Jump to content
RemedySpot.com

Re: Just had to say...

Rate this topic


Guest guest

Recommended Posts

Guest guest

Leah,

It is wonderful that Josh is showing an improvement! :0)

My son is 5 and a half. We hav used the fish oils fo a while now and recently

took him off the Omegas in a sort of " clinical trial " (so to speak). The only

thing I noticed that the fish oils did for my son was they made him more

hyperactive. There is no difference in his speech patterns and the only thing

that has made a difference in his speech sometimes is " practice, practice,

practice " . I am not trying to sound negative, but is it is possible that those

on this group who have been helped with fish oils have a " different " type of

apraxia of speech?

I know that sounds confusing, but I hard that " true apraxia " was very rare. And

I do know that my son has true apraxia. So,does anyone know if there is a

difference between CAS (Childhood Apraxia of Speech) and other apraxias? Is one

a sort of transient problem in childhood, which can be hlped with things like

fish oils, and the other true apraxia, which cannot be helped with fish oils, or

what? I guess why I am asking is that I often wonder is this is the best that my

son is ever going to get because there are no magical pills (or better yet,

oils) that have helped him. He has a clear EEG (no seizure indications) and we

are currently testing to rule out translocations because the root cause is

thought to be the severe lack of oxygen after birth.I also read somewhere that

" language cells " are the first to die when a person is deprived of oxygen.

Link to comment
Share on other sites

Guest guest

Interesting about the " language cells " dying. My has " true apraxia "

diagnosed by a number of different specialist in a number of different fields.

The one blessing is that he is verbal - but it is painful to watch him try to

make sounds...it breaks my heart. Anyhow, he had pretty significant sleep apnea

as a baby. He wasn't diagnosed till 11 months old - has his adenoids out within

a week or so of diagnosis. He had an 80% blockage of his nasal passages. So, he

was losing oxygen while he slept. Of course, now they think the surgery may have

damaged his palate and that is why many of the sounds he does make are extremely

nasal. For example - if you make him hold his nose, he is completely unable to

produce the long " E " sound. Very interesting. Anyway, thanks for your input. At

this point - I recognize that EFA's are essential to the body and since he is on

a very limited diet (GFCF), we need all the help we can get! They are also

helping keep his bathroom habits regular as before this he was constantly

constipated. Now he goes once per day! I cannot say if the EFA's have " caused "

the surge...or if the practice, practice, practice has been the thing. I am just

glad to see some improvement!

>

> Leah,

> It is wonderful that Josh is showing an improvement! :0)

> My son is 5 and a half. We hav used the fish oils fo a while now and recently

took him off the Omegas in a sort of " clinical trial " (so to speak). The only

thing I noticed that the fish oils did for my son was they made him more

hyperactive. There is no difference in his speech patterns and the only thing

that has made a difference in his speech sometimes is " practice, practice,

practice " . I am not trying to sound negative, but is it is possible that those

on this group who have been helped with fish oils have a " different " type of

apraxia of speech?

> I know that sounds confusing, but I hard that " true apraxia " was very rare.

And I do know that my son has true apraxia. So,does anyone know if there is a

difference between CAS (Childhood Apraxia of Speech) and other apraxias? Is one

a sort of transient problem in childhood, which can be hlped with things like

fish oils, and the other true apraxia, which cannot be helped with fish oils, or

what? I guess why I am asking is that I often wonder is this is the best that my

son is ever going to get because there are no magical pills (or better yet,

oils) that have helped him. He has a clear EEG (no seizure indications) and we

are currently testing to rule out translocations because the root cause is

thought to be the severe lack of oxygen after birth.I also read somewhere that

" language cells " are the first to die when a person is deprived of oxygen.

>

>

Link to comment
Share on other sites

Guest guest

Your post is interesting because my also had an oxygen problem at

birth. He swallowed meconium (not sure that is how you spell it) and was on

oxygen for 7 hours. His oxygen saturation rate was only 20%

when it should be at least 92%.. There were no delays in gross motor skills

so the developmental pediatrician at Iowa City ruled out lack of oxygen.

Was your 's gross motor skills delayed?

Was he a mouth breather? Did he sleep with his mouth open because it was

easier to breath.

My still gets speech therapy but his speech is ok now. He is 8.5.

**************Feeling the pinch at the grocery store? Make dinner for $10 or

less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

Link to comment
Share on other sites

Guest guest

You spelled meconium correctly. ;0) I have found in my research that a primary

cause of true apraxia is a lack of oxygen after or during birth. It is a type of

cerebral palsy, in a sense, because it is a neurological condition caused by

lack of O2 at birth. Because language cells are the first to die, then language

is always affected. In more severe cases, the entire body is affected.

Link to comment
Share on other sites

Guest guest

I am sorry no one told you that would happen in removing the adenoid tissues.:0(

They tried to remove ALL of my kids adenoids. I said no and they are fine in

that regards now.

Don't get me wrong about the EFA's. They ARE essential and they ARE good. (Very

Good!) We use omega vegetable oil and do a diet rich in Omega, and supplements

are good, but I have not seen any miracles of speech with them. My son, also,

struggles for words...and I cry behind closed doors. He is verbal, which is a

plus, but he is truly apraxic and I wonder if it will ever come together because

of the lack of O2 after birth. (Midwife fault...not apnea).

Link to comment
Share on other sites

Guest guest

Hi ! I just wanted to write because I had a difficult delivery with my son.

First, my doctor, broke my water in his office when I requested he didnt. Then

he gave me pitocin when I requested he didnt. Then, I overheard him telling the

nurse I had meconium and then left for awhile to deliver another baby. My son

needed assistance at birth and needed oxygen. By deliberately breaking my water

and speeding up the delivery, it turns out he was actually a week or so early.

