my feedback on speak supplements

[Guest guest]

Hi,

we have been selected to be in the clinical trial, my daughter

started the speak supplements a week ago today. Prior to that, a year

ago, I had given her pro efa jr. two capsules a day and saw no

improvements. I stopped and waited about 6 months and then started

giving her two capsules of ProEFA, with some nice surges, and was

getting ready to supplement with one capsule of Proepa when we got

selected for the trial so I started giving her the Speak capsules

instead.

My observations so far, which I've been keeping in a journal, is that

every single day, she has said one or several new words that she has

never said before. My husband and my daughter's SLP has been very

impressed and I continue to be amazed. I had thought she was a non

responder when in fact she needed a higher dosage than what I was

giving her.

I have only been giving her 2 capsules of speak since last Monday and

am not sure when to increase her to a second dosage in the day. My

question to those of you in the speak trials is that have you gotten

any guidance for this trial? All I got was an email and register on

the website. I am not sure if we are to record all observations of

our child, the amt we're giving and so forth...it doesn't sound like

a trial to me if we're selected just to give them the supplements,

don't you think?

Second, after reading this post below, I started to wonder about my

daughter because on day 3 and day 4, for the very first time ever, my

daughter had an " episode " of where she was sitting and her body kind

of convulsed very briefly a few minutues apart. I took her ot the dr.

on Friday who didn't think the speak supplements were the cause, but

scheduled an EEG just to be sure there wasn't any seizures going on.

Anyone else experience this?

Thanks

Lori

>

> I have the archive on Omega 3/6 oils below and yes it's

> pointed out by various reputable sources that the fears of seizures

> from the oils are based on myths.

>

> The main thing is to get the opinion from your child's

> MD and seek out second opinions as well. I know how scary it is to

> watch your child regress and pray all goes well with the EEG and you

> get the answers you need to help him get through this.

>

> I know from your email to me that your child is on one ProEFA

capsule

> a day (or Omega 369 same thing) To again be clear -one capsule of

> ProEFA is about the dosage the FDA approved for infant formula -so

> very conservative. If you blotted the oil off the pizza at dinner

> you'd probably have much more of that for sure!

>

> Any sign of regression should be taken serious of course and

reported

> to your child's doctor ASAP... but to again make it clear -lost

skills " from " fish oils is not one that has ever been reported before

> nor one I know of as associated with it. The oils are the Rodney

> Dangerfield of supplements- if there are surges while taking the

fish

> oil with any other supplement -the other supplement is credited for

> the surge... and if there are regressions while taking it the fish

> oils are the first to be under suspicion. To have a no respect fish

> oil named after him -too bad it didn't make it in the video.

> http://www.youtube.com/watch?v=dSoykHwQBe0

>

> And if one capsule of ProEFA in theory did create a regression -

> eating a tuna fish sandwich should create a regression too. The

> other thing that doesn't make sense is that your child is responding

> in his speech development in the past few months since the addition

> of the one capsule which is a great thing. So just for a moment

> let's look outside the fish oils.

>

> You don't say but how long has your child been on each of the

> medications he is on?

>

> Without knowing how long he has been on the medications (other than

> he's just been switched to Depakote since June of 2008?) I looked

at

> the other medications to check for what can be creating the weakness

> or motor planning issues. I also checked to see if anything was

> linked to myopathy as I've recently learned that some medications or

> poisons are linked to this. I know that when it comes to seizures

> that you have to weigh pros and cons of medications of course but I

> did read a few things you may want to run by your child's doctor and

> speaking of myopathy

>

>

[Guest guest]

Hello,

Is too late to join this clinical trial? How did you hear about this?

Thank you,

>

> Hi,

> we have been selected to be in the clinical trial, my daughter

> started the speak supplements a week ago today. Prior to that, a

year

> ago, I had given her pro efa jr. two capsules a day and saw no

> improvements. I stopped and waited about 6 months and then started

> giving her two capsules of ProEFA, with some nice surges, and was

> getting ready to supplement with one capsule of Proepa when we got

> selected for the trial so I started giving her the Speak capsules

> instead.

>

> I have only been giving her 2 capsules of speak since last Monday

and

> am not sure when to increase her to a second dosage in the day. My

> question to those of you in the speak trials is that have you

gotten

> any guidance for this trial?

>

> Second, after reading this post below, I started to wonder about my

> daughter because on day 3 and day 4, for the very first time ever,

my

> daughter had an " episode " of where she was sitting and her body

kind

> of convulsed very briefly a few minutues apart. I took her ot the

dr.

> on Friday who didn't think the speak supplements were the cause,

but

> scheduled an EEG just to be sure there wasn't any seizures going

on.

> Anyone else experience this?

>

> Thanks

> Lori

[Guest guest]

I stand corrected, it is actually a FOCUS group, not a clinical

trial, that was a mistake on my part when I typed my message out. The

information about the focus group was posted by almost a month

ago on this group and it is now closed.

> >

> > Hi,

> > we have been selected to be in the clinical trial, my daughter

> > started the speak supplements a week ago today. Prior to that, a

> year

> > ago, I had given her pro efa jr. two capsules a day and saw no

> > improvements. I stopped and waited about 6 months and then started

> > giving her two capsules of ProEFA, with some nice surges, and was

> > getting ready to supplement with one capsule of Proepa when we got

> > selected for the trial so I started giving her the Speak capsules

> > instead.

> >

> > I have only been giving her 2 capsules of speak since last Monday

> and

> > am not sure when to increase her to a second dosage in the day.

My

> > question to those of you in the speak trials is that have you

> gotten

> > any guidance for this trial?

> >

> > Second, after reading this post below, I started to wonder about

my

> > daughter because on day 3 and day 4, for the very first time ever,

> my

> > daughter had an " episode " of where she was sitting and her body

> kind

> > of convulsed very briefly a few minutues apart. I took her ot the

> dr.

> > on Friday who didn't think the speak supplements were the cause,

> but

> > scheduled an EEG just to be sure there wasn't any seizures going

> on.

> > Anyone else experience this?

> >

> > Thanks

> > Lori

>

[Guest guest]

- I believe it's too late to join the " virtual focus group " for

Pharma Omega SPEAK, but you can check for yourself on their website

at www.speechnutrients.com. Before you decide whether or not to use

the product, you may want to read up on the posts about it here.

> >

> > Hi,

> > we have been selected to be in the clinical trial, my daughter

> > started the speak supplements a week ago today. Prior to that, a

> year

> > ago, I had given her pro efa jr. two capsules a day and saw no

> > improvements. I stopped and waited about 6 months and then started

> > giving her two capsules of ProEFA, with some nice surges, and was

> > getting ready to supplement with one capsule of Proepa when we got

> > selected for the trial so I started giving her the Speak capsules

> > instead.

> >

> > I have only been giving her 2 capsules of speak since last Monday

> and

> > am not sure when to increase her to a second dosage in the day.

My

> > question to those of you in the speak trials is that have you

> gotten

> > any guidance for this trial?

> >

> > Second, after reading this post below, I started to wonder about

my

> > daughter because on day 3 and day 4, for the very first time ever,

> my

> > daughter had an " episode " of where she was sitting and her body

> kind

> > of convulsed very briefly a few minutues apart. I took her ot the

> dr.

> > on Friday who didn't think the speak supplements were the cause,

> but

> > scheduled an EEG just to be sure there wasn't any seizures going

> on.

> > Anyone else experience this?

> >

> > Thanks

> > Lori

>