New here, 3.5 yr old just diag. with Apraxia of speech.. have questions..

[Guest guest]

New Here.......My son is 3, has been in speech since 2yrs old, today I

just had it confirmed he has Apraxia of speech. I noticed the delay at

18 months, he had ear tests, then ear tubes due to fluid, then had him

enrolled him in the " babies can't wait and early intervention " He has

been seeing a speech pathologist ever since.. the other day (the

specialist and director of speech pathology at children's healthcare.)

informed me that he did in fact have a moderate case of Apraxia and he

would be in speech for a long time... He has the classic symptoms.

PS: I will also enroll him in a study about a correlation between mild

craniostenosis and apraxia... apparently they are finding a connection

and my son had that as well..along with other things...

He is also in pre-k two days a week, I feel the setting with other

normal kids his age has been a blessing.. he plays very well and listens

to the teacher very well. He is a really good listener. He loves to

repeat things and is very good during speech lessons so that has also

been a blessing.

Today I called the local hospital and they have a speech center there so

I am going to take him there and with a letter from his doc our

insurance will cover it, he will need this one on one time because right

now he is in a group speech program twice a week (1/2 hour each). This

will be 45 minutes of one on one and be added to the other two sessions

of group.. so he will have three days a week, two with group and one

with one on one..

To all of you with children with Apraxia of speech what have been your

experiences and what has helped the most..how long until they can talk

normal and how long do they typically stay in speech? What age? I

realise each child will vary, but just trying to get an idea...any

advise would be very much appreciated. Thanks so much.

[Guest guest]

Is there anyone here that can help and give some advise? see below.

thanks

>

>

> New Here.......My son is 3, has been in speech since 2yrs old, today I

> just had it confirmed he has Apraxia of speech. I noticed the delay at

> 18 months, he had ear tests, then ear tubes due to fluid, then had him

> enrolled him in the " babies can't wait and early intervention " He has

> been seeing a speech pathologist ever since.. the other day (the

> specialist and director of speech pathology at children's healthcare.)

> informed me that he did in fact have a moderate case of Apraxia and he

> would be in speech for a long time... He has the classic symptoms.

> PS: I will also enroll him in a study about a correlation between mild

> craniostenosis and apraxia... apparently they are finding a connection

> and my son had that as well..along with other things...

>

> He is also in pre-k two days a week, I feel the setting with other

> normal kids his age has been a blessing.. he plays very well and listens

> to the teacher very well. He is a really good listener. He loves to

> repeat things and is very good during speech lessons so that has also

> been a blessing.

>

> Today I called the local hospital and they have a speech center there so

> I am going to take him there and with a letter from his doc our

> insurance will cover it, he will need this one on one time because right

> now he is in a group speech program twice a week (1/2 hour each). This

> will be 45 minutes of one on one and be added to the other two sessions

> of group.. so he will have three days a week, two with group and one

> with one on one..

>

> To all of you with children with Apraxia of speech what have been your

> experiences and what has helped the most..how long until they can talk

> normal and how long do they typically stay in speech? What age? I

> realise each child will vary, but just trying to get an idea...any

> advise would be very much appreciated. Thanks so much.

>

[Guest guest]

My son was diagnosed at 3 1/2 with severe oral and verbal apraxia. It has been

very hard dealing with this. He would get so frustated when we could not

understand him. He was in early intervention  through our school system for 2

years, until kindergarten. He is 6 now, and is reading!!!!!!!!!!!!!!!!!! Alot of

words are still hard for some to understand, but his teacher and speech teacher

understand him well. We are having lots of problems now with behavior though,

and are currently looking for help. He has sensory issues, and is very super

sensitive. All that I can say is that there is hope. Early intervention is key,

from whAT i READ. We still have a battle ahead, but we can do it!!! Good

luck!!!!

From: janinewren <jwren@...>

Subject: [ ] Re: New here, 3.5 yr old just diag. with Apraxia

of speech.. have questions..

Date: Friday, March 27, 2009, 11:59 PM

Is there anyone here that can help and give some advise? see below.

thanks

>

>

> New Here.......My son is 3, has been in speech since 2yrs old, today I

> just had it confirmed he has Apraxia of speech. I noticed the delay at

> 18 months, he had ear tests, then ear tubes due to fluid, then had him

> enrolled him in the " babies can't wait and early intervention " He has

> been seeing a speech pathologist ever since.. the other day (the

> specialist and director of speech pathology at children's healthcare.)

> informed me that he did in fact have a moderate case of Apraxia and he

> would be in speech for a long time... He has the classic symptoms.

> PS: I will also enroll him in a study about a correlation between mild

> craniostenosis and apraxia... apparently they are finding a connection

> and my son had that as well..along with other things...

>

> He is also in pre-k two days a week, I feel the setting with other

> normal kids his age has been a blessing.. he plays very well and listens

> to the teacher very well. He is a really good listener. He loves to

> repeat things and is very good during speech lessons so that has also

> been a blessing.

>

> Today I called the local hospital and they have a speech center there so

> I am going to take him there and with a letter from his doc our

> insurance will cover it, he will need this one on one time because right

> now he is in a group speech program twice a week (1/2 hour each). This

> will be 45 minutes of one on one and be added to the other two sessions

> of group.. so he will have three days a week, two with group and one

> with one on one..

