PODDS and introduction

[Guest guest]

Hi,

I think you mean " PODD's " . PODD is short for 'Pragmatic Organisation Dynamic

Display by Gayle Porter.

The producer is the Cerebral Palsy Education Centre.

I can try and google more info for you or ask at our old Early Intervention

Centre in Australia how and where to buy it.

I also want to take this opportunity to introduce myself. I joined this week.

My name is Doris and our daughter is 7 years old and still mainly

non-verbal. was adopted from China and due to her early neglect

undernourishment and lack of any stimulation (I volunteered at her orphanage

while living in China so I know what she experienced) she is globally

developmentally delayed.

Until the age of 2 1/2 only drank milk and as it is practice at the

orphanages the teat had such a large hole that the milk flowed straight into her

mouth and she never learned to 'suck'.

We had to puree all her food until she was five and learned to chew. We believe

the root of her apraxia comes from this early trauma.

We had speech therapy for 3 years in Australia and lots of other therapies and

is doing very well.

Last months we moved to the US on a medical visa to be able to do Neuro-

reorganisation therapy with .

Our speech therapist in Australia has recommended to consult a PROMPT -trained

SLP here as she believed she had done as much as she could for .

Now, here is my dilemma.

I asked the PROMPT institute for practitioner's details here in the

Portland/Oregon area.

I called the Speech and Hearing Institute but they insist on two sessions of an

in-depth assessment each costing $296.-. I explained that has been seeing a

SLP in Australia, that we do not have insurance (we pay cash) , we need no

report and that we know the reason for 's apraxia. But they won't see her

unless we agree to the assessment. The cost of the neuro therapy and the trauma

therapist we are seeing here is already prohibitive without insurance.

I called many other SLP's but no-one even bothers to call back. Is that normal?

Is some-one on the list from the Portland area?

I would be very grateful for any advise regarding Speech therapists in this area

( we live in Lake Oswego)

BTW, communicates with signs (only a few) and sounds and we have just

started to use a AAC (Alternative Augmentative Communication devise) and since

we have started the neuro-reorganisation therapy she is becoming much more

verbal.

Thank you all

Doris

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[Guest guest]

YES!!  Thank you, it is PODDS and that is what it stands for - I couldn't for

the life of me remember.  Thanks!!

Sherry and Josh

________________________________

From: Doris & Burkhard Dehm <dorisdehm@...>

Sent: Friday, March 27, 2009 4:21:46 PM

Subject: [ ] PODDS and introduction

Hi,

I think you mean " PODD's " . PODD is short for 'Pragmatic Organisation Dynamic

Display by Gayle Porter.

The producer is the Cerebral Palsy Education Centre.

I can try and google more info for you or ask at our old Early Intervention

Centre in Australia how and where to buy it.

I also want to take this opportunity to introduce myself. I joined this week.

My name is Doris and our daughter is 7 years old and still mainly

non-verbal. was adopted from China and due to her early neglect

undernourishment and lack of any stimulation (I volunteered at her orphanage

while living in China so I know what she experienced) she is globally

developmentally delayed.

Until the age of 2 1/2 only drank milk and as it is practice at the

orphanages the teat had such a large hole that the milk flowed straight into her

mouth and she never learned to 'suck'.

We had to puree all her food until she was five and learned to chew. We believe

the root of her apraxia comes from this early trauma.

We had speech therapy for 3 years in Australia and lots of other therapies and

is doing very well.

Last months we moved to the US on a medical visa to be able to do Neuro-

reorganisation therapy with .

Our speech therapist in Australia has recommended to consult a PROMPT -trained

SLP here as she believed she had done as much as she could for .

Now, here is my dilemma.

I asked the PROMPT institute for practitioner' s details here in the

Portland/Oregon area.

I called the Speech and Hearing Institute but they insist on two sessions of an

in-depth assessment each costing $296.-. I explained that has been seeing a

SLP in Australia, that we do not have insurance (we pay cash) , we need no

report and that we know the reason for 's apraxia. But they won't see her

unless we agree to the assessment. The cost of the neuro therapy and the trauma

therapist we are seeing here is already prohibitive without insurance.

I called many other SLP's but no-one even bothers to call back. Is that normal?

Is some-one on the list from the Portland area?

I would be very grateful for any advise regarding Speech therapists in this area

( we live in Lake Oswego)

BTW, communicates with signs (only a few) and sounds and we have just

started to use a AAC (Alternative Augmentative Communication devise) and since

we have started the neuro-reorganisatio n therapy she is becoming much more

verbal.

Thank you all

Doris

Please consider the environment before printing this mail

The new Internet Explorer 8 optimised for 7: Faster, Safer, Easier.