Re: Re: did you have early diagnosis for child?

[Guest guest]

Myra and - thank you for your replies. I guess I am just very lost and

confused. I don't trust myself fully to figure this out to be able to help him.

We don't have money to go seach the best therapies and therapists to help OR

this might be easier on us. I do not trust some " professionals " at their job- as

Myra says -you have to be the doc and I am scared.

Early intervention is a chore to fight for speech and OT. They evaluated my son

four months ago and just gave my son a DI (teacher). My son's play skills are

great....so we are pretty much wasting time. I finally -after months of being

persistant with EI, am getting a meeting to get OT and speech- that should have

been given long ago. So after this meeting, I will have to wait for services to

start...more time gone by.

We are getting PT at oir children's hospital -but I really think he has sensory

issues that look like he needs PT, but he really probably needs OT..cuz skills

he will do one day and scream the next and not do them for days...

I am rambling. What I really want to help him with is speech. How does it come?

He really babbles and wants to say words...poor guy..has only DaDa and DumDum

and hard to tell what others-they are not clear. And after a 3 hour meeting for

the speech eval in the Children's hospital-- we still don't know what is wrong.

I think we are on a wait list for speech. The develop ped tried to pin all his

weaknesses and developmental delays on that he may be celiac or low thyroid ONLY

cuz I mentioned these!! She is sending us to a GI doc. We had our own doc get

results back and he is not celiac..nor does he have any bowel problems to

indicate we need to see a GI. I think she just threw it at this doc to figure it

out!! We have been supporting his weak thyroid- but it is slight -so mainstream

docs probably wouldn't even treat it.

Ok I said a lot. Probably what I should have mentioned is that he might have

slight low muscle tone, he is little for age (5percentile),hates/wont climb

furniture nor kick and hundreds of other physical things, non-verbal, Not on the

autistic spectrum (numerous docs confirmed this).

Iveta

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] Re: did you have early diagnosis for child?

Iveta, I know that no one usually gives a confirmed " apraxi diagnosis until age

5 years. Some have been have to get a " suspected apraxia " diagnosis around age 3

years or so. You may get a " developmental speech delay " diagnosis if you child

is not up to par with speech sounds and words.

Wht sort of trouble are you having?

-- In , " lucy4gets " <lucy2max@...>

wrote:

>

> so we have been busy with appointment after appointment at our Childrens's

Hospital.

>

> My 20month old has seen the PT for an evaluation- 2nd one. Yeah! he starts PT

this week with the hospital!!

>

> We had a developmental ped evaluation and a speech evaluation also.

>

> NONE of these evaluations got me closer in knowing he might/or has!! All I've

been told is that he is not ASD. Well...is it going to be detailed in their

reports when I receive them all?

>

> When will I know WHAT my son has?? I feel like my hands are tied as to how to

help him if I don't know exactly what is wrong......

>

> Did you all get a clear diagnosis from these evaluations/doctors?

>

> I also have read in The Late Talker book that is is important what codes they

use. I haven't seen any codes yet- but some are really not able to get

treatments for the children?

>

> Any experiences appriciated- thanks!

> Iveta

>