>

> To all of you with children with Apraxia of speech what have been your

> experiences and what has helped the most..how long until they can talk

> normal and how long do they typically stay in speech? What age? I

> realise each child will vary, but just trying to get an idea...any

> advise would be very much appreciated. Thanks so much.

>

[Guest guest]

Thanks, I hope things get better here too..That's awesome about the

reading!!! I too notice some behavior issues, as a matter of fact we

just got home from a birthday party for a little girl in his class and I

had to leave early.. I was so uncomfortable and embarrassed.. Even

though everyone acted like they understood and welcomed us to stay I

couldn't wait to get out of there.. Normally it's not this bad because

other kids are also running around, so he blends in. Well this birthday

party was all girly.. (there was only one other little boy he was 2 and

very quiet.) All the parents were very nice and the little girls were

all very polite and then there is my little guy grabbing balloons and

running around having fun, when one parent saw her little girl get a

balloon and run with him she scolded her and made her put it back so of

coarse I felt I should do the same so I told my son to put the balloon

back until it was time to get them and play with them, of coarse that

didn't go over well with him and he proceeded to yell at me " mommy!!!! "

It started there and just kept getting worse, at one point he grabbed a

cookie after he saw the birthday girl do it and they hadn't served the

food yet. Noone noticed her getting it first, but they noticed the

meltdown my son had after I tried to stop him from going back for more.

Then they sang happy birthday and I guess the dad wanted a photo and

video of his daughter by herself without the other kids cause all the

other kids stepped away from the cake, but my son wanted to be in the

picture and when I tried to move him over, he yelled again and right

during the quiet singing of happy birthday. I say quiet cause this had

to be the most quiet and structured birthday party I have ever been to,

it was almost as if they wanted to structure how the kids have fun. It

was very weird for me, I just had to leave I couldn't deal with the

opening of the presents, I could just see all the other kids sitting

down being silent as she opens her gifts and there is my son trying to

go help her open the gifts and having a fit if I try and stop him... I

apologized to the mom but she was very sweet and told me not to

apologize that they all had fun and she was glad we came.. I somehow

don't think her husband felt that way, I felt like my son ruined daddy's

little girl's party, the grandma gave me some dirty looks as well. I

even made my son apologize, to the best of his speaking ability. Oh

one last thing, I felt so bad for him, at one point all the other kids

were taking turns on a little stage they set up and singing twinkle

twinkle little star into a real microphone and they asked my son to do

it, and of coarse it sounded nothing like it, and everyone was sort of

looking at him and it was completely silent and the mom asked him if he

knew that song and he shook his head yes, but then proceeded to sing it

and it still sounded nothing like it, and I think he realized that he

was doing it wrong, but I said good job to him and got him down from

there. I don't know if any of them realized before this party that he is

speech delayed but I guess they do now, but I can't help but wonder if

they think he has developmental issues as well. I know he has meltdowns

from time to time, but I have seen many boys his age do the same and I

just think girls are alot different when they are grouped with all girls

and boys stick out more in that setting. Would you agree? (btw...girls

can be rowdy too) I mean my son isn't always jumping off the walls,

lol.. He does sit and listen and play quietly too..

> >

> >

> > New Here.......My son is 3, has been in speech since 2yrs old, today

I

> > just had it confirmed he has Apraxia of speech. I noticed the delay

at

> > 18 months, he had ear tests, then ear tubes due to fluid, then had

him

> > enrolled him in the " babies can't wait and early intervention " He

has

> > been seeing a speech pathologist ever since.. the other day (the

> > specialist and director of speech pathology at children's

healthcare.)

> > informed me that he did in fact have a moderate case of Apraxia and

he

> > would be in speech for a long time... He has the classic symptoms.

> > PS: I will also enroll him in a study about a correlation between

mild

> > craniostenosis and apraxia... apparently they are finding a

connection

> > and my son had that as well..along with other things...

> >

> > He is also in pre-k two days a week, I feel the setting with other

> > normal kids his age has been a blessing.. he plays very well and

listens

> > to the teacher very well. He is a really good listener. He loves to

> > repeat things and is very good during speech lessons so that has

also

> > been a blessing.

> >

> > Today I called the local hospital and they have a speech center

there so

> > I am going to take him there and with a letter from his doc our

> > insurance will cover it, he will need this one on one time because

right

> > now he is in a group speech program twice a week (1/2 hour each).

This

> > will be 45 minutes of one on one and be added to the other two

sessions

> > of group.. so he will have three days a week, two with group and one

> > with one on one..

> >

> > To all of you with children with Apraxia of speech what have been

your

> > experiences and what has helped the most..how long until they can

talk

> > normal and how long do they typically stay in speech? What age? I

> > realise each child will vary, but just trying to get an idea...any

> > advise would be very much appreciated. Thanks so much.

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi there!

I am very new here myself (only a few weeks). But I wanted to write back to

offer my support. I have a 2 and a half year old little boy who was finally

diagnosed with apraxia. I had an idea before the actual diagnosis, so I went in

somewhat prepared.

