re: which fish oil for apraxia?

[Guest guest]

Nordic Natural....BUT which one there are so many.

 

Thanks!

[Guest guest]

Hi

My daughter takes Nordic Naturals ProEFA, (in the adult section of their

website) she takes 1 gel cap a day.

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> Nordic Natural....BUT which one there are so many.

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> Thanks!

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[Guest guest]

Hi Hildy!

The three brands most of us use here over the years have been ProEFA, EyeQ and

Efalex...and as far as pure Omega 3 you can add to that Coromega. ProEFA more

in the US and EyeQ more in the UK. Both ProEFA and EyeQ appear to be slightly

better than the Efalex -but in general you want an Omega 3/6 formuls that is

higher in EPA than DHA with a bit of GLA.

Here's a clip of an archive from the CHERAB group that may help answer some

basic questions about fish oils:

What fish oil should I give to my baby or child?

The confusion is more the brand names than the formulas. In actuality there

really is no such thing as a " children's EFA " perfect for all children yet.

However fish oils can be marketed to children by making fun flavorings and

smaller capsules. Most of the parents I know squeeze the oil out of the capsule

anyway -so that's besides the point for most of our group.

EFAs are in baby formula and food, and EFAs come and are used in a variety of

formulas for children for various reasons. Mainly we hear about the use of them

for healthy brain development in regards to children but Omega 3 and 6 are

essential fatty acids are essential to the body, yet our bodies can't produce

them so we need to consume them, and yet they are virtually lacking in our diets

today. There are tips posted to this discussion board on how to get fish oils

into children.

Dosage that was used for ten years now in the CHERAB group

" I will use the following examples with the brand name ProEFA since that's the

formula/dosage that seems to work the best for most of us (Efalex and EyeQ are

similar Omega 3/6 formulas that also have good reports) For any brand name of

Omega 3/6 formula -you could make the same formula by mixing together fish oil

and either primrose or borage seed oil. Keep in mind in anecdotal feedback done

by parents from all over through CHERAB -that pure Omega 3 (including cod liver

oil) or pure Omega 6 either showed no results -or very little results in almost

all cases. If wanting to use a pure Omega 3 the best reports were from higher

EPA formulas like Coromega -but again with the small amount of GLA better

results were reported.

When it comes to fish oils brand name isn't important, all that matters are

formula, dosage and quality of the oils.

Dosage of one capsule a day ProEFA that at the lowest dosage appears

to be the best -

148 mg EPA

99 mg DHA

40 mg GLA

Nordic Naturals makes a number of oils...the Omega 369 is the commercial line

sold in stores of the same professional line not sold in stores called ProEFA.

ProEFA is slighly cheaper as you get 90 capsules per bottle vs. 60

and in most cases on line for around the same price. For the person that says

they are using Nordic Naturals " fish oil " that may or may not be the right

formula. You want the ratio of at least what's in the ProEFA to start -but many

of us in the CHERAB group found raising the EPA a bit more brought even better

results.

here's some more info online

http://www.cherab.org/information/indexinformation.html#diet

Article from EngleMed " Look Who's Talking Now: Fish oil capsules help children

with speech disorders find their voices "

http://www.cherab.org/information/dietaryeffects/Englemed.html

For fish oils brand name doesn't matter -all that matters are formula, dosage,

and quality of the oil. When you are new to it you think all fish oils are the

same -they are not. Again you want a formula higher in EPA than DHA with a small

amount of GLA. I know that sounds confusing -which is why we do point to brands.

Here are sources for some of the brands our group has found success with for

years

http://www.cherab.org/information/dietaryeffects/efabasics.html

http://www.speech411.com

There is also an entire chapter about fish oils in The Late Talker book.

There are some kids that once on the right formula of EFAs for a bit can be

taken off and appear to be " back to normal " Who knows if it was a misdiagnosis?

