Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 The good news is that for most women not being able to run and kick a ball at the same time isn't life altering -and even when we think we're good at it " boys " say " you run and kick like a girl " anyway! If I were you I would continue to explore mainstream activities that you can continue to enroll her in where she can continue to improve on her skills -while she is also socially in a situation where she can make more friends and learn to excel at activities that help her socialize with her peers. Dance, gymnastics, karate, swimming -even drama! (check out local theaters if they offer any classes where she can be cast in a play. I feel strongly about theater for our children as they get to memorize scripts for motor memory -and build self esteem by speaking in front of crowds -and who knows -she may get a dance number too!) As far as balance there's ice or roller skating/blading lessons, water or snow skiing or snow/skate boarding lessons...and why not just buy a ripstick? We have gone through 2 of those so far but both by Dakota. If there was a ripstick class I would put Tanner in it! (hey I should look for that!) See now if she got good at something like ripstick- that would make her " cool " to her friends! (I live near Club Med and you can tell the kids doing it are very proud of themselves) Actually speaking of which they have Crunch classes there and for sure one of the best balance exercises is the BOSU (stands for both sides up) ball! So much fun and just like the name implies -those that achieve balance can use it both ways. here's a program that incorporates the learning breakthrough program from You Tube here's a BOSU class from You Tube http://www.youtube.com/watch?v=ZZfnTabGKx4 (the basic) (the advanced) http://www.bosu.com/ Mainstream classes can be inexpensive -around 60 dollars for 2 months or more of classes. (it gets shocking cheap going from special needs stuff to mainstream stuff!! The first time I put my boys in karate I had to bite my tongue to keep from squealing in laughter when they told me the cost! " I'll prepay to sign them up for next year too! " ) It appears if you were going to " try " one of these methods however - learning breakthrough would be much cheaper (thousands to hundreds) if it didn't work -and if it didn't work you could resell it on Ebay! http://www.learningbreakthrough.com/index.php?page=11x_dore_method Learning Breakthrough came up twice before -questions about it like you. Here's the two archives for this (perhaps you can email them and see if either ever tried it) and below that are some of the archives for DORE. It appears that more of our UK members questioned this -and one did try it: ~~~~~~~~~~~~~start of archives Wed Feb 4, 2004 6:19 pm Www.learningbreakthrough.com sunsetdancer2000@... Learning Breakthrough Program sawyera@... Tue Aug 5, 2003 11:12 pm I saw an intersting story on the local news tonight about this new program for various types of learning disabilities (i.e. ADHD, ADD, Dyslexia, Sensory Integration Dysfunction, etc.) that I thought I'd share with everyone. The website is www.learningbreakthrough.com and the person that originated the program in the US is in West Palm Beach, Florida. They had parents and children on the news story that had used the program and they spoke very highly of it. You might be able to read about the news story at www.wptv.com as well. I believe it was on the 5:00 p.m. News. Has anyone used the learning breakthrough system for speech improvement? Of course, they promise miracles. There was an article in -Womans World magazine's current issue...in which a mother of a son (who had never spoken clearly or been able to do well reading in school) had great success using this program. It was developed by a teacher working with a NASA scientist. It involves certain excercises to increase eye development & balance as astronauts do...etc. Has anyone tried this? I don't want to make a major purchase for nothing. As far as the Dore program that has come up in the archives but because of the high costs and negative press about it even being worth it -such as this one http://www.myomancy.com/2006/11/scientists_resi most haven't explored it. There's one parent named Sara from the UK that was happy with it -in the UK it's called DDAT. Most of the archives are people asking about it however Re: [ ] Re: Dore Achievement Center Thu Oct 23, 2003 1:07 am Hi Kim, Sara from the UK, who could not post to the group, sent me this email herself. Thought I would share it with you. I asked for the literature to be sent and I watched the 60 Minutes episode. The episode was interesting. The man really improved his reading after 9 months. The 5 year old girl said she noticed a difference but for some reason they did not ask her to read again after 9 months so I am wondering if she made that much of an improvement. I'll let you know what I think of the literature they send us. Hello Sorry I can't post on the list - until I manage to tell my new computer I'm me, not my husband, it won't accept my posts! ) You are welcome to forward this to the list as part of a reply - some of the old hands may still recognise my name.) We've been to the DDAT centre, as it is called here in the UK. (Dore is the name of the founder, Winford Dore, and is the name they seem to be using in the US.) It is wonderful. Everything they claim about handwriting skills, bike riding and so on is true - for us, anyway. My son's teacher couldn't believe her eyes when, within three pages of his exercise book, my then nine year old's handwriting went from something that looked as though it was done by a three year old to something that an eleven year old would be proud of. No slippage in the two years since, either. The real problem I think they have is that their claims sound like something too good to be true, the kind of hype that one is wise to disbelieve. But I don't see how they can get round that because in their case, it is true. I'd advise everyone with anything from dyslexia through to the most severe dyspraxia to get there as fast as they can. The only word of advice I would give to people who go is not to get the dyspraxic child to do all the exercises alone. My son found it a bit hard to be the sole focus of attention. Once his brother joined in and we made it a sort of family exercise, he enjoyed it. And I know this sounds as if they're paying me - but they're not! Sara e -- Sykes [ ] Re: Dore Achievement Center Yes, I have heard about the Dore Achievement Center, it was on our local Chicago news about 3 weeks ago. It looked very interesting, but does cost about $2,500.....so I would want to know if it really works before putting down that kind of money. I will say though, It looked very interesting, and a different multi-sensory approach. I would love to know what you think about the CD. Please keep us informed and thanks for telling us about the 60 minutes thing. Kim Re: DORE programme Thanks for passing this article