Things that have helped me is reading " The Late Talker " book. It is kind of my

bible for apraxia at the moment and helping me stay grounded. Other things that

we are doing and focusing on is the use of fish oil supplements (I don't know

that it has made a big difference in my son...but others swear by it). As

another person said, early intervention is key. Our developmental pediatrician

told us to get as much speech therapy as possible (without causing burnout). Our

son currently has OT once a week and ST twice a week. He will be increased to

add PT soon and we are going to add ST 2 more times a week. Any therapy you can

get in home is helpful to help the child generalize their vocabulary at home

(e.g., my son is able to use a fair amount of sign language and " words " at

therapy, but won't at home).

Having an official/medical diagnosis from a physician is helpful in navigating

through the insurance maze. In reading " The Late Talker " I was able to go in

armed and knowledgeable in what to ask for which has paid off in that our

insurance will now cover additional therapy sessions.

We also have our son in preschool. This is a double edged sword for me. On the

one hand, he is " forced " to interact and communicate with the outside world. On

the other hand, I see how he is isolated due to his lack of speech which hurts

me as a mom.

Like I said...I am very new to all of this, but I wish you all the best.

Tracey

> >

> >

> > New Here.......My son is 3, has been in speech since 2yrs old, today I

> > just had it confirmed he has Apraxia of speech. I noticed the delay at

> > 18 months, he had ear tests, then ear tubes due to fluid, then had him

> > enrolled him in the " babies can't wait and early intervention " He has

> > been seeing a speech pathologist ever since.. the other day (the

> > specialist and director of speech pathology at children's healthcare.)

> > informed me that he did in fact have a moderate case of Apraxia and he

> > would be in speech for a long time... He has the classic symptoms.

> > PS: I will also enroll him in a study about a correlation between mild

> > craniostenosis and apraxia... apparently they are finding a connection

> > and my son had that as well..along with other things...

> >

> > He is also in pre-k two days a week, I feel the setting with other

> > normal kids his age has been a blessing.. he plays very well and listens

> > to the teacher very well. He is a really good listener. He loves to

> > repeat things and is very good during speech lessons so that has also

> > been a blessing.

> >

> > Today I called the local hospital and they have a speech center there so

> > I am going to take him there and with a letter from his doc our

> > insurance will cover it, he will need this one on one time because right

> > now he is in a group speech program twice a week (1/2 hour each). This

> > will be 45 minutes of one on one and be added to the other two sessions

> > of group.. so he will have three days a week, two with group and one

> > with one on one..

> >

> > To all of you with children with Apraxia of speech what have been your

> > experiences and what has helped the most..how long until they can talk

> > normal and how long do they typically stay in speech? What age? I

> > realise each child will vary, but just trying to get an idea...any

> > advise would be very much appreciated. Thanks so much.

> >

>

[Guest guest]

I definetely agree that boys and girl's are so different. I have 2 girl's also,

and am a first grade teacher's assistant. I got the job to be with him at

school, and it has worked out well. At 3.5 yrs. old, he is acting like a typical

busy boy. Nothing wrong with that. Tell you what? You could not pay me to bring

my kids to a party like that. With 3 kiddos, there is always a party, and none

are ever structured!!! Trevor has been put in the position lots of times having

to talk and people looking at him weirly. I simply explain to him that he has

apraxia, and what it is. I have had him in sports, he's playing baseball right

now, and I make sure to tell all the parents and coaches about apraxia. At 3.5

he did have alot of temper tantrums, tthen around 5 they stopped, but in the

last 2 months they are back. We have an appointment with all of his teacher's

tom, then a behavioral doc. Seems extreme, but my nerves can't handle it. He is

so sweet and so

handsome. We are so proud of his progress. He has a special ed. taeacher that

pulls him out of class every day, and she is the one that taught him to read in

no time. His IQ is very high, but b/c of his speech, he qualified for special

ed. and I am so happy about it. Last year trevor had minimal words and it seemed

like the day that he turned 6, that he had 10 words sentences, and he has severe

apraxia. I hope that everything gets better for the both of us. The weird thing

is that he NEVER gets in trouble at school. He is so good there. He has had his

name on the board 2 times in 2 years. He just saves it for me!!! 

LOL!!! Barbara   

From: janinewren <jwren@...>

Subject: [ ] Re: New here, 3.5 yr old just diag. with Apraxia

of speech.. have questions..

Date: Saturday, March 28, 2009, 4:37 PM

Thanks, I hope things get better here too..That's awesome about the

reading!!! I too notice some behavior issues, as a matter of fact we

just got home from a birthday party for a little girl in his class and I

had to leave early.. I was so uncomfortable and embarrassed. . Even

though everyone acted like they understood and welcomed us to stay I

couldn't wait to get out of there.. Normally it's not this bad because

other kids are also running around, so he blends in. Well this birthday

party was all girly.. (there was only one other little boy he was 2 and

very quiet.) All the parents were very nice and the little girls were

all very polite and then there is my little guy grabbing balloons and

running around having fun, when one parent saw her little girl get a

balloon and run with him she scolded her and made her put it back so of

coarse I felt I should do the same so I told my son to put the balloon

back until it was time to get them and play with them, of coarse that

didn't go over well with him and he proceeded to yell at me " mommy!!!! "

It started there and just kept getting worse, at one point he grabbed a

cookie after he saw the birthday girl do it and they hadn't served the

food yet. Noone noticed her getting it first, but they noticed the

meltdown my son had after I tried to stop him from going back for more.

