DAN docs

[Guest guest]

Lou:

Go to AutismBiomedGA group and look in the files.

DAN docs

Okay groups -- one more time, since I know this has been asked about alot! I

need the names of DAN docs in the Atlanta area and your input as to their

demeanor, helpfulness, ease of getting in to the office, etc. We live in the

Lilburn area - so would love input on the docs around here - but we will travel

if we get great recommendations for other docs.

Thanks so much

Lou

[Guest guest]

Hi ,

you recently wrote about 2 families in FL that had bad experiences with

DAN doctors. You said to email you offlist if we want the drs. names--

would you let me know the names please----

I just finished McCarthy's new book, Mother Warriors, and there

are alot of success stories with recovered children--I'm thinking there

must be something to these biomedical treatments....? some have done

better just on the GFCF diet alone.....but my son practically lives on

carbs....!

Thanks,

lynnelowcomcast (DOT) net

[Guest guest]

Lynne,

If your son is living off carbs, then I would bet my bottom dollar that he is

really feeding 'yeast' in his system..... very, very bad for him. Biomedical

treatment is extremely effective and many of us on this board and on other

boards have had great success in treating the child biomedically along with our

therapy regimes.

We now do an anti-yeast diet, with no starchy carbs (or very, very few of them)

and have had wonderful results just like so many of the other families.

Take care and I would encourage you to pursue this line. I have a friend up

here in Canada who takes her children to the same Doctor as all the way

down in Florida for treatment and LOVES him. He is Dr. Jerry Kartzinel (hope I

have spelled that right) and he is magnificent.

We are indeed the Mother Warriors and we fight back!

Janice

Mother of Mark, 13

[Guest guest]

Okay,

How do you know if your child has a yeast problem? I am probably a bad person

to ask since I NEVER thought my son had a yeast problem! Oooops! Yeast

overgrowth can manifest in a multitude of ways and it can be extremely tricky.

Mark was very gassy and bloated; he still suffered some constipation issues at

times and had really 'stinky' poop. I mean, his gas and his bathroom aroma's

made you want to run and jump out the window for fresh air! I have discovered

that this is a sign of high bacteria levels which generally go along with yeast.

But he never had the 'behaviours' that I had always associated with yeast.....

stimmy, autistic behaviours! So, though I knew about yeast, I always proclaimed,

" Not my boy.... he's not a yeast kid! " WRONG!

We decided to do the anti-yeast diet with Mark when we saw the results of his

food sensitivities: table sugar, high fructose corn syrup, rye, wheat, barley,

casien, corn, mushrooms, etc. etc. Basicly all the foods that yeast loves to

eat and since he had so many sensitivities, it is indicative of intestinal

permeability. Tough not to have yeast overgrowth when you have intestinal

permeability. The DAN doctor I took him to checked him out for about 2 hours;

went through his hair, looked at his feet, mouth, etc. and convinced me that we

would have an easier time with food sensitivities once we got rid of the yeast

and allowed the stomach to heal.

We did this in early July and all of the regressions Mark was experiencing with

speech articulation stopped.

I know that you can get stool testing done with various DANs to look for

different yeasts and bacteria. This is such a common issue with our kids and

their response is so favorable that my doctor just went ahead and decided to

treat the yeast without testing. He was right and it is working very well.

My son doesn't fit the profile of 's son but his testing does! It is

almost identical with the exception that my boy tested high in lead not mercury.

We did the Metametrix Pediatric Ion profile on him last year and I discovered

that he was periously low in vitamin A (yeast loves to feed off of vitamin A

leaving our kids deficient), Omega 6 & 9, COQ10, glutathione, carnitine. We

immediately began supplementing and since my son is older, it took quite a while

to replenish his body stores and to get rid of all of the fatigue he was

experiencing. Though Mark did not test low for Omega 3 or vitamin E; we still

suppement it with excellent results. We use Cod Liver Oil as our fish oil of

choice since we have such severe A deficiencies.

