ipod touch and acc

[Guest guest]

Can you send me more info on the acc app for itouch. We are looking into

a Dynovax for my son and he is not keen on it because it makes him

uncomfortable and more disabled carrying that around and I am afraid that

he will not use it much. But an ipod would be cool and he may use it

more.

On Tue, 14 Apr 2009 15:34:01 -0700 (PDT) Antonetti

<lauraantonetti@...> writes:

we have an aac app on our ipod touch. we did the beta testing on it. i

think it is available on itunes for about 200$? it is fun because we

program it to say knock knock jokes and funny things like " oops, i

tooted! " .

even though we dont use it for its intended purpose, it is a fun way to

practice turn taking and practicing longer sentences

laura

Sent from my iPhone

On Apr 14, 2009, at 4:25 PM, " Jake Groups " <jtanana3_groups@...>

wrote:

We had bad news from the eye doctor appointment today, and this has

caused me to go into a downward spiral. I am now beginning to doubt

everything, including myself, my therapists, and my choices for .

I feel so lost at this point. I am feeling very overwhelmed working full

time, running like a maniac to therapies, doctor appointments, trying to

find the right fit for preschool, battling for her services in the

school, keeping my typical children in a happy life.

We are now battling glasses, Theratogs, leg braces, augmentative

communication, and tantrums. I often wonder if any of the devices are

really going to help her.

I am really struggling with the total lack of progress we are seeing in

speech. We go to the Kaufman Center- which the insurance does not cover,

and I am starting to feel that my hopes were up too high after my first

meeting with . We have now been there 7 months, and we aren't seeing

very much progress in speech at all. She does sign more now though, and

is trying to say a few words, but not like at all I thought would happen.

She really only says about 5 words and is going on 3 years old. I feel

that her therapist is frustrated with her- and the therapist is missing

quite a few appointments at this point. We do everything we are supposed

to do. We work really hard at home, dedicate every moment we can to her.

We also go there for OT, and in that case, we are seeing a great deal of

progress, but now, has started tantrums when she sees her OT. I

think it is because she has associated her with work. We are able to work

through it so far, and the sessions are not a waste of time.

I feel at times, that with her delays, she really only acts like 1 1/2,

and that is TOTALLY depressing. I've gotten to the point it is really

hard to be around other kids and their families because all I do is make

excuses, or explain the heck out of everything.

I am at the point that I don't know what else I can do. I feel that I've

lost faith and hope everywhere. I don't have any friends that have

children with special needs, and I am so sick of hearing that God only

gives you what you can handle. I am SO sick of hearing the petty

complaints that they couldn't get their nails done, or about what type of

car they are getting etc.. Really, let's hear a real problem. I'd like to

sock them! It's gotten to the point that I don't socialize much anymore.

I am so tired of hearing from the therapists that they don't have a

crystal ball (that's what our PT said before was walking around

age 2). I feel like they know what she is really going to turn out like,

but won't tell us, because they are making money off of us. (This is so

not my usual personality, but I am exhausted from all of the guessing

games).

These are the questions I never get answered: Does she really have CP?

How come the doctors can't tell us. Why does her brain look normal? Why

can't she speak? What will she turn out like? Should I put her in a

cognitively impaired classroom? How far behind is she? Will she catch up

(obviously not) What is HBOT? Does it effect children who have had

seizures? Should we try alternative medicines? I do my own research and

it says that developmentally delayed really mean retarded- is this really

true? Is this really just a sugar coat for the parents of children like

?

I thank you all for listening, but you are the only true people that

understand our daily struggles. I LOVE my little girl and want to do

everything right.

Sandy

http://nataliehopesjourney.com