRY FOR HIJACKING YOUR POST.  This just seems like a 'safe place' to vent

all my feelings.

________________________________

From: taranowakowski <taranowakowski@...>

Sent: Thursday, March 26, 2009 9:00:16 PM

Subject: [ ] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

Understand completely!  We all have those " poor me " days and there is always

something that our kiddoes do that brings us out of it.  Congrats to your dd for

telling you that she is a big girl and growing up!

Love how you told your dd your " ears were broken. "   I used that line on Josh

many, many, MANY times!  It really helps them to understand we all have a hard

time sometimes, it helps them to know you're trying, it helps not make them feel

badly that the words might be hard to understand.  As Josh has gotten older and

there are still times I might have a little prob putting word to context, I've

changed it to " my ears are getting old! "   (he can relate to that because my

father, Josh's " Boompah, " just got new hearing aids and now can actually

understand him!).  LOL!

Sherry and Josh

________________________________

From: taranowakowski <taranowakowski@...>

Sent: Thursday, March 26, 2009 8:00:16 PM

Subject: [ ] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

gosh,  i think I can almost guarantee that most people on this board has had

a " poor me " day.  Life seems to be a roller coaster ride most days!

I had a day yesterday of " mom's ears not working " yesterday.  The SLP and

I just couldn't figure out what he was saying and we went through the gamut of

ears not working.....our ears are tired...........ect ect until half an hour

later i got

what it was that he was trying to say.  I'm just thankful that my son is a

pretty patient

guy.  (most days!)  I did feel a little better knowing that even the

" professional "

couldn't figure it out either!

As to the EFA's,  i've found success with putting it into yogourt.  I just use a

push pin to

pierce it and squeeze.  I found that putting it in a drink isn't that great as

most of the oil

sticks to the side of the glass.  Alot of people use apple or pear sauce.  At

one time i used

a teaspoon of chocolate sauce because i needed the added incentive for him to

take it.

not because he didn't like the taste, he's one who loves it (yuck) but because

just getting

him to slow down for anything is a challenge most days.  this way, with the

yogourt he gets

a great snack to go with the supplements!

hope that helps

sandy

mom to 9 years old

________________________________

From: <mkiser26@...>

Sent: Friday, March 27, 2009 9:25:17 AM

Subject: Re: [ ] A better day for my

Oh, this had ME tearing up! 

I am glad to hear other parents have a 'poor me' day too ... I think I have been

in denial about my son's apraxia ... and what it means.  Will he ever talk

normally?  Now I am so scared and powerless feeling.  I know he is smart (and

very funny and very loving) but who else will see that?  Half the time I can't

understand what he is saying either, so I know others can't.

He is three and a half.  I asked my husbnad last night, how many words does L

have, really?  Hubby said oh 15 -20.  I said, oh?  What are they?

He could only  list Dada, Papa, Mama, Nana and munKEY (L loves monkeys).  I

think me and hubby have been way into denial about this.  L is in speech therapy

for 2x a week .. and is verbal now ... which is a huge improvement!  But now I

think of how far he still has to go. 

I got the ProEFA ... I need tips on getting it in him though!  It does not mix

well in milk (found that out this morning, when I tried a sip ... NASTY).

I AM SORRY FOR HIJACKING YOUR POST.  This just seems like a 'safe place' to vent

all my feelings.

____________ _________ _________ __

From: taranowakowski <taranowakowski@ bellsouth. net>

@groups. com

Sent: Thursday, March 26, 2009 9:00:16 PM

Subject: [childrensapraxiane t] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

I use to squeeze the pills into applesauce. Now I just squeeze them directly

into her mouth. She says yuck and then its all over. I also tell her this helps

her talk. Also, thought I'd share again. Another crappy day. We just left our

secound evaluation at the Atlanta Speech School to see if my daughter could get

in next school year for their stepping stones program. Guess what they told me,

she really doesn't talk enough yet, the other kids can put 2 or 3 words together

and she can't. She also doesn' t really communicate in a group setting just one

on one when she is spoken to. Now my question is Isn't that what a speech school

is for? to help her learn to talk? I am so upset.They told me I should apply the

following year for the 3 year old program and maybe she will be ready. (She will

be 4 then) I am just so upset. I can't stop the tears. This just stinks!

