Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hi Lynda, The book I referred to is called Plague Time: how stealth infections cause cancers, heart disease, and other deadly ailments by Ewald. I heard about it on the radio show The People's Pharmacy on National Public Radio. I didn't say anything about infections causing autoimmune disorders specifically though. The conversation about autoimmune was someone else saying there is research to suggest that it has a hand in achalasia. I can't recall what the book said on these matters. I know it talked about various cancers and some well known diseases (that I can't recall right now). So perhaps it did reference autoimmune. I can't say. I should get it at the library again and finish reading it. I don't know specifically about the pressure of the upper and lower sphincter. I had the manometry/motility test but they never actually told me anything about the results other than confirming the achalasia diagnosis. I'd like to know, though. > (and others!)- Hello. My name is Lynda, a member of this > group. I have not posted recently, but try to check in from time to > time. You stated in a recent post that you were questioning a > relationship between autoimmune diseases and achalasia-also that you > had read a book about viral/bacterial causes of autoimmunity. Would > share the title with me? My health history includes several > autoimmune diseases. I was diagnosed with achalasia following the > appearance of the first. Also, has anyone been told that the > pressure of the lower sphincter was low and the upper sphincter > pressure was high? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Thanks for your replies and ! I will have to check out the book . sorry to ask, but would you share with me what your dr. commented re: autoimmune issues and achalasia? Or maybe I can search for your original post. Was there a " poll " done here on this board? Do other members have autoimmune issues? As you pointed out, it probably does not pertain to everyone here, but it may to some. What autoimmune issues do you have? Also, you mentioned that in scleroderma has low pressure in the lower sphincter??! This is what I have--but the upperspincter is hypertensive. I also have isolated scleroderma lesions on my body- recently dx'd-- years after the achalasia dx. Also have hasimoto's thyroiditis, irrital bowel syndrome, was dx'd chronic fatigue, fibromyalgia, rhum. arthritis,possible lupus, ms like symptoms and most recently, chronic late stage lyme disease. Any thoughts would be appreciated. Lynda--- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hi Lynda , My name is , I'm in the UK , where are you ? I've asked others if they have any sort of autoimmune disorder . I did this out of interest as I feel from what my consultants have said there is more to this than they know about !!! I have auotimmune disorders and its been interesting because a couple of people who've been able to reply to my message have also said they have autoimune disorders too . I am NOT in any way saying we all have ( as I think one person may have felt ) but I wondered what the % is and if so what sort of disorders they have . ( eg SLE , hasimotoos thyroiditis , sjogrens syndrome , scleroderma etc. etc. etc.) By the way it is possible to have scleroderma and achalasia despite what others may say about the pressure in this condition only beng low. I didn't ask my question to cause alarm or to frighten people! It was mainly out of interest after discussions with my Consultants ! I don't know who mentioned the book but I've not read one . Anyway , hope things aren't too bad for you at this time . Good to hear your'e able to take part in the group . Bye for now Chris autoimmune issues > (and others!)- Hello. My name is Lynda, a member of this > group. I have not posted recently, but try to check in from time to > time. You stated in a recent post that you were questioning a > relationship between autoimmune diseases and achalasia-also that you > had read a book about viral/bacterial causes of autoimmunity. Would > share the title with me? My health history includes several > autoimmune diseases. I was diagnosed with achalasia following the > appearance of the first. Also, has anyone been told that the > pressure of the lower sphincter was low and the upper sphincter > pressure was high? Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hi - has anyone noticed that their neck has gotten "wider"? I'm not being vain - I really think it's gotten wider, not just fat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 At 07:36 PM 8/21/2001 +0100, wrote: >...it is possible to have >scleroderma and achalasia despite what others may say about the pressure in >this condition only beng low.... Here is what I read. Scleroderma cause muscles to loose strength. In the esophagus this means that the muscles that should push food down through the LES don't, even though the LES may have lower pressure than it should. In achalasia even if those muscles were normal they could not push the food through because the LES pressure is too great. In both cases food gets trapped and the result is about the same. But, if you define achalasia to be a problem of the LES not relaxing, then scleroderma is not achalasia. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 As far as I know I have never had an autoimmune disease. I have had ulcers, gall stones, migrane headaches and irritable bowel syndrome. Other than that and the achalasia, I've been fairly healthy. I hope we can get this type of input from everyone in the group. Perhaps we can find more common denominators. Weins --- lmlr@... wrote: > Thanks for your replies and ! I will > have to check out > the book . sorry to ask, but would > you share with me > what your dr. commented re: autoimmune issues and > achalasia? Or > maybe I can search for your original post. Was > there a " poll " done > here on this board? Do other members have > autoimmune issues? As you > pointed out, it probably does not pertain to > everyone here, but it > may to some. What autoimmune issues do you have? > Also, you > mentioned that in scleroderma has low pressure in > the lower > sphincter??! This is what I have--but the > upperspincter is > hypertensive. I also have isolated scleroderma > lesions on my body- > recently dx'd-- years after the achalasia dx. Also > have hasimoto's > thyroiditis, irrital bowel syndrome, was dx'd > chronic fatigue, > fibromyalgia, rhum. arthritis,possible lupus, ms > like symptoms and > most recently, chronic late stage lyme disease. Any > thoughts would > be appreciated. Lynda--- > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Hi Sara, Not sure exactly which message you are talking about, but I recently posted a list of links for gluten intolerance and while it's not exactly what you are asking for, some are just recipes or places to order gluten free products which can help get parents started, there are also some journal articles and gluten intolerance and leaky gut and malabsorptions and what it can lead to, with onset in the young or the old or anywhere in between, but the young and the old are the most affected. So if you wanted additional stuff on leaky gut, i probably have them, but there are some articles here that address this issue as well so take a look if you haven't already, it was under a different heading and sometimes people only look at the posts that appear to interest them based on subject line and delete the rest. This is a busy list !  Anyway, take a look and I'll see when i can search for other links, but some of the ones here will surely touch on what you want to know about the leaky gut. Let me know if these were helpful. All the best, Elena ************** Hi Pam, You will see the words Celiac, and autistic come up a lot in much of this literature. Please note that most apraxic kids do NOT necessarily have digestive symptoms, or the Celiac gene. It can be misleading to just go by that as there are multiple genes implicated in gluten intolerance and it can also be acquired, as in my case, which is still a genetically triggered intolerance when in contact with viral, bacterial, parasitic infections, or even antibiotics without a healthy follow up of probiotics, which call can create permeable intestines and thus enable the gluten to enter the blood stream and erode immune, neurological functioning establishing a heightened immune response from that moment on. The important take home message is that gluten/casein intolerances DO NOT GO AWAY!!  Secondary intolerances developed due to the leaky gut can go away, but the gluten one especially is core and the gluten peptides have an affinity for the brain. So don't be misled by the Celiac label, or autistic labels, the fact remains gluten intolerance is much more common than modern clinical medicine thinks and is implicated in most neurological disorders of unknown etiology like autism, Parkinson, Alzheinmers' etc The research is all there, but clinical practice isn't big on diet and nutrition and still works with archaic lists and data as there is no real financial incentive for them to change, no vegetable salesman is going to knock on the doctors' door promising a free yearly supply of vegetables to everyone there in the office, and trips to Hawaii to learn more about the role of vegetables and to then push them on their patients. So you get the picture, the profit just isn't there so large scale clinical trials are difficult and confounding variables difficult to control for etc. Just not easy to do and NOT a money making proposition.  Wheat on the other hand is a booming business as it is included in just about everything processed on the market and even in much of the restaurant foods too as it has a way of appearing in the most inconspicuous places. Read the Celiac.com link on how to avoid the gluten when eating out.  So gluten intolerance is much more common than the food industry ever suspected--as almost everything processed--unless gluten free--contains a form of gluten either as anitcaking agent, or as thickener, flavor enhancer etc. Gosh, they even put it in some Salsas for some unearthly reason so always read your labels! I think the next decade will reveal a whole array of neurological/immune system disorders, as well as other organs often implicated as l the liver, the adrenals, the thyroid, and all these chronic degenerative disorders very often have gluten intolerance linked to them--if not as the initial cause, certainly as a complicating factor. Anyway, here are some links --some about the problem, some about the solution and click around. http://66.51.173.96/brain/allergy_brain.htm http://www.gfcfdiet.com/TheBigFAQ's.htm http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm http://www.enabling.org/ia/celiac/basic.html#gfdiet http://gfcfdiet.com/Beginningthediet.htm http://www.livingwithout.com/recipes.html?gclid=CIjPh-ucipYCFQykagodiX_GEw http://ezinearticles.com/?Gluten-Free-Diet-Should-Be-Considered-For-Everyone-Wit\ h-Neurological-And-Psychiatric-Symptoms & id=450571 & opt=print http://healthnowmedical.com/info/gluten_science.html this is actually the medical practice I go to and they're getting ready to publish a book on the topic http://www.kellydorfman.com/pages/459019/index.htm