Re: Finally Talking - but I cant understand!!

[Guest guest]

Jill,

Let your child know you cannot understand him. (That is half the battle of

winning over frustration.) And then say with a follow-up, " Show Me. "

We use SIM-COM to bridge the langauge barrier and I recommend it.

Maybe it can work for you?

>

> UGH - please help!

>

> My son has finally been formally diagnosed with Apraxia thru our school dist.

I have suspected it for a year - but the SLP finally wrote it up as so.

>

> This book has been a life saver for me - helps me not lose my mind.

>

> DS - 3 years old only had 5-10 words a year ago, and the fact that he strings

words together now is amazing - the thing is - now that he is talking he is

SOOOOO hard to understand the articulation is terrible.

>

> How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation???!?

>

> UGH!!!!!!!!!!!

>

> We do some picture cards and these help - but he seems to get frustrated with

them - almost like he thinks he doesnt need them - he acts like we are treating

him like a baby when we give him these -

>

> I am feeling like there is no light at the end of the tunnel - everyone around

us comments about how much better he is doing - yet they dont understand him

either, last night he was trying to tell me something over and over again and I

could not make heads or tails of it " bbeee by baeegerr do " - every time he told

me he got more and more irritated - he finally pointed and said - " go dat way " -

this is where he wanted me to bring him - I think he was trying to say " please

lets go down to the basement " I just wanted to cry b/c here he is finally trying

to talk and we cannot understand him - so I think he gets frustrated and then

just shuts down!

>

> He also has SPD/SID but this all seems to stem from speech/frustration/hearing

problems from before the tubes and aednoids out.

>

> Fish oils seem to be working - he has been on PRO EFA for a couple of months!

>

> Any insight - happy endings to keep me moving?

>

> TIA Jill

>

[Guest guest]

I forgot to add, once he shows you, then repeat the word correctly or say, " You

want-----? "

> >

> > UGH - please help!

> >

> > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> >

> > This book has been a life saver for me - helps me not lose my mind.

> >

> > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> >

> > How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation???!?

> >

> > UGH!!!!!!!!!!!

> >

> > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> >

> > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> >

> > He also has SPD/SID but this all seems to stem from

speech/frustration/hearing problems from before the tubes and aednoids out.

> >

> > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> >

> > Any insight - happy endings to keep me moving?

> >

> > TIA Jill

> >

>

[Guest guest]

jill,

don't despair!  i know how frustrating this can be.  my son is now 9 years old

and i still

have days where i don't have a blessed clue what he's telling me.  most times I

put the

blame on myself by saying " moms ears are tired, or not working or still in bed "  

This takes

some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

was younger i kept a pecs chart in every room for things he might ask for

regularly.

Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

of brush teeth, bath, potty ect. Playroom pecs would be play with me,  games,

puzzles. 

Anything that he would normally ask for in a day.  When he either asked or

showed me what

he wanted calmly, i would reward that with 1 m & m or in our case, 1 black olive

(he loves those!)

Anytime you can reward good attempts with words, sign or pecs thats great.  99%

of the time

all it took was verbal praise.  It sets up a positive environment for

communication and I must say

that it was helpful here because my son used to hit himself in frustration to

the point of bruising.

I know exactly what you mean by talking more but understanding less, we still

have that. but it

does get better.  The best advice i can give you is to keep calm, let him either

bring you to what

he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

the book.  Once I left the pecs in the rooms and the main book where he could

access it on his

own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

he could!

hth

Sandy

________________________________

From: jilltracy74 <jilltracy74@...>

Sent: Tuesday, March 31, 2009 11:57:41 AM

Subject: [ ] Finally Talking - but I cant understand!!

UGH - please help!

My son has finally been formally diagnosed with Apraxia thru our school dist. I

have suspected it for a year - but the SLP finally wrote it up as so.

This book has been a life saver for me - helps me not lose my mind.

DS - 3 years old only had 5-10 words a year ago, and the fact that he strings

words together now is amazing - the thing is - now that he is talking he is

SOOOOO hard to understand the articulation is terrible.

How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

UGH!!!!!!!!! !!

We do some picture cards and these help - but he seems to get frustrated with

them - almost like he thinks he doesnt need them - he acts like we are treating

him like a baby when we give him these -

I am feeling like there is no light at the end of the tunnel - everyone around

us comments about how much better he is doing - yet they dont understand him

either, last night he was trying to tell me something over and over again and I

could not make heads or tails of it " bbeee by baeegerr do " - every time he told

me he got more and more irritated - he finally pointed and said - " go dat way " -

this is where he wanted me to bring him - I think he was trying to say " please

lets go down to the basement " I just wanted to cry b/c here he is finally trying

to talk and we cannot understand him - so I think he gets frustrated and then

just shuts down!

He also has SPD/SID but this all seems to stem from speech/frustration/ hearing

problems from before the tubes and aednoids out.

Fish oils seem to be working - he has been on PRO EFA for a couple of months!

Any insight - happy endings to keep me moving?

TIA Jill

__________________________________________________________________

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new . Click on Options in Mail and switch to New Mail

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[Guest guest]

What kind of speech therapy does he get in school? PROMPT helps my son with

making sounds and making them clearer.

Noelle

On Tue, Mar 31, 2009 at 11:57 AM, jilltracy74 <jilltracy74@...> wrote:

> UGH - please help!

>

> My son has finally been formally diagnosed with Apraxia thru our school

> dist. I have suspected it for a year - but the SLP finally wrote it up as

> so.

>

> This book has been a life saver for me - helps me not lose my mind.

>

> DS - 3 years old only had 5-10 words a year ago, and the fact that he

> strings words together now is amazing - the thing is - now that he is

> talking he is SOOOOO hard to understand the articulation is terrible.

>

> How in the world am I supposed to continue to help his speech when he has

> apraxia - so one on one speech drills are hard for him to do - yet this is

> what he needs to help drill in his brain correct articulation???!?

>

> UGH!!!!!!!!!!!

>

> We do some picture cards and these help - but he seems to get frustrated

> with them - almost like he thinks he doesnt need them - he acts like we are

> treating him like a baby when we give him these -

>

> I am feeling like there is no light at the end of the tunnel - everyone

> around us comments about how much better he is doing - yet they dont

> understand him either, last night he was trying to tell me something over

> and over again and I could not make heads or tails of it " bbeee by baeegerr

> do " - every time he told me he got more and more irritated - he finally

> pointed and said - " go dat way " - this is where he wanted me to bring him -

> I think he was trying to say " please lets go down to the basement " I just

> wanted to cry b/c here he is finally trying to talk and we cannot understand

> him - so I think he gets frustrated and then just shuts down!

>

> He also has SPD/SID but this all seems to stem from

> speech/frustration/hearing problems from before the tubes and aednoids out.

