Re: CST for Apraxia

April 8, 2009

What is CST?

becky

In a message dated 4/8/2009 3:29:34 P.M. Eastern Daylight Time,

sylsumida@... writes:

Hello,

We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by

insurance so I wanted to see if anyone had experience with this before we

venture out

and spend money on this.

Thanks.

**************Feeling the pinch at the grocery store? Make dinner for $10 or

less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

April 8, 2009

What is CST?

-------------- Original message from " sylsumida " <sylsumida@...>:

--------------

Hello,

We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by insurance so

I wanted to see if anyone had experience with this before we venture out and

spend money on this.

Thanks.

April 9, 2009

Cognitive Screening Test?

>

> What is CST?

>

> becky

>

> In a message dated 4/8/2009 3:29:34 P.M. Eastern Daylight Time,

> sylsumida@... writes:

>

> Hello,

> We are thinking of starting CST for my son who has apraxia. Has anyone seen

> results from this? We had a consultation with a therapist who seems very well

> versed in issues to do with motor planning but it is not covered by

> insurance so I wanted to see if anyone had experience with this before we

venture out

> and spend money on this.

> Thanks.

>

> **************Feeling the pinch at the grocery store? Make dinner for $10 or

> less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)

>

April 9, 2009

Cognitive Sreening Test? Cognitive Strategy Training?

>

> What is CST?

> -------------- Original message from " sylsumida " <sylsumida@...>:

--------------

>

> Hello,

> We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by insurance so

I wanted to see if anyone had experience with this before we venture out and

spend money on this.

> Thanks.

>

April 9, 2009

Craniosacral Therapy.

http://kidspeech.com/index.php?option=com_content & task=view & id=64 & Itemid=454

We are starting with a CST who has treated several apraxic kids. Will let you

know how it goes.

>

> What is CST?

> -------------- Original message from " sylsumida " <sylsumida@...>:

--------------

>

> Hello,

> We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by insurance so

I wanted to see if anyone had experience with this before we venture out and

spend money on this.

> Thanks.

>

April 9, 2009

Hi,

We've brought our 3 year-old son to see a Cranial Osteopath, and I'd highly

recommend it. We personally felt it was important to try it for our little guy

since he's a twin (and he was very cramped when I was pregnant), plus I had a

c-section so he didn't get that " good " pressure on his head during birth. I

also know several people who use cranial osteopathy for their children due to

difficult deliveries.

The therapy itself is SUCH a gentle treatment, it's almost like a very gentle

head massage. Our son lay completely still during both his sessions, and each

treatment lasted about 10-15 minutes. We did see some great gains speech-wise

afterwards, so I absolutely think it was worth every penny!

My brother also took my 5 year-old nephew who has severe apraxia and autism

to the same DO we saw (Doctor of Osteopathic Medicine). While it hasn't helped

him with speech yet, the first treatment did help tremendously with sleep and

stimming. For him, it was like a miracle, he's now been sleeping through the

night since that first session (something he hadn't done in 3 years!), and his

stimming has reduced by probably about 75%. We're hoping that God willing his

2nd session will also bring more great results.

Finding a great DO/practitioner/therapist is of utmost importance, so it

sounds like you found a good one, which is great! We found ours through

recommendations by other doctors and parents in our area. Here's a website that

has a lot of good info that might be helpful: http://www.cranialacademy.org

And also here's a YouTube clip that shows kids actually receiving the treatment,

so you know what to expect:

Of course every child is different, and some kids might respond wonderfully

to it, and others might not see much of a difference. But IMO, it's worth a

shot! Best of luck,

Mom to 3 year-old twins: (moderate apraxia, mild PDD-NOS) and Cecilia

(neuro-typical)

-- Original message from " sylsumida " <sylsumida@. ..>: ------------ --

>

> Hello,

> We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by insurance so

I wanted to see if anyone had experience with this before we venture out and

spend money on this.

> Thanks.

>

April 9, 2009

I heard that it does help with apraxia, but is hard to get insurance to cover. I

would be interested in knowing how well it works for you.

>

> Craniosacral Therapy.

> http://kidspeech.com/index.php?option=com_content & task=view & id=64 & Itemid=454

> We are starting with a CST who has treated several apraxic kids. Will let you

know how it goes.

April 9, 2009

I had to do the 100 mile search to find one,but I finally did and I think they

are closer than 100 miles, but over 50. There was an e-mail address, and so I

e-mailed the doc to see if they by chance take my son's insurance. Fingers

crossed.

