Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 What brand are you using? ________________________________ From: jilltracy74 <jilltracy74@...> Sent: Monday, April 13, 2009 12:51:20 PM Subject: [ ] Holy Vitamin E Hi Everyone I posted last week about my DS - 3, apraxic with spd/sid and I came across the article on Vitamin E from ? I think... So - I thought cant hurt - called our DAN doc who recommnded 1000 iu a day - we added to his daily juice with his other biomed stuff that helps keep him organized and WOW!! It has been a full week - and I hate to jinx it, but HOLY VITAMIN E!! Talking more and more - actually non stop - pronounciation is still not the greatest - but sentences are coming out. Yesterday we were taking a family hike and my DD (8) tripped and fell - DS ran over to her " Oh my Gosh, are you alright are you ok? " - this without any prompting - we all stood there with our mouths open. He even is starting to answer questions more - more so that even friends and family are saying " wow he's really starting to talk " All from Vitamin E?????? Holy Vitamin E! Thanks, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 this kind: http://www.nutritiongeeks.com/vitamin-e-oil-now-1/vitamin-e-oil-now.html > > What brand are you using? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 When this group experimented with vitamin E most of us used a high gamma tocopherol. There was a product that came out with very high dosages of vitamin E and K and as you can see from the link below quite a few of our children had what I consider to be severe and dramatic regressions. In my opinion if one chooses to explore vitamin E -please be advised that there may be risks which side effects again in my opinion are far more severe than a speech impairment. Below is a message from January of this year. We don't talk about vitamin E much here anymore because we STILL don't know what is going on with 's child Evoni who was fine prior to this treatment. So just because someone tried and had results with vitamin E doesn't mean you should jump. Before you do -please do your research on vitamin E for children and please read the reports from this group. As far as incredible testimonies -please check the archives for fish oils over the years. While vitamin E in all but one or two cases doesn't " work " without the fish oils -the fish oils work without adding any extra vitamin E than what's already in them (about 15 IUs per capsule with the ProEFA) " Most studies of the safety of vitamin E supplementation have lasted for several months or less, so there is little evidence for the long-term safety of vitamin E supplementation. The Food and Nutrition Board of the Institute of Medicine Table 4: Tolerable Upper Intake Levels (UL) of vitamin E for Children and Adults [5] http://ods.od.nih.gov/factsheets/vitamine.asp#h7 What we found effective over the years: http://www.cherab.org/information/indexinformation.html#diet ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ what have her doctors said about this?! Thing is what doctor is even going to know as probably most of the children in the world put on megadosages of vitamin E & K were the ones put on speak -and clearly based on the feedback from this group it appears an alarming amount of severe side affects happen if megadosage of vitamin E/K isn't needed. /links/Pharma_Omega_Spea\ \ k_reports_from_group_001224703760/ Fish oils on the other hand -try to find any real side effects. (insert cricket sound here) My vitamin E theory is based on my son Tanner. He used to be able to take that 1/1 ratio of vitamin E with his fish oils and he did really well on that. But since the speak regression he twice got a headache when I gave him one extra 200/200 high gamma vitamin E. Tanner like most kids never gets headaches so it's clear to me he is reacting still to vitamin E from the 2 weeks he was on speak. And for your child you probably should as well look at the vitamin K since she had the heavy sweating which I read is a sign of hypervitaminosis K. What you can do is talk to your doctor and try switching temporarily to coromega since there's only 3IUS of vitamin E per serving rather than the 15 IUs found per capsule in the ProEFA. For my son Tanner he didn't improve minus the fish oils -so we had to keep him on the ProEFA and ProEPA mix. It would be great to hear from everyone else so we know because we've entered an unknown with speak. In my opinion that supplement is dangerous. What it did to our children's brains I still worry about -and again who can we ask? We probably need to seek out those experienced in hypervitaminosis from vitamins or other types of poisoning? I know it's taken my son this long -around 4 months? to get back to where he was prior to being on speak for that 2 weeks and he had a profound regression to where he opened his mouth and groped and NOTHING came out. My aunt who has her PhD in nursing said some of what I described about Tanner's lapses of remembering how to even say simple sounds when he started to speak again sounded almost like alzheimers -all I know is the fear in me was that gut fear you get when you know something is terribly wrong. I prayed that all the children were OK now -and now I'm going to say extra prayers for your baby. Below