>

> Fish oils seem to be working - he has been on PRO EFA for a couple of

> months!

>

> Any insight - happy endings to keep me moving?

>

> TIA Jill

>

>

>

[Guest guest]

yes this is what we do - what is sim com??

also - did any of your kids have problems answering questions - DS still does

not answer questions on a consistent basis - somedays he is great with it -

" yes " " no " " here " other days nothing!! Its almost like he knows I wont

understand him so why even bother?!

thanks, Jill

> > >

> > > UGH - please help!

> > >

> > > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> > >

> > > This book has been a life saver for me - helps me not lose my mind.

> > >

> > > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> > >

> > > How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation???!?

> > >

> > > UGH!!!!!!!!!!!

> > >

> > > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> > >

> > > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> > >

> > > He also has SPD/SID but this all seems to stem from

speech/frustration/hearing problems from before the tubes and aednoids out.

> > >

> > > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> > >

> > > Any insight - happy endings to keep me moving?

> > >

> > > TIA Jill

> > >

> >

>

[Guest guest]

wow sandy!!! that actually helps a lot!!!

We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

yes he is a million more times calmer then even just a year ago - he seems to

try to listen really well now - he actually listens better then his big sister

1/2 the time - lol.

but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

Thanks, Jill

>

> jill,

>

> don't despair!  i know how frustrating this can be.  my son is now 9 years old

and i still

> have days where i don't have a blessed clue what he's telling me.  most times

I put the

> blame on myself by saying " moms ears are tired, or not working or still in

bed "   This takes

> some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

> was younger i kept a pecs chart in every room for things he might ask for

regularly.

> Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

> of brush teeth, bath, potty ect. Playroom pecs would be play with me,  games,

puzzles. 

> Anything that he would normally ask for in a day.  When he either asked or

showed me what

> he wanted calmly, i would reward that with 1 m & m or in our case, 1 black olive

(he loves those!)

>

> Anytime you can reward good attempts with words, sign or pecs thats great. 

99% of the time

> all it took was verbal praise.  It sets up a positive environment for

communication and I must say

> that it was helpful here because my son used to hit himself in frustration to

the point of bruising.

>

> I know exactly what you mean by talking more but understanding less, we still

have that. but it

> does get better.  The best advice i can give you is to keep calm, let him

either bring you to what

> he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> the book.  Once I left the pecs in the rooms and the main book where he could

access it on his

> own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

> I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

> he could!

>

> hth

> Sandy

>

>

>

> ________________________________

> From: jilltracy74 <jilltracy74@...>

>

> Sent: Tuesday, March 31, 2009 11:57:41 AM

> Subject: [ ] Finally Talking - but I cant understand!!

>

>

> UGH - please help!

>

> My son has finally been formally diagnosed with Apraxia thru our school dist.

I have suspected it for a year - but the SLP finally wrote it up as so.

>

> This book has been a life saver for me - helps me not lose my mind.

>

> DS - 3 years old only had 5-10 words a year ago, and the fact that he strings

words together now is amazing - the thing is - now that he is talking he is

SOOOOO hard to understand the articulation is terrible.

>

> How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

>

> UGH!!!!!!!!! !!

>

> We do some picture cards and these help - but he seems to get frustrated with

them - almost like he thinks he doesnt need them - he acts like we are treating

him like a baby when we give him these -

>

> I am feeling like there is no light at the end of the tunnel - everyone around

us comments about how much better he is doing - yet they dont understand him

either, last night he was trying to tell me something over and over again and I

could not make heads or tails of it " bbeee by baeegerr do " - every time he told

me he got more and more irritated - he finally pointed and said - " go dat way " -

this is where he wanted me to bring him - I think he was trying to say " please

lets go down to the basement " I just wanted to cry b/c here he is finally trying

to talk and we cannot understand him - so I think he gets frustrated and then

just shuts down!

>

> He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

>

> Fish oils seem to be working - he has been on PRO EFA for a couple of months!

>

> Any insight - happy endings to keep me moving?

>

> TIA Jill

>

>

>

>

>

> __________________________________________________________________

> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new . Click on Options in Mail and switch to New Mail

today or register for free at http://mail..ca

>

>

[Guest guest]

I am not quite sure - I think this is what he gets - he is not one to sit still

and do one on one speech drills - so a lot of times the teachers/spt follow him,

play with him, and go off of what he is doing and elaborate from there.

Primarily I think early childhood is focusing on getting the behavior more in

check so the speech can be more effective - he has really done well with this

the last couple of months, and because he is a later bday he will still get one

more year of ec before transitioning into 4k a year and 1/2 from now. *fingers

crosssed*

what speech therapy worked best for your kids?

I guess my main concern is answering questions to - when does this finally get

better???

Thanks, Jill

>

> > UGH - please help!

> >

> > My son has finally been formally diagnosed with Apraxia thru our school

> > dist. I have suspected it for a year - but the SLP finally wrote it up as

> > so.

> >

> > This book has been a life saver for me - helps me not lose my mind.

> >

> > DS - 3 years old only had 5-10 words a year ago, and the fact that he

> > strings words together now is amazing - the thing is - now that he is

> > talking he is SOOOOO hard to understand the articulation is terrible.

> >

> > How in the world am I supposed to continue to help his speech when he has

> > apraxia - so one on one speech drills are hard for him to do - yet this is

> > what he needs to help drill in his brain correct articulation???!?

> >

> > UGH!!!!!!!!!!!

> >

> > We do some picture cards and these help - but he seems to get frustrated

> > with them - almost like he thinks he doesnt need them - he acts like we are

> > treating him like a baby when we give him these -

> >

> > I am feeling like there is no light at the end of the tunnel - everyone

> > around us comments about how much better he is doing - yet they dont

> > understand him either, last night he was trying to tell me something over

> > and over again and I could not make heads or tails of it " bbeee by baeegerr

> > do " - every time he told me he got more and more irritated - he finally

> > pointed and said - " go dat way " - this is where he wanted me to bring him -

> > I think he was trying to say " please lets go down to the basement " I just

> > wanted to cry b/c here he is finally trying to talk and we cannot understand

> > him - so I think he gets frustrated and then just shuts down!

> >

> > He also has SPD/SID but this all seems to stem from

> > speech/frustration/hearing problems from before the tubes and aednoids out.

> >

> > Fish oils seem to be working - he has been on PRO EFA for a couple of

> > months!

> >

> > Any insight - happy endings to keep me moving?

> >

> > TIA Jill

> >

> >

> >

>

>

>

[Guest guest]

Oh Jill,  I know exactly what you mean!!!  School for us is the hard one right

now.

He doesn't get half the sensory breaks he needs (even though its in the IEP)

so, some days he can come out of school and wallop me, which is something he'd

NEVER

done.  He only ever hit himself. 