on. I appreciate the feedback. It is better to warned early before a financial transaction takes place and hopes are raised. Loreta > > Did you guys see this recent article on Dore? May want to if not: > > Dyslexia 'cure' fails to pass the tests > > > Ben Goldacre > Saturday November 4, 2006 > The Guardian > > > Wouldn't it be great if there was a really expensive proprietary > cure for dyslexia? Oh hang on, there is: paint tycoon Wynford Dore > has developed one, with Nasa space technology. It costs £1,700, has > celebrity endorsements, involves some special exercises, and it's a > secret how it works, but it has been proven with experts. " A > revolutionary drug-free dyslexia remedy has been hailed a wonder > cure by experts, " said the Mirror on Monday. And in the > Mail: " Millions of people with dyslexia have been given hope by a > set of simple exercises that experts say can cure the disorder. " > This most recent wave of publicity was prompted by a paper on Dore's > miracle cure published in the journal Dyslexia. The story of why > they should publish such a flawed study is, perhaps, for another > day. But what might have made journalists approach this story with a > slightly critical eye? > > Well, giants of investigative journalism giants Tonight with Trevor > Mc and and Judy have already had their wrists slapped > by the ITC for promoting Dore's as a cure for dyslexia, on two > separate occasions. > > Those were based on a previous paper so flawed (even before it was > subsequently misrepresented in the media) that it prompted an > unprecedented nine critical commentaries to be published in > Dyslexia. > > These commentaries pointed out that the subjects were not > randomised - the experimenters could choose whether to put each > child in the treatment group or the control group - and the two > groups were mismatched in a way that could have advantaged the Dore > treatment. The control group's treatment was " nothing " , which was > bound to produce an unfavourable result, compared with the attention > lavished on children having the Dore treatment. > > Progress was measured, bizarrely, with screening tools rather than > validated tests, as we shall see later. The statistics were flawed. > The details of the treatment were explicitly withheld because it > was " commercially sensitive " . The evaluators were not blinded. And > so on. In fact, Dore's last storm of " miracle cure " publicity was so > bizarre that Nasa was inundated with inquiries and publicly stepped > in with a press release to refute claims in the Independent and New > Scientist that Dore used special Nasa space technology and exercises > in the cure (Dore denies involvement in these claims). When you're > so out there that the guys from Star Wars have to shoot you down, > then you really know you're getting somewhere. > > But what about this current study? Well, it's a follow-up of those > original children. Hope in the Daily Mail says there were 35 > children with dyslexia. In fact only 29 children were followed up in > this study, and only eight of those had a diagnosis of dyslexia or > dyspraxia. Some were, in fact, reading very well - up to 22 months > ahead of their reading age - before the treatment started. If she'd > read the study carefully she might have flagged up some other flaws > in it. There was no control group this time, all the children had > the Dore miracle cure, so there's no way of knowing if the > improvements were due to Dore or some other factors (the passage of > time, or just receiving extra input). > > The children's progress was again measured with the " dyslexia > screening tool " , an odd choice: and gains were not made in reading, > spelling, and writing in the DST, but in bead threading, balance, > and rapid naming. > > DST is a screening test, not something you would use for repeated > measures of development, and these improvements could reflect, for > example, practice at doing the test. > > I get nerdier. The study reports benefits in Sat scores and > something called " NFER " scores, but these contradict the DST data, > and have other problems: Sat scores, for example, are not formal > psychometric developmental measures, they are political audit tools, > and they are " peer-referenced " with vague, ill-defined criteria at > each level. > > Congratulations on getting this far. If your attention is starting > to flag, then that only goes to show how commercially unattractive a > real story, critically appraising real research, would be for a > tabloid. I give up. It's a miracle cure. > > · Send your bad science to bad.science@... > http://www.guardian.co.uk/life/badscience/story/0,,1939372,00.html > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Em, I actually have the learning breakthrough program and to be honest.... never really set it up! Your daughter is doing soooo well! I think that I would try to keep her involved athleticly in outside endeavors. We want to build her up socially and physically and start to push her forward through to her peer group. When there are peer problems then you can pull her back slightly but as long as she is thriving.... continue to push her forward into the mainstream. If you wish to work hand to eye: playing badminton in your backyard using a large balloon instead of a birdie is a ton of fun and even kids who are badminton champs (like my daughter was) have a blast doing this. Just bat the thing around together; you might find yourself even laughing out loud. This will really work her hand-eye coordination and badminton is an easy sport for most kids to pick up. Mark even made the team this year at school. Another game/toy that is good is Hyper Dash by Wild Planet. It has a main stick with a bunch of little becons. You set up the beacons around the yard and the main controller calls out instructions to 'dash' to the beacon of its choice. It is meant to work agility in young ones. We want to keep her nice and strong so you may consider gymnastics as it really works that core strength but it indeed sounds like you are doing a whole lot already! One of the things on Mark's program that is easy and fun to do is Dance, Dance Revolution (it is a game on Xbox 360 or Nintendo.... I think it comes on playstation 3 as well) and Mark does 15 minutes of this a day to work his proprioception. You are doing really well in the motor planning area and the next area you should focus on is hand strength.... not that you want to get a 7 year old weight lifting! But there are things you can do such as hanging from the monkey bars that work hand strength. Also popping pop bubble wrap from the shipping store.... pop a strip each day to work those weak wrists so that she will be able to write decently. Have her push a vaccum, shovel snow.... anything and everything to work her hands. Fortunately, horse back riding will really help in that area as well. Truly a magnificent therapy for our kids! Other items you might consider is purchasing a hand strengthener from the athletic store and