--------- [ ] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

Thank you, Sandy ... yogurt would definitely work for Liam. 

________________________________

From: sandy lehmann <mommie2chris@...>

Sent: Friday, March 27, 2009 1:46:41 PM

Subject: Re: [ ] A better day for my

gosh,  i think I can almost guarantee that most people on this board has had

a " poor me " day.  Life seems to be a roller coaster ride most days!

I had a day yesterday of " mom's ears not working " yesterday.  The SLP and

I just couldn't figure out what he was saying and we went through the gamut of

ears not working..... our ears are tired....... ....ect ect until half an hour

later i got

what it was that he was trying to say.  I'm just thankful that my son is a

pretty patient

guy.  (most days!)  I did feel a little better knowing that even the

" professional "

couldn't figure it out either!

As to the EFA's,  i've found success with putting it into yogourt.  I just use a

push pin to

pierce it and squeeze.  I found that putting it in a drink isn't that great as

most of the oil

sticks to the side of the glass.  Alot of people use apple or pear sauce.  At

one time i used

a teaspoon of chocolate sauce because i needed the added incentive for him to

take it.

not because he didn't like the taste, he's one who loves it (yuck) but because

just getting

him to slow down for anything is a challenge most days.  this way, with the

yogourt he gets

a great snack to go with the supplements!

hope that helps

sandy

mom to 9 years old

____________ _________ _________ __

From: <mkiser26 (DOT) com>

@groups. com

Sent: Friday, March 27, 2009 9:25:17 AM

Subject: Re: [childrensapraxiane t] A better day for my

Oh, this had ME tearing up! 

I am glad to hear other parents have a 'poor me' day too ... I think I have been

in denial about my son's apraxia ... and what it means.  Will he ever talk

normally?  Now I am so scared and powerless feeling.  I know he is smart (and

very funny and very loving) but who else will see that?  Half the time I can't

understand what he is saying either, so I know others can't.

He is three and a half.  I asked my husbnad last night, how many words does L

have, really?  Hubby said oh 15 -20.  I said, oh?  What are they?

He could only  list Dada, Papa, Mama, Nana and munKEY (L loves monkeys).  I

think me and hubby have been way into denial about this.  L is in speech therapy

for 2x a week .. and is verbal now ... which is a huge improvement!  But now I

think of how far he still has to go. 

I got the ProEFA ... I need tips on getting it in him though!  It does not mix

well in milk (found that out this morning, when I tried a sip ... NASTY).

I AM SORRY FOR HIJACKING YOUR POST.  This just seems like a 'safe place' to vent

all my feelings.

____________ _________ _________ __

From: taranowakowski <taranowakowski@ bellsouth. net>

@groups. com

Sent: Thursday, March 26, 2009 9:00:16 PM

Subject: [childrensapraxiane t] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

That makes no sense what so ever.  Do they not do the 'pull out' sessions with

children? 

________________________________

From: " taranowakowski@... " <taranowakowski@...>

Sent: Friday, March 27, 2009 2:03:41 PM

Subject: Re: [ ] A better day for my

I use to squeeze the pills into applesauce. Now I just squeeze them directly

into her mouth. She says yuck and then its all over. I also tell her this helps

her talk. Also, thought I'd share again. Another crappy day. We just left our

secound evaluation at the Atlanta Speech School to see if my daughter could get

in next school year for their stepping stones program. Guess what they told me,

she really doesn't talk enough yet, the other kids can put 2 or 3 words together

and she can't. She also doesn' t really communicate in a group setting just one

on one when she is spoken to. Now my question is Isn't that what a speech school

is for? to help her learn to talk? I am so upset.They told me I should apply the

following year for the 3 year old program and maybe she will be ready. (She will

be 4 then) I am just so upset. I can't stop the tears. This just stinks!