Then they sang happy birthday and I guess the dad wanted a photo and

video of his daughter by herself without the other kids cause all the

other kids stepped away from the cake, but my son wanted to be in the

picture and when I tried to move him over, he yelled again and right

during the quiet singing of happy birthday. I say quiet cause this had

to be the most quiet and structured birthday party I have ever been to,

it was almost as if they wanted to structure how the kids have fun. It

was very weird for me, I just had to leave I couldn't deal with the

opening of the presents, I could just see all the other kids sitting

down being silent as she opens her gifts and there is my son trying to

go help her open the gifts and having a fit if I try and stop him... I

apologized to the mom but she was very sweet and told me not to

apologize that they all had fun and she was glad we came.. I somehow

don't think her husband felt that way, I felt like my son ruined daddy's

little girl's party, the grandma gave me some dirty looks as well. I

even made my son apologize, to the best of his speaking ability. Oh

one last thing, I felt so bad for him, at one point all the other kids

were taking turns on a little stage they set up and singing twinkle

twinkle little star into a real microphone and they asked my son to do

it, and of coarse it sounded nothing like it, and everyone was sort of

looking at him and it was completely silent and the mom asked him if he

knew that song and he shook his head yes, but then proceeded to sing it

and it still sounded nothing like it, and I think he realized that he

was doing it wrong, but I said good job to him and got him down from

there. I don't know if any of them realized before this party that he is

speech delayed but I guess they do now, but I can't help but wonder if

they think he has developmental issues as well. I know he has meltdowns

from time to time, but I have seen many boys his age do the same and I

just think girls are alot different when they are grouped with all girls

and boys stick out more in that setting. Would you agree? (btw...girls

can be rowdy too) I mean my son isn't always jumping off the walls,

lol.. He does sit and listen and play quietly too..

> >

> >

> > New Here.......My son is 3, has been in speech since 2yrs old, today

I

> > just had it confirmed he has Apraxia of speech. I noticed the delay

at

> > 18 months, he had ear tests, then ear tubes due to fluid, then had

him

> > enrolled him in the " babies can't wait and early intervention " He

has

> > been seeing a speech pathologist ever since.. the other day (the

> > specialist and director of speech pathology at children's

healthcare.)

> > informed me that he did in fact have a moderate case of Apraxia and

he

> > would be in speech for a long time... He has the classic symptoms.

> > PS: I will also enroll him in a study about a correlation between

mild

> > craniostenosis and apraxia... apparently they are finding a

connection

> > and my son had that as well..along with other things...

> >

> > He is also in pre-k two days a week, I feel the setting with other

> > normal kids his age has been a blessing.. he plays very well and

listens

> > to the teacher very well. He is a really good listener. He loves to

> > repeat things and is very good during speech lessons so that has

also

> > been a blessing.

> >

> > Today I called the local hospital and they have a speech center

there so

> > I am going to take him there and with a letter from his doc our

> > insurance will cover it, he will need this one on one time because

right

> > now he is in a group speech program twice a week (1/2 hour each).

This

> > will be 45 minutes of one on one and be added to the other two

sessions

> > of group.. so he will have three days a week, two with group and one

> > with one on one..

> >

> > To all of you with children with Apraxia of speech what have been

your

> > experiences and what has helped the most..how long until they can

talk

> > normal and how long do they typically stay in speech? What age? I

> > realise each child will vary, but just trying to get an idea...any

> > advise would be very much appreciated. Thanks so much.

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Oh, oh, I want to hug you ... and him! I am always afraid of what others think

of my son ... I know I shouldn't care, but I want to scream at them (okay, maybe

not scream...) but tell them he is a sweet and loving boy and he acts this way

to 'fit in' ... which sounds weird, but he is the 'cut up' and the 'clown'

trying to make everyone laugh.

And for them to say nothing while he sang??? I would like to thump them on the

head. Sorry, I am not a violent person, I really am not, but it makes me feel

so bad for him. Adults should know better.

Hugs to you.

________________________________

From: janinewren <jwren@...>

Sent: Saturday, March 28, 2009 5:37:22 PM

Subject: [ ] Re: New here, 3.5 yr old just diag. with Apraxia

of speech.. have questions..

Thanks, I hope things get better here too..That's awesome about the

reading!!! I too notice some behavior issues, as a matter of fact we

just got home from a birthday party for a little girl in his class and I

had to leave early.. I was so uncomfortable and embarrassed. . Even

though everyone acted like they understood and welcomed us to stay I

couldn't wait to get out of there.. Normally it's not this bad because

other kids are also running around, so he blends in. Well this birthday

party was all girly.. (there was only one other little boy he was 2 and

very quiet.) All the parents were very nice and the little girls were

all very polite and then there is my little guy grabbing balloons and

running around having fun, when one parent saw her little girl get a

balloon and run with him she scolded her and made her put it back so of

coarse I felt I should do the same so I told my son to put the balloon

back until it was time to get them and play with them, of coarse that

didn't go over well with him and he proceeded to yell at me " mommy!!!! "

It started there and just kept getting worse, at one point he grabbed a

cookie after he saw the birthday girl do it and they hadn't served the

food yet. Noone noticed her getting it first, but they noticed the

meltdown my son had after I tried to stop him from going back for more.

