Re: How many of our children have sensory integrati...

[Guest guest]

Oh, I know my son has SPD. I said it in my first post, and I've said it

elsewhere on the board. In this post, all I was saying was that my child is

typically NOT startled by loud noises, like most SPD kids are.

Unless you meant in the second paragraph where I said my daughter does not have

SID, even though some of the things the OT does with her are sensory? She may

have visual processing disorder, which would explain her symptoms from writing

backwards to inability to track with her eyes - stuff that OT would teach as

sensory (balance and movement). (of course, if both are processing disorders,

and visual is a sense, perhaps they do have something in common...).

Incidentally, he's always had the textures thing going, but the headbanging

started soon after the first time I gave him fish oil. I've stopped the oil and

restarted it, I've tried different brands (NN and Speak), and it has never

stopped.

>

> all that you've described here tells me that he's a " sensory seeker " and

> that Does typically mean that he would have SPD.

>

> bek

>

>

> In a message dated 4/2/2009 6:42:37 P.M. Eastern Daylight Time,

> cp_mistyrose@... writes:

>

> Interesting to see these responses. I don't think my son is startled by loud

> noises (although he was at a loud party last week and needed his textures).

> He is very into certain textures, rubber stamps, koosh-style balls, wearing

> his hats, and things that vibrate. He likes to headbutt, but usually against

> bone (elbow, knee, wrist), and only people he knows. I've seen him put his

> hand against a hard surface and headbutt himself. He loves being upside down

>

> **************Feeling the pinch at the grocery store? Make dinner for $10 or

> less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

>

>

>

[Guest guest]

Both my boys have Sensory issues!!!

Love, Gabby. :0)

http://stemcellforautism.blogspot.com/

 

" I know of nobody who is purely Autistic or purely neurotypical. Even God had

some Autistic moments, which is why the planets all spin. " ~ Jerry Newport

 

 

[Guest guest]

My son Jack is a sensory seeker too and loves anything loud, swinging, running,

and jumping. He is now 4 and has calmed down alot since being on fish oil and

biomed treatment. We use the peach flavored liquid Omega Brite which is

excellent by the way!! Takes it right off the spoon!

>

>

> From: tbniesh@... <tbniesh@...>

> Subject: Re: [ ] Re: How many of our children have sensory

integrati...

>

> Date: Thursday, April 2, 2009, 8:49 PM

>

>

>

>

>

>

> all that you've described here tells me that he's a " sensory seeker " and

> that Does typically mean that he would have SPD.

>

> bek

>

>

> In a message dated 4/2/2009 6:42:37 P.M. Eastern Daylight Time,

> cp_mistyrose writes:

>

> Interesting to see these responses. I don't think my son is startled by loud

> noises (although he was at a loud party last week and needed his textures).

> He is very into certain textures, rubber stamps, koosh-style balls, wearing

> his hats, and things that vibrate. He likes to headbutt, but usually against

> bone (elbow, knee, wrist), and only people he knows. I've seen him put his

> hand against a hard surface and headbutt himself. He loves being upside down

>

> ************ **Feeling the pinch at the grocery store? Make dinner for $10 or

> less. (http://food. aol.com/frugal- feasts?ncid= emlcntusfood0000 0001)

>

>

[Guest guest]

My daughter also has sensory issues. She doesn't react to pain in the typical

way..doesn't even cry for blood draws! She also is sensory seeking-she is 3.5

yrs old and still mouths many things although not as much as she used to. She

LOVES to sit in a big box we have that is filled with dried beans..she'll stay

there for 3 hours if you let her. She also likes rollercoasters and spinning

fast and stuff like that. Since she was an infant she would slam herself back

into your chest when you were holding her..ouch! The omegas haven't seemed to

change her sensory things so far.

[Guest guest]

It is very common for apraxia to co-exist with sensory issues. For some, the

omegas help. For others, Vit E helps. For even others - only therapy helps.

For us, omegas made it worse. Therapy helped manage it but didn't eliminate the

underlying cause. What did help for us was the Vitamin E. Completely eliminated

the major sensory problems from the first dose (I have lots of old posts re: our

story with Vit E on this forum). If you are new here and haven't heard about

it, please look back at old posts beginning in August 06 (start with post 50746

from Dr. ). It could change your sensory child's life.

>

> My daughter also has sensory issues. She doesn't react to pain in the typical

way..doesn't even cry for blood draws! She also is sensory seeking-she is 3.5

yrs old and still mouths many things although not as much as she used to. She

LOVES to sit in a big box we have that is filled with dried beans..she'll stay

there for 3 hours if you let her. She also likes rollercoasters and spinning

fast and stuff like that. Since she was an infant she would slam herself back

into your chest when you were holding her..ouch! The omegas haven't seemed to

change her sensory things so far.

>

>

>

[Guest guest]

it's not that we don't like to talk about extreme biomedical as much as we

don't like to encourage new parents to go this route when (again) most of us

never have to risk the money nor our child's safety to get them up to speed.

I have no problem with the first post I shared about vitamin E back in 2006 for

example...but in hindsight all of us could have seen surges by adding a bit more

of vitamin E because as all have known since the early 2000s supplementation of

fish oils over time creates a vitamin E deficiency. That does not mean that all

of our children need to be on mega dosages of vitamin E.

