Re: Namenda for Apraxia?

[Guest guest]

I have heard of it. I was told that it's a med for alzheimers.....Who's your

DAN? I'm curious.

@...: cs-mom@...: Wed, 2 Apr

2008 03:06:38 +0000Subject: [ ] Namenda for Apraxia?

Has anyone here heard of Namenda for Apraxia? Our son's DAN suggested that it

might help him with language.

_________________________________________________________________

Going green? See the top 12 foods to eat organic.

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[Guest guest]

I've never been to a DAN but reading these type of messages I'm not

only glad I never did but I'm getting creeped out.

Talk about treating your child like a guinea pig –they haven't even

tested this " oral medication for treating patients with Alzheimer's

disease " drug in any pregnant or nursing women and it's unknown about

giving it to any child for any reason. I mean we're all freaking out

about trace amounts of mercury in shots but some are willing to try

serious drugs that have no testing at all on children or even

pregnant or nursing women? Is it just me? I don't get it. I'm

going to bed. Oh and BTW -one of the more mild side effects is

constipation which anyone that knows apraxic children today that's

one of the problems many of us hit even without giving them an adult

drug for Alzheimer's Disease!!! Also I don't know what happens if

you feed your child " citrus fruits, vegetables, beans, or peas " while

giving them this adult drug for Alzheimer's Disease but wouldn't want

to know.

(Please tell me this wasn't a pediatric medical doctor because I know

not all DANs are even MDs -I just can't imagine any pediatric doctor

putting an apraxic child at risk like this when even if fish oil and

vitamin E didn't work which it does for most -they could just do

therapy without side effects!)

Information about Namenda

Before using Namenda, tell your doctor if you are allergic to any

drugs, or if you have a seizure disorder, cataracts, liver or kidney

disease, or a bladder or kidney infection.

Namenda can cause side effects that may impair your thinking or

reactions. Be careful if you drive or do anything that requires you

to be awake and alert.

What should I avoid while taking Namenda?

Namenda can cause side effects that may impair your thinking or

reactions. Be careful if you drive or do anything that requires you

to be awake and alert.

Namenda side effects

Get emergency medical help if you have any of these signs of an

allergic reaction: hives; difficulty breathing; swelling of your

face, lips, tongue, or throat. Stop using Namenda and call your

doctor at once if you have any of these serious side effects:

cough, chest tightness, fever, trouble breathing;

chest pain, fast heart rate;

confusion, hallucinations;

sudden numbness or weakness, especially on one side of the body;

lack of coordination;

fainting or seizure (convulsions);

urinating less than usual or not at all;

pale skin, easy bruising or bleeding, unusual weakness; or

increased blood pressure (severe headache, blurred vision, trouble

concentrating, chest pain, numbness, seizure).

Less serious side effects may include:

nausea, vomiting, diarrhea, constipation, loss of appetite;

dizziness, tired feeling;

weight loss;

swelling in your hands or feet;

fast heart rate;

easy bruising or bleeding, unusual weakness;

joint pain;

anxiety, aggression;

skin rash;

redness or swelling of or around your eyes; or

urinating more than usual.

http://www.drugs.com/namenda.html

SIDE EFFECTS: The most common side effect of memantine are fatigue,

pain, increases in blood pressure, dizziness, headache, constipation,

vomiting, back pain, confusion, somnolence, hallucination, coughing,

and difficulty in breathing. The side effects are most often mild to

moderate.

What special dietary instructions should I follow? Return to top

Tell your doctor if you are a vegetarian or if you usually eat large

amounts of citrus fruits, vegetables, beans, or peas. Your doctor

will tell you if you need to change your diet. If you do not

regularly eat these foods, continue your normal diet.

And since we don't know what a child's " dosage " is

Pediatric Use

There are no adequate and well-controlled trials documenting the

safety and efficacy of memantine in any illness occurring in children.

Pediatric

Studies on this medicine have only been done in adult patients, and

there is no specific information comparing the use of memantine in

children with use in other age groups. This medicine is generally not

used in children.

http://www.mayoclinic.com/health/drug-information/DR601519

Guess someone wants you to nominate your child to find out -just say

NO -figure you should have this handy in case you proceed. Good

thing most apraxic children don't go this route!

In case of emergency/overdose

In case of overdose, call your local poison control center at 1-800-

222-1222. If the victim has collapsed or is not breathing, call local

emergency services at 911.