Then they sang happy birthday and I guess the dad wanted a photo and

video of his daughter by herself without the other kids cause all the

other kids stepped away from the cake, but my son wanted to be in the

picture and when I tried to move him over, he yelled again and right

during the quiet singing of happy birthday. I say quiet cause this had

to be the most quiet and structured birthday party I have ever been to,

it was almost as if they wanted to structure how the kids have fun. It

was very weird for me, I just had to leave I couldn't deal with the

opening of the presents, I could just see all the other kids sitting

down being silent as she opens her gifts and there is my son trying to

go help her open the gifts and having a fit if I try and stop him... I

apologized to the mom but she was very sweet and told me not to

apologize that they all had fun and she was glad we came.. I somehow

don't think her husband felt that way, I felt like my son ruined daddy's

little girl's party, the grandma gave me some dirty looks as well. I

even made my son apologize, to the best of his speaking ability. Oh

one last thing, I felt so bad for him, at one point all the other kids

were taking turns on a little stage they set up and singing twinkle

twinkle little star into a real microphone and they asked my son to do

it, and of coarse it sounded nothing like it, and everyone was sort of

looking at him and it was completely silent and the mom asked him if he

knew that song and he shook his head yes, but then proceeded to sing it

and it still sounded nothing like it, and I think he realized that he

was doing it wrong, but I said good job to him and got him down from

there. I don't know if any of them realized before this party that he is

speech delayed but I guess they do now, but I can't help but wonder if

they think he has developmental issues as well. I know he has meltdowns

from time to time, but I have seen many boys his age do the same and I

just think girls are alot different when they are grouped with all girls

and boys stick out more in that setting. Would you agree? (btw...girls

can be rowdy too) I mean my son isn't always jumping off the walls,

lol.. He does sit and listen and play quietly too..

> >

> >

> > New Here.......My son is 3, has been in speech since 2yrs old, today

I

> > just had it confirmed he has Apraxia of speech. I noticed the delay

at

> > 18 months, he had ear tests, then ear tubes due to fluid, then had

him

> > enrolled him in the " babies can't wait and early intervention " He

has

> > been seeing a speech pathologist ever since.. the other day (the

> > specialist and director of speech pathology at children's

healthcare.)

> > informed me that he did in fact have a moderate case of Apraxia and

he

> > would be in speech for a long time... He has the classic symptoms.

> > PS: I will also enroll him in a study about a correlation between

mild

> > craniostenosis and apraxia... apparently they are finding a

connection

> > and my son had that as well..along with other things...

> >

> > He is also in pre-k two days a week, I feel the setting with other

> > normal kids his age has been a blessing.. he plays very well and

listens

> > to the teacher very well. He is a really good listener. He loves to

> > repeat things and is very good during speech lessons so that has

also

> > been a blessing.

> >

> > Today I called the local hospital and they have a speech center

there so

> > I am going to take him there and with a letter from his doc our

> > insurance will cover it, he will need this one on one time because

right

> > now he is in a group speech program twice a week (1/2 hour each).

This

> > will be 45 minutes of one on one and be added to the other two

sessions

> > of group.. so he will have three days a week, two with group and one

> > with one on one..

> >

> > To all of you with children with Apraxia of speech what have been

your

> > experiences and what has helped the most..how long until they can

talk

> > normal and how long do they typically stay in speech? What age? I

> > realise each child will vary, but just trying to get an idea...any

> > advise would be very much appreciated. Thanks so much.

> >

>

>

>

>

>

>

>

>

>

>

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>

[Guest guest]

Thanks,

I know this was a hard day for both of us. I think it was the first time that

the " speech delay " really effected our normal day. Most of the people we

surround him with already know and just accept him, as they did to some extent,

but I just wanted to cry for him when the other kids were able to sing the songs

and he couldn't, I guess it really hit me at that point. thanks for the kind

words..

> > >

> > >

> > > New Here.......My son is 3, has been in speech since 2yrs old, today

> I

> > > just had it confirmed he has Apraxia of speech. I noticed the delay

> at

> > > 18 months, he had ear tests, then ear tubes due to fluid, then had

> him

> > > enrolled him in the " babies can't wait and early intervention " He

> has

> > > been seeing a speech pathologist ever since.. the other day (the

> > > specialist and director of speech pathology at children's

> healthcare.)

> > > informed me that he did in fact have a moderate case of Apraxia and

> he

> > > would be in speech for a long time... He has the classic symptoms.

> > > PS: I will also enroll him in a study about a correlation between

> mild

> > > craniostenosis and apraxia... apparently they are finding a

> connection

> > > and my son had that as well..along with other things...

> > >

> > > He is also in pre-k two days a week, I feel the setting with other

> > > normal kids his age has been a blessing.. he plays very well and

> listens

> > > to the teacher very well. He is a really good listener. He loves to

> > > repeat things and is very good during speech lessons so that has

> also

> > > been a blessing.

> > >

> > > Today I called the local hospital and they have a speech center

> there so

> > > I am going to take him there and with a letter from his doc our

> > > insurance will cover it, he will need this one on one time because

> right

> > > now he is in a group speech program twice a week (1/2 hour each).

> This

> > > will be 45 minutes of one on one and be added to the other two

> sessions

> > > of group.. so he will have three days a week, two with group and one

> > > with one on one..

> > >

> > > To all of you with children with Apraxia of speech what have been

> your

> > > experiences and what has helped the most..how long until they can

> talk

> > > normal and how long do they typically stay in speech? What age? I

> > > realise each child will vary, but just trying to get an idea...any

> > > advise would be very much appreciated. Thanks so much.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Tracey- did the developmental ped give the diagnosis? Did you have anyother

evals? We are lining ours up and wanted to know if I am missing something.