What i did was make sure that he had lots of time on our little trampoline in

the basement,

had him shred paper that I keep in the recycle box just for that purpose, spin

him around

on the office chair(he loves it, i want to chuck looking at him!) make him wear

a weighted

backpack or vest.  Anything to satisfy the sensory need of the moment.

As i've said before, we still have lots of days where we don't have a clue what

he's saying, but

now that he has control of a)showing us, b)finding the pecs or c)turtle talk

which is just one way

to slow down the words. things are much better.

if all the above fail, I just chalk it up to a difficult day and wait patiently

for tomorrow because

maybe that will be better!

sandy

________________________________

From: jilltracy74 <jilltracy74@...>

Sent: Tuesday, April 7, 2009 10:55:38 AM

Subject: [ ] Re: Finally Talking - but I cant understand!!

wow sandy!!! that actually helps a lot!!!

We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

yes he is a million more times calmer then even just a year ago - he seems to

try to listen really well now - he actually listens better then his big sister

1/2 the time - lol.

but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

Thanks, Jill

>

> jill,

>

> don't despair!  i know how frustrating this can be.  my son is now 9 years old

and i still

> have days where i don't have a blessed clue what he's telling me.  most times

I put the

> blame on myself by saying " moms ears are tired, or not working or still in

bed "   This takes

> some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

> was younger i kept a pecs chart in every room for things he might ask for

regularly.

> Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

> of brush teeth, bath, potty ect. Playroom pecs would be play with me,  games,

puzzles. 

> Anything that he would normally ask for in a day.  When he either asked or

showed me what

> he wanted calmly, i would reward that with 1 m & m or in our case, 1 black olive

(he loves those!)

>

> Anytime you can reward good attempts with words, sign or pecs thats great. 

99% of the time

> all it took was verbal praise.  It sets up a positive environment for

communication and I must say

> that it was helpful here because my son used to hit himself in frustration to

the point of bruising.

>

> I know exactly what you mean by talking more but understanding less, we still

have that. but it

> does get better.  The best advice i can give you is to keep calm, let him

either bring you to what

> he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> the book.  Once I left the pecs in the rooms and the main book where he could

access it on his

> own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

> I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

> he could!

>

> hth

> Sandy

>

>

>

> ____________ _________ _________ __

> From: jilltracy74 <jilltracy74@ ...>

> @groups. com

> Sent: Tuesday, March 31, 2009 11:57:41 AM

> Subject: [childrensapraxiane t] Finally Talking - but I cant understand!!

>

>

> UGH - please help!

>

> My son has finally been formally diagnosed with Apraxia thru our school dist.

I have suspected it for a year - but the SLP finally wrote it up as so.

>

> This book has been a life saver for me - helps me not lose my mind.

>

> DS - 3 years old only had 5-10 words a year ago, and the fact that he strings

words together now is amazing - the thing is - now that he is talking he is

SOOOOO hard to understand the articulation is terrible.

>

> How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

>

> UGH!!!!!!!!! !!

>

> We do some picture cards and these help - but he seems to get frustrated with

them - almost like he thinks he doesnt need them - he acts like we are treating

him like a baby when we give him these -

>

> I am feeling like there is no light at the end of the tunnel - everyone around

us comments about how much better he is doing - yet they dont understand him

either, last night he was trying to tell me something over and over again and I

could not make heads or tails of it " bbeee by baeegerr do " - every time he told

me he got more and more irritated - he finally pointed and said - " go dat way " -

this is where he wanted me to bring him - I think he was trying to say " please

lets go down to the basement " I just wanted to cry b/c here he is finally trying

to talk and we cannot understand him - so I think he gets frustrated and then

just shuts down!

>

> He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

>

> Fish oils seem to be working - he has been on PRO EFA for a couple of months!

>

> Any insight - happy endings to keep me moving?

>

> TIA Jill

>

>

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new . Click on Options in Mail and switch to New Mail

today or register for free at http://mail. .ca

>

>

[Guest guest]

Jill & everyone,

I feel your pain! It is so heartbreaking when your little one knows what they

are saying but nobody understands!! I used to say: give me a clue (ex.. he was

trying to say grass " gra " and the clue was green " geen " ) or if I didn't get what

he was saying, I would say lets talk about this later and I would try to figure

it out in the meantime (sometimes). My son is now 5 and his speech is much more

" clear " and I think some other biomed treatments have helped tremendously (b12,

zinc, healthy diet) with his speech clarity and cognitive function!

From: sandy lehmann <mommie2chris@...>

Subject: Re: [ ] Re: Finally Talking - but I cant understand!!

Date: Tuesday, April 7, 2009, 9:31 AM

Oh Jill,  I know exactly what you mean!!!  School for us is the hard one right

now.

He doesn't get half the sensory breaks he needs (even though its in the IEP)

so, some days he can come out of school and wallop me, which is something he'd

NEVER

done.  He only ever hit himself. 

What i did was make sure that he had lots of time on our little trampoline in

the basement,

had him shred paper that I keep in the recycle box just for that purpose, spin

him around

on the office chair(he loves it, i want to chuck looking at him!) make him wear

a weighted

backpack or vest.  Anything to satisfy the sensory need of the moment.

As i've said before, we still have lots of days where we don't have a clue what

he's saying, but

now that he has control of a)showing us, b)finding the pecs or c)turtle talk

which is just one way

to slow down the words. things are much better.

if all the above fail, I just chalk it up to a difficult day and wait patiently

for tomorrow because

maybe that will be better!

sandy

____________ _________ _________ __

From: jilltracy74 <jilltracy74>

@groups. com

Sent: Tuesday, April 7, 2009 10:55:38 AM

Subject: [childrensapraxiane t] Re: Finally Talking - but I cant understand!!

wow sandy!!! that actually helps a lot!!!

We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

yes he is a million more times calmer then even just a year ago - he seems to

try to listen really well now - he actually listens better then his big sister

1/2 the time - lol.

but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

Thanks, Jill

>

> jill,

>

> don't despair!  i know how frustrating this can be.  my son is now 9 years old

and i still

> have days where i don't have a blessed clue what he's telling me.  most times

I put the

> blame on myself by saying " moms ears are tired, or not working or still in

bed "   This takes

> some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

> was younger i kept a pecs chart in every room for things he might ask for

regularly.

> Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

> of brush teeth, bath, potty ect. Playroom pecs would be play with me,  games,

puzzles. 

> Anything that he would normally ask for in a day.  When he either asked or

showed me what

> he wanted calmly, i would reward that with 1 m & m or in our case, 1 black olive

(he loves those!)

>

> Anytime you can reward good attempts with words, sign or pecs thats great. 