------------ -- Original message from <mkiser26 (DOT) com>:

------------ --

Oh, this had ME tearing up!

I am glad to hear other parents have a 'poor me' day too ... I think I have been

in denial about my son's apraxia ... and what it means. Will he ever talk

normally? Now I am so scared and powerless feeling. I know he is smart (and very

funny and very loving) but who else will see that? Half the time I can't

understand what he is saying either, so I know others can't.

He is three and a half. I asked my husbnad last night, how many words does L

have, really? Hubby said oh 15 -20. I said, oh? What are they?

He could only list Dada, Papa, Mama, Nana and munKEY (L loves monkeys). I think

me and hubby have been way into denial about this. L is in speech therapy for 2x

a week .. and is verbal now ... which is a huge improvement! But now I think of

how far he still has to go.

I got the ProEFA ... I need tips on getting it in him though! It does not mix

well in milk (found that out this morning, when I tried a sip ... NASTY).

I AM SORRY FOR HIJACKING YOUR POST. This just seems like a 'safe place' to vent

all my feelings.

____________ _________ _________ __

From: taranowakowski <taranowakowski@ bellsouth. net>

@groups. com

Sent: Thursday, March 26, 2009 9:00:16 PM

Subject: [childrensapraxiane t] A better day for my

I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

[Guest guest]

hi there,

My son is 4 next week and he has Apraxia quite severely. He has maybe 15 words,

and I too am probably being generous. In some ways he has come so far from where

he was 14 months ago when he started therapy, but to a degree. His real problem

is retention. He has one more yr till kindergarden, and he seems to know his

shapes, colors, can count to 5, is starting to identify his letters, can

sequence events, but can not talk. My biggest worry is how he is going to do

with the amount he has to learn in kindergarden these days. He has come so far,

but can't talk in 2 word sentences yet. I know he has a long way to go with a

lot of hard work. I feel pressured with kindergarden looming overhead. I started

him on fish oil about 3 months ago and he started being able to mimic so much

better. It is great. He uses his voice so much more. But the retention hasn't

improved much. We have just started putting signs with his words, and that is

helping greatly.

I haven't heard of ProEFA yet. What is that?

Sorry, I had to get that off my chest.

Thank you!!

Crystal

>

> I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into therapy and I called my mom crying and screaming, Why, Why,

Why! Then we went through the day , first o/t, then p/t, and finally s/t.

repeated the word to each therapist over and over but we could not get

it. Well tonight I took her hand to walk up the stairs, she pulled her hand away

and said " no bagaan " and started walking up the stairs alone. I finally got it!!

BIG GIRL DUH! I cried again this time saying yes you are a big girl.

>

[Guest guest]

ProEFA is the fish oil supplement from Nordic Naturals that has the correct

ration of DHA and EPA. I bought it off the website linked to this board

www.speech411.com

My son is 3.5 but our school system has changed the date requirement for

Kindergarten, so he still has two years instead of one (thank heavens!)

I do have to ask ... when people say that the fish oils made their child speak

so much better ... do you mean just making more sounds? Or actually being able

to speak more clearly? My son is rather verbal (at least a lot more than even 6

months ago) but still not understandable. I just want to know what to expect.

I have had my hopes dashed more than a few times over the course of this ...

Thanks,

________________________________

From: " cassrob224@... " <cassrob224@...>

Sent: Sunday, March 29, 2009 1:26:52 AM

Subject: [ ] Re: A better day for my

hi there,

My son is 4 next week and he has Apraxia quite severely. He has maybe 15 words,

and I too am probably being generous. In some ways he has come so far from where

he was 14 months ago when he started therapy, but to a degree. His real problem

is retention. He has one more yr till kindergarden, and he seems to know his

shapes, colors, can count to 5, is starting to identify his letters, can

sequence events, but can not talk. My biggest worry is how he is going to do

with the amount he has to learn in kindergarden these days. He has come so far,

but can't talk in 2 word sentences yet. I know he has a long way to go with a

lot of hard work. I feel pressured with kindergarden looming overhead. I started

him on fish oil about 3 months ago and he started being able to mimic so much

better. It is great. He uses his voice so much more. But the retention hasn't

improved much. We have just started putting signs with his words, and that is

helping greatly.