Again, my son is a dyspraxic kid through and through but his testing looks just

like a child with autism! The NDD has just manifested differently but the core

issue is the same; a compromised immune system.

We still needed a lot of therapy; Truckloads of it.... but now we are working

with a healthy body and this helps the therapy to work faster and easier. We

also do an intensive running program to get Mark's immune system in good order.

His constitution is getting stronger and stronger on a daily basis and this

helps his body fight off those nasty pathogens and environmental toxins.....

just like the rest of us! That is my aim; to have a child who is not dependent

upon a special diet, nor on supplements for his function (which we are right

now; we are NT with the interventions but not without).... just a healthy,

regular kid. That is the next step we are searching for.... " complete "

recovery.

Hope this helps you in your research,

Janice

Mother of Mark, 13, apraxia of speech, global dyspraxia..... almost recovered

(just working on the handwriting now! last piece of the NDD puzzle)

[Guest guest]

Hi Janice,

I'm sorry if you may have answered this already since I'm  now trying to catch

up with all the posts and don't really have the time to search.  My daughter too

is suspected to have yeast, her stool tests don't show it but she's got the

leaky gut, multiple food intolerances, loves carbs even though she's GFCF and

other Fs in there, but still will down rice and lentil pasta and other pastas

and bread and any starch like she's never eaten in her life. 

Anyway, I know yeast is tricky even if blood tests and poop tests don't show it.

She has a severe diaper rash that never seems to fully go away and reappears

when a certain food flares it up and she's not even in diapers, just for night

time, but the rash comes back periodically with unbelievable fury, red blotches

and red spots next to it and it seems to spread and spread., the cover her

everything down there and spreads to the buttocks and abdomen at times. Lasts a

few weeks and then gets better for a while only to reappear again, but it's

never fully gone, not since she was 1 year old when it first started, when I

introduced cow's milk and gluten. That's when all our troubles started, scalp

psoriasis too.

Anyway, I know it's there and aren't so much int4ested in spending hundreds of %

to identify it, but want to get read of it safely, without the negative effects

of ll the fungicides if at all possible. They're too harsh and if I can help it

I'll do other things first. The grapefruit seed extract didn't help much and I

know the diet should do it but haven't quite tried yet, I want to be sure it's

in combination with a powerful yeast killer, not just the die off from

starvation as that can take a long time and is not as easy to do with a kids

with such dietary restrictions. It's hard to feed her only meat and vegetables

when the other kids are eating pizza etc around her. She knows she's on a

special diet but accepts it because of the bread. If I took that away, it really

would be harder so I'll do it, but want to be sure I also target it with the

right remedy as well.

So here's the BIG question, what have you found to work for combating yeast in

Mark's case?  Thank you.

Elena

[Guest guest]

Elena,

First of all, I want to give you the gift of a book..... it's a little book but

in all of the ASD reading I've done, this one really helped me to 'get it' with

regards to food intolerances and all of the different reactions, IgE, IgA

secretin, IgM and of course, IgG. It tells you the same thing that you already

have read but this book helps you put it together comprehensively. It's called

" Allergies, Disease in Disguise: How to heal your Allergic Condition Permanently

and Naturally " by Carolee Bateson-Koch. Not an ASD book but an Allergy book.

Wonderful find.... She has a very good, comprehensive 6 week action plan that

is working well for us in this book.

In a nutshell, we need to really go to war with the yeast and pathogens in order

to heal the gut. So, we want to get rid of all the bacteria, yeast, metals,

parasites, fungi that are in there, clogging up our childrens' system and

compromising further their immune function. We need to do everything

simultaneously and attack it HARD.