99% of the time

> all it took was verbal praise.  It sets up a positive environment for

communication and I must say

> that it was helpful here because my son used to hit himself in frustration to

the point of bruising.

>

> I know exactly what you mean by talking more but understanding less, we still

have that. but it

> does get better.  The best advice i can give you is to keep calm, let him

either bring you to what

> he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> the book.  Once I left the pecs in the rooms and the main book where he could

access it on his

> own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

> I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

> he could!

>

> hth

> Sandy

>

>

>

> ____________ _________ _________ __

> From: jilltracy74 <jilltracy74@ ...>

> @groups. com

> Sent: Tuesday, March 31, 2009 11:57:41 AM

> Subject: [childrensapraxiane t] Finally Talking - but I cant understand!!

>

>

> UGH - please help!

>

> My son has finally been formally diagnosed with Apraxia thru our school dist.

I have suspected it for a year - but the SLP finally wrote it up as so.

>

> This book has been a life saver for me - helps me not lose my mind.

>

> DS - 3 years old only had 5-10 words a year ago, and the fact that he strings

words together now is amazing - the thing is - now that he is talking he is

SOOOOO hard to understand the articulation is terrible.

>

> How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

>

> UGH!!!!!!!!! !!

>

> We do some picture cards and these help - but he seems to get frustrated with

them - almost like he thinks he doesnt need them - he acts like we are treating

him like a baby when we give him these -

>

> I am feeling like there is no light at the end of the tunnel - everyone around

us comments about how much better he is doing - yet they dont understand him

either, last night he was trying to tell me something over and over again and I

could not make heads or tails of it " bbeee by baeegerr do " - every time he told

me he got more and more irritated - he finally pointed and said - " go dat way " -

this is where he wanted me to bring him - I think he was trying to say " please

lets go down to the basement " I just wanted to cry b/c here he is finally trying

to talk and we cannot understand him - so I think he gets frustrated and then

just shuts down!

>

> He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

>

> Fish oils seem to be working - he has been on PRO EFA for a couple of months!

>

> Any insight - happy endings to keep me moving?

>

> TIA Jill

>

>

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new . Click on Options in Mail and switch to New Mail

today or register for free at http://mail. .ca

>

>

[Guest guest]

thanks guys - I was feeling better - but now defeated again - DS's SPT tried to

retest him today to see where his speech was at and he wold not co-operate

(typical) she guessed it to be at the 19-23 month level. He is 41 months.

This just feels like a knife in my heart - a year ago I was told by the birth to

3 spt that he was at the 12-15 mos level for expressive and 25 month level for

expressive - he was 27 months then. So now he has gone backwards???

bullsh###T!!!!

he is talking wayyyyyyyyyyyyyyyyyyyyyyyy more then a year ago - I have got to

chalk it up to his lack of co-operation but still I am just at the end of my

rope!

then I called a friend to talk it out and she basically acted like DS was

retarded and that I have to lower my expectations - what??? he is so smart but

this is typical people underestimate him b/c of his lack of langauge!

On a positive note I read the articles on here about Vit E greatly helping

apraxia and spd/sid - I have some drops to start - his DAN! doc agreed!

thanks, JIll

- In , boulder market <thebouldermarket@...>

wrote:

>

> Jill & everyone,

> I feel your pain! It is so heartbreaking when your little one knows what they

are saying but nobody understands!! I used to say: give me a clue (ex.. he was

trying to say grass " gra " and the clue was green " geen " ) or if I didn't get what

he was saying, I would say lets talk about this later and I would try to figure

it out in the meantime (sometimes). My son is now 5 and his speech is much more

" clear " and I think some other biomed treatments have helped tremendously (b12,

zinc, healthy diet) with his speech clarity and cognitive function!

>

>

>

>

>

> From: sandy lehmann <mommie2chris@...>

> Subject: Re: [ ] Re: Finally Talking - but I cant

understand!!

>

> Date: Tuesday, April 7, 2009, 9:31 AM

>

>

>

>

>

>

> Oh Jill,  I know exactly what you mean!!!  School for us is the hard one right

now.

> He doesn't get half the sensory breaks he needs (even though its in the IEP)

> so, some days he can come out of school and wallop me, which is something he'd

NEVER

> done.  He only ever hit himself. 

>

> What i did was make sure that he had lots of time on our little trampoline in

the basement,

> had him shred paper that I keep in the recycle box just for that purpose, spin

him around

> on the office chair(he loves it, i want to chuck looking at him!) make him

wear a weighted

> backpack or vest.  Anything to satisfy the sensory need of the moment.

>

> As i've said before, we still have lots of days where we don't have a clue

what he's saying, but

> now that he has control of a)showing us, b)finding the pecs or c)turtle talk

which is just one way

> to slow down the words. things are much better.

>

> if all the above fail, I just chalk it up to a difficult day and wait

patiently for tomorrow because

> maybe that will be better!

>

> sandy

>

> ____________ _________ _________ __

> From: jilltracy74 <jilltracy74>

> @groups. com

> Sent: Tuesday, April 7, 2009 10:55:38 AM

> Subject: [childrensapraxiane t] Re: Finally Talking - but I cant understand!!

>

> wow sandy!!! that actually helps a lot!!!

>

> We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

>

> yes he is a million more times calmer then even just a year ago - he seems to

try to listen really well now - he actually listens better then his big sister

1/2 the time - lol.

>

> but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

>

> Thanks, Jill

>

>

> >

> > jill,

> >

> > don't despair!  i know how frustrating this can be.  my son is now 9 years

old and i still

> > have days where i don't have a blessed clue what he's telling me.  most

times I put the

> > blame on myself by saying " moms ears are tired, or not working or still in

bed "   This takes

> > some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

> > was younger i kept a pecs chart in every room for things he might ask for

regularly.

> > Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

> > of brush teeth, bath, potty ect. Playroom pecs would be play with me, 

games, puzzles. 

> > Anything that he would normally ask for in a day.  When he either asked or

showed me what

> > he wanted calmly, i would reward that with 1 m & m or in our case, 1 black

olive (he loves those!)

> >

> > Anytime you can reward good attempts with words, sign or pecs thats great. 

99% of the time

> > all it took was verbal praise.  It sets up a positive environment for

communication and I must say

> > that it was helpful here because my son used to hit himself in frustration

to the point of bruising.

> >

> > I know exactly what you mean by talking more but understanding less, we

still have that. but it

> > does get better.  The best advice i can give you is to keep calm, let him

either bring you to what

> > he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> > the book.  Once I left the pecs in the rooms and the main book where he

could access it on his

> > own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

> > I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

> > he could!

> >

> > hth

> > Sandy

> >

> >

> >

> > ____________ _________ _________ __

> > From: jilltracy74 <jilltracy74@ ...>

> > @groups. com

> > Sent: Tuesday, March 31, 2009 11:57:41 AM

> > Subject: [childrensapraxiane t] Finally Talking - but I cant understand!!