>

> Hi,

>

> We've brought our 3 year-old son to see a Cranial Osteopath, and I'd highly

recommend it. We personally felt it was important to try it for our little guy

since he's a twin (and he was very cramped when I was pregnant), plus I had a

c-section so he didn't get that " good " pressure on his head during birth. I

also know several people who use cranial osteopathy for their children due to

difficult deliveries.

> The therapy itself is SUCH a gentle treatment, it's almost like a very

gentle head massage. Our son lay completely still during both his sessions, and

each treatment lasted about 10-15 minutes. We did see some great gains

speech-wise afterwards, so I absolutely think it was worth every penny!

> My brother also took my 5 year-old nephew who has severe apraxia and autism

to the same DO we saw (Doctor of Osteopathic Medicine). While it hasn't helped

him with speech yet, the first treatment did help tremendously with sleep and

stimming. For him, it was like a miracle, he's now been sleeping through the

night since that first session (something he hadn't done in 3 years!), and his

stimming has reduced by probably about 75%. We're hoping that God willing his

2nd session will also bring more great results.

> Finding a great DO/practitioner/therapist is of utmost importance, so it

sounds like you found a good one, which is great! We found ours through

recommendations by other doctors and parents in our area. Here's a website that

has a lot of good info that might be helpful: http://www.cranialacademy.org

And also here's a YouTube clip that shows kids actually receiving the treatment,

so you know what to expect:

> Of course every child is different, and some kids might respond wonderfully

to it, and others might not see much of a difference. But IMO, it's worth a

shot! Best of luck,

>

> Mom to 3 year-old twins: (moderate apraxia, mild PDD-NOS) and Cecilia

(neuro-typical)

>

> -- Original message from " sylsumida " <sylsumida@ ..>: ------------ --

> >

> > Hello,

> > We are thinking of starting CST for my son who has apraxia. Has anyone seen

results from this? We had a consultation with a therapist who seems very well

versed in issues to do with motor planning but it is not covered by insurance so

I wanted to see if anyone had experience with this before we venture out and

spend money on this.

> > Thanks.

> >

>

April 10, 2009

We are really excited to start. Will post again after we have a few sessions

and see what this modality has to offer.

> >

> > Craniosacral Therapy.

> > http://kidspeech.com/index.php?option=com_content & task=view & id=64 & Itemid=454

> > We are starting with a CST who has treated several apraxic kids. Will let

you know how it goes.

>

April 10, 2009

I know a few of you already responded to this- but just wanted to put in my two

cents that I agree this method is worth exploring. Below are some archives

(and yes we should figure out how to proceed with Upledger as they are 20

minutes away from me -problem is not enough apraxic children around me!)

From 2002

Re: cranial sacral therapy

Lori -since you brought this up...

After speaking to them I've been asked to write a proposal for Dr.

Upledger http://www.upledger.com/home.htm about how working

with our population of communication impaired children may be

mutually beneficial.

In addition to what you just stated -I know a few other people in

our group who also shared good things about the cranial sacral

therapy which is why I took my two boys -and I too believe it's

beneficial based on what I saw. If it's not good for them -my boys

love it and ask for it -so if nothing else they enjoy it -but there

have been positive changes too -which is a plus.

I plan to also discuss in the letter the possibilities of

therapeutic listening aspects of dolphin sounds from when the

dolphin is with a specific child in the water -and to see if there

are any at all positive changes even outside the water using skull

caps to measure brain waves etc. If it does appear promising -that

would bring this type of therapy perhaps to more of our children.

(even though I can't imagine anywhere near as much fun as actually

being in the water with Flipper)

If anyone else has anything to share about cranial sacral therapy.

therapeutic listening therapy, or even dolphin therapy -as usual

either good or bad -then please do. And please let me know if I can

quote you to Dr. Upledger.

BTW in regards to cranial sacral therapy I heard the twins are doing

really great but they still don't know how to separate them and are

still deciding the best way -they are back home again.

From 2003

Re: cranialsacral therapy

Hi Lillian!

Most people wouldn't know about it -don't feel bad. I've never had

cranial sacral therapy myself -so I don't know what it feels like -

but I do know that both of my boys LOVED it and would fight over who

went first. They would lay on a table with cushions and blankets -

semi dark room -aromatherapy and various types of relaxing music

would play.