Your child was one of the few that perhaps did well on the mega dosages but

perhaps since you haven't been around for awhile you are not aware of the number

of children that had seizures or regressions etc. by exploring the higher

dosages of vitamin E -in my opinion it was catastrophic. In my opinion if it

was a clinical trial it would have been stopped immediately and I happen to have

a family member that works in research for J & J who told me so.

So...may want to read the files from this group

/links/Pharma_Omega_Spea\

k_reports_from_group_001224703760/

We are still waiting to hear more about one of the 2 year olds in the report

-Evoni -who never had seizures prior to this supplement who started seizures and

other side effects a few days in and last I heard is now having multiple

seizures a day and has regressed tremendously.

So it's not that we don't want to " talk " about extreme biomedical it's

that in my opinion it is not something the greater majority has to ever explore.

As you may be aware there are greater expenses and the methods are much more

complex and in some cases unproven and potentially harmful.

Also PS -the fish oils all of us use contain small amounts of vitamin E to help

stabilize the oils and in the early 2000s the dosage was raised from 8 IUs to

15IUs a capsule due to the study about long term fish oil supplementation

creating a vitamin E deficiency. That's to combat that. There is of yet no

research to know how much or how often one should supplement with any vitamin E

outside of that so please check with your child's neurologist first.

Also key word I wish I knew about vitamin E prior to putting my own son on it

hypervitaminosis and a key article

http://emedicine.medscape.com/article/126268-overview

And here's an opinion on biomedical with a link from that article

Biomedical Treatment Advocates Need More Data to Support Assertions

Association for Science in Autism Treatment

Dr. Celiberti, President

Individuals with autism have all the health problems that the general population

has; with the exception of seizure disorders, there is no evidence that

individuals with autism have any specific health issues in greater proportion

than the general population. And there is no evidence to date that treating the

health problems of individuals with autism will make their autism go away. Maybe

there will be a day when this is proven false. More specifically, it has not

been well established that individuals with autism are prone to having

diagnosable conditions that involve brain inflammation or gastrointestinal

disorder. There is also no evidence that treating these conditions produces the

kinds of changes that the authors describe, and the treatments themselves (e.g.,

hyperbaric oxygen for inflammation, elimination diets for gastrointestinal

issues) may indeed pose risk to the individuals. Not too long ago, chelation was

put forth by some proponents as safe and yet we witnessed the death of a young

boy with autism ( see full story below ). There are some errors in logic that

must be considered when making arguments such as that above (i.e., A and B

co-exist. A must have caused B. You treat A, and B will go away). We have seen

this faulty logic time and time again when proponents of treatments such as

secretin, chelation, and psychoanalysis argue that autism is caused by a “leaky

gut”, metal toxicity, or “refrigerator mothers” but fail to produce data to

substantiate their claims. ? Take a 5 year old girl with autism that undergoes

extensive allergy testing. She is allergic to beets and peanuts. Should we

assume that her beet and peanut allergies caused her autism? Should we expect

that restricting her diet will improve her autism or lead her to lose her

diagnosis? Let me offer two non-autism examples. Take a boy with ADHD who also

sleep apnea. His ability to pay attention in class would deteriorate each time

he experienced episodes of sleep apnea the night before. Treating the apnea has

improved attending to some extent. Should we then assume that apnea caused the

ADHD? Take a man with serious issues with anger management. He suffers from

migraines. When he is experiencing migraines, his anger episodes increase in

frequency, duration, and intensity. He is prescribed a medication that helps his

migraines. Should we expect that treating his migraines will eliminate his anger

issues? Comprehensive healthcare is a critical need for people with autism. It

goes without saying that co-existing medical problems in individuals with autism

should be treated with state of the art, empirically-validated medical

treatments. Treatment can help them feel better, which is important in itself

and?can lead to improvements in mood, behavior, and overall functioning.

Therefore, proponents of medical treatments that have not been empirically

validated who are using our children to “try out” various medical procedures

must recognize their ethical and moral responsibility to “do no harm.” In fact,

the ethical imperative to “do no harm” is even more pressing when an individual

is diagnosed with autism. Communication deficits may render self report of

medical symptoms problematic – that is, individuals with autism may not always

be able to let their parents or caregivers know that they are experiencing side

effects or adverse reactions from medical or nutritional interventions (e.g., “I

feel nauseous,” or “I have a bad headache”).

http://www.opposingviews.com/counters/biomedical-treatment-advocates-need-more-d\

ata-to-support-assertions

Death of 5-year-old boy linked to controversial chelation therapyFriday, January

06, 2006By Kane, Pittsburgh Post-GazetteA 5-year-old autistic boy who went

into cardiac arrest in his doctor's office died as a result of the controversial

chelation therapy he was receiving as a treatment for his

autism.http://www.post-gazette.com/pg/06006/633541.stm

=====

Gang

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

http://www.cherab.org

http://www.apraxia.org

http://twitter.com/TheLateTalker

772-335-5135

" Help give our cherubs a smile and a voice "

> >

> > My daughter also has sensory issues. She doesn't react to pain in the

typical way..doesn't even cry for blood draws! She also is sensory seeking-she

is 3.5 yrs old and still mouths many things although not as much as she used to.

She LOVES to sit in a big box we have that is filled with dried beans..she'll

stay there for 3 hours if you let her. She also likes rollercoasters and

spinning fast and stuff like that. Since she was an infant she would slam

herself back into your chest when you were holding her..ouch! The omegas

haven't seemed to change her sensory things so far.

> >

> >

> >

>