> >

> >

> > UGH - please help!

> >

> > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> >

> > This book has been a life saver for me - helps me not lose my mind.

> >

> > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> >

> > How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

> >

> > UGH!!!!!!!!! !!

> >

> > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> >

> > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> >

> > He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

> >

> > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> >

> > Any insight - happy endings to keep me moving?

> >

> > TIA Jill

> >

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Be smarter than spam. See how smart SpamGuard is at giving junk email the

boot with the All-new . Click on Options in Mail and switch to New

Mail today or register for free at http://mail. .ca

> >

> >

[Guest guest]

My daughter who is 17 and has Down Syndrome/Autism, Apraxia, HOH, SID, Hypotonia

uses total communication. We focused more on communication than speech because

we felt it was more important that she could communicate rather than how. The

good news is that with using total communication her speech has improved as

well. Don't get me wrong her verbalizations are usually known only by those who

know her well but it improves all the time. What is great is that she can tell

me things using a combination of communication modes which is wonderful. This

evening she told me she wanted me to cut out some symbols I had just finished

printing. Trisha is cognitively delayed but still smart as a whip and has good

common sense which is more than I can say for some of the staff working with

her. She has a sign assistant working with her 4 1/2 hrs a day at school, she

uses her laptop and bm/sdpro for her main communication and she has an old

techspeak 32 for backup or for taking to places you wouldn't want to take the

laptop. We also use a lot of printed symbols all around the house so if one

thing isn't available she has other alternatives to use. The more ways our

children have to communicate the better they will be able to show the

professionals what they know. I guess to me it's more important to give her

multiple ways to communicate instead of focusing on just one way. Oh and by the

way, she is not different than any other child because she tends to learn the no

so nice words to say before what I would consider more preferred words.

Carol

Trishasmom

She isn't typical, She's Trisha!

From: jilltracy74

Sent: Tuesday, April 07, 2009 5:39 PM

Subject: [ ] Re: Finally Talking - but I cant understand!!

thanks guys - I was feeling better - but now defeated again - DS's SPT tried

to retest him today to see where his speech was at and he wold not co-operate

(typical) she guessed it to be at the 19-23 month level. He is 41 months.

This just feels like a knife in my heart - a year ago I was told by the birth

to 3 spt that he was at the 12-15 mos level for expressive and 25 month level

for expressive - he was 27 months then. So now he has gone backwards???

bullsh###T!!!!

he is talking wayyyyyyyyyyyyyyyyyyyyyyyy more then a year ago - I have got to

chalk it up to his lack of co-operation but still I am just at the end of my

rope!

then I called a friend to talk it out and she basically acted like DS was

retarded and that I have to lower my expectations - what??? he is so smart but

this is typical people underestimate him b/c of his lack of langauge!

On a positive note I read the articles on here about Vit E greatly helping

apraxia and spd/sid - I have some drops to start - his DAN! doc agreed!

thanks, JIll

- In , boulder market

<thebouldermarket@...> wrote:

>

> Jill & everyone,

> I feel your pain! It is so heartbreaking when your little one knows what

they are saying but nobody understands!! I used to say: give me a clue (ex.. he

was trying to say grass " gra " and the clue was green " geen " ) or if I didn't get

what he was saying, I would say lets talk about this later and I would try to

figure it out in the meantime (sometimes). My son is now 5 and his speech is

much more " clear " and I think some other biomed treatments have helped

tremendously (b12, zinc, healthy diet) with his speech clarity and cognitive

function!

>

>

>

>

>

> From: sandy lehmann <mommie2chris@...>

> Subject: Re: [ ] Re: Finally Talking - but I cant

understand!!

>

> Date: Tuesday, April 7, 2009, 9:31 AM

>

>

>

>

>

>

> Oh Jill, I know exactly what you mean!!! School for us is the hard one

right now.

> He doesn't get half the sensory breaks he needs (even though its in the IEP)

> so, some days he can come out of school and wallop me, which is something

he'd NEVER

> done. He only ever hit himself.

>

> What i did was make sure that he had lots of time on our little trampoline

in the basement,

> had him shred paper that I keep in the recycle box just for that purpose,

spin him around

> on the office chair(he loves it, i want to chuck looking at him!) make him

wear a weighted

> backpack or vest. Anything to satisfy the sensory need of the moment.

>

> As i've said before, we still have lots of days where we don't have a clue

what he's saying, but

> now that he has control of a)showing us, b)finding the pecs or c)turtle talk

which is just one way

> to slow down the words. things are much better.

>

> if all the above fail, I just chalk it up to a difficult day and wait

patiently for tomorrow because

> maybe that will be better!

>

> sandy

>

> ____________ _________ _________ __

> From: jilltracy74 <jilltracy74>

> @groups. com

> Sent: Tuesday, April 7, 2009 10:55:38 AM

> Subject: [childrensapraxiane t] Re: Finally Talking - but I cant

understand!!

>

> wow sandy!!! that actually helps a lot!!!

>

> We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

>

> yes he is a million more times calmer then even just a year ago - he seems

to try to listen really well now - he actually listens better then his big

sister 1/2 the time - lol.

>

> but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

>

> Thanks, Jill

>

>

> >

> > jill,

> >

> > don't despair! i know how frustrating this can be. my son is now 9 years

old and i still

> > have days where i don't have a blessed clue what he's telling me. most

times I put the

> > blame on myself by saying " moms ears are tired, or not working or still in

bed " This takes

> > some of the frustration and blame off him. As he's matured he's alot more

patient with me. When he

> > was younger i kept a pecs chart in every room for things he might ask for

regularly.

> > Like on the fridge i kept pecs of snack, water, lunch, dinner ect.

Bathroom would be pecs

> > of brush teeth, bath, potty ect. Playroom pecs would be play with me,

games, puzzles.

> > Anything that he would normally ask for in a day. When he either asked or

showed me what

> > he wanted calmly, i would reward that with 1 m & m or in our case, 1 black

olive (he loves those!)

> >

> > Anytime you can reward good attempts with words, sign or pecs thats great.

99% of the time

> > all it took was verbal praise. It sets up a positive environment for

communication and I must say

> > that it was helpful here because my son used to hit himself in frustration

to the point of bruising.

> >

> > I know exactly what you mean by talking more but understanding less, we

still have that. but it

> > does get better. The best advice i can give you is to keep calm, let him

either bring you to what

> > he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> > the book. Once I left the pecs in the rooms and the main book where he

could access it on his

> > own, things got much better. I think he enjoyed being able to choose sign

or pecs on his own. And once

> > I got over controlling the pecs book for him, he actually started trying

to communicate more, just because

> > he could!