is your message to this group from September 2008: (did you ever get a response from or anyone behind this product?) Re: Speak supplement ? , thanks so much for staying connected and sharing your insight on the SPEAK supplements, now that a few of us have been able to try them. In the interest of providing what I'm sure is valuable feedback to you and to the group, I'd like to (gently) share that my experience so far has been disappointing. My daughter Evoni (20 mos) has been taking 2 SPEAK caps per day for 8 days now. Prior to starting SPEAK last Monday, we had started her on 2x day Omega 369 (for 10 days); the day before we started SPEAK we managed to squeeze in one EPA in addition to the 2x Omega 369. Almost immediately after starting the SPEAK, Evoni lost all the new babbling and new mouth play that she acquired, to our delight, after starting the Omega 369. She has also become extremely emotional and erratic, weeping and sobbing without apparent reason (a type of genuine non-pain induced crying I have never before heard from her), and she sweats uncontrollably. Her sensory issues have become much more pronounced -- which also occurred during the first 3-4 days of the Omega 369 but quickly dissipated. More significantly, she seems to experience small but somewhat frequent seizures of varying force. She has no history of seizures that I'm aware of. Her eyes roll up and she falls to the ground and spasms. Other times, she starts to spasm when she tries to come to a standing position and is unsuccessful pulling up (she does have hypotonia) and just stays on the floor spasming. I'm concerned that the Vitamin E dosage or the Vitamin K are contributing to her regression. Do you have any thoughts as to what components in SPEAK might be causing this outcome? I had intended on waiting the side-effects out to give the product a respectable chance to do its thing. However, the seizures have me extremely concerned and indicate to me that, for my child, there is a toxic element to the supplement. Darn! I really had my hopes up for this. Have you received any similar feedback? Thanks ~~~~~~~~~~~~~~~ ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 My son had much the same kind of surge when we started vitamin E in Fall '07. He was a fish oil non-responder, but I still gave it with the fish oil (2 ProEFA and 1 ProEPA.) It was truly amazing! Now we no longer give it (he started resisting taking any pills. We fight his allergy meds which he desperately needs) and he's never regressed. His apraxia is mostly resolved, but he has an additional language issue that wasn't helped so he still has a long way to go with that, but to be able to tick the speech issues off is wonderful! We never went higher than 800 IU of d-alpha and 400 IU of d-gamma in my then large for his age 6 yr old. I noticed no difference with the gamma (others do seem to need this.) I was nervous to go higher and then when some here used that " Speak " supplement I am so grateful we never went higher! I have several unopen bottles of the high gamma E we were using which are possibly expired. I need to dig them out and offer them here if they haven't. I couldn't find it locally so I ordered it online and bought more than we ended up needing. Miche Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 + Wheat is a natural source of vit. E therefore no toxicity. Wheat Germ Oil is an excellent source of natural occurring vit.E. Spectrum would be the only brand I would recommend as most other, because of the production of and packaging of the oil, are rancid. , I would think this may be a possibility to avoid any dangerous effects if people wanted to try it. What do you think? Jane www.HealthyKidsNaturally.com www.HealthyChatter.com > > When this group experimented with vitamin E most of us used a high gamma tocopherol. There was a product that came out with very high dosages of vitamin E and K and as you can see from the link below quite a few of our children had what I consider to be severe and dramatic regressions. In my opinion if one chooses to explore vitamin E -please be advised that there may be risks which side effects again in my opinion are far more severe than a speech impairment. > > Below is a message from January of this year. We don't talk about vitamin E much here anymore because we STILL don't know what is going on with 's child Evoni who was fine prior to this treatment. So just because someone tried and had results with vitamin E doesn't mean you should jump. Before you do -please do your research on vitamin E for children and please read the reports from this group. > > As far as incredible testimonies -please check the archives for fish oils over the years. While vitamin E in all but one or two cases doesn't " work " without the fish oils -the fish oils work without adding any extra vitamin E than what's already in them (about 15 IUs per capsule with the ProEFA) > > > " Most studies of the safety of vitamin E supplementation have lasted for several > months or less, so there is little evidence for the long-term safety of vitamin > E supplementation. > The Food and Nutrition Board of the Institute of Medicine > > Table 4: Tolerable Upper Intake Levels (UL) of vitamin E for Children and Adults > [5] > http://ods.od.nih.gov/factsheets/vitamine.asp#h7 > > What we found effective over the years: > http://www.cherab.org/information/indexinformation.html#diet > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > what have her doctors said about this?! Thing is what doctor is > even going to know as probably most of the children in the world put on > megadosages of vitamin E & K were the ones put on speak -and clearly based > on the feedback from this group it appears an alarming amount of severe > side affects happen if megadosage of vitamin E/K isn't needed. > /links/Pharma_Omega_Spea\ \ > k_reports_from_group_001224703760/ > > Fish oils on the other hand -try to find any real side effects. > (insert cricket sound here) > > My vitamin E theory is based on my son Tanner. He used to be able to > take that 1/1 ratio of vitamin E with his fish oils and he did really > well on that. But since the speak regression he twice got a headache > when I gave him one extra 200/200 high gamma vitamin E. Tanner like > most kids never gets headaches so it's clear to me he is reacting > still to vitamin E from the 2 weeks he was on speak. > > And for your child you probably should as well > look at the vitamin K since she had the heavy sweating > which I read is a sign of hypervitaminosis K. > > What you can do is talk to your doctor and try switching temporarily > to coromega since there's only 3IUS of vitamin E per serving rather > than the 15 IUs found per capsule in the ProEFA. For my son Tanner he > didn't improve minus the fish oils -so we had to keep him on the > ProEFA and ProEPA mix. It would be great to hear from everyone else > so we know because we've entered an unknown with speak. In my opinion > that supplement is dangerous. What it did to our children's brains I > still worry about -and again who can we ask? We probably need to seek > out those experienced in hypervitaminosis from vitamins or other types > of poisoning? > > I know it's taken my son this long -around 4 months? to get back to > where he was prior to being on speak for that 2 weeks and he had a > profound regression to where he opened his mouth and groped and > NOTHING came out. My aunt who has her PhD in nursing said some of > what I described about Tanner's lapses of remembering how to even say > simple sounds when he started to speak again sounded almost like > alzheimers -all I know is the fear in me was that gut fear you get > when you know something is terribly wrong. I prayed that all the > children were OK now -and now I'm going to say extra prayers for your > baby. > > Below is your message to this group from September 2008: (did you > ever get a response from or anyone behind this product?) > > Re: Speak supplement ? > > > , thanks so much for staying connected and sharing your insight > on the SPEAK supplements, now that a few of us have been able to try > them. In the interest of providing what I'm sure is valuable feedback > to you and to the group, I'd like to (gently) share that my experience > so far has been disappointing. > > My daughter Evoni (20 mos) has been taking 2 SPEAK caps per day for 8 > days now. Prior to starting SPEAK last Monday, we had started her on > 2x day Omega 369 (for 10 days); the day before we started SPEAK we > managed to squeeze in one EPA in addition to the 2x Omega 369. > > Almost immediately after starting the SPEAK, Evoni lost all the new > babbling and new mouth play that she acquired, to our delight, after > starting the Omega 369. She has also become extremely emotional and > erratic, weeping and sobbing without apparent reason (a type of > genuine non-pain induced crying I have never before heard from her), > and she sweats uncontrollably. Her sensory issues have become much > more pronounced -- which also occurred during the first 3-4 days of > the Omega 369 but quickly dissipated. > > More significantly, she seems to experience small but somewhat > frequent seizures of varying force. She has no history of seizures > that I'm aware of. Her eyes roll up and she falls to the ground and > spasms. Other times, she starts to spasm when she tries to come to a > standing position and is unsuccessful pulling up (she does have > hypotonia) and just stays on the floor spasming. > > I'm concerned that the Vitamin E dosage or the Vitamin K are > contributing to her regression. Do you have any thoughts as to what > components in SPEAK might be causing this outcome? I had intended on > waiting the side-effects out to give the product a respectable chance > to do its thing. However, the seizures have me extremely concerned and > indicate to me that, for my child, there is a toxic element to the > supplement. Darn! I really had my hopes up for this. Have you received > any similar feedback? > > Thanks > ~~~~~~~~~~~~~~~ > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Are you giving 6 drops? How much does your child weigh? -------------- Original message from " jilltracy74 " <jilltracy74@...