Loran would mostly concentrate on the base of their necks -but would

work on their head too -I never once saw him touch Dakota or

Tanner's mouth Jennie. Both of my boys would fall asleep within

minutes of being on the table which was strange, especially with my ADHD Dakota

-but I hear quite

common. What was really strange to watch -and others who take their

children to this type of therapy see it too -is that both Tanner and

Dakota would move their body in what I called a primitive way -like

leg twitching or hand movements while Loran was working on their

head and while they were asleep -that they didn't appear to be in

control of. When Loran was done (in about an hour) he would cover

them with the blanket and let them sleep until they woke up -which

was typically just minutes after Loran stopped they would wake up

slow and relaxed. While they were waking - Loren and I would speak

about the therapy and what I was seeing at home. Most of the

treatments I saw results right away -but sometimes I saw them the

next day. I took my boys once a week for a few months. I would do

it again -just have to find the time we have our boys in so many

other things now and doing so well!

OK -to break it down...What I was told is that there is a flow of

the cranial spinal fluid around the spine and up to the brain that

sometimes becomes blocked and this relaxing massage therapy helps

the flow of the cranial sacral fluid which helps the body function

better. It's supposed to be excellent therapy for those who were in

a car accident and had head injuries for example.

I noticed improvements in both of my boys -and being that I'm open

to exploring therapies that are not viewed as detrimental -and that

wasn't some outrageously priced therapy that I had to commit to for

a certain amount of sessions or time -I tried it and I liked it. If

you contact a therapist near you http://www.upledger.com/home.htm

I'm sure they will be more than happy to explain. I know I asked

lots of questions (No -me?!) I found the scientific theory behind

cranial sacral therapy fascinating. You will probably want to look

for a cranial sacral therapist that has some background in medical -

and has experience in working with autistic children (good luck

finding one that has worked on apraxic children even though there

are more of them since the awareness is so low!)

Still confused about what it is? -it looks like a head massage -

except it doesn't appear to just relax the body -it appears to

improve function and truly be therapeutic. Hope that helps -I'm not

an expert on this myself -just a believer it's worth exploring.

Here is an archived message of an article on this (and dolphin

therapy!! The Upledger Institute was exploring that together with

cranial sacral therapy -with dolphins you would have auditory aspects too

-wonder if that aspect of the dolphins has ever been

studied?)

By Evening Gazette, UK

(may have to cut and paste link)

http://icteesside.icnetwork.co.uk/0100news/0001head/page.cfm?

objectid=12199194 & m\

ethod=full & siteid=50080

Off to the USA, thanks to you Sep 14 2002

By Evening Gazette

Autistic Teesside wonder boy is going to the USA to swim

with dolphins - thanks to YOUR help and the Evening Gazette!

, seven, from Brotton, made news across the world when he

spoke his first words after treatment by top Boro physio Bob Ward.

Bob gave ground- breaking craniosacral massage which brought a

breakthrough release from his world of silence.

His parents, and Francis, were fundraising hard to send their

son to a special £3,000 institute near Spanish Point, on the River

, in Ireland so he could swim with dol phins - and hopefully

improve further.

But now the exciting news is that so much cash has been donated the

threesome, plus 's brother , ten, will flying out to

swim with dolphins in sunny Florida instead! An American airline

has also donated a flight from Miami to Disneyland for a

week's holiday for the whole family.

An emotional said today: " is a real miracle.

" We are so grateful to everyone - especially to the Evening Gazette

for starting all this off in the first place.

" is continuing to improve and is trying to say sentences now

and we are sure we are on the road to even more breakthroughs.

" Bob is still regularly involved with 's treatment, although he

has been very busy recently with Juninho and other injured Boro

players.

" I would encourage anyone else to try craniosacral therapy, although

one thing does not always work for another. "

The family is giving £500 to Kilton Thorpe Special School, Brotton,

where is a pupil and four UK holidays donated by wellwishers

to Redcar's Grenfell Club for children with special needs.

first showed signs of autism when he was six months old and

couldn't speak until February's breakthrough.

His mum and dad were advised to contact a specialist physio by the

Irish clinic and that's when Bob came into the picture.

Craniosacral therapy uses special intensive massage techniques to

repair damaged nerve systems.

And says the results have been " phenomenal. " " He has started

to call us by our proper names - mam, dad and Mat. Previously he

had never uttered a word and it's just miraculous.

" Bob is our knight in shining armour and we can't thank him enough. "

Dad Francis said: " 's doctors are amazed. Previously he could

only make little physical gestures. "

Delighted Bob, 48, of Stockton, said at the time: " I'm amazed how

much he has improved.

" It is so rewarding to get to work with a child like . "

from 2005

Re: Neural Organization Technique? Yes or N.O.T.?