> >

> > hth

> > Sandy

> >

> >

> >

> > ____________ _________ _________ __

> > From: jilltracy74 <jilltracy74@ ...>

> > @groups. com

> > Sent: Tuesday, March 31, 2009 11:57:41 AM

> > Subject: [childrensapraxiane t] Finally Talking - but I cant understand!!

> >

> >

> > UGH - please help!

> >

> > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> >

> > This book has been a life saver for me - helps me not lose my mind.

> >

> > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> >

> > How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

> >

> > UGH!!!!!!!!! !!

> >

> > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> >

> > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> >

> > He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

> >

> > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> >

> > Any insight - happy endings to keep me moving?

> >

> > TIA Jill

> >

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Be smarter than spam. See how smart SpamGuard is at giving junk email the

boot with the All-new . Click on Options in Mail and switch to New

Mail today or register for free at http://mail. .ca

> >

> >

[Guest guest]

Sim com is simultaneous communication.

It is signing and talking at the same

time. If the speech is not fully intelligible

the sign usually clarifies what is being

said and if the sign is not fully understood

there may be enough intelligible speech

for communication.

Noelle

Sent from my iPhone

On Apr 7, 2009, at 10:49 AM, " jilltracy74 " <jilltracy74@...>

wrote:

> yes this is what we do - what is sim com??

>

> also - did any of your kids have problems answering questions - DS

> still does not answer questions on a consistent basis - somedays he

> is great with it - " yes " " no " " here " other days nothing!! Its almost

> like he knows I wont understand him so why even bother?!

>

> thanks, Jill

>

>

> > > >

> > > > UGH - please help!

> > > >

> > > > My son has finally been formally diagnosed with Apraxia thru

> our school dist. I have suspected it for a year - but the SLP

> finally wrote it up as so.

> > > >

> > > > This book has been a life saver for me - helps me not lose my

> mind.

> > > >

> > > > DS - 3 years old only had 5-10 words a year ago, and the fact

> that he strings words together now is amazing - the thing is - now

> that he is talking he is SOOOOO hard to understand the articulation

> is terrible.

> > > >

> > > > How in the world am I supposed to continue to help his speech

> when he has apraxia - so one on one speech drills are hard for him

> to do - yet this is what he needs to help drill in his brain correct

> articulation???!?

> > > >

> > > > UGH!!!!!!!!!!!

> > > >

> > > > We do some picture cards and these help - but he seems to get

> frustrated with them - almost like he thinks he doesnt need them -

> he acts like we are treating him like a baby when we give him these -

> > > >

> > > > I am feeling like there is no light at the end of the tunnel -

> everyone around us comments about how much better he is doing - yet

> they dont understand him either, last night he was trying to tell me

> something over and over again and I could not make heads or tails of

> it " bbeee by baeegerr do " - every time he told me he got more and

> more irritated - he finally pointed and said - " go dat way " - this

> is where he wanted me to bring him - I think he was trying to say

> " please lets go down to the basement " I just wanted to cry b/c here

> he is finally trying to talk and we cannot understand him - so I

> think he gets frustrated and then just shuts down!

> > > >

> > > > He also has SPD/SID but this all seems to stem from speech/

> frustration/hearing problems from before the tubes and aednoids out.

> > > >

> > > > Fish oils seem to be working - he has been on PRO EFA for a

> couple of months!

> > > >

> > > > Any insight - happy endings to keep me moving?

> > > >

> > > > TIA Jill

> > > >

> > >

> >

>

>

[Guest guest]

Jill,

isn't it interesting that everytime our kids get assessed  for something they're

having

a day when you know they can do better.  (mine gets really silly!) 

on a sad note with the friends........they truly don't get it.  We see so much

potential

in our children that others don't.  Most times I don't bother explaining

everything, I

just say he's making gains and leave it at that.  I completely steer away from

comparing

my son from everyone else's child.  my heart hurts when friends tell me about

their kids

doing so well in school, making teams, and all the things that kids do.  Dont

get me wrong,

i am happy for them, but when I'm having a down day, it just seems that my son

has to

work way harder for every gain he makes and I get frustrated with them when 

they

get pissy about their child not making a team or they weren't invited to some

party ect.

I'd cheerfully gnaw off my right arm for some of the " problems " they have.  I

know that

I'm alone in alot of this (except for my wonderful husbands support) so when

it's a bad

day I try to deal as best I can.

I would NEVER lower my expectations for my son.  I continue to fight with

services and

school to raise their goals, It might take him a little longer to get there, but

he will.

He is SO worth fighting for!  Besides, I love a little na na na na..told you so!

I hope tomorrow is a better day for you.

sandy

________________________________

From: jilltracy74 <jilltracy74@...>

Sent: Tuesday, April 7, 2009 5:39:02 PM

Subject: [ ] Re: Finally Talking - but I cant understand!!

thanks guys - I was feeling better - but now defeated again - DS's SPT tried to

retest him today to see where his speech was at and he wold not co-operate

(typical) she guessed it to be at the 19-23 month level. He is 41 months.

This just feels like a knife in my heart - a year ago I was told by the birth to

3 spt that he was at the 12-15 mos level for expressive and 25 month level for

expressive - he was 27 months then. So now he has gone backwards??? bullsh###T!!

!!

he is talking wayyyyyyyyyyyyyyyyy yyyyyyy more then a year ago - I have got to

chalk it up to his lack of co-operation but still I am just at the end of my

rope!

then I called a friend to talk it out and she basically acted like DS was

retarded and that I have to lower my expectations - what??? he is so smart but

this is typical people underestimate him b/c of his lack of langauge!

On a positive note I read the articles on here about Vit E greatly helping

apraxia and spd/sid - I have some drops to start - his DAN! doc agreed!

thanks, JIll

- In @groups. com, boulder market <thebouldermarket@

....> wrote:

>

> Jill & everyone,

> I feel your pain! It is so heartbreaking when your little one knows what they

are saying but nobody understands! ! I used to say: give me a clue (ex.. he was

trying to say grass " gra " and the clue was green " geen " ) or if I didn't get what

he was saying, I would say lets talk about this later and I would try to figure

it out in the meantime (sometimes). My son is now 5 and his speech is much more

" clear " and I think some other biomed treatments have helped tremendously (b12,

zinc, healthy diet) with his speech clarity and cognitive function!

>

>

>

>

>

> From: sandy lehmann <mommie2chris@ ...>

> Subject: Re: [childrensapraxiane t] Re: Finally Talking - but I cant

understand!!

> @groups. com

> Date: Tuesday, April 7, 2009, 9:31 AM

>

>

>

>

>

>

> Oh Jill,  I know exactly what you mean!!!  School for us is the hard one right

now.

> He doesn't get half the sensory breaks he needs (even though its in the IEP)

> so, some days he can come out of school and wallop me, which is something he'd

NEVER

> done.  He only ever hit himself. 