Symptoms of overdose may include:

restlessness

hallucination (seeing things or hearing voices that do not exist)

sleepiness

loss of consciousness

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a604006.html

=====

[Guest guest]

What is a DAN?

kiddietalk <kiddietalk@...> wrote: I've never been to a DAN but

reading these type of messages I'm not

only glad I never did but I'm getting creeped out.

Talk about treating your child like a guinea pig –they haven't even

tested this " oral medication for treating patients with Alzheimer's

disease " drug in any pregnant or nursing women and it's unknown about

giving it to any child for any reason. I mean we're all freaking out

about trace amounts of mercury in shots but some are willing to try

serious drugs that have no testing at all on children or even

pregnant or nursing women? Is it just me? I don't get it. I'm

going to bed. Oh and BTW -one of the more mild side effects is

constipation which anyone that knows apraxic children today that's

one of the problems many of us hit even without giving them an adult

drug for Alzheimer's Disease!!! Also I don't know what happens if

you feed your child " citrus fruits, vegetables, beans, or peas " while

giving them this adult drug for Alzheimer's Disease but wouldn't want

to know.

(Please tell me this wasn't a pediatric medical doctor because I know

not all DANs are even MDs -I just can't imagine any pediatric doctor

putting an apraxic child at risk like this when even if fish oil and

vitamin E didn't work which it does for most -they could just do

therapy without side effects!)

Information about Namenda

Before using Namenda, tell your doctor if you are allergic to any

drugs, or if you have a seizure disorder, cataracts, liver or kidney

disease, or a bladder or kidney infection.

Namenda can cause side effects that may impair your thinking or

reactions. Be careful if you drive or do anything that requires you

to be awake and alert.

What should I avoid while taking Namenda?

Namenda can cause side effects that may impair your thinking or

reactions. Be careful if you drive or do anything that requires you

to be awake and alert.

Namenda side effects

Get emergency medical help if you have any of these signs of an

allergic reaction: hives; difficulty breathing; swelling of your

face, lips, tongue, or throat. Stop using Namenda and call your

doctor at once if you have any of these serious side effects:

cough, chest tightness, fever, trouble breathing;

chest pain, fast heart rate;

confusion, hallucinations;

sudden numbness or weakness, especially on one side of the body;

lack of coordination;

fainting or seizure (convulsions);

urinating less than usual or not at all;

pale skin, easy bruising or bleeding, unusual weakness; or

increased blood pressure (severe headache, blurred vision, trouble

concentrating, chest pain, numbness, seizure).

Less serious side effects may include:

nausea, vomiting, diarrhea, constipation, loss of appetite;

dizziness, tired feeling;

weight loss;

swelling in your hands or feet;

fast heart rate;

easy bruising or bleeding, unusual weakness;

joint pain;

anxiety, aggression;

skin rash;

redness or swelling of or around your eyes; or

urinating more than usual.

http://www.drugs.com/namenda.html

SIDE EFFECTS: The most common side effect of memantine are fatigue,

pain, increases in blood pressure, dizziness, headache, constipation,

vomiting, back pain, confusion, somnolence, hallucination, coughing,

and difficulty in breathing. The side effects are most often mild to

moderate.

What special dietary instructions should I follow? Return to top

Tell your doctor if you are a vegetarian or if you usually eat large

amounts of citrus fruits, vegetables, beans, or peas. Your doctor

will tell you if you need to change your diet. If you do not

regularly eat these foods, continue your normal diet.

And since we don't know what a child's " dosage " is

Pediatric Use

There are no adequate and well-controlled trials documenting the

safety and efficacy of memantine in any illness occurring in children.

Pediatric

Studies on this medicine have only been done in adult patients, and

there is no specific information comparing the use of memantine in

children with use in other age groups. This medicine is generally not

used in children.

http://www.mayoclinic.com/health/drug-information/DR601519

Guess someone wants you to nominate your child to find out -just say

NO -figure you should have this handy in case you proceed. Good

thing most apraxic children don't go this route!

In case of emergency/overdose

In case of overdose, call your local poison control center at 1-800-

222-1222. If the victim has collapsed or is not breathing, call local

emergency services at 911.

Symptoms of overdose may include:

restlessness

hallucination (seeing things or hearing voices that do not exist)

sleepiness

loss of consciousness

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a604006.html

=====

[Guest guest]

I belong to a local list serv for special needs kids, and there's kids on

Namenda all over it. Unfortunately, too, these kids are being prescribed this

drug by reg. doctors, especially neurologists. This particular group isn't

interested in fish oil/vitamin e or anything to do with a DAN protocol. But

many of the apraxic kids are on Namenda for speech.

