Re: Apraxia/dyspraxia & head circumference

[Guest guest]

Suz,

We had an MRI and my son came through it just fine. Sometimes it is better to

know if there could be something else that you need to rule out such as muscular

dystrophy. If you have a degenerative issue, then you need to know about it

right away. If everything looks fine, then you will be able to sleep at night

and have a handle on what is in front of you.

Janice

[sPAM][ ] Apraxia/dyspraxia & head circumference

Hi,

My 2yr 10month old son is dyspraxic and has sensorimotor dysfunction.

He is currently under the care of a neurologist who is concerned about the

size of his head. The doctor says he is off the charts for his age group (note,

my husband's side of the family have large heads). Also, my son has a minor

intention tremor in his hands which I never noticed until his SLP made me aware

of it. Does anyone else have a similar situation? Is there a link between head

circumference and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young age. Has

anyone else had MRI's?

Suz

[Guest guest]

Well, I can tell you that big heads run in my family.. my grandpa...

my dad and me... and now my son, . He is also dyspraxic with some

sensory issues. His developmental pediatrician and neurologist

believe that his head size is inherited... not a result of something

else.

Is you son's neuro aware of the intention tremors? Would an MRI help

determine a cause for those?

Also... is your son's head growing at an accelerated rate? Like...

has it been growing at a steady pace... or is it rapid growth? I

always thought (and some here might correct me) that concern occured

when the head was growing too fast.

Is it possible for you to get a second opinion?

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>

>

>

[Guest guest]

I've only read this recently and sorry, didn't keep the source. But,

children with mercury poisening tend to have larger head size and

that would also explain the tremers, apraxia, speech delays. If you

don't already have a DAN or environmental Dr. - they seem to be the

only ones who know how to not only acknowledge but offer a safe

reasonable strategy toward recovery. Check into Autism One - a

conference is coming up and they usually have a stream link and/or

dvd's you can purchase. All fresh and lastest info. Our

conventional Dr.'s are not learning this stuff, politics, sadly.

hth

mother of a vaccine injured child - loaded with mercury/lead - dx:

apraxia/dyspraxia

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>

>

>

[Guest guest]

Head circumference comes up in autism discussions. If a brain is

somehow affected I believe Dr. said on this board " bigger is

better than smaller " generally. We have big heads on my side and

hubby's side. Daughter's head is small but my son who showed signs of

apraxia without a formal dx has a big head per the geneticist.

The message I refer to is 59943

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>

>

>

[Guest guest]

Yes because they will not be still otherwise

[sPAM][ ] Apraxia/dyspraxia & head

circumferenceHi, My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for his age

group (note, my husband's side of the family have large heads). Also, my son

has a minor intention tremor in his hands which I never noticed until his

SLP made me aware of it. Does anyone else have a similar situation? Is there

a link between head circumference and apraxia? The doctor wants to conduct

an MRI, but I'm not sure what to do...I don't want to put him through this

at such a young age. Has anyone else had MRI's?Suz[Non-text portions of this

message have been removed][Non-text portions of this message have been

removed]

_________________________________________________________________

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[Guest guest]

my severely apraxic son who is 3 1/2 also was told he has a large head. He is

off the charts off also. Howver, my son is a big boy also in weight and height,

so he is proportionate. I did have an MRI done which only showed an incidental

finding of an arachnoid cyst near the right brainstem(I think). Good luck. My

husband's nephew also had a large head.

Suz <suz.lopez@...> wrote:

Hi,

My 2yr 10month old son is dyspraxic and has sensorimotor dysfunction.

He is currently under the care of a neurologist who is concerned about the size

of his head. The doctor says he is off the charts for his age group (note, my

husband's side of the family have large heads). Also, my son has a minor

intention tremor in his hands which I never noticed until his SLP made me aware

of it. Does anyone else have a similar situation? Is there a link between head

circumference and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young age. Has

anyone else had MRI's?

Suz

[Guest guest]

Is sedation necessary for an MRI for young children?

@...: jscott@...: Mon, 19

May 2008 09:43:09 -0700Subject: Re: [ ] Apraxia/dyspraxia &

head circumference

Suz,We had an MRI and my son came through it just fine. Sometimes it is better

to know if there could be something else that you need to rule out such as

muscular dystrophy. If you have a degenerative issue, then you need to know

about it right away. If everything looks fine, then you will be able to sleep at

night and have a handle on what is in front of you.Janice [sPAM][ ] Apraxia/dyspraxia & head

circumferenceHi, My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for his age

group (note, my husband's side of the family have large heads). Also, my son has

a minor intention tremor in his hands which I never noticed until his SLP made

me aware of it. Does anyone else have a similar situation? Is there a link

between head circumference and apraxia? The doctor wants to conduct an MRI, but

I'm not sure what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?Suz[Non-text portions of this message have been

removed]

[Guest guest]

What does an evaluation by a geneticist entail?

> >

> > Hi,

> > My 2yr 10month old son is dyspraxic and has sensorimotor

> dysfunction.

> > He is currently under the care of a neurologist who is

concerned

> about the size of his head. The doctor says he is off the charts

for

> his age group (note, my husband's side of the family have large

> heads). Also, my son has a minor intention tremor in his hands

which

> I never noticed until his SLP made me aware of it. Does anyone

else

> have a similar situation? Is there a link between head

circumference

> and apraxia? The doctor wants to conduct an MRI, but I'm not sure

> what to do...I don't want to put him through this at such a young

> age. Has anyone else had MRI's?

> >

> > Suz

> >

> >

> >

> >

[Guest guest]

From all that I personally remember with going into an MRI-- I would say

with most kids that are younger, Absolutely!