http://www.kinnikinnick.com/index.cfm http://www.celiac.com/articles/711/1/MemoryLearning-Eating-to-Learn-How-Grains-I\ mpact-on-Our-Ability-to-Focus-Comprehend-Remember-Predict-and-Survive-by-Ron-Hog\ gan/Page1.html http://www.pecanbread.com/new/recipes1.html http://gfcf-diet.talkaboutcuringautism.org/just-because-it-is-gfcf.htm http://ezinearticles.com/?Understanding-the-Genetics-of-Gluten-Sensitivity & id=20\ 8573 http://bodyecology.com/08/04/12/why_celiacs_gluten_sensitivity_need_probiotic_li\ quids.php http://www.jgourmet.ca/ http://www.elanaspantry.com/recipes/ http://glutenfreegoddess.blogspot.com/2007/01/cooking-baking-gluten-free-tips-fo\ r.html http://www.kidswithfoodallergies.org/featured_recipes.html http://thefooddoc.blogspot.com/2007/02/gluten-causes-brain-dysfunction-and.html http://www.tccsg.com/cel iacdisease.htm The Gluten Connection: How Gluten Sensitivity May be Sabotaging Your Health - and What you Can Do to Take Control NOW by Shari Lieberman, Ph.D., CNS, FACN.. http://www.globalgourmet.com/food/egg/egg0496/gluten.html http://www.gluten-free.com/ Keep in mind that for those with severely damaged intestines or persistent yeast etc. GFCF may not be enough and SCD diet (Specific Carbohydrate Diet) may be recommended. Oftentimes parents make the mistake of taking their kid off gluten and replacing all wheat products with corn, soy and rice and all of these are refined carbs that can still impair the immune system, Refined carbs should be reduced, soy most often avoided as most people intolerant to wheat cannot tolerate the soy peptides either and corn spikes the insulin level in the blood promoting inflammation just like rice, and potato--they're all starches and feed bad bacteria in us. So if at all possible limit the refined carbs, even those gluten free and increase, vegetables, leafy greens, healthy grass fed / free range organic meats and consider the dairy factor too. Not all gluten intolerant individuals are also casein intolerant but until the gut heals you want to avoid dairy too and try introducing it alter carefully, the raw preferred. Anyway, here's a chart that compares the major diets that have worked well for people with autoimmune, neurological, metabolic and digestive disorders. http://www.autismndi.com/docs/foodtable.pdf http://www.feingold.org/pg-overview.html http://curezone.com/diseases/epilepsy/ http://www.childrensdisabilities.info/allergies/dietdevelopmentaldisorders.html http://www.thebeewellcompany.com/NewFiles/Diet%20and%20Nutrition.pdf Hope you find these useful. My recommendation is that you try the diet and supplements based on tests that check for your child's specific metabolic issues since it really is important to prioritize the interventions and only a doctor who treats biomedically can interpret results, reactions and ensure that the path to healing is cleared. For us it has been a wonderful journey of discovery. We started with the diet first and made mistakes along the way of course but overall we saw improvements in attention, behavior and focus. We added some supplements and saw huge improvements especially with the B12 shots --often a major deficiency in gluten intolerant individuals, the PRO EFA/EPA + vitamin E have also made a HUGE surge and we're also working on detoxification as she seems to not detoxify mercury and other heavy metals as a normal child would. Again, related to malabsorptions most likely yeast, fatty acids etc.--so we're addressing that now as well and will start on the yeast soon which means going more toward the SCD diet at least for a while. there are so many options that clearly stand to benefit our children with metabolic disorders and possibly milder form of mitochondrial dysfunction as Dr. explained. Read her Apraxia 101 doc and presentation notes, those will also give you a good background in case you haven't already, they should be archived on the site. All the best, Elena -mom to Ziana age 4 --apraxic, but otherwise a happy healthy child and improving her speech every day now that appropriate PROMPT therapy, diet/ and supplements have all been implemented. From: sarchina2003 <sar2005@...> Subject: [ ] autoimmune issues Date: Sunday, October 5, 2008, 7:51 AM Elena, Thank you for your message. For those of us who would like to actually look over the original articles on these subjects (leaky gut, autoimmune issues etc) could you please post some references or links? Thank you very much. Sara ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 Elena thank you so much for taking the time to gather this information. I feel overwhelmed, but i guess it takes time to transition the diet. i would love to see a sample menu of what your daughter eats to inspire me! ethan eats a ton of fruits and veggies, so i have that on my side! thanks pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 I have books, recipe books that I bought. There are even a few good ones in the back of the book, " Breaking the Viscous Cycle " . The flour I get at my local whole foods type store (Canada version).... but I don't do a ton of special baking these days, just at the beginning when I first started out. SCD type is pretty easy. I say this because we are not 100% SCD since we do consume a mild amount of rice products, ie chips & crackers on occasion. There is the 'bread' problem for lunches and such which is always a 'nasty' but we had that with GFCF too.... all of that rice bread is gross, imo! Janice [sPAM]]Re: [ ] autoimmune issues Lays just added possible corn oil to the chips. Where are you getting the flour and SCD recipes? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.