Thank you,

Iveta

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: New here, 3.5 yr old just diag. with Apraxia

of speech.. have questions..

Hi there!

I am very new here myself (only a few weeks). But I wanted to write back to

offer my support. I have a 2 and a half year old little boy who was finally

diagnosed with apraxia. I had an idea before the actual diagnosis, so I went in

somewhat prepared.

Things that have helped me is reading " The Late Talker " book. It is kind of my

bible for apraxia at the moment and helping me stay grounded. Other things that

we are doing and focusing on is the use of fish oil supplements (I don't know

that it has made a big difference in my son...but others swear by it). As

another person said, early intervention is key. Our developmental pediatrician

told us to get as much speech therapy as possible (without causing burnout). Our

son currently has OT once a week and ST twice a week. He will be increased to

add PT soon and we are going to add ST 2 more times a week. Any therapy you can

get in home is helpful to help the child generalize their vocabulary at home

(e.g., my son is able to use a fair amount of sign language and " words " at

therapy, but won't at home).

Having an official/medical diagnosis from a physician is helpful in navigating

through the insurance maze. In reading " The Late Talker " I was able to go in

armed and knowledgeable in what to ask for which has paid off in that our

insurance will now cover additional therapy sessions.

We also have our son in preschool. This is a double edged sword for me. On the

one hand, he is " forced " to interact and communicate with the outside world. On

the other hand, I see how he is isolated due to his lack of speech which hurts

me as a mom.

Like I said...I am very new to all of this, but I wish you all the best.

Tracey

> >

> >

> > New Here.......My son is 3, has been in speech since 2yrs old, today I

> > just had it confirmed he has Apraxia of speech. I noticed the delay at

> > 18 months, he had ear tests, then ear tubes due to fluid, then had him

> > enrolled him in the " babies can't wait and early intervention " He has

> > been seeing a speech pathologist ever since.. the other day (the

> > specialist and director of speech pathology at children's healthcare.)

> > informed me that he did in fact have a moderate case of Apraxia and he

> > would be in speech for a long time... He has the classic symptoms.

> > PS: I will also enroll him in a study about a correlation between mild

> > craniostenosis and apraxia... apparently they are finding a connection

> > and my son had that as well..along with other things...

> >

> > He is also in pre-k two days a week, I feel the setting with other

> > normal kids his age has been a blessing.. he plays very well and listens

> > to the teacher very well. He is a really good listener. He loves to

> > repeat things and is very good during speech lessons so that has also

> > been a blessing.

> >

> > Today I called the local hospital and they have a speech center there so

> > I am going to take him there and with a letter from his doc our

> > insurance will cover it, he will need this one on one time because right

> > now he is in a group speech program twice a week (1/2 hour each). This

> > will be 45 minutes of one on one and be added to the other two sessions

> > of group.. so he will have three days a week, two with group and one

> > with one on one..

> >

> > To all of you with children with Apraxia of speech what have been your

> > experiences and what has helped the most..how long until they can talk

> > normal and how long do they typically stay in speech? What age? I

> > realise each child will vary, but just trying to get an idea...any

> > advise would be very much appreciated. Thanks so much.

> >

>

[Guest guest]

Thanks I also thought he was acting like a typical 3.5 yr old boy, but

it didn't help at the time..I know I will never take him to another one

like that. I really had no idea it was going to be that way. It was way

too uncomfortable for both of us..He is also into sports and is very

coordinated so I am looking forward to him playing t-ball next year.. My

son is the same way about school, a complete angel, I have never got one

bad report, go figure..I think he is still working out his boundaries

with me and maybe I need to put my foot down a little more before it

gets out of control, he is good for everyone else but me.. ? But he has

issues with me when I reprimand him, he pouts and asks if I still love

him so it makes me feel guilty...

> > >

> > >

> > > New Here.......My son is 3, has been in speech since 2yrs old,

today

> I

> > > just had it confirmed he has Apraxia of speech. I noticed the

delay

> at

> > > 18 months, he had ear tests, then ear tubes due to fluid, then had

> him

> > > enrolled him in the " babies can't wait and early intervention " He

> has

> > > been seeing a speech pathologist ever since.. the other day (the

> > > specialist and director of speech pathology at children's

> healthcare.)

> > > informed me that he did in fact have a moderate case of Apraxia

and

> he

> > > would be in speech for a long time... He has the classic symptoms.

> > > PS: I will also enroll him in a study about a correlation between

> mild

> > > craniostenosis and apraxia... apparently they are finding a

> connection

> > > and my son had that as well..along with other things...

> > >

> > > He is also in pre-k two days a week, I feel the setting with other

> > > normal kids his age has been a blessing.. he plays very well and

> listens

> > > to the teacher very well. He is a really good listener. He loves

to

> > > repeat things and is very good during speech lessons so that has

> also

> > > been a blessing.

> > >

> > > Today I called the local hospital and they have a speech center

> there so

> > > I am going to take him there and with a letter from his doc our

> > > insurance will cover it, he will need this one on one time because

> right

> > > now he is in a group speech program twice a week (1/2 hour each).