have her do a few reps. each evening when she's watching her favorite TV show. Sneak the therapy stuff in and don't make too huge a deal of it with her unless she begins to struggle. If she starts to struggle then you need to fight her dyspraxic sympmtoms with all of your guns! Hope this gives you some ideas. Look at the toy store as your first weapon since there are some really great developmental ideas that can be 'fun' and not 'therapy'. But.... I warn you about the hands which are really tricky for dyspraxics. Just today Mark busted the button on his brand new jeans. Who does that? I mean, the thing is pretty strong and durable.... designed for years of use. But he snaps it off.... no problem! GRRR! It is because he will push it through in a way that NO ONE else ever would.... so the thing breaks. Yes... the hands are an issue and they take forever to resolve. Mark just lacks that innate understanding of how to work his hands that all of us seem to have. But we will build it into him if it takes my whole life! I will conquor the hands!!!!! This is my vow! Janice Mother of Mark, 13 [sPAM][ ] Developmental Ped Appointment: What Do You Think? I recently had a developmental pediatrician re-evaluate my child along with an OT. I have not received the " formal " report yet, but did talk with the doctor. I am not sure exactly what the report will say, but basically he said that she had some mild hypotonia (mostly resolved) and what he termed " coordination isssues " . He said that the horseback riding and other activities (running) would continue to help the hypotonia, but said it was now mild enough that I didn't really need to worry. I am wondering about the coordination issues. She is much improved (she is seven) -- as I wrote before, she can participate in dance class! But she isn't always graceful, and can have problems skipping rope and playing soccer (she is very fast, but running and kicking at the same time seems difficult). I have thought about " Learning Breakthrough " which is based on the Belgau balance board (and supposedly is somewhat like the Dore program -- but I cannot find much info on this). Has anyone else faced these issues and, if so, what was your solution? Is this an OT issue? These issues are really quite minor compared to the speech articulation, but I would like to do what I can to *fix* everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 I never consider anything minor, because it's all interrelated. I think coordination is really important, and I wish I was more coordinated. Janice is probably the one to give you great advice, because coordination problems can come from so many different problems -- vestibular, proprioceptive, visual, etc. has visual mixed dominance, and we hope that correcting that problem will lead to better motor skills. We'll see. in NJ > > I recently had a developmental pediatrician re-evaluate my child along with an OT. I have not > received the " formal " report yet, but did talk with the doctor. > > I am not sure exactly what the report will say, but basically he said that she had some mild > hypotonia (mostly resolved) and what he termed " coordination isssues " . He said that the > horseback riding and other activities (running) would continue to help the hypotonia, but said > it was now mild enough that I didn't really need to worry. > > I am wondering about the coordination issues. She is much improved (she is seven) -- as I > wrote before, she can participate in dance class! But she isn't always graceful, and can have > problems skipping rope and playing soccer (she is very fast, but running and kicking at the > same time seems difficult). > > I have thought about " Learning Breakthrough " which is based on the Belgau balance board > (and supposedly is somewhat like the Dore program -- but I cannot find much info on this). > Has anyone else faced these issues and, if so, what was your solution? Is this an OT issue? > > These issues are really quite minor compared to the speech articulation, but I would like to > do what I can to *fix* everything. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Tracey, I totally agree nothing is minor. I did not mean to downplay it. I did feel the doctor was downplaying it, and if I had to choose only one area to work on, it would be speech, only because this is her primary issue. But, of course, lucky me, I don't have to choose -- I can try to remediate all the issues! I am not sure how many children on this board are similar to my sweet child. She has hit all of her milestones in the average range (though usually toward the later part of the average range) except for speech. The speech articulation was significantly delayed, and it has been a long, difficult journey already to attempt to get her so she could be understood -- and now that she is understood, there is still a lot of room for progress, as her speech comes across as " more babyish " than her peers. I would love for her to be more graceful and coordinated so that she can fully play and make friends. When you have a delay in one area, it is such a gift if you can at least keep up in the other areas. So, while saying she has trouble skipping rope when others are turning the rope may provoke an eye-roll (as in how stupid can this woman be worrying about this sort of thing), you don't realize how important it is until you hit recess and see ALL the other girls lining up for a turn to jump. (Same with soccer -- I literally laughed out loud at 's comment about running and kicking, because she is so right -- it is definitively NOT an essential life skill. And yet, my daughter has noticed that when the going gets tough during her little soccer games (the score is tight), she spends more time on the bench than almost anyone. I love for her to do mainstream activities because she is sooooo tired of therapy and these are usually fun for her. But I also worry about her self-confidence. She has remained in dance and has worked hard enough to blend; but in gymnastics, I had to pull her out because she just wasn't able to keep up with the group (these girls were walking backwards on the balance beam, doing headstands unassisted, flipping, cartwheels, etc.). Although she is really a very girly-girl, I have thought about martial arts, but once again, was a little concerned about her keeping up and being able to blend. I thought something private (like the Learning Breakthrough) might be the way to go, though I just heard from someone who told me that it involved juggling bean bags and throwing/catching balls while on a balance board. While I can see keeping her interest for a while with those type of activities, I am not sure I could keep her going long enough to get $400 worth of use out of the equipment. (Janice, the fact that your Leaning Breakthrough is still in the box is HUGE for me because I know if you thought this was what your son needed, he'd be balancing and juggling every day.) I was going to call our OT -- but this is the OT who worked on fine motor issues with