New Here With Question

[Guest guest]

---Hey ,

Portion size is really simple for you. welcome here by the way! just

use your palm or your fist. I measure protein with my palm and a carb

with my fist..well..most of the time. And I have a trampoline and

have done my 20 mins on it before..and it is killer and works. hey

why not? whatever keeps it fun. you can pretty much make anything

work for your high intensity interval cardio. those are the only two

questions I can answer for ya!

Kathi

In , " wildnmystical "

<wildnmystical@y...> wrote:

> portion size? how do you know the right amount? home equipment to

> use? and can i use a trampoline? Thanks wendy

[Guest guest]

Hi Edina,

I would keep the appt. I know that it seems like it is an eternity away, but a pediatric orthopedists will be able to tell you exactly what is going on with your little guy's spine.

My DD was also dx'd with torticollis at about the same age as your DS. She was in PT for a few months when her PT felt the scoliosis. So we went for the xrays and all and my DD has congenital scoliosis (plus the torticollis, VATER Association, Klippel Feil Syndrome, Facial Displacia, one kidney) We would not have known about 1/2 of this without a visit to the ortho.

Your DS may not have an bone abnormalities, and can still have scoliosis - it is not that the bones are abnormal, it is just the way they grew - if that makes sense. Keep the appt. And because he is so young you will have lots of options.

Keep in touch with this group - there are so many great people on here who have gone through just about everything you are about to.

Hugs,

Gail

New here with question

I have a 3.5 months old son. He has torticollis and plagiocephaly, and recently we noticed that his back looked curved. Our ped examined him and we had x-rays yesterday. The pediatric radiologist said he didn't see any bone abnormalities and everything was fine. However, after our ped got the radiology report, she said that my son has a curved spine and we need to see a pediatric orthopedic surgeon. The appointment is not until 9/16 and it seems like an eternity. If my little guy has no bone abnormalities, why do we still have to see a specialist? I'm just really worried.Edina

[Guest guest]

I agree with Gail about keeping the appointment. I would make sure that you go to see a pediatric orthopedist. Infantile scoliosis is pretty rare, so you definitely want to see a specialist. That is good that they didn't see any other abnormalities on the x-ray. The next step is to see the ortho who will then order an MRI. This is to check for such things as a tethered spinal cord and any other issues that may not be viewable on a regular x-ray. They need to do this in order to determine the correct course of treatment for your son. The two kinds of scoli are idiopathic (no known cause) and congenital (some sort of bone abnormality causing the scoliosis. Also, if it turns out to be idiopathic there is a chance he could have the resolving kind...meaning it may improve on its own. They can usually tell that by taking a measurement called the RVAD...under 20 degrees means it has a good chance of getting better on it's own...over 20 means it is probably progressive and could get worse. They will also measure the Cobb angle which tells you the degree of the actual curve. Be sure to find out both of these numbers.

My son was diagnosed at 6 mos with idiopathic scoliosis by the ortho here in VA. I decided to have my son treated by the ortho at the Shriner's Hospital in VA because we planned to have him casted (we chose this method of treatment after a lot of research) and we wanted to go to someone who specialized in infantile scoliosis (no one in VA specializes in this). As it turns out, he may have the resolving kind, so we are playing the wait and watch game right now.

Anyway, I know it is overwhelming right now. But, I think it helps to keep yourself informed and you have come to the right place for that. Please keep us posted on how his appt with the ortho goes.

Noelle (12-2-01)Ian (8-15-04)

New here with question

I have a 3.5 months old son. He has torticollis and plagiocephaly, and recently we noticed that his back looked curved. Our ped examined him and we had x-rays yesterday. The pediatric radiologist said he didn't see any bone abnormalities and everything was fine. However, after our ped got the radiology report, she said that my son has a curved spine and we need to see a pediatric orthopedic surgeon. The appointment is not until 9/16 and it seems like an eternity. If my little guy has no bone abnormalities, why do we still have to see a specialist? I'm just really worried.Edina

[Guest guest]

Edina,

Welcome aboard. I'm certainly no expert, but just a concerned parent like you who joined the group for support and information from other parents with experience. My take is they are sending you to a specialist to determine if your son may need any treatment for his scoliosis and to determine what type he has - resolving vs. progressive. I know how you feel about waiting for the doc visit. It does seem like an eternity. My son Jake is almost 13 months and has been diagnosed with progressive infantile scoliosis and has no other known medical problems. We've been checked for just about everything. He is currently in a brace at night to maintain his scoliosis. I don't know anything about torticollis and plagiocephaly personally, but there are plenty of parents here who do. I've gotten more info here in this group in the last few months than from 2 docs in the last 8 months! Good luck! And nice to "meet" you!