>

> What i did was make sure that he had lots of time on our little trampoline in

the basement,

> had him shred paper that I keep in the recycle box just for that purpose, spin

him around

> on the office chair(he loves it, i want to chuck looking at him!) make him

wear a weighted

> backpack or vest.  Anything to satisfy the sensory need of the moment.

>

> As i've said before, we still have lots of days where we don't have a clue

what he's saying, but

> now that he has control of a)showing us, b)finding the pecs or c)turtle talk

which is just one way

> to slow down the words. things are much better.

>

> if all the above fail, I just chalk it up to a difficult day and wait

patiently for tomorrow because

> maybe that will be better!

>

> sandy

>

> ____________ _________ _________ __

> From: jilltracy74 <jilltracy74>

> @groups. com

> Sent: Tuesday, April 7, 2009 10:55:38 AM

> Subject: [childrensapraxiane t] Re: Finally Talking - but I cant understand!!

>

> wow sandy!!! that actually helps a lot!!!

>

> We have the pecs on one board in the dining room - b/c it seemed like the

central place for it - but I do beleive having each specific pec in each room,

frig, etc would be better.

>

> yes he is a million more times calmer then even just a year ago - he seems to

try to listen really well now - he actually listens better then his big sister

1/2 the time - lol.

>

> but with his spd/sid he has transition flare ups and days were he is over

whelmed and then the talking and co-operation is less - if you know what I mean?

>

> Thanks, Jill

>

>

> >

> > jill,

> >

> > don't despair!  i know how frustrating this can be.  my son is now 9 years

old and i still

> > have days where i don't have a blessed clue what he's telling me.  most

times I put the

> > blame on myself by saying " moms ears are tired, or not working or still in

bed "   This takes

> > some of the frustration and blame off him.  As he's matured he's alot more

patient with me. When he

> > was younger i kept a pecs chart in every room for things he might ask for

regularly.

> > Like on the fridge i kept pecs of snack, water, lunch, dinner ect.  Bathroom

would be pecs

> > of brush teeth, bath, potty ect. Playroom pecs would be play with me, 

games, puzzles. 

> > Anything that he would normally ask for in a day.  When he either asked or

showed me what

> > he wanted calmly, i would reward that with 1 m & m or in our case, 1 black

olive (he loves those!)

> >

> > Anytime you can reward good attempts with words, sign or pecs thats great. 

99% of the time

> > all it took was verbal praise.  It sets up a positive environment for

communication and I must say

> > that it was helpful here because my son used to hit himself in frustration

to the point of bruising.

> >

> > I know exactly what you mean by talking more but understanding less, we

still have that. but it

> > does get better.  The best advice i can give you is to keep calm, let him

either bring you to what

> > he wants, or leave the pecs around so he can have control how he wants to

communicate instead of giving him

> > the book.  Once I left the pecs in the rooms and the main book where he

could access it on his

> > own, things got much better. I think he enjoyed being able to choose sign or

pecs on his own. And once

> > I got over controlling the pecs book for him, he actually started trying to

communicate more, just because

> > he could!

> >

> > hth

> > Sandy

> >

> >

> >

> > ____________ _________ _________ __

> > From: jilltracy74 <jilltracy74@ ...>

> > @groups. com

> > Sent: Tuesday, March 31, 2009 11:57:41 AM

> > Subject: [childrensapraxiane t] Finally Talking - but I cant understand!!

> >

> >

> > UGH - please help!

> >

> > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> >

> > This book has been a life saver for me - helps me not lose my mind.

> >

> > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> >

> > How in the world am I supposed to continue to help his speech when he has

apraxia - so one on one speech drills are hard for him to do - yet this is what

he needs to help drill in his brain correct articulation? ??!?

> >

> > UGH!!!!!!!!! !!

> >

> > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> >

> > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> >

> > He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

> >

> > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> >

> > Any insight - happy endings to keep me moving?

> >

> > TIA Jill

> >

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Be smarter than spam. See how smart SpamGuard is at giving junk email the

boot with the All-new . Click on Options in Mail and switch to New

Mail today or register for free at http://mail. .ca

> >

> >

[Guest guest]

Jill, Noelle explained SIM COM correctly; it is simultaneous verbal

communication and signed language. It differs from ASL in that ASL has a

different word order than word for word as it is spoken. With ASL, sometimes

" you " would be at the end of the sentence. (i.e She is smart. may be presented

in ASL like> She smart she.) When using SIM COM, the word order stays >>She is

smart.

We try to also include simple words like " is " , but we do not do confusing things

at this age like signed exact english does (i.e. signing " ing " on the end of

verb words.)Because he is 5, we try to keep it simple and just stick to the root

verb.

The good thing about SIM COM is that when the child sees or uses the signs, it

cues the brain to " remember " how the word is sequences and should sound.

(Neurological programming, again. :0)

We actually hae had my son doing sign language for things he wnted to say and

shockingly pop out with the word in the correct order!

I think he was surprised also.

It is amazing and it is effective. And if your child never gains sufficient

verbal language, then at least he has sign language in the end. The signs usd

are ASL signs and it is incredible because once they learn exact order with SIM

COM, then they can read ASL order when it is signed to them. The basic language

is still there.

> > > >

> > > > UGH - please help!

> > > >

> > > > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> > > >

> > > > This book has been a life saver for me - helps me not lose my mind.

> > > >

> > > > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> > > >

> > > > How in the world am I supposed to continue to help his speech when he

has apraxia - so one on one speech drills are hard for him to do - yet this is

what he needs to help drill in his brain correct articulation???!?

> > > >

> > > > UGH!!!!!!!!!!!

> > > >

> > > > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> > > >

> > > > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> > > >

> > > > He also has SPD/SID but this all seems to stem from

speech/frustration/hearing problems from before the tubes and aednoids out.

> > > >

> > > > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> > > >

> > > > Any insight - happy endings to keep me moving?

> > > >

> > > > TIA Jill

> > > >

> > >

> >

>

[Guest guest]

Carol,

Do you mind sharing how you got the service for the sign language tutor 4 1/2

hours/day?

Also, if it is not too probing, I would like to know if they listed English or

Signed language as the primary language for your child on her IEP? (It would be

in the first few pages of the IEP) And if they listed English, then how did you

manage to get them to give her signe language during the day? (I have not been

ever able to get that on the IEP.)

Also, if you don't mind sharing, could you please tell what the goals read in

order to specifically get this service?

Thanks a bunch, (Sorry for all the questions)

> > >

> > > jill,

> > >

> > > don't despair! i know how frustrating this can be. my son is now 9

years old and i still

> > > have days where i don't have a blessed clue what he's telling me. most

times I put the

> > > blame on myself by saying " moms ears are tired, or not working or still

in bed " This takes

> > > some of the frustration and blame off him. As he's matured he's alot

more patient with me. When he

> > > was younger i kept a pecs chart in every room for things he might ask

for regularly.