Either way -happy ending- the child is safe and little time nor money to try

this route (all 3 of which you can not say about extreme biomedical)

~~~~~~~~~~~start of archive

Dear and group,

I contacted you a few months ago and asked to be removed from the

list as I was being buried w/ mail and could not keep up! You asked

if this was a good thing and I responded YES!!!! You suggested I

share my news with the group so that is what I'm doing now..Please

pass this along for me.... .(better late than never right?)

After nearly two years our son is speaking beautifully. Ricky was

diagnosed at 18months. Early yes, but we pushed...Ricky was our

4th..we knew he should have more..we refused to " wait and see " .

He is even starting to recognize and read small words!! We are

amazed and so grateful. He turned 3 at the end of March and that is

when his therapy ended. (this is a child who we were told may never

speak!!). This should bring hope to many parents who are just

starting their journey.

I remember the night after his first evaluation..I got on the net and

found your sight...I stayed up half the night.. reading..crying..

searching for hope!!! Ricky never babbled or cooed..never made any

vowel signs....the only sound he made was MMMMM...MMMMM. (otherwise

he was typically developing..even early..he stood alone at 7

mos...and was walking independently at 9 mos!!!)

He is now 100% intelligible in context (even w/ most strangers)and

probably 75% out of context, which probably is pretty typical of a 3

yr old anyway right? Some have asked hearing him now..don't you

think he was just a late talker? No, we don't...late talkers just

start talking!! Ricky was taught to speak!!! (incidentally he was

fortunate enough to have the most wonderful slp on the planet!!!!)

She not only taught and cared for him but you could tell she actually

fell in love w/ him!!! When he finally " got something " she sometimes

would well up w/ tears!! Other professionals might not think it's

such a good thing to care so much...but it meant the world to us.

To know someone we were counting on cared as much as we did!! What a

gift!!!!

Ok, now to the details I know parents want to know. Ricky was

considered to have pure verbal apraxia w/ no other issues. Of course

this made him more ready and willing to participate in the therapy.

We rarely had days where he didn't want to " work " . He had two

sessions per week at home that lasted about two hours. We continued

at home... Ricky has older siblings...and our house was a 24 hr

speech camp! The fact that we could get right to the speech issue(no

other stuff to work around/ie sensory stuff) certainly was a major

factor in his quick progress.

The other thing we tried like many was the proefa. He immediately

made huge leaps...after a few weeks his slp looked at me and said

WOW..do you think it's the oil? It was hard to tell...was it the

early early intervention, things just starting to come together, the

oil or the combination of all those things together? We didn't know

but our slp was intrigued enough to recommend it to her other

parents. It's been awhile but as I recall she and other parents were

quite surprised and pleased. Not every child had huge leaps in speech

but as I recall all the feedback was positive. One family reported

their child finally slept thru the night for the first time (he was

FOUR YEARS OLD!!!) His parents were thrilled!!! I remember her

talking about another parent who couldn't believe the difference in

her childs behavior and willingness to cooperate more in his

therapy. That would have to lead to better results..wouldn't it? I

don't know much more than that as she of course has

to protect the privacy of the other families... I just don't recall

her sharing any negative stories w/ me.

Okay, now for your BIG question... Is Ricky still on the

oils...No...and he hasn't been for some time. It became so difficult

to get them in him that we stopped probably after about 3 months. We

decided if his progress slowed we would get them in him no matter

what...fortunately..it didn't. Maybe he just needed a boost.!!!! (by

the way ..... I'm still waiting for someone to produce this oil

in a suppository form..wouldn't that solve all the problems of getting

it into the little ones at least..the older kids can be bribed!!!!)

As a baby Ricky had very dry skin, we noticed after the oils that

his dry skin went away and has never come back despite the fact that

we never re-started the oils. Who knows..maybe he just needed

one good lube job!!!

The other thing we did that I think helped his progress and growth in

general was enroll him in a Montessori pre school program. It was

good for him to be with other children his own age. I'm certainly not

saying he learned to speak by hearing them....we all know better than

that. But it did force him to use the words he had!!! He learned

turn taking, sharing and the rules of the classroom. It amazed me

how they could get 10 under 3 yr olds to sit thru stories and clean

up their own snack and work areas!! The other real positive I found

at the Montessori was the fact that the preschool class

ranged in ages from 18mos to 3 yrs. The point being..Ricky's

speech...or lack of... did not make him stand out!!! There was quite

a range of verbal skills so he blended right in..it was wonderful!!

I feared he would be intimidated and clam up completely in a typical

2/3yr old preschool since that had been our experience w/ him when he

was around other kids his age w/ typical speech. He was young (2

1/2) but starting to realize he was not the same. What a tough thing

to watch!

In the great scheme of things we realize Ricky's obstacles were small

and we are very very fortunate and SO GRATEFUL for his progess. We

are also grateful to this group who gave us so much hope at such a

difficult time.

To all the parents just beginning this journey..keep working, keep

pushing, follow your instincts and never ever give up.....the rewards

are so wonderful and so worth it!!

Sincerly,

Martha

~~~~~~~~~~~

end of archive

There are literally hundreds if not thousands of stories just like the one

above...however in most cases we leave the child on the oils. Like my son

-some regress even years later without it...and in other cases parents leave

their kids on it for health reasons.

If anyone has any questions please ask.

=====

Gang

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

http://www.cherab.org

http://www.apraxia.org

http://twitter.com/TheLateTalker

772-335-5135

" Help give our cherubs a smile and a voice "

>

> Nordic Natural....BUT which one there are so many.

>  

> Thanks!

>

>

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