Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 It is just frustrating for me. Yet like I said - I will see what he does when we see the Dr. That will give me more of an indication of what he is thinking. Amy > He sounds just like my Wife when I asked her what about my life sitting here by my self wile you sleep all day she worked and after dinner layed on the couch and slep until bed time then if I tryed to get some sex she would say leave me alone I am tried. She told me she did not care how I felt so I left her I was dead sick of this. And we were together for over 33 yrs. I went and filed for a divorce and she waited until the divorce was almost over then she told me she would get help and find a new Dr. for her Tryroid. Now she feels good does not sleep all the time and wants sex more then I do. > Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 On Sat, 4 Jun 2005 09:45:36 -0400, you wrote: >I plan on doing that but not until after we met with the Dr. He doesn't have >time for groups (as he tells me all the time) but after we see the Dr. he >might be more inclined. He might even be more inclined after I present some >of the symptoms to him. We will see. I recommend Shippen's Book The Testosterone SYndrome to get through to him. I'd suggest before seeing the doctor. - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Do you think I could find it on CD? He doesn't read... Amy On 6/7/05, retrogrouch@... <retrogrouch@...> wrote: > > On Sat, 4 Jun 2005 09:45:36 -0400, you wrote: > > >I plan on doing that but not until after we met with the Dr. He doesn't > have > >time for groups (as he tells me all the time) but after we see the Dr. he > > >might be more inclined. He might even be more inclined after I present > some > >of the symptoms to him. We will see. > > > I recommend Shippen's Book The Testosterone SYndrome to get through to > him. I'd suggest before seeing the doctor. > > - - - - > Just another albino black sheep > > > ------------------------------ > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 On Tue, 7 Jun 2005 17:17:03 -0400, you wrote: >Do you think I could find it on CD? He doesn't read... > Amy I'm afraid it never got to CD. You ought to get the book anyway - for you. If its around the house he may pick it up also. I can tell you his levels of T were comparable to mine. My wife thought I was " depressed " but I was just lethargically content and so paid no mind to her concerns. But then I started breaking ribs. also I had a very stressful job and during a particularly trying time found I just didn't have the energy reserves I'd always relied on in the past to get me through. T therapy has just totally changed my life around. But I probably wouldn't have looked into it much had it not been for the broken bones. > On 6/7/05, retrogrouch@... <retrogrouch@...> wrote: >> >> On Sat, 4 Jun 2005 09:45:36 -0400, you wrote: >> >> >I plan on doing that but not until after we met with the Dr. He doesn't >> have >> >time for groups (as he tells me all the time) but after we see the Dr. he >> >> >might be more inclined. He might even be more inclined after I present >> some >> >of the symptoms to him. We will see. >> >> >> I recommend Shippen's Book The Testosterone SYndrome to get through to >> him. I'd suggest before seeing the doctor. >> >> - - - - >> Just another albino black sheep >> >> >> ------------------------------ >> * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 That is my fear - he won't do anything until he starts having serious health issues from it (more than he already does I mean)... On 6/8/05, retrogrouch@... <retrogrouch@...> wrote: > > On Tue, 7 Jun 2005 17:17:03 -0400, you wrote: > > >Do you think I could find it on CD? He doesn't read... > > Amy > > I'm afraid it never got to CD. > > You ought to get the book anyway - for you. If its around the house > he may pick it up also. > > I can tell you his levels of T were comparable to mine. My wife > thought I was " depressed " but I was just lethargically content and so > paid no mind to her concerns. But then I started breaking ribs. also > I had a very stressful job and during a particularly trying time found > I just didn't have the energy reserves I'd always relied on in the > past to get me through. > > T therapy has just totally changed my life around. But I probably > wouldn't have looked into it much had it not been for the broken > bones. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi Jess and welcome to the group. There are tons of people here who know what you are going through and you will find comfort in that. How long has your daughter been going to therapy? How old is she? Is she taking any medication? It is such a tough thing for all our kids but it is also very hard on the primary caregivers as well. Ask any question here and there will sure to be someone who has gone through it too and can answer. I don't think you are doing anything " wrong " it is a trial and error kind of approach with treatment sometimes, especially the medication part. Hang in there and hope you stick around, this place is a wealth of information. Books are great but to be able to converse with people in the same boat is just so helpful. Take