I can't imagine a child sitting still in those things without a problem-- so

they need the sedation. problem is that for Neural kids, sedation is a

no-no and something to avoid as much as possible

becky

In a message dated 5/21/2008 9:49:49 A.M. Eastern Daylight Time,

hanagan_8@... writes:

Is sedation necessary for an MRI for young children?

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[Guest guest]

An MRI seems to be a standard thing for our children when we bring

them to a neurologist. The results of my son's MRI was " within normal

range " . Be prepared to learn nothing too!

P.S. Your child will need to be sedated. My HMO covered the MRI but

not the sedation. We ended up paying $1750 for my son's MRI.

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>

>

>

[Guest guest]

What is an intention tremor? Just curious because my son does a funny thing

with his hand.

Thanks

**************

Get trade secrets for amazing burgers. Watch " Cooking

with Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & amp;?NCID=aolfod00030000000002)

[Guest guest]

In our case, the geneticist took our family history and had a long chat with me.

He did a physical exam of our son focusing on facial symmatry, skin

abnormalities (he used a Wood lamp--like a uv light--to examine his skin for

blotchiness), checked his height/weight, external features. It was similar to a

routine dr. exam. From that point he offered recommendations to us about what

type of testing he wanted to pursue. We did some blood work and a urine test.

After that--it really depends on your results about where to go from there.

Hope that helps

[Guest guest]

My 4.5 yr old son has a really big head too... ever since he was a

baby, we've had a hard time putting shirts on him, especially if they

are crew cut (and boys' shirts usually are NOT v-necks!). However,

both my husband and I have big heads. He is ASD and probably apraxic

too, although not formally diagnosed. He does make sounds although

not much clear speech or words.

His MRI was abnormal - white matter abnormal T2 amd FLAIR signal in

the frontal regions, which may indicate prior infection, inflammation

or ischemia. The neurologist who helped us interpret the results

said, it was " basically normal " and tried to reassure me that my son

doesn't look " too autistic " . Duh! I don't know if he was trying to

not hurt my feelings or reassure me, but I'd rather know the truth.

I think he just didn't really know what it meant, so he just said

what he did to pacify me.

For what it's worth, our younger 2.5 yr old NT son, has a smaller,

more proportional sized head, and he is ahead in all areas of

development for a 2.5 yr old... he's more like a 3.5 yr old.

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>

>

>

[Guest guest]

Hi,

My almost 3 y.o. daughter (a twin) has hypotonia and apraxia. Her neuro

wants a MRI to do a brain scan and a full spinal cord scan..this

because Hannah was very late in walking, but I feel its more to her low

muscle tone but as a precaution she wants to rule out a tethered spinal

cord condition. Due to doing both scans, she would have to go under a

general aneths.

Can you tell me why sedation is a no no for neural kids? My husband

doesn't want her ot have a MRI, I thought it would be okay to make sure

everything was okay. Now, I am scared to have her do it if it will

negatively impact her. What is the outcome of having sedation on kids

who have apraxia????????

Thanks

Lori

>

> From all that I personally remember with going into an MRI-- I would

say

> with most kids that are younger, Absolutely!

> I can't imagine a child sitting still in those things without a

problem-- so

> they need the sedation. problem is that for Neural kids, sedation is

a

> no-no and something to avoid as much as possible

>

>

> becky

>

[Guest guest]

How old was she when she first walked?

[Guest guest]

My son was 18.5 months. My son's speech improved when we started

addressing a gut issue for him and we believe that same issue was

behind 18 months of colic and delayed walking. That is our story and

what we believe, not necessarily fact. I have read here and elsewhere

thought that the path to milestones and any deviation (missed neural

connections, inability to cross the midline) can be indicative of

neuro concerns. Whether they interrelate is specific to the

individual.

>

>

> How old was she when she first walked?

>

>

>

>

>

>

>

>

[Guest guest]

Suz,

this may be too late since you may have had the MRI done already. MRI are not

x-rays, so he will not get radiation. He will need to be sedated and I would

strongly recommend that you find a hospital that uses Chloral Hydrate for the

sedation. The other substances used to sedate a small child can complicate

things a little bit.

Laimi

From: Suz <suz.lopez@...>

Subject: [ ] Apraxia/dyspraxia & head circumference

Date: Tuesday, May 20, 2008, 5:20 AM

Hi,

My 2yr 10month old son is dyspraxic and has sensorimotor dysfunction.

He is currently under the care of a neurologist who is concerned about the size

of his head. The doctor says he is off the charts for his age group (note, my

husband's side of the family have large heads). Also, my son has a minor

intention tremor in his hands which I never noticed until his SLP made me aware

of it. Does anyone else have a similar situation? Is there a link between head

circumference and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young age. Has

anyone else had MRI's?

Suz

[Guest guest]

It is magnetic resonance imaging and I believe radiation is involved.

>

> From: Suz <suz.lopez@...>

> Subject: [ ] Apraxia/dyspraxia & head

circumference

>

> Date: Tuesday, May 20, 2008, 5:20 AM

>

>

>

>

>

>

> Hi,

> My 2yr 10month old son is dyspraxic and has sensorimotor

dysfunction.

> He is currently under the care of a neurologist who is concerned

about the size of his head. The doctor says he is off the charts for

his age group (note, my husband's side of the family have large

heads). Also, my son has a minor intention tremor in his hands which

I never noticed until his SLP made me aware of it. Does anyone else

have a similar situation? Is there a link between head circumference

and apraxia? The doctor wants to conduct an MRI, but I'm not sure

what to do...I don't want to put him through this at such a young

age. Has anyone else had MRI's?

>

> Suz

>

>