In order to kill these critters, we must eliminate their food supply. SUGAR is

what feeds them the best. Any polysaccharide food is likely to permeate a leaky

gut; so if you want to hit it hard, you need to remove all of the sugars and

starchy carbs from the diet. We have been following an SCD type diet; the only

sugars Mark has been getting are in the form of honey which is a mono saccharide

and cannot permeate through the gut wall. We consume few juices but do eat

fruit. The big items to be eliminated are: corn, gluten of ANY kind, other

grains (including millet and other items considered GFCF), casien products and

fungi such as mushrooms. Initially, rice products were out as well but I have

slowly begun to add these back. We use almond flour to bake treats and there

are some yummy recipes out there in various SCD diet cookbooks. So.... that is

our diet.... lots of meat, veggies and fruit. Note that Mark has sprouted up

tall during the last couple of months while we have been doing this and is

eating like a horse! It is a tough diet at first but we simply have got to

starve out the yeast throughout the body. Yeast and pathogens change form and

migrate to different areas of the body. It is not enough to kill them in the

gut, you've got to cut off their food supply throughout the body..... and that

means making certain that those polysaccaride carbs are not leaking through to

FEED them! So.... an anti-yeast diet is absolutely essential.

In addition, we want to dampen down those immune responses. When food leaks

through the gut, all of the Ig reactions kick in as the body recognizes food as

foe rather then friend. This is because the food is NOT supposed to be there.

Often, when people have their child tested for IgG reactions, the discover that

the child is sensitive to all of the foods that the family regularly consumes.

This is because the body now recognizes this food as a foe and amounts an immune

response soon after it is consumed. We have to heal that gut if we are going to

heal the immune system and getting it to respond as it should. This just gets

worse and worse with time; it starts with food intolerances, migrates to

chemical sensitivity and before you know it, your child is also sensitive to

electromagnetic fields.... also known as electromagnetic hypersensitivity. The

immune system goes into a downward cycle and just gets weaker and weaker. We

want to turn this around pronto! Mark is now sensitive to some chemicals,

especially those at school but as we heal his body, this has dissipated. So we

were 'entering' stage 2 of this and I hope that we have stopped it in its

tracks.

So....

We just bit the bullet and did the diet..... Nickerson is the SCD diet

pro and pops into this board from time to time so perhaps she'll chime in here

to offer her pearls of wisdom re SCD diet and her recovered children.

We did one month of a course of Difulcan but I don't think that prescription

stuff is absolutely necessary unless you have some severe strains that you're

dealing with. If you cannot get rid of it using the naturals then you might

want to try the prescription route. As a yeast killer, I absolutely LOVE

Candex. The stuff really works well. also told me about Physicians

Strength Wild Oil of Oregano P73 Gelcaps which also works wonderfully. Wild Oil

of Oregano is great for bacteria as well. But your daughter needs to be able to

take pills. These ones are very, very small but I don't recommend the Wild Oil

of Oregano tincture as it is very strong and tough to 'get down'. Another item

that is good for yeast is Saccromyces Boulardi (spelling?). It is a yeast

itself that is harmless and eats the bad yeast. When you stop giving it, the

S.B dies and leaves the body. If you give it along with other anti-fungals, you

must separate from the anti-fungals or the S.B. will get killed as well. You

must refridgerate S.B.

Brainchild Nutritionals has a very nice natural anti-yeast program listed on

their website. Note that the products that they recommend are not their own so

it is not a 'sales' pitch just a good protocol. They advocate using an

Anti-Fungal parade which is a rotation schedule of different products to attack

the yeast. You can read about it here:

http://www.brainchildnutritionals.com/PDF/Candida.pdf

Probiotics. As we kill the yeast, we need to replenish the gut flora with the

'good' guys. We need to repopulate that 'space' left behind by the dying yeast

and pathogens or it will just come back to reinfest the digestive tract once

more. So, you need a good probiotic. I like ThreeLac for Mark but some kids

don't do well on it. I also like Vital 10 by Klaire Labs and I use both of

these products. Other things that I have found to really work in a hurry are:

fermented products! Body Ecology diet has coconut kiefer water and it works

wonderfully to heal the gut and to repopulate with good flora. They also have

fermented vegetables and I really like their CocoBiotic product. It is

expensive but lasts quite a while since you don't need much. Note that you need

to make a nice fruit smoothy or 'something' to get Keifer water into your child

because it is rather bitter. In making keifer, I don't use the actual coconuts

but buy coconut water from the health food stores. I cheat! But.... it has

worked for us. Fermented foods have much more probiotic benefits then the

commercial capsules. I would really like to get Mark tolerating the SCD 24 hour

yogurt.... but so far, he has still reacted to the casien in it. I may try

again soon.