> This

> > > will be 45 minutes of one on one and be added to the other two

> sessions

> > > of group.. so he will have three days a week, two with group and

one

> > > with one on one..

> > >

> > > To all of you with children with Apraxia of speech what have been

> your

> > > experiences and what has helped the most..how long until they can

> talk

> > > normal and how long do they typically stay in speech? What age? I

> > > realise each child will vary, but just trying to get an idea...any

> > > advise would be very much appreciated. Thanks so much.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks, I actually just ordered that book from Amazon, can't wait to get

it. I am now trying to find out which fish oil supps to get, I was

reading on the cherabs website that the Nordic Naturals ProEFA was the

best, but I don't know the child dose..if anyone knows please let me

know.

I guess what makes me so upset is I told the doctors at age 18 months

something was very wrong.. they assured me that some kids just take

longer. Then a few weeks later I was at a park and a little boy my sons

age was there and it hit me how behind he was in speech and I demanded

the doctors test him. They checked his hearing and he had some loss

there due to the ear infections so he got ear tubes at age 2.3yrs at

this point I had already researched apraxia and asked the doctors about

it and autism, I then enrolled him in Babies can't wait (early

intervention) a speech patholigist came to my home a few times a month

and gave us about 30 minute sessions, he described my sons speech as

articulation disorder..he didn't think he had autism or apraxia,

although he said they could tell more after he was older. He was then

enrolled at age 3 to the Pre-k speech through the state where he

currently is in a small group with a speech patholigist, I explained

all this to her and told her the diagnosis of Apraxia and she will do

one on one next year. In the meantime I am trying to get him help

privately, but not sure how insurance will cover it. He did have

craniostenosis at birth and other issues so he may qualify for physical

and not developmental so that may help.. thanks again for all the kind

words and advise..

> > >

> > >

> > > New Here.......My son is 3, has been in speech since 2yrs old,

today I

> > > just had it confirmed he has Apraxia of speech. I noticed the

delay at

> > > 18 months, he had ear tests, then ear tubes due to fluid, then had

him

> > > enrolled him in the " babies can't wait and early intervention " He

has

> > > been seeing a speech pathologist ever since.. the other day (the

> > > specialist and director of speech pathology at children's

healthcare.)

> > > informed me that he did in fact have a moderate case of Apraxia

and he

> > > would be in speech for a long time... He has the classic symptoms.

> > > PS: I will also enroll him in a study about a correlation between

mild

> > > craniostenosis and apraxia... apparently they are finding a

connection

> > > and my son had that as well..along with other things...

> > >

> > > He is also in pre-k two days a week, I feel the setting with other

> > > normal kids his age has been a blessing.. he plays very well and

listens

> > > to the teacher very well. He is a really good listener. He loves

to

> > > repeat things and is very good during speech lessons so that has

also

> > > been a blessing.

> > >

> > > Today I called the local hospital and they have a speech center

there so

> > > I am going to take him there and with a letter from his doc our

> > > insurance will cover it, he will need this one on one time because

right

> > > now he is in a group speech program twice a week (1/2 hour each).

This

> > > will be 45 minutes of one on one and be added to the other two

sessions

> > > of group.. so he will have three days a week, two with group and

one

> > > with one on one..

> > >

> > > To all of you with children with Apraxia of speech what have been

your

> > > experiences and what has helped the most..how long until they can

talk

> > > normal and how long do they typically stay in speech? What age? I

> > > realise each child will vary, but just trying to get an idea...any

> > > advise would be very much appreciated. Thanks so much.

> > >

> >

>

[Guest guest]

That I understand all to well, when it really 'hits home' and you understand the

speech is so very hard for them. My daycare provider has a range from 4.5 to my

youngest who is 9 months ... a little boy there who is a full year younger than

my son (Liam who has apraxia) can talk so very clearly ... full sentences. It

sometimes breaks my heart. But I too surround Liam with those who know about

his speech delay. But I also know I am going to have to get him in sports with

other children. For his sake. He is a very athletic type, wants to play soccer

with his older brother all the time. So I know it will be good for him. I just

dread 'the look' I know others will be giving.

Anyway ... good luck to us both I guess! And to our babies.

________________________________

From: pinkribbonangels <jwren@...>

Sent: Sunday, March 29, 2009 9:48:23 PM

Subject: [ ] Re: New here, 3.5 yr old just diag. with Apraxia

of speech.. have questions..

Thanks,

I know this was a hard day for both of us. I think it was the first time that

the " speech delay " really effected our normal day. Most of the people we

surround him with already know and just accept him, as they did to some extent,

but I just wanted to cry for him when the other kids were able to sing the songs

and he couldn't, I guess it really hit me at that point. thanks for the kind

words..

> > >

> > >

> > > New Here.......My son is 3, has been in speech since 2yrs old, today

> I

> > > just had it confirmed he has Apraxia of speech. I noticed the delay

> at

> > > 18 months, he had ear tests, then ear tubes due to fluid, then had

> him

> > > enrolled him in the " babies can't wait and early intervention " He

> has

> > > been seeing a speech pathologist ever since.. the other day (the

> > > specialist and director of speech pathology at children's

> healthcare.)

> > > informed me that he did in fact have a moderate case of Apraxia and

> he

> > > would be in speech for a long time... He has the classic symptoms.