So, I am quite sure that these are the reasons but is there a way to figure out

that this is what caused his apraxia. I think it would help me come to terms

with it instead of wondering what happened.....thanks ALlison

In , " " <agirlnamedsuess@...> wrote:

>

> You spelled meconium correctly. ;0) I have found in my research that a primary

cause of true apraxia is a lack of oxygen after or during birth. It is a type of

cerebral palsy, in a sense, because it is a neurological condition caused by

lack of O2 at birth. Because language cells are the first to die, then language

is always affected. In more severe cases, the entire body is affected.

>

Link to comment
Share on other sites

Guest guest

this sounds wonderful, Leah!!!

Bek

In a message dated 3/18/2009 7:38:50 P.M. Eastern Daylight Time,

kaiserfamily4@... writes:

Hi all! My name is Leah and I am mom to (5), (3.5) and Abigail

(1). I have been lurking for a while and have posted a few times, but I

wanted to post today because you guys are probably the only ones who " get it. "

had a GREAT speech therapy appointment today! He was diagnosed with

Severe Apraxia of Speech about 9 months ago and we have struggled with

insurance

issues and what-not over and over again. We even considered taking him to

Detroit to see Kaufman in person (she did a video eval on him and was

very

kind to offer to take him in her clinic). Anyhow, we are finally settled in

with a FANTASTIC SLP who has worked w/ Kaufman in the past...our

insurance is now paying for his visits again...and he has been on 1 capsule of

Nordic Naturals Omega 3-6-9 for about a month. He was like a different child

today during his appointment. He made more attempts than I have ever seen him

try

before. And he even put together a few multi-syllable words! The SLP was

amazed! It was the first time I really had hope that he was even going to speak

intelligibly.

Question: is this the " surge " that I am looking for to add another EFA

capsule? Do I add a half or a whole capsule. My understanding is to get to

2-EFA's

then add the EPA, is that correct?

Thank you all for allowing me to express my excitement. I don't mean to

discourage anyone who is in a " rutt " right now...we have been there for the

last

- well, 3.5 years. I am just so thankful for the good days (which are few and

far between).

Thanks to you all!

Leah

**************Feeling the pinch at the grocery store? Make dinner for $10 or

less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

Link to comment
Share on other sites

Guest guest

Would this damage show on an MRI?

From: <agirlnamedsuess@...>

Subject: [ ] Re: Just had to say...

Date: Thursday, March 19, 2009, 9:13 AM

You spelled meconium correctly. ;0) I have found in my research that a primary

cause of true apraxia is a lack of oxygen after or during birth. It is a type of

cerebral palsy, in a sense, because it is a neurological condition caused by

lack of O2 at birth. Because language cells are the first to die, then language

is always affected. In more severe cases, the entire body is affected.

Link to comment
Share on other sites

Guest guest

That may be the case for some -I know a child where the lack of oxygen at birth

caused not speech issues, but cognitive ones.

(she can talk- but is diagnosed with MR)

For my son and some others there was no lack of oxygen that anybody was aware of

pre or post delivery. In fact my son developed normally up till he was 11

months old when he had 2 weeks of high fevers and regressed -lost babble sounds

and seemed to develop hypotonia at that point as can be seen in photos and

videos pre and post fever.

Some do have apraxia from birth -and even then there's no way of knowing for

sure the cause. Genetics, environmental, viral (oxygen?)- who knows? One day I

hope we do know -but I suspect that we will learn that while there's not just

one cause of apraxia in children today -that there is a primary one that has

created the dramatic increase to this previously rare communication disorder.

=====

Link to comment
Share on other sites

Guest guest

+

Please give me advice...I have a 4 year old with a vocabulary of a few

spontaneous words. We have done neurodevelopmental therapy with him for about

14 months. We just added speech therapy for the past 2 weeks, twice weekly.

My son saw a physiatrist yesterday and he is kind of pushing me to get an MRI.

He says that the state may not pay for apraxia if there is no reason as to why

he has it. I initially went to the physiatrist instead of an neurologist so I

wouldn't have to get an MRI but would be able to get a DX which would allow me

to get help from the state to pay for therapy. My son does have some serious

issues. He has severe apraxia, (verbal, oral, and motor), hypotonia, and a

small head (this size of a 24 month old) My son is also small for his age and

is underweight and has some thyroid issues.

I guess the small head size would be my only consideration in getting the MRI as

to see if and where the brain is involved. So I guess I have 2 questions. Does

anyone know if the state of Michigan's, Childrens Special Needs Services, will

pay for therapy with a dx of apraxia, hypotonia, without the MRI results. And

secondly, because of my child's head size being small coupled with the fact that

my SLP is suspicious that something else is going on besides apraxia, warrant an

MRI? I always deal with everything to do with health naturally so I am at a

loss as to what to do. I really am skeptical of the system but want to do the

best for my son.

I hope I made myself understood and I am really hoping that someone on the group

can help me to make the right decision.

God bless you all for all that you do to help others with special children.

Jane

www.KidsHealthNaturally.com

www.HealthyChatter.com

has<agirlnamedsuess@...> wrote:

>

> I meant to add that the reason he gave was something along the lines of some

infarcts won't appear on MRI's.

>

>

Link to comment
Share on other sites

Guest guest

Just curious...do you know if your child had any seizures with those high

fevers?

My neurologist mentioned something about seizures in childhood being cause of

CAS.

Being a little presumptious, I guess, but if that is the case (seizures), then

they might be the transient childhood type (which disappear as the child grows

older) and your child may actually have a good outcome in regards to the

apraxia.

Just a thought.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...