(10-11-01)

Jake (07-24-04)ash_eth <ash_eth@...> wrote:

I have a 3.5 months old son. He has torticollis and plagiocephaly, and recently we noticed that his back looked curved. Our ped examined him and we had x-rays yesterday. The pediatric radiologist said he didn't see any bone abnormalities and everything was fine. However, after our ped got the radiology report, she said that my son has a curved spine and we need to see a pediatric orthopedic surgeon. The appointment is not until 9/16 and it seems like an eternity. If my little guy has no bone abnormalities, why do we still have to see a specialist? I'm just really worried.Edina

[Guest guest]

Thank you. I'm a part of the torticollis and plagiocephaly boards

as well, and these 3 boards have been amazingly helpful and

supportive. Is your son's scoliosis congenital or idiopathic? I've

started doing a lot of research on scoliosis, but there is

surprising little info out there. I'm going to to library this

weekend to find more. I thought that only congenital scoliosis

needed treatment, but obviously, I'm wrong.

Edina

> I have a 3.5 months old son. He has torticollis and plagiocephaly,

> and recently we noticed that his back looked curved. Our ped

examined

> him and we had x-rays yesterday. The pediatric radiologist said he

> didn't see any bone abnormalities and everything was fine.

However,

> after our ped got the radiology report, she said that my son has a

> curved spine and we need to see a pediatric orthopedic surgeon.

The

> appointment is not until 9/16 and it seems like an eternity. If my

> little guy has no bone abnormalities, why do we still have to see

a

> specialist? I'm just really worried.

>

> Edina

>

>

>

>

>

>

>

[Guest guest]

I, too, was surprised at how little info there is on infantile scoliosis. My son has idiopathic scoli. MRI ruled out congenital just this month. I will say that our special children are very resilient and Jake got used to his brace before we did! Now if only it is holding his curve?! We will find out at our next appt Sept.8. It will be our first follow-up as he just got his brace this month. Good luck at the library. Have you checked out the files section in this group? There is a lot of information there! Definitely keep your appt with the ortho. Let us know how you make out.

ash_eth <ash_eth@...> wrote:

Thank you. I'm a part of the torticollis and plagiocephaly boards as well, and these 3 boards have been amazingly helpful and supportive. Is your son's scoliosis congenital or idiopathic? I've started doing a lot of research on scoliosis, but there is surprising little info out there. I'm going to to library this weekend to find more. I thought that only congenital scoliosis needed treatment, but obviously, I'm wrong. Edina> I have a 3.5 months old son. He has torticollis and plagiocephaly, > and recently we noticed that his back looked curved. Our ped examined > him and we had x-rays yesterday. The pediatric

radiologist said he > didn't see any bone abnormalities and everything was fine. However, > after our ped got the radiology report, she said that my son has a > curved spine and we need to see a pediatric orthopedic surgeon. The > appointment is not until 9/16 and it seems like an eternity. If my > little guy has no bone abnormalities, why do we still have to see a > specialist? I'm just really worried.> > Edina> > > > > > >

[Guest guest]

Thank you, and good luck with your little one.

> > I have a 3.5 months old son. He has torticollis and

plagiocephaly,

> > and recently we noticed that his back looked curved. Our ped

> examined

> > him and we had x-rays yesterday. The pediatric radiologist said

he

> > didn't see any bone abnormalities and everything was fine.

> However,

> > after our ped got the radiology report, she said that my son has

a

> > curved spine and we need to see a pediatric orthopedic surgeon.

> The

> > appointment is not until 9/16 and it seems like an eternity. If

my

> > little guy has no bone abnormalities, why do we still have to see

> a

> > specialist? I'm just really worried.

> >

> > Edina

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Welcome to the group Edina!

You will find many informed, experienced, genuine parents in this group.

A suggestion might be to request that an MRI be scheduled for your son, to rule out any spinal abnormalities. The ped. ortho should be able to schedule one asap. Once your sone scolioisis type is determined, a plan of care can be established.