care, Kim M > > Hey, > > I am new to the group and I guess I'm just looking for some support. > My daughter was diagnosed with OCD this summer when she stopped eating > (she thought the dust on the food would kill her). She is doing better > (eating and using the bathroom again) but I am feeling so alone with > this. We have a therapist who gives me stuff to do but I don't seem to > know how to implement it. I have read Chansky's book but I feel like I > need a CPR type coarse for OCD...you know where they give you info and > you read info and then you have to practice. > > For example she has been doing rituals with her hands and her > therapist said...stop her from doing this. So I held her hands apart > during homework (she was reading something that was hard for her) and > it was just AWFUL!! Her school noticed her doing it and gave her a > ball to squeeze in one hand so she couldn't do it. I felt like such an > idiot for putting her through all this drama at home when there was > this simple solution. I just feel like I'm " doing this wrong " . Sorry I > have no one around me who gets OCD and I guess I just had to rant. > > Thanks!! > Jess > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Jess, I know feeling alone and inadequate is often the worst part of all of this. Do you know what? Some days you are going to do things perfectly and other days you will handle it awful -- but she is your daughter. There will be times you are so inspired to think of something only you as her mother could do. It would be great if there were a " crash course " in ocd success, but unfortunately every case is so different and every child is so different - so what do you do? Just love her and keep plugging away. Look at what you have already overcome, with her eating and using the bathroom. It sounds like you are in a little better place already. Post here all you want. You'll find lots of sympathetic ears with lots of experience to pass along. Kim <missmeowza@...> wrote: Hi Jess and welcome to the group. There are tons of people here who know what you are going through and you will find comfort in that. How long has your daughter been going to therapy? How old is she? Is she taking any medication? It is such a tough thing for all our kids but it is also very hard on the primary caregivers as well. Ask any question here and there will sure to be someone who has gone through it too and can answer. I don't think you are doing anything " wrong " it is a trial and error kind of approach with treatment sometimes, especially the medication part. Hang in there and hope you stick around, this place is a wealth of information. Books are great but to be able to converse with people in the same boat is just so helpful. Take care, Kim M > > Hey, > > I am new to the group and I guess I'm just looking for some support. > My daughter was diagnosed with OCD this summer when she stopped eating > (she thought the dust on the food would kill her). She is doing better > (eating and using the bathroom again) but I am feeling so alone with > this. We have a therapist who gives me stuff to do but I don't seem to > know how to implement it. I have read Chansky's book but I feel like I > need a CPR type coarse for OCD...you know where they give you info and > you read info and then you have to practice. > > For example she has been doing rituals with her hands and her > therapist said...stop her from doing this. So I held her hands apart > during homework (she was reading something that was hard for her) and > it was just AWFUL!! Her school noticed her doing it and gave her a > ball to squeeze in one hand so she couldn't do it. I felt like such an > idiot for putting her through all this drama at home when there was > this simple solution. I just feel like I'm " doing this wrong " . Sorry I > have no one around me who gets OCD and I guess I just had to rant. > > Thanks!! > Jess > --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Thanks Kim, My daughter is 6 1/2 yrs old and is a fraternal twin (her sister is showing no signs of OCD but does have some facial tics and is being evaluated right now for ADD). My daughter has been in therapy since this summer but it has not been often enough (one of the things we will be talking about today when I make her next appointment). At this time meds have not even been brought up. My husband is not really ready for the meds talk but he is not the primary person who follows through with the therapy and I think they could be helpful. I know 6 is young but I don't think she is the first 6 year old to have meds for OCD. I have gotten the impression that many people with OCD find the meds helpful. Does that seem to be the case in this group? Thanks, Jess > > > > Hey, > > > > I am new to the group and I guess I'm just looking for some support. > > My daughter was diagnosed with OCD this summer when she stopped > eating > > (she thought the dust on the food would kill her). She is doing > better > > (eating and using the bathroom again) but I am feeling so alone with > > this. We have a therapist who gives me stuff to do but I don't seem > to > > know how to implement it. I have read Chansky's book but I feel > like I > > need a