us for a year and never said a solitary word about coordination/balance issues, so I am not sure. ly, right now the Dance Dance Revolutions sounds more fun! (I just saw the Wii tennis and bowling and they looked fun too!) Can true therapy that really works actually be simple and fun?????? > > > > I recently had a developmental pediatrician re-evaluate my child > along with an OT. I have not > > received the " formal " report yet, but did talk with the doctor. > > > > I am not sure exactly what the report will say, but basically he > said that she had some mild > > hypotonia (mostly resolved) and what he termed " coordination > isssues " . He said that the > > horseback riding and other activities (running) would continue to > help the hypotonia, but said > > it was now mild enough that I didn't really need to worry. > > > > I am wondering about the coordination issues. She is much improved > (she is seven) -- as I > > wrote before, she can participate in dance class! But she isn't > always graceful, and can have > > problems skipping rope and playing soccer (she is very fast, but > running and kicking at the > > same time seems difficult). > > > > I have thought about " Learning Breakthrough " which is based on the > Belgau balance board > > (and supposedly is somewhat like the Dore program -- but I cannot > find much info on this). > > Has anyone else faced these issues and, if so, what was your > solution? Is this an OT issue? > > > > These issues are really quite minor compared to the speech > articulation, but I would like to > > do what I can to *fix* everything. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 " ly, right now the Dance Dance Revolutions sounds more fun! (I just saw the Wii tennis and bowling and they looked fun too!) Can true therapy that really works actually be simple and fun?????? " YES YES YES -sorry I didn't mention that either -but yes they are awesome- fun and nobody but you would look at playing that as " therapy " (and PS we have both the Wii and Xbox version and it comes in Xbox Live too ) " The hottest revolution and bestselling video game in the music game category continues its long tradition of innovation and creativity with an entirely new game for the next-generation! Dance Dance Revolution UNIVERSE, exclusively designed for Xbox 360™, takes dancing to a whole new dance floor—offering features and options not possible until now. Dance Dance Revolution UNIVERSE is designed to be a " universal " DDR—a game that everyone can play and enjoy, including anyone with two left feet. " http://www.xbox.com/en-US/games/d/ddruniverse/ Isn't that funny -even if you have two left feet?! But that was the point I was trying to make in my email was that mainstream stuff not only can be very inexpensive and replace some " therapy " but it can be therapy -and fun. And of course the side effect is the social aspect which is very positive! If your child is not doing as well in soccer let's find her activities where she is up to speed -and when she isn't yet - she's not so head to head with others. Keep her self esteem high. So unless her dream is soccer why not ballet or gymnastics or karate? Try to find activities that she can either compete with herself -or that are done in a group where nobody is pointing her out as to " how well she can run and kick the ball " Jump rope I agree with Janice -go for it with her as that's a wonderful exercise for us (parents) and can be lots of fun too! Tie one side to something and this way you can take turns practicing even with just the two of you. Besides if you're all uncoordinated with how to jump into the jump rope you can show her not everyone can do this. In the Magic Kingdom sometimes they have people standing on Main street with a large jump rope for people to try to jump in -and guess what -I never tried and most everyone that does messes up. That 's not dyspraxia -that's lack of practice. I'm not saying she isn't graceful enough -perhaps she isn't- but that's a skill that you can work on. Besides when I think of someone being graceful I don't think of a soccer player for a woman -but a dancer or a gymnast " Dancing is a great physical activity; it requires a lot of movement. The good thing about dancing, children can learn to be graceful and well coordinated. " http://www.associatedcontent.com/article/366199/advantages_of_childrens_dance_le\ ssons.html And my neighbor is a professional golfer with the LPGA who was ranked once as one of the top in the world without me asking her offered to teach me golf because she knows I'm athletic and wants to see how I'd do. My HUSBAND started laughing and said that when it comes to golf he's seen me try and forget it. Oh because once I tried to hit a ball and he's seen me play miniature golf (I rock at miniature golf - he's just jealous) Needless to say she's going to take me and I'll let you know what she says -and I know she'll be honest. Bottom line is that I may be excellent at BOSU or jogging or water skiing or swimming and used to be an exercise instructor at the the NY Health and Racquet and a lifeguard for years -and may totally suck at golf - but because my husband laughed about it I'm going to have to prove him wrong. Before I wouldn't have cared! And who is good at every sport anyway?!! Also I don't agree. It's OK to look at it as minor -don't apologize for it. Your daughter is 7 years old doing amazing and in the mainstream - and obviously you are still working with her and have been working on whatever she needs for years and years. It's OK to give both you and her a pat on the back and say " we're not there yet -but we're getting there " and not feel everything has to be perfect because last I checked even the people running for President of the US are not - nobody is. The only thing that I would go by is what is upsetting her -work on those things. The fact that the neuroMD isn't concerned and the fact that she's passed all her motor skills on time or early and the fact that she's athletic at all shows that whatever her issue may be is mild. Talk to her about it and let her know you'll find some fun ways to get her up to speed...and if she doesn't need to be in soccer perhaps there's something more fun. When one door closes another one opens -and perhaps this door will blow away soccer. My one niece is awesome at soccer and loves it -her two sisters are not into it at all. One is into drama and the other is into just being a girl stuff. Wii and Xbox both have soccer games! So cheer her on for me where she is right now! Perhaps she'll kick booty against the other girls when they play head to head Wii or Xbox. