Re: Re: Apraxia and the brain

[Guest guest]

susan,

 

are you saying apraxia is related to tbi?

 

 

sl

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang

[Guest guest]

I am asking because she had her ear drum burst 2x, no hearing loss, but she

stopped babbling.  I just assumed she got out of the habit.   She never

officially lost speech as she was too young to have it anyway   -- 6 months.  

 

She did have really high fevers due to keney reflux, but I was assured no

febrile seizures ocurred.    I always wondered about the fevers -- 106.50   as i

just velt that the drs dismissed me.   Thank goodness I knew what was wrong

before they even confirmed it as my sister has kidney reflux.  I had seen this

in my youth.  

 

 

sl  

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Apraxia and the brain

Date: Saturday, April 4, 2009, 8:23 PM

> are you saying apraxia is related to tbi?

Sharon, yes, it is well documented that acquired apraxia is typically from head

trauma or stroke. In children they refer to it as developmental because most

assume that children with apraxia are born with it. My son Tanner regressed so

he must have had some sort of injury -which in his case may have been the high

fevers. This topic has come up much over the years -it was a heated debate 4

years ago because some MD called apraxic children " brain damaged " Below are a

few archives on this:

It's either the very sad reality, or competence in judgment as an MD

to know when to use a word like " damaged " vs " injury " in speaking

about a child's brain. Especially when they don't even know 'if'

there actually is a hard sign injury.

Again this entire hot topic conversation stems from some

professional' s unsubstantiated opinion that all children with

apraxia are " brain damaged " Again -I don't agree at all.

I personally do not consider my boys brain damaged even though in

one way or another both probably did had some brain 'injury'

or 'trauma' at one point that they have " overcome " . Both 11 year

old Dakota and 9 year old Tanner would be viewed as " normal " by most

today -are mainstreamed in school and life in every way, have tons

of friends, and are great students. They overcame whatever

impairments they had years ago before school age - enough to blend

at least. Tanner still has a mild expressive speech delay which

puts him a big younger -but it doesn't affect him socially or

academically and it's something he continues to overcome. Tanner

was diagnosed severe to profound apraxia. So 'is' apraxia brain

damage? No. Does one overcome brain " damage " ?

Not only don't I consider my boys brain damaged -none of the MDs

that diagnosed my boys used the words " brain damaged " -even for

Dakota who had " traumatic brain injuries " from birth trauma.

Re: does anyone have...

Suzi of course parents should get testing to see if there was any

damage that can be picked up on an MRI. I believe however (unless I

misunderstood this) that an MD implied any child that has apraxia has

brain damage. That is what I'm attacking if that is what was said.

Shame on him or her. The percentage of children in this group who

have had MRIs is actually quite high. The percentage of those that

have been diagnosed with any type of TBI is extremely low. I'm not

saying there are not subtle areas of the brain that may be dormant,

or working as quickly or effectively as they should. But our

children are 'children' and appear in many ways (such as your two

amazing girls) to be utilizing other pathways in some way. Until

research is done, and done, and done -OK -even started would be

nice -we don't know what the cause of the formally rare

apraxia 'esque' impairment we are seeing today in families with no

history of speech impairments and no MRI signs of " brain damage " is.

For those with documented brain damage -which by the way includes my

brother as a child- who became the youngest captain out of the Merchant Marine

Academy and then today the youngest partner in a Maritime Law Firm on Wall

Street in NYC -I speak from experience due to my own brother in knowing that

'nobody' wants to be called " brain damaged " even if they are diagnosed as a

child as such like my brother.

Nobody would use those words for him today -nobody! (even Dr. Gold

from Columbia who diagnosed him as such!)

As far as pregancy causing brain damage -if you don't consume enough

EFAs while pregnant the babies growing brain 'does' pull it from the

mom! You guys have 'got' to try taking fish oil for even one

week...and let me know what happens. (you will remember to let me

know once your taking fish oil!)

=====

[Guest guest]

susan

 

have you read my stroke of insight by dr jill botle taylor?   she was a

nuerosientist who had a stroke.   she definatley echos that the brain has

plasticity and gives insight to her recovery.  I found the most interesting part

of the book, her description of how she lost speech due to broach'a area

being flooded with blood.   she challenged her neurlogical system, quickly.

 

anyway, her job at the time was at the brain bank at harvard and she descirbes

how losing the left, logical brain and getting into the right brain was very

peaceful and how it was very, very effortful for both herself and her providers

to convince her to get into the left, judgmental, analytical side.

 

I found this book so enlightening, especially since I have suspected tbi with

maddy due to her difficult delivery. 

 

 

sl

The information transmitted is intended only for the person or entity to which

it is addressed and may contain confidential, proprietary, and/or privileged

material. Any review, retransmission, dissemination or other use of, or taking

of any action in reliance upon, this information by persons or entities other

than the intended recipient is prohibited. If you receive this in error, please

contact the sender and delete the material from all computers.

Sharon Lang