@...: kiddietalk@...: Wed, 2

Apr 2008 03:54:54 +0000Subject: [ ] Re: Namenda for Apraxia?

I've never been to a DAN but reading these type of messages I'm not only glad I

never did but I'm getting creeped out.Talk about treating your child like a

guinea pig –they haven't even tested this " oral medication for treating patients

with Alzheimer's disease " drug in any pregnant or nursing women and it's unknown

about giving it to any child for any reason. I mean we're all freaking out about

trace amounts of mercury in shots but some are willing to try serious drugs that

have no testing at all on children or even pregnant or nursing women? Is it just

me? I don't get it. I'm going to bed. Oh and BTW -one of the more mild side

effects is constipation which anyone that knows apraxic children today that's

one of the problems many of us hit even without giving them an adult drug for

Alzheimer's Disease!!! Also I don't know what happens if you feed your child

" citrus fruits, vegetables, beans, or peas " while giving them this adult drug

for Alzheimer's Disease but wouldn't want to know.(Please tell me this wasn't a

pediatric medical doctor because I know not all DANs are even MDs -I just can't

imagine any pediatric doctor putting an apraxic child at risk like this when

even if fish oil and vitamin E didn't work which it does for most -they could

just do therapy without side effects!)Information about NamendaBefore using

Namenda, tell your doctor if you are allergic to any drugs, or if you have a

seizure disorder, cataracts, liver or kidney disease, or a bladder or kidney

infection.Namenda can cause side effects that may impair your thinking or

reactions. Be careful if you drive or do anything that requires you to be awake

and alert. What should I avoid while taking Namenda?Namenda can cause side

effects that may impair your thinking or reactions. Be careful if you drive or

do anything that requires you to be awake and alert. Namenda side effectsGet

emergency medical help if you have any of these signs of an allergic reaction:

hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Stop using Namenda and call your doctor at once if you have any of these serious

side effects: cough, chest tightness, fever, trouble breathing;chest pain, fast

heart rate;confusion, hallucinations;sudden numbness or weakness, especially on

one side of the body;lack of coordination;fainting or seizure

(convulsions);urinating less than usual or not at all;pale skin, easy bruising

or bleeding, unusual weakness; orincreased blood pressure (severe headache,

blurred vision, trouble concentrating, chest pain, numbness, seizure).Less

serious side effects may include:nausea, vomiting, diarrhea, constipation, loss

of appetite;dizziness, tired feeling;weight loss;swelling in your hands or

feet;fast heart rate;easy bruising or bleeding, unusual weakness;joint

pain;anxiety, aggression;skin rash;redness or swelling of or around your eyes;

orurinating more than usual.http://www.drugs.com/namenda.htmlSIDE EFFECTS: The

most common side effect of memantine are fatigue, pain, increases in blood

pressure, dizziness, headache, constipation, vomiting, back pain, confusion,

somnolence, hallucination, coughing, and difficulty in breathing. The side

effects are most often mild to moderate.What special dietary instructions should

I follow? Return to top Tell your doctor if you are a vegetarian or if you

usually eat large amounts of citrus fruits, vegetables, beans, or peas. Your

doctor will tell you if you need to change your diet. If you do not regularly

eat these foods, continue your normal diet.And since we don't know what a

child's " dosage " is Pediatric UseThere are no adequate and well-controlled

trials documenting the safety and efficacy of memantine in any illness occurring

in children.PediatricStudies on this medicine have only been done in adult

patients, and there is no specific information comparing the use of memantine in

children with use in other age groups. This medicine is generally not used in

children.http://www.mayoclinic.com/health/drug-information/DR601519Guess someone

wants you to nominate your child to find out -just say NO -figure you should

have this handy in case you proceed. Good thing most apraxic children don't go

this route!In case of emergency/overdose In case of overdose, call your local

poison control center at 1-800-222-1222. If the victim has collapsed or is not

breathing, call local emergency services at 911.Symptoms of overdose may

include: restlessness hallucination (seeing things or hearing voices that do not

exist) sleepiness loss of consciousness

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a604006.html=====

GengPresident CHERAB FoundationCommunication Help, Education, Research, Apraxia

Basehttp://www.cherab.orgCo Founder Speechville772-335-5135 " Help give our

cherubs a smile and a voice " >> Has anyone here heard of Namenda for Apraxia?

Our son's DAN suggested > that it might help him with language.>

_________________________________________________________________

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tantaccess_042008

[Guest guest]

This is an Alzheimers drug, untested on little ones. Are they not

concerned about livers, kidneys and pancreas?