Please read www.infantilescoliosis.org in its entirety, and feel free to ask questions.

Sincerely,

HRH

New here with question

I have a 3.5 months old son. He has torticollis and plagiocephaly, and recently we noticed that his back looked curved. Our ped examined him and we had x-rays yesterday. The pediatric radiologist said he didn't see any bone abnormalities and everything was fine. However, after our ped got the radiology report, she said that my son has a curved spine and we need to see a pediatric orthopedic surgeon. The appointment is not until 9/16 and it seems like an eternity. If my little guy has no bone abnormalities, why do we still have to see a specialist? I'm just really worried.Edina

[Guest guest]

>

> Should I give my son his enzymes before every meal? It says a teaspoon

> is a dose but doesnt say per day etc.

My son needed enzymes before everything he ate.

Dana

[Guest guest]

I would start with a smaller dose and work up. but then yes, he will need it

with every meal and every snack. We use the capsules so I'm not sure how much

for you to start with. But someone on here can tell you.

HTH

Rhonda in CA

[Guest guest]

Enzyme should be given before each meal. You can find more info about enzyme

here.

http://www.enzymestuff.com/conditionbacteria.htm

new here with question

Should I give my son his enzymes before every meal? It says a teaspoon

is a dose but doesnt say per day etc.

[Guest guest]

My daughter was evaluated at 18 months by EI and is receiving speech therapy

twice a week.? She is now nearly 22 months.? She was just evaluated for O.T.

last week and will be receiving that as well twice a week.? During her O.T.

evaluation it was noted that she chews with her mouth open and has a hard

swallow.? She can't stick her tongue out, lick, or blow, and she is still

extremely oral.? She eats crayons and bites tables, a piano, etc.? Everything

goes in her mouth.? The O.T said she showed some signs of oral apraxia.

I spoke to her speech therapists about this and they both kind of blew me off.?

My daughter never babbled as an infant.? She started off talking fairly normally

but then stopped.? (She had chronic ear infections during this time and

eventually had tubes put in.)? She did not wave or point until 18 months old.?

She now has?5 words - uh oh (sometimes uh uh), Bow (our word for pacifier),

Papa, boo, and apple.? She has close to 40 word approximations and several made

up sounds/words - a gargling noise for animal for instance.? We have heard her

say cracker, waffle, duck, and quack and then never heard?them again.? The only

true word she has picked up in the last six months is apple.? Everything else

has?been word approximations.? Some of her word approximations don't even sound

like the real word - for instance huh is thank you.

I am going to have her reevaluated by a SLP through our insurance at a clinic

that, among other delays and disorders, treats apraxia.? I'm just curious what

those of you with experience think.

Thank you so much for your time,

?

[Guest guest]

I would get her evaluated by a therapist thats familiar with Apraxia.

-------------- Original message from lauraswetzel@...: --------------

My daughter was evaluated at 18 months by EI and is receiving speech therapy

twice a week.? She is now nearly 22 months.? She was just evaluated for O.T.

last week and will be receiving that as well twice a week.? During her O.T.

evaluation it was noted that she chews with her mouth open and has a hard

swallow.? She can't stick her tongue out, lick, or blow, and she is still

extremely oral.? She eats crayons and bites tables, a piano, etc.? Everything

goes in her mouth.? The O.T said she showed some signs of oral apraxia.

I spoke to her speech therapists about this and they both kind of blew me off.?

My daughter never babbled as an infant.? She started off talking fairly normally

but then stopped.? (She had chronic ear infections during this time and

eventually had tubes put in.)? She did not wave or point until 18 months old.?

She now has?5 words - uh oh (sometimes uh uh), Bow (our word for pacifier),

Papa, boo, and apple.? She has close to 40 word approximations and several made

up sounds/words - a gargling noise for animal for instance.? We have heard her

say cracker, waffle, duck, and quack and then never heard?them again.? The only

true word she has picked up in the last six months is apple.? Everything else

has?been word approximations.? Some of her word approximations don't even sound

like the real word - for instance huh is thank you.

I am going to have her reevaluated by a SLP through our insurance at a clinic

that, among other delays and disorders, treats apraxia.? I'm just curious what

those of you with experience think.

Thank you so much for your time,

?