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 , Janice and Tracey -- Can I just say you are all awesome!!!! Thank you so much!!! > > " ly, right now the Dance Dance Revolutions sounds more fun! (I > just saw the Wii tennis and bowling and they looked fun too!) Can true therapy that really works actually be simple and fun?????? " > > YES YES YES -sorry I didn't mention that either -but yes they are > awesome- fun and nobody but you would look at playing that > as " therapy " (and PS we have both the Wii and Xbox version and it > comes in Xbox Live too ) > " The hottest revolution and bestselling video game in the music game > category continues its long tradition of innovation and creativity > with an entirely new game for the next-generation! > > Dance Dance Revolution UNIVERSE, exclusively designed for Xbox 360™, > takes dancing to a whole new dance floor—offering features and > options not possible until now. Dance Dance Revolution UNIVERSE is > designed to be a " universal " DDR—a game that everyone can play and > enjoy, including anyone with two left feet. " > http://www.xbox.com/en-US/games/d/ddruniverse/ > > Isn't that funny -even if you have two left feet?! But that was the > point I was trying to make in my email was that mainstream stuff not > only can be very inexpensive and replace some " therapy " but it can be > therapy -and fun. And of course the side effect is the social aspect > which is very positive! > > If your child is not doing as well in soccer let's find her > activities where she is up to speed -and when she isn't yet - she's > not so head to head with others. Keep her self esteem high. So > unless her dream is soccer why not ballet or gymnastics or karate? > Try to find activities that she can either compete with herself -or > that are done in a group where nobody is pointing her out as to " how > well she can run and kick the ball " > > Jump rope I agree with Janice -go for it with her as that's a > wonderful exercise for us (parents) and can be lots of fun too! Tie > one side to something and this way you can take turns practicing even > with just the two of you. Besides if you're all uncoordinated with > how to jump into the jump rope you can show her not everyone can do > this. In the Magic Kingdom sometimes they have people standing on > Main street with a large jump rope for people to try to jump in -and > guess what -I never tried and most everyone that does messes up. > That 's not dyspraxia -that's lack of practice. I'm not saying she > isn't graceful enough -perhaps she isn't- but that's a skill that you > can work on. Besides when I think of someone being graceful I don't > think of a soccer player for a woman -but a dancer or a gymnast > > " Dancing is a great physical activity; it requires a lot of movement. > The good thing about dancing, children can learn to be graceful and > well coordinated. " > > http://www.associatedcontent.com/article/366199/advantages_of_childrens_dance_le\ sso ns.html > > And my neighbor is a professional golfer with the LPGA who was ranked > once as one of the top in the world without me asking her offered to > teach me golf because she knows I'm athletic and wants to see how I'd > do. My HUSBAND started laughing and said that when it comes to golf > he's seen me try and forget it. Oh because once I tried to hit a > ball and he's seen me play miniature golf (I rock at miniature golf - > he's just jealous) Needless to say she's going to take me and I'll > let you know what she says -and I know she'll be honest. Bottom line > is that I may be excellent at BOSU or jogging or water skiing or > swimming and used to be an exercise instructor at the the NY Health > and Racquet and a lifeguard for years -and may totally suck at golf - > but because my husband laughed about it I'm going to have to prove > him wrong. Before I wouldn't have cared! > > And who is good at every sport anyway?!! > > Also I don't agree. It's OK to look at it as minor -don't apologize > for it. > > Your daughter is 7 years old doing amazing and in the mainstream - > and obviously you are still working with her and have been working on > whatever she needs for years and years. It's OK to give both you and > her a pat on the back and say " we're not there yet -but we're getting > there " and not feel everything has to be perfect because last I > checked even the people running for President of the US are not - > nobody is. > > The only thing that I would go by is what is upsetting her -work on > those things. The fact that the neuroMD isn't concerned and the fact > that she's passed all her motor skills on time or early and the fact > that she's athletic at all shows that whatever her issue may be is > mild. Talk to her about it and let her know you'll find some fun > ways to get her up to speed...and if she doesn't need to be in soccer > perhaps there's something more fun. When one door closes another one > opens -and perhaps this door will blow away soccer. My one niece is > awesome at soccer and loves it -her two sisters are not into it at > all. One is into drama and the other is into just being a girl stuff. > > Wii and Xbox both have soccer games! > > So cheer her on for me where she is right now! Perhaps she'll kick booty against the other girls when they play head to head Wii or Xbox. > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Em.... If you want her to jump rope.... guess who gets to teach her!!! YOU! She can learn it and it is the same with all dyspraxic skill sets...... if you do it... the motor planning will come (but do you have the patience?) So get out that rope and tie the other end to the post and start chanting those rhymes! I would start with Tic, Tic where they jump over the rope and around the rope without touching it..... I think they also jump on the rope for this one as well..... Can she do a single jump rope? If so, then it is really great aerobic exercise as well. Remember, that brain and those motor connections respond to intensity so for her to learn it (and jump rope is definately ambitious for a dyspraxic)..... you need to cheer your best cheerleading cheer. Keep going... come on girl..,.. you got it..... FANTASTIC! Keep the play short and sweet only do it for about 5 minutes and stop before she gets disheartened so that she will want to try again the next day. Teach her all of the popular chants too since it is an important thing to know socially. You could even do some oral motor work while skipping! If she wants to skip..... she CAN do it but again... I stress, keep the learning sessions short so that she doesn't get disheartened. Does she ride a bike? VERY important socially and our dyspraxic kids need to learn this skill young (before they realize they're dyspraxic). I taught Mark using an Alley Cat which is one of those contraptions that turns a bicycle into a bicycle built for two. Mark and I used to bike together every day starting from about the age of 4. In this way, he had the motor planning of biking down pat by the time he learned to ride at age 5.5. Then all he had to do was focus on balance and steering. Today, Mark has a monster of a bike.... I like to ride it to and he can mountain bike with all of his peers. Biking is a great activity because it doesn't require a whole lot of conversation! And to be a boy with any kind of 'cool', you need to ride a bike. Today, Mark can ride steep hills and he bikes with his