I haven't heard of ProEFA yet. What is that?

Sorry, I had to get that off my chest.

Thank you!!

Crystal

>

> I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

>

[Guest guest]

- we used fish oils (and MB12 shots)at the same time- but it could have

been the fish oil that stopped my son (3-4yrs then, he is 8now)from stuttering.

Really hard to get the balance for this kid- I think in the end I figured it was

best to give GLA also w/the EFAS and extra E at the same time.

Some do better without much or no GLA. We used borage oil for and loved it.

Don't be scared to experiment- you really won't cause harm- but when you have it

right you will really see clearer speech!!

Remember some kids need A LOT!!

I experimented- cause you can't always follow what docs say. We had dr.

neubrander, but I think I did the extras that helped!!

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: A better day for my

hi there,

My son is 4 next week and he has Apraxia quite severely. He has maybe 15 words,

and I too am probably being generous. In some ways he has come so far from where

he was 14 months ago when he started therapy, but to a degree. His real problem

is retention. He has one more yr till kindergarden, and he seems to know his

shapes, colors, can count to 5, is starting to identify his letters, can

sequence events, but can not talk. My biggest worry is how he is going to do

with the amount he has to learn in kindergarden these days. He has come so far,

but can't talk in 2 word sentences yet. I know he has a long way to go with a

lot of hard work. I feel pressured with kindergarden looming overhead. I started

him on fish oil about 3 months ago and he started being able to mimic so much

better. It is great. He uses his voice so much more. But the retention hasn't

improved much. We have just started putting signs with his words, and that is

helping greatly.

I haven't heard of ProEFA yet. What is that?

Sorry, I had to get that off my chest.

Thank you!!

Crystal

>

> I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL

DUH! I cried again this time saying yes you are a big girl.

>

[Guest guest]

Okay, one more quick question, I have started him on two of the ProEFA (one a.m.

the second p.m.) ... how long should I see if this works?  One week or longer? 

If I don't see any improvement, do I then give one capsule more a week until I

do?

And I have to say, my little guy is sooo tough.  He refused applesauce, yogurnt,

it on a spoon, etc.  until I just told him, " We are all taking it because it is

good for us (yes, we are all taking fish oil now, it is good for us!) and it

will help you talk better and help US understand you better. "   He now CHEWS the

capsules!  Gross, but so brave!

Thanks again for everyone's willingness to help all ofus newbies out.  THANK

YOU.

________________________________

From: " lucy2max@... " <lucy2max@...>

Sent: Sunday, March 29, 2009 10:44:20 PM

Subject: Re: [ ] Re: A better day for my

- we used fish oils (and MB12 shots)at the same time- but it could have

been the fish oil that stopped my son (3-4yrs then, he is 8now)from stuttering.

Really hard to get the balance for this kid- I think in the end I figured it was

best to give GLA also w/the EFAS and extra E at the same time.

Some do better without much or no GLA. We used borage oil for and loved it.

Don't be scared to experiment- you really won't cause harm- but when you have it

right you will really see clearer speech!!

Remember some kids need A LOT!!

I experimented- cause you can't always follow what docs say. We had dr.

neubrander, but I think I did the extras that helped!!

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: A better day for my

hi there,

My son is 4 next week and he has Apraxia quite severely. He has maybe 15 words,

and I too am probably being generous. In some ways he has come so far from where

he was 14 months ago when he started therapy, but to a degree. His real problem

is retention. He has one more yr till kindergarden, and he seems to know his

shapes, colors, can count to 5, is starting to identify his letters, can

sequence events, but can not talk. My biggest worry is how he is going to do

with the amount he has to learn in kindergarden these days. He has come so far,

but can't talk in 2 word sentences yet. I know he has a long way to go with a

lot of hard work. I feel pressured with kindergarden looming overhead. I started

him on fish oil about 3 months ago and he started being able to mimic so much

better. It is great. He uses his voice so much more. But the retention hasn't

improved much. We have just started putting signs with his words, and that is

helping greatly.

