Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Did that drug help your nephew? Was he able to recover any of the lost cognitive function? Could PANDAS be a part of his resistant strep problem? One of my nieces has had strep issues, and I think PANDAS is a big source of most of her issues. She was hospitalized with strep once when it got so bad that she had a golf ball-size protrusion on her neck. I am not up on the PANDAS stuff, but for those affected, addressing it seems to have a big impact. My other niece's body used to think she had rubella -- her numbers were sky high -- but I think her DAN has finally gotten that under control. Like your nephew's measles reaction, it took a long time. I heartily endorse your recommendation to do your own research before experimenting. Too bad I couldn't do my own research before Tyler was nuked with powerful antibiotics when he was born (probably needlessly -- no strep involvement, no known infection, just a small fever). Our DAN recently recommended a supplement I have never heard of, and I plan on thoroughly researching it before trying it, even though I've been told that it's a safe OTC herbal. I am also really interested to ask my mainstream pediatrician what the mainstream explanation is for the fantastic impact that the mB12 shots have had on Tyler. The effect is undeniable (giant leaps in communication without therapy, sleeping through the night finally), so I am genuinely curious to hear his take on it. I'm all about root causes, and I will pursue whatever testing, if any, these results might inspire in him. in NJ > > I have not heard of Namenda for apraxia ... but have heard it used > sparingly in the autism community for children who's physical brain > condition warrant it - like my 14 year old nephew's. He began his DAN! > treatments with Dr. Bradstreet in Florida about 10 years ago. The > measles virus remained active in his body after his vaccine and damaged > his brain and myelin production...I remember at the time, after killing > the measles virus, which was a long and tedious procedure, he took a > medication used for Alzheimers patients to help slow down his brain > deterioration...at the time he had little to lose and was closely > monitored by his mom (an RN, by the way) and Dr Bradstreet. There are > some physical problems in common between the Alzheimers..the most common > involves demyleination. Quote Link to comment Share on other sites More sharing options...
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