>: -------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2009 Report Share Posted April 14, 2009 That is terrific! I agree Vitamin E was a key component to my son's biomedical regimen as well. From: [mailto: ] On Behalf Of jilltracy74 Sent: Monday, April 13, 2009 3:51 PM Subject: [ ] Holy Vitamin E Hi Everyone I posted last week about my DS - 3, apraxic with spd/sid and I came across the article on Vitamin E from ? I think... So - I thought cant hurt - called our DAN doc who recommnded 1000 iu a day - we added to his daily juice with his other biomed stuff that helps keep him organized and WOW!! It has been a full week - and I hate to jinx it, but HOLY VITAMIN E!! Talking more and more - actually non stop - pronounciation is still not the greatest - but sentences are coming out. Yesterday we were taking a family hike and my DD (8) tripped and fell - DS ran over to her " Oh my Gosh, are you alright are you ok? " - this without any prompting - we all stood there with our mouths open. He even is starting to answer questions more - more so that even friends and family are saying " wow he's really starting to talk " All from Vitamin E?????? Holy Vitamin E! Thanks, Jill ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2009 Report Share Posted April 14, 2009 -So, do all vitamin E softgel caps have wheat in them? If so, I am in deep trouble, as I just got my son some 200 IU caps and he is intolerant to gluten. - In , " jtag57 " <jmj4life83@...> wrote: > > + > > Wheat is a natural source of vit. E therefore no toxicity. Wheat Germ Oil is an excellent source of natural occurring vit.E. Spectrum would be the only brand I would recommend as most other, because of the production of and packaging of the oil, are rancid. , I would think this may be a possibility to avoid any dangerous effects if people wanted to try it. What do you think? > > Jane > www.HealthyKidsNaturally.com > www.HealthyChatter.com > > > > > > When this group experimented with vitamin E most of us used a high gamma tocopherol. There was a product that came out with very high dosages of vitamin E and K and as you can see from the link below quite a few of our children had what I consider to be severe and dramatic regressions. In my opinion if one chooses to explore vitamin E -please be advised that there may be risks which side effects again in my opinion are far more severe than a speech impairment. > > > > Below is a message from January of this year. We don't talk about vitamin E much here anymore because we STILL don't know what is going on with 's child Evoni who was fine prior to this treatment. So just because someone tried and had results with vitamin E doesn't mean you should jump. Before you do -please do your research on vitamin E for children and please read the reports from this group. > > > > As far as incredible testimonies -please check the archives for fish oils over the years. While vitamin E in all but one or two cases doesn't " work " without the fish oils -the fish oils work without adding any extra vitamin E than what's already in them (about 15 IUs per capsule with the ProEFA) > > > > > > " Most studies of the safety of vitamin E supplementation have lasted for several > > months or less, so there is little evidence for the long-term safety of vitamin > > E supplementation. > > The Food and Nutrition Board of the Institute of Medicine > > > > Table 4: Tolerable Upper Intake Levels (UL) of vitamin E for Children and Adults > > [5] > > http://ods.od.nih.gov/factsheets/vitamine.asp#h7 > > > > What we found effective over the years: > > http://www.cherab.org/information/indexinformation.html#diet > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > > > what have her doctors said about this?! Thing is what doctor is > > even going to know as probably most of the children in the world put on > > megadosages of vitamin E & K were the ones put on speak -and clearly based > > on the feedback from this group it appears an alarming amount of severe > > side affects happen if megadosage of vitamin E/K isn't needed. > > /links/Pharma_Omega_Spea\ \ > > k_reports_from_group_001224703760/ > > > > Fish oils on the other hand -try to find any real side effects. > > (insert cricket sound here) > > > > My vitamin E theory is based on my son Tanner. He used to be able to > > take that 1/1 ratio of vitamin E with his fish oils and he did really > > well on that. But since the speak regression he twice got a headache > > when I gave him one extra 200/200 high gamma vitamin E. Tanner like > > most kids never gets headaches so it's clear to me he is reacting > > still to vitamin E from the 2 weeks he was on speak. > > > > And for your child you probably should as well > > look at the vitamin K since she had the heavy sweating > > which I read is a sign of hypervitaminosis K. > > > > What you can do is talk to your doctor and try switching temporarily > > to coromega since there's only 3IUS of vitamin E per serving rather > > than the 15 IUs found per capsule in the ProEFA. For my son Tanner he > > didn't improve minus the fish oils -so we had to keep him on the > > ProEFA and ProEPA mix. It would be great to hear from everyone else > > so we know because we've entered an unknown with speak. In my opinion > > that supplement is dangerous. What it did to our children's brains I > > still worry about -and again who can we ask? We probably need to seek > > out those experienced in hypervitaminosis from vitamins or other types > > of poisoning? > > > > I know it's taken my son this long -around 4 months? to get back to > > where he was prior to being on speak for that 2 