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Hi Kathleen, Your question isn't silly! I have had the same problem. It has

raised my toe nails. Getting out of the pickup truck once, I fell and snagged

the raised nail. It had to be removed. The removal was supposed to be

permanent but it grew back deformed. I have attributed the fungus to the immune

suppressive medications that I take. I have not tried to take medication for

the nail fungus since I'm already on so many and I have heard that the oral

medications add additional stress to the liver. It seems that I saw an ad for a

topical medication but I haven't tried it.

Kay Braddock

Speedway German Wirehaired Pointers

Paint Horses

Probably a silly question

All of this is relatively new to be as my diagnoses have been made

progressively since May of this year, so please bear with me.

Is there possibly any link to the autoimmune diseases and rampant,

and untreatable nail fungus.

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Kathleen,

Actually, your question is one I planned on asking too!

I have nail fungus under the two toes next to the big toe and one on

each foot. After asking my internist about it, he said he could not

prescribe oral medication because of my arsenal of medications for my

AS. He said I could use a topical treatment; Lotrimen, but that it would

most likely not correct the condition. He was right.

Pat

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Thanks - I have not yet been on immunosuppressive medication, but mine are

raised and deformed as well, and I have had to have nails removed as well. I

have seen the topical med as well, but have not tried it since neither of the

other two did any good at all :)

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Peggy: I am very glad I asked. I have it on both big toe nails, and both have

at some point turned black, etc. I had to have both sides of both nails

permanantly removed...ouch :) Also, I have it on two nails on my right hand.

It does not look quite so bad, but I certainly notice it. I cannot, for

example, go for a manicure or pedicure because it is too embarrassing ... It is

interesting as I actually had back pain first, then the fungus, then the iritis,

and the gastro issues...

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Try Vicks Vaporub for nail fungus. Just rub it on every night in about 6 months

you will have a normal nail growing. I did it and it worked. I had very severe

fungus on both my big toes. Very painful with extremely thick nails. I had

tried everything. Read about this in the paper and thought why not and it

really worked.

Joy in Dallas

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Pat and Joy,

My dr. also told me to use Vicks. He said he doesn't necessarily stick

with just drugs but tries many other treatments with good success.

I have nail fongus on my toe nails and a couple of fingernails too.. Just

have to slow down enough to try and put the Vicks on!!!

>

> Odd as it sounds, I'll give it a try.

>

~~~~~~

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  • 4 years later...

My youngest is now 5 years 3 mos. He started speech and occupational

therapy at 30 mos. I started fish oils 2 months later and he has been

on them ever since. I didn't start the Vitamin E until last year I

think. I only used it for about a month since Vitamin World's High

Gamma (equal alpha and gamma) made him emotional. It's hard to describe

but he was able to " keep it together " immediately once I stopped giving

it to him.)

My son has had 6 SPEAKs since 12:17pm yesterday (2 at 12:17pm, 2 at

7:50pm and 2 this morning at 8:55am). All that VITAMIN E and he's not

weepy or touchy or extra emotional!?!

He is older. He gets less frustrated since we can understand him

better. He used to bang his head on the floor and scream a lot because

we couldn't understand him at all. He spoke in vowels sounds only

except for " mama " , " dada " , and " nana " .

I also work with him at home every single day. My son's SLP said if you

don't work with your child at home then your child's progress may be

much slower.

>

> Does everyone that gives their child ProEFA also have their child in

therapy? I'm new so this probably was answered.

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