I haven't heard of ProEFA yet. What is that?

Sorry, I had to get that off my chest.

Thank you!!

Crystal

>

> I just thought I'd share. No one else would really understand. Yesterday I was

having a poor me day. Why my child, when will she talk, why are we getting ready

for therapy when we should be getting ready for play groups,I'm sick of running

from therapy to therapy, how much more $ can we spend, ect. ect. (you get the

idea) Anyway we were about to leave the house to go to p/t when I asked my

daugther if she had to use the potty. (training not going so well) She looked at

me said no and then said " bagaan " . I said What? Again she said bagaan and i

still didn't get it so I said mommy's ears are broken can you show me. She gave

me a look like duh no! and just kept repeating " bagaan, bagaan " .At this point I

was tearing up , I started to point to things around the room and she just kept

saying no, no. We had to leave so I had her repeat the word on the way to

therapy calling several friends and family to see if they could guess. No one

could.She went into

therapy and I called my mom crying and screaming, Why, Why, Why! Then we went

through the day , first o/t, then p/t, and finally s/t. repeated the

word to each therapist over and over but we could not get it. Well tonight I

took her hand to walk up the stairs, she pulled her hand away and said " no

bagaan " and started walking up the stairs alone. I finally got it!! BIG GIRL 

DUH! I cried again this time saying yes you are a big girl.

>

 

     

[Guest guest]

,

When I started my son on fish oil there was a noticable change in what he

could say. It seemed like he could get the correct sounds out easier. The words

he was working on could come out clearer. But I didn't notice change with his

retention. So conversationally he didn't seem to improve. It wasn't massave, but

there was enough of a change to make me happy, and make sure he gets one every

night. :-) I use the 3-6-9 omaga. I believe it is the one from nordic naturals.

(I bought it at a local whole foods store here)

Crystal, mother to rob. 4

>

> ProEFA is the fish oil supplement from Nordic Naturals that has the correct

ration of DHA and EPA. I bought it off the website linked to this board

www.speech411.com

>

> My son is 3.5 but our school system has changed the date requirement for

Kindergarten, so he still has two years instead of one (thank heavens!)

> I do have to ask ... when people say that the fish oils made their child speak

so much better ... do you mean just making more sounds? Or actually being able

to speak more clearly? My son is rather verbal (at least a lot more than even 6

months ago) but still not understandable. I just want to know what to expect.

I have had my hopes dashed more than a few times over the course of this ...

> Thanks,

[Guest guest]

Thank you again ... hmmm ... this morning when he said " i love you " it was a bit

clearer ...only a week (and not necessarily ALL that got in him either, he can

fight!) though I am probably being a bit gung ho about it all!

________________________________

From: " cassrob224@... " <cassrob224@...>

Sent: Monday, March 30, 2009 4:53:50 PM

Subject: [ ] Re: A better day for my

,

When I started my son on fish oil there was a noticable change in what he could

say. It seemed like he could get the correct sounds out easier. The words he was

working on could come out clearer. But I didn't notice change with his

retention. So conversationally he didn't seem to improve. It wasn't massave, but

there was enough of a change to make me happy, and make sure he gets one every

night. :-) I use the 3-6-9 omaga. I believe it is the one from nordic naturals.

(I bought it at a local whole foods store here)

Crystal, mother to rob. 4

>

> ProEFA is the fish oil supplement from Nordic Naturals that has the correct

ration of DHA and EPA. I bought it off the website linked to this board

www.speech411. com

>

> My son is 3.5 but our school system has changed the date requirement for

Kindergarten, so he still has two years instead of one (thank heavens!)

> I do have to ask ... when people say that the fish oils made their child speak

so much better ... do you mean just making more sounds? Or actually being able

to speak more clearly? My son is rather verbal (at least a lot more than even 6

months ago) but still not understandable. I just want to know what to expect. I

have had my hopes dashed more than a few times over the course of this ...