CPR type coarse for OCD...you know where they give you info > and > > you read info and then you have to practice. > > > > For example she has been doing rituals with her hands and her > > therapist said...stop her from doing this. So I held her hands apart > > during homework (she was reading something that was hard for her) > and > > it was just AWFUL!! Her school noticed her doing it and gave her a > > ball to squeeze in one hand so she couldn't do it. I felt like such > an > > idiot for putting her through all this drama at home when there was > > this simple solution. I just feel like I'm " doing this wrong " . > Sorry I > > have no one around me who gets OCD and I guess I just had to rant. > > > > Thanks!! > > Jess > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi Jess, My 7 year old was diagnosed last year, and it can be so hard on the ones who take most of it on, usually mom. There are some natural supplements and remedies that might help some. We haven't tried meds at this time, but have had some luck with some of the things recommended here. Purecalm, Kiddie Calmer, Inosital, Omega 3, are some of the ones we have had some luck with. Take care of yourself through this, it is important that you are in a good place. So, remember to be good to you. That " put your oxygen mask on you first, then your child " . Vent away, that's what we are here for. J Re: New to this... Thanks Kim, My daughter is 6 1/2 yrs old and is a fraternal twin (her sister is showing no signs of OCD but does have some facial tics and is being evaluated right now for ADD). My daughter has been in therapy since this summer but it has not been often enough (one of the things we will be talking about today when I make her next appointment). At this time meds have not even been brought up. My husband is not really ready for the meds talk but he is not the primary person who follows through with the therapy and I think they could be helpful. I know 6 is young but I don't think she is the first 6 year old to have meds for OCD. I have gotten the impression that many people with OCD find the meds helpful. Does that seem to be the case in this group? Thanks, Jess > > > > Hey, > > > > I am new to the group and I guess I'm just looking for some support. > > My daughter was diagnosed with OCD this summer when she stopped > eating > > (she thought the dust on the food would kill her). She is doing > better > > (eating and using the bathroom again) but I am feeling so alone with > > this. We have a therapist who gives me stuff to do but I don't seem > to > > know how to implement it. I have read Chansky's book but I feel > like I > > need a CPR type coarse for OCD...you know where they give you info > and > > you read info and then you have to practice. > > > > For example she has been doing rituals with her hands and her > > therapist said...stop her from doing this. So I held her hands apart > > during homework (she was reading something that was hard for her) > and > > it was just AWFUL!! Her school noticed her doing it and gave her a > > ball to squeeze in one hand so she couldn't do it. I felt like such > an > > idiot for putting her through all this drama at home when there was > > this simple solution. I just feel like I'm " doing this wrong " . > Sorry I > > have no one around me who gets OCD and I guess I just had to rant. > > > > Thanks!! > > Jess > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi Jess, welcome! My OCD son (just turned 18) is a twin too! (read your other post) His OCD began back around age 11.5, just after he began 6th grade. I joined this group not long after. This group is the BEST support I've found. Even just reading posts & not replying helps so you know you're not the only parent dealing with this illness. Oh don't feel too bad about that ball, I wouldn't have thought of it either! And then again, you never know, the child might accept ideas from the teacher to use at school but refuse to use it at home. Sort of the " don't want to be the odd one at school " but " home " is where they often " let go " with holding back things while at school or other. Plus even with typical kids - depending on the age - ideas from mom/dad just don't seem as welcomed as ideas from others (teachers, friends, therapist...). This group is a great place to ask for suggestions. Either someone can share what they tried or we can all brainstorm with things to try. With my son I have often thought up things/ways to try over the years, it's sometimes getting him to try them that's so hard! What are some of the things the therapist has suggested you do at home, or what particular OC behaviors are being worked on now? When my son's OCD first began, he had sooo many compulsions and rituals. His OCD gave him a feeling that something bad would happen to him if he didn't do them and he also had to get a " just right " feeling. His OCD began again last year with bad thoughts, a lot of scrupulosity. And he went thru a stage where he hardly could eat anything either! Such a panic for me, this group was great help at that time too since other parents have dealt with eating issues so they can understand so well! And even after ALL these years, I just recently