> > > PS: I will also enroll him in a study about a correlation between

> mild

> > > craniostenosis and apraxia... apparently they are finding a

> connection

> > > and my son had that as well..along with other things...

> > >

> > > He is also in pre-k two days a week, I feel the setting with other

> > > normal kids his age has been a blessing.. he plays very well and

> listens

> > > to the teacher very well. He is a really good listener. He loves to

> > > repeat things and is very good during speech lessons so that has

> also

> > > been a blessing.

> > >

> > > Today I called the local hospital and they have a speech center

> there so

> > > I am going to take him there and with a letter from his doc our

> > > insurance will cover it, he will need this one on one time because

> right

> > > now he is in a group speech program twice a week (1/2 hour each).

> This

> > > will be 45 minutes of one on one and be added to the other two

> sessions

> > > of group.. so he will have three days a week, two with group and one

> > > with one on one..

> > >

> > > To all of you with children with Apraxia of speech what have been

> your

> > > experiences and what has helped the most..how long until they can

> talk

> > > normal and how long do they typically stay in speech? What age? I

> > > realise each child will vary, but just trying to get an idea...any

> > > advise would be very much appreciated. Thanks so much.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Wow - reading this sounds so familiar! I still have nightmares about taking my

2 year old son to (parented) gymnastics (he's 3 now and things are improving,

slowly). But hey ... gymnastics for 2 year olds you would think might mean lots

of kids moving around and having fun. Well, apparently not. My son was the

only one not sitting and listening to the teacher, and not doing the prescribed

activities. He wouldn't even stay in the proper section of the gym and all I

got from the other parents were looks like " can't you control your kid " and

" what's wrong with him that he can't listen to the teacher " , etc. I drove home

from those lessons crying more than once. Just a kind word or a look of

understanding would have gone a long way but I really came away with worries

about my son having ADHD or something else similar. Just last week we went for

dinner to a friend's house. She has a 9 year old son who made comments about my

son several times ( " he's so weird " , for one). This is because my son didn't

want to sit at the table and participate in a discussion after he had finished

eating. He asked to be excused to play with the exciting toys (always better

stuff at other people's houses) and his way of talking and playing was really

noticed in a negative way. (Of course my friend scolded her son but still the

damage was done .. I had heard him). I have been feeling really positive lately

about my son's progress both speech and behaviour-wise, but this did give me a

jolt of reality to see that in the " real world " I guess we still have a ways to

go.

>

> Thanks, I hope things get better here too..That's awesome about the

> reading!!! I too notice some behavior issues, as a matter of fact we

> just got home from a birthday party for a little girl in his class and I

> had to leave early.. I was so uncomfortable and embarrassed.. Even

> though everyone acted like they understood and welcomed us to stay I

> couldn't wait to get out of there.. Normally it's not this bad because

> other kids are also running around, so he blends in. Well this birthday

> party was all girly.. (there was only one other little boy he was 2 and

> very quiet.) All the parents were very nice and the little girls were

> all very polite and then there is my little guy grabbing balloons and

> running around having fun, when one parent saw her little girl get a

> balloon and run with him she scolded her and made her put it back so of

> coarse I felt I should do the same so I told my son to put the balloon

> back until it was time to get them and play with them, of coarse that

> didn't go over well with him and he proceeded to yell at me " mommy!!!! "

> It started there and just kept getting worse, at one point he grabbed a

> cookie after he saw the birthday girl do it and they hadn't served the

> food yet. Noone noticed her getting it first, but they noticed the

> meltdown my son had after I tried to stop him from going back for more.

> Then they sang happy birthday and I guess the dad wanted a photo and

> video of his daughter by herself without the other kids cause all the

> other kids stepped away from the cake, but my son wanted to be in the

> picture and when I tried to move him over, he yelled again and right

> during the quiet singing of happy birthday. I say quiet cause this had

> to be the most quiet and structured birthday party I have ever been to,

> it was almost as if they wanted to structure how the kids have fun. It

> was very weird for me, I just had to leave I couldn't deal with the

> opening of the presents, I could just see all the other kids sitting

> down being silent as she opens her gifts and there is my son trying to

> go help her open the gifts and having a fit if I try and stop him... I

> apologized to the mom but she was very sweet and told me not to

> apologize that they all had fun and she was glad we came.. I somehow

> don't think her husband felt that way, I felt like my son ruined daddy's

> little girl's party, the grandma gave me some dirty looks as well. I

> even made my son apologize, to the best of his speaking ability. Oh

> one last thing, I felt so bad for him, at one point all the other kids

> were taking turns on a little stage they set up and singing twinkle

> twinkle little star into a real microphone and they asked my son to do

> it, and of coarse it sounded nothing like it, and everyone was sort of

> looking at him and it was completely silent and the mom asked him if he

> knew that song and he shook his head yes, but then proceeded to sing it

> and it still sounded nothing like it, and I think he realized that he

> was doing it wrong, but I said good job to him and got him down from

> there. I don't know if any of them realized before this party that he is

> speech delayed but I guess they do now, but I can't help but wonder if

> they think he has developmental issues as well. I know he has meltdowns

> from time to time, but I have seen many boys his age do the same and I

> just think girls are alot different when they are grouped with all girls

> and boys stick out more in that setting. Would you agree? (btw...girls

> can be rowdy too) I mean my son isn't always jumping off the walls,

> lol.. He does sit and listen and play quietly too..