Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Leah, It is wonderful that Josh is showing an improvement! :0) My son is 5 and a half. We hav used the fish oils fo a while now and recently took him off the Omegas in a sort of " clinical trial " (so to speak). The only thing I noticed that the fish oils did for my son was they made him more hyperactive. There is no difference in his speech patterns and the only thing that has made a difference in his speech sometimes is " practice, practice, practice " . I am not trying to sound negative, but is it is possible that those on this group who have been helped with fish oils have a " different " type of apraxia of speech? I know that sounds confusing, but I hard that " true apraxia " was very rare. And I do know that my son has true apraxia. So,does anyone know if there is a difference between CAS (Childhood Apraxia of Speech) and other apraxias? Is one a sort of transient problem in childhood, which can be hlped with things like fish oils, and the other true apraxia, which cannot be helped with fish oils, or what? I guess why I am asking is that I often wonder is this is the best that my son is ever going to get because there are no magical pills (or better yet, oils) that have helped him. He has a clear EEG (no seizure indications) and we are currently testing to rule out translocations because the root cause is thought to be the severe lack of oxygen after birth.I also read somewhere that " language cells " are the first to die when a person is deprived of oxygen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2009 Report Share Posted March 18, 2009 Interesting about the " language cells " dying. My has " true apraxia " diagnosed by a number of different specialist in a number of different fields. The one blessing is that he is verbal - but it is painful to watch him try to make sounds...it breaks my heart. Anyhow, he had pretty significant sleep apnea as a baby. He wasn't diagnosed till 11 months old - has his adenoids out within a week or so of diagnosis. He had an 80% blockage of his nasal passages. So, he was losing oxygen while he slept. Of course, now they think the surgery may have damaged his palate and that is why many of the sounds he does make are extremely nasal. For example - if you make him hold his nose, he is completely unable to produce the long " E " sound. Very interesting. Anyway, thanks for your input. At this point - I recognize that EFA's are essential to the body and since he is on a very limited diet (GFCF), we need all the help we can get! They are also helping keep his bathroom habits regular as before this he was constantly constipated. Now he goes once per day! I cannot say if the EFA's have " caused " the surge...or if the practice, practice, practice has been the thing. I am just glad to see some improvement! > > Leah, > It is wonderful that Josh is showing an improvement! :0) > My son is 5 and a half. We hav used the fish oils fo a while now and recently took him off the Omegas in a sort of " clinical trial " (so to speak). The only thing I noticed that the fish oils did for my son was they made him more hyperactive. There is no difference in his speech patterns and the only thing that has made a difference in his speech sometimes is " practice, practice, practice " . I am not trying to sound negative, but is it is possible that those on this group who have been helped with fish oils have a " different " type of apraxia of speech? > I know that sounds confusing, but I hard that " true apraxia " was very rare. And I do know that my son has true apraxia. So,does anyone know if there is a difference between CAS (Childhood Apraxia of Speech) and other apraxias? Is one a sort of transient problem in childhood, which can be hlped with things like fish oils, and the other true apraxia, which cannot be helped with fish oils, or what? I guess why I am asking is that I often wonder is this is the best that my son is ever going to get because there are no magical pills (or better yet, oils) that have helped him. He has a clear EEG (no seizure indications) and we are currently testing to rule out translocations because the root cause is thought to be the severe lack of oxygen after birth.I also read somewhere that " language cells " are the first to die when a person is deprived of oxygen. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Your post is interesting because my also had an oxygen problem at birth. He swallowed meconium (not sure that is how you spell it) and was on oxygen for 7 hours. His oxygen saturation rate was only 20% when it should be at least 92%.. There were no delays in gross motor skills so the developmental pediatrician at Iowa City ruled out lack of oxygen. Was your 's gross motor skills delayed? Was he a mouth breather? Did he sleep with his mouth open because it was easier to breath. My still gets speech therapy but his speech is ok now. He is 8.5. **************Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Sounds like you are really on the right track Leah. **************Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 You spelled meconium correctly. ;0) I have found in my research that a primary cause of true apraxia is a lack of oxygen after or during birth. It is a type of cerebral palsy, in a sense, because it is a neurological condition caused by lack of O2 at birth. Because language cells are the first to die, then language is always affected. In more severe cases, the entire body is affected. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 I am sorry no one told you that would happen in removing the adenoid tissues.:0( They tried to remove ALL of my kids adenoids. I said no and they are fine in that regards now. Don't get me wrong about the EFA's. They ARE essential and they ARE good. (Very Good!) We use omega vegetable oil and do a diet rich in Omega, and supplements are good, but I have not seen any miracles of speech with them. My son, also, struggles for words...and I cry behind closed doors. He is verbal, which is a plus, but he is truly apraxic and I wonder if it will ever come together because of the lack of O2 after birth. (Midwife fault...not apnea). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Hi ! I just wanted to write because I had a difficult delivery with my son. First, my doctor, broke my water in his office when I requested he didnt. Then he gave me pitocin when I requested he didnt. Then, I overheard him telling the nurse I had meconium and then left for awhile to deliver another baby. My son needed assistance at birth and needed oxygen. By deliberately breaking my water and speeding up the delivery, it turns out he was actually a week or so early. So, I am quite sure that these are the reasons but is there a way to figure out that this is what caused his apraxia. I think it would help me come to terms with it instead of wondering what happened.....thanks ALlison In , " " <agirlnamedsuess@...