> Thanks,

[Guest guest]

Joy of joys!!! Okay, (this is a delicate subject, but you will know why I am

excited!) We are finally potty training our 3.5 year old, he let lose with some

gas ... my hubby said, " Liam, did you poot? " and Liam turned around and said

" No, I didn't " . PLAINLY. No, 'nowa duhhh' He said it PLAINLY! Can the fish

oil work that quickly???? Oh, thank you ALL again so much! These are really

TRULY his first words.

________________________________

From: <mkiser26@...>

Sent: Monday, March 30, 2009 5:34:37 PM

Subject: Re: [ ] Re: A better day for my

Thank you again ... hmmm ... this morning when he said " i love you " it was a bit

clearer ...only a week (and not necessarily ALL that got in him either, he can

fight!) though I am probably being a bit gung ho about it all!

____________ _________ _________ __

From: " cassrob224@sbcgloba l.net " <cassrob224@sbcgloba l.net>

@groups. com

Sent: Monday, March 30, 2009 4:53:50 PM

Subject: [childrensapraxiane t] Re: A better day for my

,

When I started my son on fish oil there was a noticable change in what he could

say. It seemed like he could get the correct sounds out easier. The words he was

working on could come out clearer. But I didn't notice change with his

retention. So conversationally he didn't seem to improve. It wasn't massave, but

there was enough of a change to make me happy, and make sure he gets one every

night. :-) I use the 3-6-9 omaga. I believe it is the one from nordic naturals.

(I bought it at a local whole foods store here)

Crystal, mother to rob. 4

>

> ProEFA is the fish oil supplement from Nordic Naturals that has the correct

ration of DHA and EPA. I bought it off the website linked to this board

www.speech411. com

>

> My son is 3.5 but our school system has changed the date requirement for

Kindergarten, so he still has two years instead of one (thank heavens!)

> I do have to ask ... when people say that the fish oils made their child speak

so much better ... do you mean just making more sounds? Or actually being able

to speak more clearly? My son is rather verbal (at least a lot more than even 6

months ago) but still not understandable. I just want to know what to expect. I

have had my hopes dashed more than a few times over the course of this ...

> Thanks,

[Guest guest]

Don't forget to log this somewhere. One day Liam will read about it and get a

good laugh. Congrats to you.

--------- [childrensapraxiane t] Re: A better day for my

,

When I started my son on fish oil there was a noticable change in what he could

say. It seemed like he could get the correct sounds out easier. The words he was

working on could come out clearer. But I didn't notice change with his

retention. So conversationally he didn't seem to improve. It wasn't massave, but

there was enough of a change to make me happy, and make sure he gets one every

night. :-) I use the 3-6-9 omaga. I believe it is the one from nordic naturals.

(I bought it at a local whole foods store here)

Crystal, mother to rob. 4

>

> ProEFA is the fish oil supplement from Nordic Naturals that has the correct

ration of DHA and EPA. I bought it off the website linked to this board

www.speech411. com

>

> My son is 3.5 but our school system has changed the date requirement for

Kindergarten, so he still has two years instead of one (thank heavens!)

> I do have to ask ... when people say that the fish oils made their child speak

so much better ... do you mean just making more sounds? Or actually being able

to speak more clearly? My son is rather verbal (at least a lot more than even 6

months ago) but still not understandable. I just want to know what to expect. I

have had my hopes dashed more than a few times over the course of this ...

> Thanks,

[Guest guest]

OK you took the cake and got the prize for the funniest first words

ever!!! Having two boys 12 and 14 -I highly doubt that these words will ever

cause any embarrassment to him if you bring it up in the future!! I don't know

how long Liam has been on the oils but they work typically in a day to three

weeks almost across the board (for first surges) as long as it's the right

formula. If you ever want to know if it's the fish oils or normal

development...just stop them. But I warn you -check the archives -it's pretty

sad, and very difficult. But that's when all of us really became believers!

(and PS - about regression if you stop the oils -once you start the fish oils

again... they'll surge again)

=====