>

>

> I belong to a local list serv for special needs kids, and there's

kids on Namenda all over it. Unfortunately, too, these kids are

being prescribed this drug by reg. doctors, especially neurologists.

This particular group isn't interested in fish oil/vitamin e or

anything to do with a DAN protocol. But many of the apraxic kids are

on Namenda for speech.

[Guest guest]

Don't tar and feather all DAN's on this one. Many, maybe even most,

patients of DAN's don't take any prescription medications at all.

(Our only prescription is for the mB12 shots, which are vitamins not

medicine.) I haven't come across Namenda before in any of my books

or web surfing. It is definitely not a commonly used drug!

There are some more commonly used prescription medications that are

used in an off-label manner, but it should make sense to you as a

parent and be based on your child's personal lab results. For

example, Valtrex is frequently used for kids with viral issues.

Actos is another one that pops up frequently. All of these off-label

uses should be considered carefully, and always make sure the doctor

does the required follow up labs. Some can have a negative effect

with long-term use, and risks must be balanced with rewards.

Also, some of these off-label uses are having good, even excellent,

results, but they are almost never a first- or second- tier option.

Have the more traditional methods failed to work for you? What is

the theory behind using Namenda for speech? (Not being critical of

this drug -- I want to learn.)

in NJ

without side effects!)

>

> Information about Namenda

> Before using Namenda, tell your doctor if you are allergic to any

> drugs, or if you have a seizure disorder, cataracts, liver or kidney

> disease, or a bladder or kidney infection.

>

> Namenda can cause side effects that may impair your thinking or

> reactions. Be careful if you drive or do anything that requires you

> to be awake and alert.

>

> What should I avoid while taking Namenda?

> Namenda can cause side effects that may impair your thinking or

> reactions. Be careful if you drive or do anything that requires you

> to be awake and alert.

> Namenda side effects

> Get emergency medical help if you have any of these signs of an

> allergic reaction: hives; difficulty breathing; swelling of your

> face, lips, tongue, or throat. Stop using Namenda and call your

> doctor at once if you have any of these serious side effects:

> cough, chest tightness, fever, trouble breathing;

>

> chest pain, fast heart rate;

>

> confusion, hallucinations;

>

> sudden numbness or weakness, especially on one side of the body;

>

> lack of coordination;

>

> fainting or seizure (convulsions);

>

> urinating less than usual or not at all;

>

> pale skin, easy bruising or bleeding, unusual weakness; or

>

> increased blood pressure (severe headache, blurred vision, trouble

> concentrating, chest pain, numbness, seizure).

>

> Less serious side effects may include:

>

> nausea, vomiting, diarrhea, constipation, loss of appetite;

>

> dizziness, tired feeling;

>

> weight loss;

>

> swelling in your hands or feet;

>

> fast heart rate;

>

> easy bruising or bleeding, unusual weakness;

>

> joint pain;

>

> anxiety, aggression;

>

> skin rash;

>

> redness or swelling of or around your eyes; or

>

> urinating more than usual.

>

> http://www.drugs.com/namenda.html

>

> SIDE EFFECTS: The most common side effect of memantine are fatigue,

> pain, increases in blood pressure, dizziness, headache,

constipation,

> vomiting, back pain, confusion, somnolence, hallucination, coughing,

> and difficulty in breathing. The side effects are most often mild to

> moderate.

>

> What special dietary instructions should I follow? Return to top

> Tell your doctor if you are a vegetarian or if you usually eat large

> amounts of citrus fruits, vegetables, beans, or peas. Your doctor

> will tell you if you need to change your diet. If you do not

> regularly eat these foods, continue your normal diet.

>

> And since we don't know what a child's " dosage " is

> Pediatric Use

> There are no adequate and well-controlled trials documenting the

> safety and efficacy of memantine in any illness occurring in

children.

>

> Pediatric

>

> Studies on this medicine have only been done in adult patients, and

> there is no specific information comparing the use of memantine in

> children with use in other age groups. This medicine is generally

not

> used in children.

> http://www.mayoclinic.com/health/drug-information/DR601519

>

>

> In case of emergency/overdose

> In case of overdose, call your local poison control center at 1-800-

> 222-1222. If the victim has collapsed or is not breathing, call

local

> emergency services at 911.

>

> Symptoms of overdose may include:

>

> restlessness

> hallucination (seeing things or hearing voices that do not exist)

> sleepiness

> loss of consciousness

> http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a604006.html

[Guest guest]

True, let's not tar and feather them. He's not pushing it on us. It

was only mentioned that it has helped several kids in his practice,

and that he would prescribe it if it was something we were

interested in. He always encourages us to research and educate

ourselves before making any decisions on treatments.