> > > Like on the fridge i kept pecs of snack, water, lunch, dinner ect.

Bathroom would be pecs

> > > of brush teeth, bath, potty ect. Playroom pecs would be play with me,

games, puzzles.

> > > Anything that he would normally ask for in a day. When he either asked

or showed me what

> > > he wanted calmly, i would reward that with 1 m & m or in our case, 1 black

olive (he loves those!)

> > >

> > > Anytime you can reward good attempts with words, sign or pecs thats

great. 99% of the time

> > > all it took was verbal praise. It sets up a positive environment for

communication and I must say

> > > that it was helpful here because my son used to hit himself in

frustration to the point of bruising.

> > >

> > > I know exactly what you mean by talking more but understanding less, we

still have that. but it

> > > does get better. The best advice i can give you is to keep calm, let

him either bring you to what

> > > he wants, or leave the pecs around so he can have control how he wants

to communicate instead of giving him

> > > the book. Once I left the pecs in the rooms and the main book where he

could access it on his

> > > own, things got much better. I think he enjoyed being able to choose

sign or pecs on his own. And once

> > > I got over controlling the pecs book for him, he actually started trying

to communicate more, just because

> > > he could!

> > >

> > > hth

> > > Sandy

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: jilltracy74 <jilltracy74@ ...>

> > > @groups. com

> > > Sent: Tuesday, March 31, 2009 11:57:41 AM

> > > Subject: [childrensapraxiane t] Finally Talking - but I cant

understand!!

> > >

> > >

> > > UGH - please help!

> > >

> > > My son has finally been formally diagnosed with Apraxia thru our school

dist. I have suspected it for a year - but the SLP finally wrote it up as so.

> > >

> > > This book has been a life saver for me - helps me not lose my mind.

> > >

> > > DS - 3 years old only had 5-10 words a year ago, and the fact that he

strings words together now is amazing - the thing is - now that he is talking he

is SOOOOO hard to understand the articulation is terrible.

> > >

> > > How in the world am I supposed to continue to help his speech when he

has apraxia - so one on one speech drills are hard for him to do - yet this is

what he needs to help drill in his brain correct articulation? ??!?

> > >

> > > UGH!!!!!!!!! !!

> > >

> > > We do some picture cards and these help - but he seems to get frustrated

with them - almost like he thinks he doesnt need them - he acts like we are

treating him like a baby when we give him these -

> > >

> > > I am feeling like there is no light at the end of the tunnel - everyone

around us comments about how much better he is doing - yet they dont understand

him either, last night he was trying to tell me something over and over again

and I could not make heads or tails of it " bbeee by baeegerr do " - every time he

told me he got more and more irritated - he finally pointed and said - " go dat

way " - this is where he wanted me to bring him - I think he was trying to say

" please lets go down to the basement " I just wanted to cry b/c here he is

finally trying to talk and we cannot understand him - so I think he gets

frustrated and then just shuts down!

> > >

> > > He also has SPD/SID but this all seems to stem from speech/frustration/

hearing problems from before the tubes and aednoids out.

> > >

> > > Fish oils seem to be working - he has been on PRO EFA for a couple of

months!

> > >

> > > Any insight - happy endings to keep me moving?

> > >

> > > TIA Jill

> > >

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > Be smarter than spam. See how smart SpamGuard is at giving junk email

the boot with the All-new . Click on Options in Mail and switch to

New Mail today or register for free at http://mail. .ca

> > >

> > >

[Guest guest]

,

It was a long process (over many, many years). She just got a signing assistant

this past year.

On her IEP it is listed as she is bilingual, sign language and English. I

requested a language evaluation with the stipulation that the person doing the

evaluation needed to be fluent in sign. It took months to get the evaluation

done and the report back but when it came back it backed up everything I had

been saying all these years. We actually at this time do not have sign goals in

the IEP but we will be adding some on the next annual IEP that is coming up in

June. We have the sign assistant listed as related services for 4 1/2 hrs. The

sign assistant will remain as a related service provider but we will be writing

specific goals now that we see how it is working and what needs to be done or

changed. Remember we did not hire an interpreter hence why we use the term sign

assistant. She is not interpreting for Trisha but instead is helping her to

learn more signs, how to converse using signs. It's funny the school kept

baulking at the term interpreter but had little problem with sign assistant.

Also, be careful when looking for someone to help with sign because some

interpreters can't adjust to teaching sign instead of actual interpreting. What

we asked for was someone fluent in sign who could also speak English as they

signed. Being that Trisha is the only one with a sign assistant this was a new

area for us all so we are learning as we go. We contacted the local colleges

who taught sign language and also special education. We did better going that

route than going through agencies for sign interpreters. Hope this helps a bit.

Carol

[Guest guest]

-So, is the school paying for the sign assistant and did you have to find the

assistant? There is a page in our IEP that reads " Is the primary language

English " with a yes/no check box. I always complained to say that sign language

was the primary language. They had a problem with saying ASL, which is

technically correct not to say this, but they also had a problem not checking

yes for English being his primary language. There is no box for bilingual.

Also,the only sign I could get him, when he was in school, was a sp.ed. teacher

who knew about 8-10 signs of th basic " more, eat, potty " signs. He is way beyond

that.

In , " csvillars " <Csvillars@...> wrote:

>

> ,

>

> It was a long process (over many, many years). She just got a signing

assistant this past year.

>

> On her IEP it is listed as she is bilingual, sign language and English. I

requested a language evaluation with the stipulation that the person doing the

evaluation needed to be fluent in sign. It took months to get the evaluation

done and the report back but when it came back it backed up everything I had

been saying all these years. We actually at this time do not have sign goals in

the IEP but we will be adding some on the next annual IEP that is coming up in

June. We have the sign assistant listed as related services for 4 1/2 hrs. The

sign assistant will remain as a related service provider but we will be writing

specific goals now that we see how it is working and what needs to be done or

changed. Remember we did not hire an interpreter hence why we use the term sign

assistant. She is not interpreting for Trisha but instead is helping her to

learn more signs, how to converse using signs. It's funny the school kept

baulking at the term interpreter but had little problem with sign assistant.

Also, be careful when looking for someone to help with sign because some

interpreters can't adjust to teaching sign instead of actual interpreting. What

we asked for was someone fluent in sign who could also speak English as they

signed. Being that Trisha is the only one with a sign assistant this was a new

area for us all so we are learning as we go. We contacted the local colleges

who taught sign language and also special education. We did better going that

route than going through agencies for sign interpreters. Hope this helps a bit.

>

> Carol

>