DIE OFF: As the yeast dies within the body, it lets out a final 'squeal' and

releases toxins into the system. This can mean that your child feels unwell for

about a week or two. He can exhibit symptoms akin to the flu and be lethargic

and grumpy. Mark craved sugar like a banshee! He was a wild man searching for

it! The more he craved it, the more I KNEW that we were on the right track by

getting rid of it completely. I wasn't always certain whether this was yeast

die off or sugar withdrawal..... but in the end, it didn't matter....

I know that this seems overwhelming but it is not that tough once you get going.

If we are going to heal the immune system, we must heal the gut and in order to

do that, we need to rid the body of ALL the things that don't belong there.....

this includes metals if you are testing high for them. Yes, we have continued

chelation with oral DMSA through this process.....

Hope this gives you some information so that you can further your own research.

I am confident that your daughter will make a full recovery since you are

starting this process so young and are so proactive. I wish that I had known

this stuff when Mark was so young and the dyspraxia was in its early stages.

Dyspraxia doesn't get better without doing the work both with the body

physically and therapeuticly (again TRUCKLOADS of therapy)..... it just gets

worse and the child gets further and further behind their peer group. You

eventually realized that you have completely 'lost' them to this condition. I

don't want your child to go through this so do the research and bite the bullet!

Deal with it now so that your child can have her life back.....completely.... as

nature originally intended.

Again, today we focus also on building Mark's overall body constitution via the

above, good supplements and most importantly, EXERCISE. We must work out

children out for they are currently in the race of their lives; they need a

strong body to win it completely!

Take care and all my best,

Janice

Mother of Mark, 13

[sPAM]Re: [ ] Re: DAN docs

Hi Janice,

I'm sorry if you may have answered this already since I'm now trying to catch

up with all the posts and don't really have the time to search. My daughter too

is suspected to have yeast, her stool tests don't show it but she's got the

leaky gut, multiple food intolerances, loves carbs even though she's GFCF and

other Fs in there, but still will down rice and lentil pasta and other pastas

and bread and any starch like she's never eaten in her life.

Anyway, I know yeast is tricky even if blood tests and poop tests don't show

it. She has a severe diaper rash that never seems to fully go away and reappears

when a certain food flares it up and she's not even in diapers, just for night

time, but the rash comes back periodically with unbelievable fury, red blotches

and red spots next to it and it seems to spread and spread., the cover her

everything down there and spreads to the buttocks and abdomen at times. Lasts a

few weeks and then gets better for a while only to reappear again, but it's

never fully gone, not since she was 1 year old when it first started, when I

introduced cow's milk and gluten. That's when all our troubles started, scalp

psoriasis too.

Anyway, I know it's there and aren't so much int4ested in spending hundreds of

% to identify it, but want to get read of it safely, without the negative

effects of ll the fungicides if at all possible. They're too harsh and if I can

help it I'll do other things first. The grapefruit seed extract didn't help much

and I know the diet should do it but haven't quite tried yet, I want to be sure

it's in combination with a powerful yeast killer, not just the die off from

starvation as that can take a long time and is not as easy to do with a kids

with such dietary restrictions. It's hard to feed her only meat and vegetables

when the other kids are eating pizza etc around her. She knows she's on a

special diet but accepts it because of the bread. If I took that away, it really

would be harder so I'll do it, but want to be sure I also target it with the

right remedy as well.

So here's the BIG question, what have you found to work for combating yeast in

Mark's case? Thank you.

Elena