>

> Don't tar and feather all DAN's on this one. Many, maybe even

most,

> patients of DAN's don't take any prescription medications at all.

> (Our only prescription is for the mB12 shots, which are vitamins

not

> medicine.) I haven't come across Namenda before in any of my books

> or web surfing. It is definitely not a commonly used drug!

>

> There are some more commonly used prescription medications that are

> used in an off-label manner, but it should make sense to you as a

> parent and be based on your child's personal lab results. For

> example, Valtrex is frequently used for kids with viral issues.

> Actos is another one that pops up frequently. All of these off-

label

> uses should be considered carefully, and always make sure the

doctor

> does the required follow up labs. Some can have a negative effect

> with long-term use, and risks must be balanced with rewards.

>

> Also, some of these off-label uses are having good, even excellent,

> results, but they are almost never a first- or second- tier option.

> Have the more traditional methods failed to work for you? What is

> the theory behind using Namenda for speech? (Not being critical of

> this drug -- I want to learn.)

>

> in NJ

>

>

> without side effects!)

> >

> > Information about Namenda

> > Before using Namenda, tell your doctor if you are allergic to any

> > drugs, or if you have a seizure disorder, cataracts, liver or

kidney

> > disease, or a bladder or kidney infection.

> >

> > Namenda can cause side effects that may impair your thinking or

> > reactions. Be careful if you drive or do anything that requires

you

> > to be awake and alert.

> >

> > What should I avoid while taking Namenda?

> > Namenda can cause side effects that may impair your thinking or

> > reactions. Be careful if you drive or do anything that requires

you

> > to be awake and alert.

> > Namenda side effects

> > Get emergency medical help if you have any of these signs of an

> > allergic reaction: hives; difficulty breathing; swelling of your

> > face, lips, tongue, or throat. Stop using Namenda and call your

> > doctor at once if you have any of these serious side effects:

> > cough, chest tightness, fever, trouble breathing;

> >

> > chest pain, fast heart rate;

> >

> > confusion, hallucinations;

> >

> > sudden numbness or weakness, especially on one side of the body;

> >

> > lack of coordination;

> >

> > fainting or seizure (convulsions);

> >

> > urinating less than usual or not at all;

> >

> > pale skin, easy bruising or bleeding, unusual weakness; or

> >

> > increased blood pressure (severe headache, blurred vision,

trouble

> > concentrating, chest pain, numbness, seizure).

> >

> > Less serious side effects may include:

> >

> > nausea, vomiting, diarrhea, constipation, loss of appetite;

> >

> > dizziness, tired feeling;

> >

> > weight loss;

> >

> > swelling in your hands or feet;

> >

> > fast heart rate;

> >

> > easy bruising or bleeding, unusual weakness;

> >

> > joint pain;

> >

> > anxiety, aggression;

> >

> > skin rash;

> >

> > redness or swelling of or around your eyes; or

> >

> > urinating more than usual.

> >

> > http://www.drugs.com/namenda.html

> >

> > SIDE EFFECTS: The most common side effect of memantine are

fatigue,

> > pain, increases in blood pressure, dizziness, headache,

> constipation,

> > vomiting, back pain, confusion, somnolence, hallucination,

coughing,

> > and difficulty in breathing. The side effects are most often

mild to

> > moderate.

> >

> > What special dietary instructions should I follow? Return to

top

> > Tell your doctor if you are a vegetarian or if you usually eat

large

> > amounts of citrus fruits, vegetables, beans, or peas. Your doctor

> > will tell you if you need to change your diet. If you do not

> > regularly eat these foods, continue your normal diet.

> >

> > And since we don't know what a child's " dosage " is

> > Pediatric Use

> > There are no adequate and well-controlled trials documenting the

> > safety and efficacy of memantine in any illness occurring in

> children.

> >

> > Pediatric

> >

> > Studies on this medicine have only been done in adult patients,

and

> > there is no specific information comparing the use of memantine

in

> > children with use in other age groups. This medicine is generally

> not

> > used in children.

> > http://www.mayoclinic.com/health/drug-information/DR601519

> >

> >

> > In case of emergency/overdose

> > In case of overdose, call your local poison control center at 1-

800-

> > 222-1222. If the victim has collapsed or is not breathing, call

> local

> > emergency services at 911.

> >

> > Symptoms of overdose may include:

> >

> > restlessness

> > hallucination (seeing things or hearing voices that do not exist)

> > sleepiness

> > loss of consciousness

> >

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a604006.html

>