weeks and he had a > > profound regression to where he opened his mouth and groped and > > NOTHING came out. My aunt who has her PhD in nursing said some of > > what I described about Tanner's lapses of remembering how to even say > > simple sounds when he started to speak again sounded almost like > > alzheimers -all I know is the fear in me was that gut fear you get > > when you know something is terribly wrong. I prayed that all the > > children were OK now -and now I'm going to say extra prayers for your > > baby. > > > > Below is your message to this group from September 2008: (did you > > ever get a response from or anyone behind this product?) > > > > Re: Speak supplement ? > > > > > > , thanks so much for staying connected and sharing your insight > > on the SPEAK supplements, now that a few of us have been able to try > > them. In the interest of providing what I'm sure is valuable feedback > > to you and to the group, I'd like to (gently) share that my experience > > so far has been disappointing. > > > > My daughter Evoni (20 mos) has been taking 2 SPEAK caps per day for 8 > > days now. Prior to starting SPEAK last Monday, we had started her on > > 2x day Omega 369 (for 10 days); the day before we started SPEAK we > > managed to squeeze in one EPA in addition to the 2x Omega 369. > > > > Almost immediately after starting the SPEAK, Evoni lost all the new > > babbling and new mouth play that she acquired, to our delight, after > > starting the Omega 369. She has also become extremely emotional and > > erratic, weeping and sobbing without apparent reason (a type of > > genuine non-pain induced crying I have never before heard from her), > > and she sweats uncontrollably. Her sensory issues have become much > > more pronounced -- which also occurred during the first 3-4 days of > > the Omega 369 but quickly dissipated. > > > > More significantly, she seems to experience small but somewhat > > frequent seizures of varying force. She has no history of seizures > > that I'm aware of. Her eyes roll up and she falls to the ground and > > spasms. Other times, she starts to spasm when she tries to come to a > > standing position and is unsuccessful pulling up (she does have > > hypotonia) and just stays on the floor spasming. > > > > I'm concerned that the Vitamin E dosage or the Vitamin K are > > contributing to her regression. Do you have any thoughts as to what > > components in SPEAK might be causing this outcome? I had intended on > > waiting the side-effects out to give the product a respectable chance > > to do its thing. However, the seizures have me extremely concerned and > > indicate to me that, for my child, there is a toxic element to the > > supplement. Darn! I really had my hopes up for this. Have you received > > any similar feedback? > > > > Thanks > > ~~~~~~~~~~~~~~~ > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2009 Report Share Posted April 14, 2009 -just read somewhere that Vitamin E slow the progression of Motor Neuron Disease. If it helped withyour son' Apraxia,hen I would not eliminate it totally. Can't you still give a small dose as a supplement daily? I just got 200iu caps of Vitamin E to give my son; I did not want to rule out motor neuron disease as a cause because dad has some neurological issues popping up that we never thought about before. I am interested to see how the vitamin E without the fish oils work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2009 Report Share Posted April 14, 2009 It is the Vitamn K that is so dangerous and causes the seizures. I did not even do the Vitamin K shot they do on newborns for my children. If you think you need Vitamin K, eat oatmeal, as it is manufactured in the body. Otherwise, stay away from it. > > When this group experimented with vitamin E most of us used a high gamma tocopherol. There was a product that came out with very high dosages of vitamin E and K and as you can see from the link below quite a few of our children had what I consider to be severe and dramatic regressions. In my opinion if one chooses to explore vitamin E -please be advised that there may be risks which side effects again in my opinion are far more severe than a speech impairment. > > Below is a message from January of this year. We don't talk about vitamin E much here anymore because we STILL don't know what is going on with 's child Evoni who was fine prior to this treatment. So just because someone tried and had results with vitamin E doesn't mean you should jump. Before you do -please do your research on vitamin E for children and please read the reports from this group. > > As far as incredible testimonies -please check the archives for fish oils over the years. While vitamin E in all but one or two cases doesn't " work " without the fish oils -the fish oils work without adding any extra vitamin E than what's already in them (about 15 IUs per capsule with the ProEFA) > > > " Most studies of the safety of vitamin E supplementation have lasted for several > months or less, so there is little evidence for the long-term safety of vitamin > E supplementation. > The Food and Nutrition Board of the Institute of Medicine > > Table 4: Tolerable Upper Intake Levels (UL) of vitamin E for Children and Adults > [5] > http://ods.od.nih.gov/factsheets/vitamine.asp#h7 > > What we found effective over the years: > http://www.cherab.org/information/indexinformation.html#diet > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > what have her doctors said about this?! Thing is what doctor is > even going to know as probably most of the children in the world put on > megadosages of vitamin E & K were the ones put on speak -and clearly based > on the feedback from this group it appears an alarming amount of severe > side affects happen if megadosage of vitamin E/K isn't needed. > /links/Pharma_Omega_Spea\ \ > k_reports_from_group_001224703760/ > > Fish oils on the other hand -try to find any real side effects. > (insert cricket sound here) > > My vitamin E theory is based on my son Tanner. He used to be able to > take that 1/1 ratio of vitamin E with his fish oils and he did really > well on that. But since the speak regression he twice got a headache > when I gave him one extra 200/200 high gamma vitamin E. Tanner like > most kids never gets headaches so it's clear to me he is reacting > still to vitamin E from the 2 weeks he was on speak. > > And for your child you probably should as well > look at the vitamin K since she had the heavy sweating > which I read is a sign of hypervitaminosis K. > > What you can do is talk to your doctor and try switching temporarily > to coromega since there's only 3IUS of vitamin E per serving rather > than the 15 IUs found per capsule in the ProEFA. For my son Tanner he > didn't improve minus the fish oils -so we had to keep him on the > ProEFA and ProEPA mix. It would be great to hear from everyone else > so we know because we've entered an unknown with speak. In my opinion > that supplement is dangerous. What it did to our children's brains I > still worry about -and again who can we ask? We probably need to seek > out those experienced in hypervitaminosis from vitamins or other types > of poisoning? > > I know it's taken my son this long -around 4 months? to get back to > where he was prior to being on speak for that 2 weeks and he had a > profound regression to where he opened his mouth and groped and > NOTHING came out. My aunt who has her PhD in nursing said some of > what I described about Tanner's lapses of remembering how to even say > simple sounds when he started to speak again sounded almost like > alzheimers -all I know is the fear in me was that gut fear you get > when you know something is terribly wrong. I prayed that all the > children were OK now -and now I'm going to say extra prayers for your > baby. > > Below is your message to this group from September 2008: (did you > ever get a response from or anyone behind this product?) > > Re: Speak supplement ? > > > , thanks so much for staying connected and sharing your insight > on the SPEAK supplements, now that a few of us have been able to try > them. In the interest of providing what I'm sure is valuable feedback > to you and to the group, I'd like to (gently) share that my experience > so far has been disappointing. > > My daughter Evoni (20 mos) has been taking 2 SPEAK caps per day for 8 > days now. Prior to starting SPEAK last Monday, we had started her on > 2x day Omega 369 (for 10 days); the day before we started SPEAK we > managed to squeeze in one EPA in addition to the 2x Omega 369. > > Almost immediately after starting the SPEAK, Evoni lost all the new > babbling and new mouth play that she acquired, to our delight, after > starting the Omega 369. She has also become extremely emotional and > erratic, weeping and sobbing without apparent reason (a type of > genuine non-pain induced crying I have never before heard from her), > and she sweats uncontrollably. Her sensory issues have become much > more pronounced -- which also occurred during the first 3-4 days of > the Omega 369 but quickly dissipated. > > More significantly, she seems to experience small but somewhat > frequent seizures of varying force. She has no history of seizures > that I'm aware of. Her eyes roll up and she falls to the ground and > spasms. Other times, she starts to spasm when she tries to come to a > standing position and is unsuccessful pulling up (she does have > hypotonia) and just stays on the floor spasming. > > I'm concerned that the Vitamin E dosage or the Vitamin K are > contributing to her regression. Do you have any thoughts as to what > components in SPEAK might be causing this outcome? I had intended on > waiting the side-effects out to give the product a respectable chance > to do its thing. However, the seizures have me extremely concerned and > indicate to me that, for my child, there is a toxic element to the > supplement. Darn! I really had my hopes up for this. Have you received > any similar feedback? > > Thanks > ~~~~~~~~~~~~~~~ > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2009 Report Share Posted April 14, 2009 we give 12 drops in the morning and 12 drops at night. My son is 3 and very big - he weighs about 42 lbs. 1000 iu was suggested from our DAN doctor. > > Are you giving 6 drops? How much does your child weigh? > -------------- Original message from " jilltracy74 " <jilltracy74@...>: -------------- > > > > > Quote Link to comment Share on other sites More sharing options...
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