buddies daily. It also keeps him in shape. I have seen people try to teach their dyspraxic kids to ride bikes when they are older and sadly.... the kids want nothing to do with it or are a complete failure and soon give up. START THIS YOUNG!!! I lucked out because I had no idea what motor planning issues really were and how that would eventually affect my child. I just did the Mom things that many moms do without thinking about it. For biking, it was such a blessing that I bought that Alley Cat. It really was an impulse buy and I wanted it so that we could all go biking together.... Somebody was definately looking over my shoulder on that one. Mark does do marshall arts and you will find a lot of ASD kids taking Tai Kwondo. Note that I have heard that fencing is actually supposed to be wonderful for fine motor skills. If there was a club near me.... we might try it. Janice [sPAM][ ] Re: Developmental Ped Appointment: What Do You Think? Tracey, I totally agree nothing is minor. I did not mean to downplay it. I did feel the doctor was downplaying it, and if I had to choose only one area to work on, it would be speech, only because this is her primary issue. But, of course, lucky me, I don't have to choose -- I can try to remediate all the issues! I am not sure how many children on this board are similar to my sweet child. She has hit all of her milestones in the average range (though usually toward the later part of the average range) except for speech. The speech articulation was significantly delayed, and it has been a long, difficult journey already to attempt to get her so she could be understood -- and now that she is understood, there is still a lot of room for progress, as her speech comes across as " more babyish " than her peers. I would love for her to be more graceful and coordinated so that she can fully play and make friends. When you have a delay in one area, it is such a gift if you can at least keep up in the other areas. So, while saying she has trouble skipping rope when others are turning the rope may provoke an eye-roll (as in how stupid can this woman be worrying about this sort of thing), you don't realize how important it is until you hit recess and see ALL the other girls lining up for a turn to jump. (Same with soccer -- I literally laughed out loud at 's comment about running and kicking, because she is so right -- it is definitively NOT an essential life skill. And yet, my daughter has noticed that when the going gets tough during her little soccer games (the score is tight), she spends more time on the bench than almost anyone. I love for her to do mainstream activities because she is sooooo tired of therapy and these are usually fun for her. But I also worry about her self-confidence. She has remained in dance and has worked hard enough to blend; but in gymnastics, I had to pull her out because she just wasn't able to keep up with the group (these girls were walking backwards on the balance beam, doing headstands unassisted, flipping, cartwheels, etc.). Although she is really a very girly-girl, I have thought about martial arts, but once again, was a little concerned about her keeping up and being able to blend. I thought something private (like the Learning Breakthrough) might be the way to go, though I just heard from someone who told me that it involved juggling bean bags and throwing/catching balls while on a balance board. While I can see keeping her interest for a while with those type of activities, I am not sure I could keep her going long enough to get $400 worth of use out of the equipment. (Janice, the fact that your Leaning Breakthrough is still in the box is HUGE for me because I know if you thought this was what your son needed, he'd be balancing and juggling every day.) I was going to call our OT -- but this is the OT who worked on fine motor issues with us for a year and never said a solitary word about coordination/balance issues, so I am not sure. ly, right now the Dance Dance Revolutions sounds more fun! (I just saw the Wii tennis and bowling and they looked fun too!) Can true therapy that really works actually be simple and fun?????? > > > > I recently had a developmental pediatrician re-evaluate my child > along with an OT. I have not > > received the " formal " report yet, but did talk with the doctor. > > > > I am not sure exactly what the report will say, but basically he > said that she had some mild > > hypotonia (mostly resolved) and what he termed " coordination > isssues " . He said that the > > horseback riding and other activities (running) would continue to > help the hypotonia, but said > > it was now mild enough that I didn't really need to worry. > > > > I am wondering about the coordination issues. She is much improved > (she is seven) -- as I > > wrote before, she can participate in dance class! But she isn't > always graceful, and can have > > problems skipping rope and playing soccer (she is very fast, but > running and kicking at the > > same time seems difficult). > > > > I have thought about " Learning Breakthrough " which is based on the > Belgau balance board > > (and supposedly is somewhat like the Dore program -- but I cannot > find much info on this). > > Has anyone else faced these issues and, if so, what was your > solution? Is this an OT issue? > > > > These issues are really quite minor compared to the speech > articulation, but I would like to > > do what I can to *fix* everything. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 , We bought the WII a little while ago.....What a blast!!! loves the tennis and baseball. I had originally bought it for the bowling to get his hip muscles going in a fun way. FINALLY, something fun!!! And yes, he has no idea it's therapy. It's working on more things than I had hoped and mommy & daddy get to have fun too! Sandy [ ] Re: Developmental Ped Appointment: What Do You Think? " ly, right now the Dance Dance Revolutions sounds more fun! (I just saw the Wii tennis and bowling and they looked fun too!) Can true therapy that really works actually be simple and fun?????? " YES YES YES -sorry I didn't mention that either -but yes they are awesome- fun and nobody but you would look at playing that as " therapy " (and PS we have both the Wii and Xbox version and it comes in Xbox Live too ) " The hottest revolution and bestselling video game in the music game category continues its long tradition of innovation and creativity with an entirely new game for the next-generation! Dance Dance Revolution UNIVERSE, exclusively designed for Xbox 360™, takes dancing to a whole new dance floor—offering features and options not possible until now. Dance Dance Revolution UNIVERSE is designed to be a " universal " DDR—a game that everyone can play and enjoy, including anyone with two left feet. " http://www.xbox. com/en-US/ games/d/ddrunive rse/ Isn't that funny -even if you have two left feet?! But that was the point I was trying to make in my email was that mainstream stuff not only can be very inexpensive and replace some " therapy " but it can be therapy -and fun. And of course the side effect is the social aspect which is very positive! If your child is not doing as well in soccer let's find her activities where she is up to speed -and when she isn't yet - she's not so head to head with others. Keep her self esteem high. So unless her dream is soccer why not ballet or gymnastics or karate? Try to find activities that she can either compete with herself -or that are done in a group where nobody is pointing her out as to " how well she can run and kick the ball " Jump rope I agree with Janice -go for it with her as that's a wonderful exercise for us (parents) and can be lots of fun too! Tie one side to something and this way you can take turns practicing even with just the two of you. Besides if you're all uncoordinated with how to jump into the jump rope you can show her not everyone can do this. In the Magic Kingdom sometimes they have people standing on Main street with a large jump rope for people to try to jump in -and guess what -I never tried and most everyone that does messes up. That 's not dyspraxia -that's lack of practice. I'm not saying she isn't graceful enough -perhaps she isn't- but that's a skill that you can work on. Besides when I think of someone being graceful I don't think of a soccer player for a woman -but a dancer or a gymnast " Dancing is a great physical activity; it requires a lot of movement. The good thing about dancing, children can learn to be graceful and well coordinated. " http://www.associat edcontent. com/article/ 366199/advantage s_of_childrens_ dance_lessons. html And my neighbor is a professional golfer with the LPGA who was ranked once as one of the top in the world without me asking her offered to teach me golf because she knows I'm athletic and wants to see how I'd do. My HUSBAND started laughing and said that when it comes to golf he's seen me try and forget it. Oh because once I tried to hit a ball and he's seen me play miniature golf (I rock at miniature golf - he's just jealous) Needless to say she's going to take me and I'll let you know what she says -and I know she'll be honest. Bottom line is that I may be excellent at BOSU or jogging or water skiing or swimming and used to be an exercise instructor at the the NY Health and Racquet and a lifeguard for years -and may totally suck at golf - but because my husband laughed about it I'm going to have to prove him wrong. Before I wouldn't have cared! And who is good at every sport anyway?!! Also I don't agree. It's OK to look at it as minor -don't apologize for it. Your daughter is 7 years old doing amazing and in the mainstream - and obviously you are still working with her and have been working on whatever she needs for years and years. It's OK to give both you and her a pat on the back and say " we're not there yet -but we're getting there " and not feel everything has to be perfect because last I checked even the people running for President of the US are not - nobody is. The only thing that I would go by is what is upsetting her -work on those things. The fact that the neuroMD isn't concerned and the fact that she's passed all her motor skills on time or early and the fact that she's athletic at all shows that whatever her issue may be is mild. Talk to her about it and let her know you'll find some fun ways to get her up to speed...and if she doesn't need to be in soccer perhaps there's something more fun. When one door closes another one opens -and perhaps this door will blow away soccer. My one niece is awesome at soccer and loves it -her two sisters are not into it at all. One is into drama and the other is into just being a girl stuff. Wii and Xbox both have soccer games! So cheer her on for me where she is right now! Perhaps she'll kick booty against the other girls when they play head to head Wii or Xbox. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 I think the best therapy is simple and fun -- and at home. That's why I love doing the NACD stuff. My son did one season of soccer, and he decided (a.) he's never doing it again and (b.) he hates all sports. My husband, no jock himself, was appalled, because he knows how hard it is to be a boy that is not athletic. I'm not athletic, but as a girl, it was much easier for me. My son sounds very similiar to your daughter -- met all the milestones in the average range except speech. And even though his speech now tests as age-appropriate, I can see the lingering effects of apraxia as he learns to read. Hearing him sound out words can be hilarious -- it becomes obvious why he had/has articulation issues. This summer, I'm keeping all four kids home (no camps/lessons), and the theme of Mommy Camp is going to be gross motor skills. Last year, we bought a gigantic playset, and I'm going to work them all like Olympic athletes. By September, I want to see beautiful cross pattern skills and balance for all. in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Hey all, my boy is 5 - still not enough stregnth to pedal a bike. Heartwrenching to watch this, particulary since this i'm a long distance cyclist. Well, as you all know, i'm a stickler for " call it what it is " - heavy metal poisening caused mitochondrial dysfunction. Here's a recent article - well done, easy to understand from Medical Doctor Blaylock. From L. Blaylock M.D. Mitochondria and Vaccines As the person who first proposed the microglial/excitoto xin hypothesis (JANA 2003;6(4): 21-35 and J. Amer Phys Surg 2004; 9(2): 46-51) I feel I should explain the connection between microglia/excitotox icity and mitochondrail dysfunction. My hypothesis was confirmed two years later by Vargis, et al in which they demonstrated chronic levels of inflammatory cytokines and chemokines as well as microglia and astrocytic activation in the brains of 11 autistics from age 5 years to 44 years, even though they never mentioned excitotoxicity as a final mechanism. I wish to address the mitochondrial issue, which has become of major interest with the appearance of the Hannah Poling's case. In my original hypothesis, later expanded in a number of other articles, I explained that when the systemic immune system is overactivated, the brain's special immune system, consisting of microglia and astrocytes, also becomes activated. The microglia normally remain in a quiescent state called ramified microglia. Upon activation, they swell, assume special immune receptors in their membranes and move within the extracellular space. In this activated state they act as immune presenting cells and can secrete a number of inflammatory chemicals, such as IL-1, IL-2, IL-6, IL-12 and IL-18, TNF-alpha, chemokines, complement and two excitotoxins called glutamate and quniolinic acid. They also generate a number of powerful free radicals and lipid peroxidation molecules. A number of studies have shown that when you use powerful immune adjuvants, as used in vaccines (especially when combined), this inflammatory/ excitotoxic reaction within the brain is maximized. With