> wrote: > > You spelled meconium correctly. ;0) I have found in my research that a primary cause of true apraxia is a lack of oxygen after or during birth. It is a type of cerebral palsy, in a sense, because it is a neurological condition caused by lack of O2 at birth. Because language cells are the first to die, then language is always affected. In more severe cases, the entire body is affected. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 this sounds wonderful, Leah!!! Bek In a message dated 3/18/2009 7:38:50 P.M. Eastern Daylight Time, kaiserfamily4@... writes: Hi all! My name is Leah and I am mom to (5), (3.5) and Abigail (1). I have been lurking for a while and have posted a few times, but I wanted to post today because you guys are probably the only ones who " get it. " had a GREAT speech therapy appointment today! He was diagnosed with Severe Apraxia of Speech about 9 months ago and we have struggled with insurance issues and what-not over and over again. We even considered taking him to Detroit to see Kaufman in person (she did a video eval on him and was very kind to offer to take him in her clinic). Anyhow, we are finally settled in with a FANTASTIC SLP who has worked w/ Kaufman in the past...our insurance is now paying for his visits again...and he has been on 1 capsule of Nordic Naturals Omega 3-6-9 for about a month. He was like a different child today during his appointment. He made more attempts than I have ever seen him try before. And he even put together a few multi-syllable words! The SLP was amazed! It was the first time I really had hope that he was even going to speak intelligibly. Question: is this the " surge " that I am looking for to add another EFA capsule? Do I add a half or a whole capsule. My understanding is to get to 2-EFA's then add the EPA, is that correct? Thank you all for allowing me to express my excitement. I don't mean to discourage anyone who is in a " rutt " right now...we have been there for the last - well, 3.5 years. I am just so thankful for the good days (which are few and far between). Thanks to you all! Leah **************Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Would this damage show on an MRI? From: <agirlnamedsuess@...> Subject: [ ] Re: Just had to say... Date: Thursday, March 19, 2009, 9:13 AM You spelled meconium correctly. ;0) I have found in my research that a primary cause of true apraxia is a lack of oxygen after or during birth. It is a type of cerebral palsy, in a sense, because it is a neurological condition caused by lack of O2 at birth. Because language cells are the first to die, then language is always affected. In more severe cases, the entire body is affected. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 My child's PCP said sometimes it will and sometimes it won't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 I meant to add that the reason he gave was something along the lines of some infarcts won't appear on MRI's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 I have always thought that may be the cause. **************Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 That may be the case for some -I know a child where the lack of oxygen at birth caused not speech issues, but cognitive ones. (she can talk- but is diagnosed with MR) For my son and some others there was no lack of oxygen that anybody was aware of pre or post delivery. In fact my son developed normally up till he was 11 months old when he had 2 weeks of high fevers and regressed -lost babble sounds and seemed to develop hypotonia at that point as can be seen in photos and videos pre and post fever. Some do have apraxia from birth -and even then there's no way of knowing for sure the cause. Genetics, environmental, viral (oxygen?)- who knows? One day I hope we do know -but I suspect that we will learn that while there's not just one cause of apraxia in children today -that there is a primary one that has created the dramatic increase to this previously rare communication disorder. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 + Please give me advice...I have a 4 year old with a vocabulary of a few spontaneous words. We have done neurodevelopmental therapy with him for about 14 months. We just added speech therapy for the past 2 weeks, twice weekly. My son saw a physiatrist yesterday and he is kind of pushing me to get an MRI. He says that the state may not pay for apraxia if there is no reason as to why he has it. I initially went to the physiatrist instead of an neurologist so I wouldn't have to get an MRI but would be able to get a DX which would allow me to get help from the state to pay for therapy. My son does have some serious issues. He has severe apraxia, (verbal, oral, and motor), hypotonia, and a small head (this size of a 24 month old) My son is also small for his age and is underweight and has some thyroid issues. I guess the small head size would be my only consideration in getting the MRI as to see if and where the brain is involved. So I guess I have 2 questions. Does anyone know if the state of Michigan's, Childrens Special Needs Services, will pay for therapy with a dx of apraxia, hypotonia, without the MRI results. And secondly, because of my child's head size being small coupled with the fact that my SLP is suspicious that something else is going on besides apraxia, warrant an MRI? I always deal with everything to do with health naturally so I am at a loss as to what to do. I really am skeptical of the system but want to do the best for my son. I hope I made myself understood and I am really hoping that someone on the group can help me to make the right decision. God bless you all for all that you do to help others with special children. Jane www.KidsHealthNaturally.com www.HealthyChatter.com has<agirlnamedsuess@...> wrote: > > I meant to add that the reason he gave was something along the lines of some infarcts won't appear on MRI's. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 Just curious...do you know if your child had any seizures with those high fevers? My neurologist mentioned something about seizures in childhood being cause of CAS. Being a little presumptious, I guess, but if that is the case (seizures), then they might be the transient childhood type (which disappear as the child grows older) and your child may actually have a good outcome in regards to the apraxia. Just a thought. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.