Just came back from a trip to Boston to visit our brand new and

adorable twin niece and nephew so will try to catch up a bit today.

A quick update of what I've seen since we went for N.O.T.

The quicker speech with longer sentences only lasted that day after

the N.O.T. so not sure if there really was much of a change or not.

Dakota however still insists it made him feel better. They both

loved it.

Since I again won't know if there was any effect on Dakota other

than how he says he feels because he's now out of school -I'll just

talk about Tanner's speech. The next day after N.O.T. (when his

speech went back to normal -which is still understandable -just a bit

slower and shorter sentences) we went to Disney and went on a

bunch of rides as always. This time however we stayed off of

Mission Space (Tanner said " I'm not going on the death ride " which

is really sad in every way -but especially for that 4 year old and

his family. And I agree with Tanner until we find out why that 4

year old died)

Anyway as always Tanner's speech surged the day after Disney and

then we left Friday to go to Boston. The family all commented how

well Tanner was talking. The only apraxic moment was also in a way

an older version of the " What's wrong with him? " moment. A security

guard when we were headed through security in the Boston airport

asked each boy their name in a serious manor as he held and looked

at each ticket. The guy had the personality of a flea. First to

Dakota (with no smile at all) " What is your name? " Dakota

answered. Then Tanner was asked " What is your name? " Tanner

hesitated just for a moment -apparently didn't answer quick enough

however so the man barked again -this time even if you can imagine

even more authorities than the last " WHAT is your NAME?! " (soldier -

that's the word that sounded like it needed to be there next) and

Tanner stutted " T Ta Tan..ner " Poor little guy never stutters

anymore -but there he was in an extreme on command moment

compliments of Mr. Flea.

Meanwhile I'm thinking " well at least Tanner talks... good luck

trying to explain to this security guard with a child like Tanner

who looks old enough to at least say his first name on cue that he

has apraxia " Another reason for awareness -and for all of you to be

aware as well if you travel.

Anyway back to the differences between cranial sacral therapy and

N.O.T. I have an answer from Dr. Kitay below -but can also add what

I saw as the difference. We went to cranial sacral therapy sessions

once a week for a few months and I do think it's worth exploring

with someone who has experience with pediatrics and who is

recommended. Mainly the head and neck area was concentrated on and

both of my boys would fall asleep during the sessions and they still

talk about Loran -their therapist -they just loved cranial sacral

therapy. For the N.O.T -it appears you can go just once or a just a

few times depending and again both of my boys loved it from the one

time we went. It's not just the head and neck focused on from what

I saw however -and to me it looked like much less in the way of

massage.

My main question after having time to think about it -there are so

many more that do cranial sacral therapy, even the Upledger

Institute right down the road from me - what is their view on

N.O.T.? I again went to see Dr. Kitay because she contacted CHERAB,

but why are there so few that practice N.O.T.? Unlike cranial

sacral therapy it appears it would be hard to find an N.O.T.

therapist that has experience with pediatrics who is

recommended...and close to where you live. I guess also since there

are so few -you'd really have to no if the one you wanted to see was

good or not. (no pun intended -but what a horrible name NOT is.)

I'm just thinking out loud I guess. Anyway -here are the answers

to the two questions asked here about N.O.T.

" I have had many patients that have had little or no success with

the Cranial Sacral therapy, and still have had great results with

the Neural Organization Technique.

Thank you "

" Dear ,

The Neural Mobilization is a spinal technique that effects the

nerves that come out of the spinal cord. They are basically saying

that by stretching the spine the nerves can be affected to allow

relief

It has nothing to do with Neural Organization Technique

Any other questions feel free to ask "

Dr. Kitay

www.drkitay.com

~~~~~~~~~~~~~~~~~~~~~

=====

April 10, 2009

Thanks for posting this. We have gone back and forth because of the expense

(insurance won't cover) and this really helps to confirm our desicion is

correct!

Sylvia Sumidahttp://matthewsumida.blogspot.com/

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: CST for Apraxia

Date: Friday, April 10, 2009, 8:31 AM

I know a few of you already responded to this- but just wanted to put in my two

cents that I agree this method is worth exploring. Below are some archives (and

yes we should figure out how to proceed with Upledger as they are 20 minutes

away from me -problem is not enough apraxic children around me!)

From 2002

Re: cranial sacral therapy

Lori -since you brought this up...

After speaking to them I've been asked to write a proposal for Dr.

Upledger http://www.upledger .com/home. htm about how working