the first vaccine (or natural infection) the brain's microglia are in a semi-activated stated called primed. If you re-vaccinate the animal or person within 1 to 2 months, these primed microglia overreact intensely, pouring out even higher levels of the excitotoxins, inflammatory cytokines and free radicals. Each subsequent set of vaccinations worsens this process. These inflammatory/ excitotoxic secretions damage the developing brain, which is undergoing its most active development at the very time the child is receiving 24 vaccines. This vaccine schedule exposes the child to a priming HepB vaccine at birth, 6 vaccines at age 2 months, then 5 vaccines at age 4 months, 7 vaccines at 6 months and finally 8 antigens at age one year. Each successive multi-dose barrage of vaccines intensely activates the brain's microglial system and the microglia activate the astrocytes, which also secretes, inflammatory cytokines, free radicals and excitotoxins. Experiments in which this pattern of immune stimulation is simulated using a vaccine adjuvant, demonstrate that it produces significant disruption of brain development. The greatest damage in these experiments is to the cerebellum and frontal lobes, which is also the primary sites of damage in autism. Further, food allergins also act as brain microglial activators, thereby worsening and prolonging the original immune/excitotoxic effect produced by the vaccines. So, how does mercury play into all this. Mercury in extremely small concentrations (nanomolar concentrations) can activate microglia, trigger excitotoxicity and induce significant mitochondrial dysfunction. Blocking the glutamate receptors (that trigger excitotoxicity) also blocks most of the neurotoxic effect of mercury at these concentrations. That is, most of lower-dose effects of mercury in the brain are secondary to excitotoxicity. The mitochondria produce most of the energy used by neurons and a number of studies have shown that suppressing mitochondrial function by itself is not enough to alter brain function, but it is enough to magnify excitotoxic damage. That is, it is the excitotoxicity that is disrupting brain function and development. A newer study has shown conclusively, that mitochondrial activation using a vaccine adjuvant not only suppresses mitochondrial function but that the damage cause by this mitochondrial suppression is actually produced by excitotoxicity. Blocking excitotoxicity completely blocks the microglial-induced neurotoxicity and mitochondrial damage cause by the vaccine. A great number of studies have shown that activating the systemic immune system repetitively worsens neurological disorders caused by other things and can initiate neurodegeneration itself, that is prolonged. The inflammatory cytokines interact with glutamate receptors to dramatically increase excitotoxic damage. We know that autistic children have elevated CSF and blood levels of glutamate, which confirms the presence of the excitotoxic process. Basically, what we see is a process triggered by sequential, massive vaccination that primes and then activates the brain microglial/astrocyt ic system, triggering the release of massive amounts of inflammatory cytokines, chemokines and excitotoxins. This suppresses the mitochondria and the resulting energy loss further worsening the excitotoxic damage. Because of continued immune activation systemically, both by food allergies and natural infections, the brain's immune system remains in an active state, leading to suppression of brain pathway development and neural function. This is why the change in the vaccine policy beginning in the mid-1980s, triggered the epidemic of autism. The mercury just aggravated the process. I warned a number of people and published my warning, that removing the mercury from vaccines would not stop the high incidence of autism, because it was just part of the picture. We must also appreciate that there are a great number of sources of mercury besides vaccine-mainly environmental and from dental amalgam. For more information on this mechanism you can read my original articles on my website –www.russellblaylock md.com. Also I have written more papers on my website under the heading -Information. All the information is free. I have several newer articles appearing in Medical Veritas and the Journal of Alternative Therapeutics in Health and Medicine. L. Blaylock, M.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 I have four children. My firstborn a son learned to ride a bike at almost 6. When he moved up from a 16 " bike to a 20 " bike it was like he was learning to ride all over again!?! My second a daughter didn't learn to ride until she was 9 1/2. Yes nine and a half years old. It took her about 5 seconds to learn. She had to be mentally ready! My third also a daughter learned to ride at 5. She learned with positive peer pressure! A favorite neighbor girl was with us when she learned. It took her about an hour to learn. My fourth has always had a trike. Either the kind you push along with your feet or the kind you pedal. The kind with pedals only slowed him down when he was too short to reach the pedals! Now at almost 5 he wides a 16 " bike with training wheels or a 20 " Trail-a-Bike on the back of his dad's bike. (Since we go on long rides 12+ miles we have a seat rest on the trail a bike so he can rest. He has hypotonia in his arms and legs as well as his tongue.) Practice practice practice is what worked for us. We ride our bikes weekly with dad and I ride bikes with my children 4-5 times a week. As homeschoolers we have many opportunities to ride (the library is only 6 miles away and why take the car?) > > I recently had a developmental pediatrician re-evaluate my child along with an OT. I have not > received the " formal " report yet, but did talk with the doctor. > > I am not sure exactly what the report will say, but basically he said that she had some mild > hypotonia (mostly resolved) and what he termed " coordination isssues " . He said that the > horseback riding and other activities (running) would continue to help the hypotonia, but said > it was now mild enough that I didn't really need to worry. > > I am wondering about the coordination issues. She is much improved (she is seven) -- as I > wrote before, she can participate in dance class! But she isn't always graceful, and can have > problems skipping rope and playing soccer (she is very fast, but running and kicking at the > same time seems difficult). > > I have thought about " Learning Breakthrough " which is based on the Belgau balance board > (and supposedly is somewhat like the Dore program -- but I cannot find much info on this). > Has anyone else faced these issues and, if so, what was your solution? Is this an OT issue? > > These issues are really quite minor compared to the speech articulation, but I would like to > do what I can to *fix* everything. > Quote Link to comment Share on other sites More sharing options...
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