pushed a bit too far one night when he was " OCDing " and had him lose his temper (he generally has no temper at all) with me. I thought I was helping him with my suggestion (or it might have sounded more like an " order " as I was getting fed up with OCD too) but I didn't help at all! So years of practice do not make perfect solutions come easy either! single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers (autism) , 18, twin (not identical) Randall, soon to be 22! > > Hey, > > I am new to the group and I guess I'm just looking for some support. > My daughter was diagnosed with OCD this summer when she stopped eating > (she thought the dust on the food would kill her). She is doing better > (eating and using the bathroom again) but I am feeling so alone with Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi Jess, me again! Just did one reply. But wanted to comment on medication. YES, many young kids like your daughter do well on medication. Someone mentioned some of the " alternative " things you can try first to see if any help. We've done both. (It would be so much easier if there was *one* thing that worked for everyone.) My son used inositol powder throughout middle school and did well on it. Then he switched to Celexa for 9th and 10th grades and did well on it. Then he wanted to quit Celexa since he felt he could handle OCD well on his own. (I mentioned earlier, it's back now) He still isn't on medication but is trying the inositol again. Can't see it helping this time yet! It might not this time around. He doesn't want to go back on Celexa or try any other prescribed medication. Regarding both inositol and Celexa when they helped: I can't say he did better on one than the other; the Celexa did make him a bit tired but I was happy with that being the only side effect. However, others have tried inositol with no change at all (like us now so far) or with it being " activating " for their child or something so they stopped it. SIGH! That's the way with anything you try and the hard part - waiting to see if it will help or some unfavorable side effect so you need to try something else. OK, son calling me. Just wanted to mention that very young kids do take medication. The therapy (CBT with ERP) is the best tool for OCD but sometimes medication helps lower anxiety so they can do better in therapy. You can have therapy without medication of course, like you are now. Gotta go! > > Thanks Kim, > > My daughter is 6 1/2 yrs old and is a fraternal twin (her sister is > showing no signs of OCD but does have some facial tics and is being > evaluated right now for ADD). My daughter has been in therapy since > this summer but it has not been often enough (one of the things we > will be talking about today when I make her next appointment). At Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 welcome Jess - vent away and ask anything - this is where you'll get the real life answers - it's awesome! so many have given great advice already so I'll be short but personally I'd always go natural first - we're just in therapy now (dd is 7) eileen quick note - OCD can present as ADD if no one mentioned that Quoting cercajthomas <cercajthomas@...>: > Thanks Kim, > > My daughter is 6 1/2 yrs old and is a fraternal twin (her sister is > showing no signs of OCD but does have some facial tics and is being > evaluated right now for ADD). My daughter has been in therapy since > this summer but it has not been often enough (one of the things we > will be talking about today when I make her next appointment). At this > time meds have not even been brought up. My husband is not really > ready for the meds talk but he is not the primary person who follows > through with the therapy and I think they could be helpful. I know 6 > is young but I don't think she is the first 6 year old to have meds > for OCD. I have gotten the impression that many people with OCD find > the meds helpful. Does that seem to be the case in this group? > > Thanks, > Jess > >> > >> > Hey, >> > >> > I am new to the group and I guess I'm just looking for some support. >> > My daughter was diagnosed with OCD this summer when she stopped >> eating >> > (she thought the dust on the food would kill her). She is doing >> better >> > (eating and using the bathroom again) but I am feeling so alone with >> > this. We have a therapist who gives me stuff to do but I don't seem >> to >> > know how to implement it. I have read Chansky's book but I feel >> like I >> > need a CPR type coarse for OCD...you know where they give you info >> and >> > you read info and then you have to practice. >> > >> > For example she has been doing rituals with her hands and her >> > therapist said...stop her from doing this. So I held her hands apart >> > during homework (she was reading something that was hard for her) >> and >> > it was just AWFUL!! Her school noticed her doing it and gave her a >> > ball to squeeze in one hand so she couldn't do it. I felt like such >> an >> > idiot for putting her through all this drama at home when there was >> > this simple solution. I just feel like I'm " doing this wrong " . >> Sorry I >> > have no one around me who gets OCD and I guess I just had to rant. >> > >> > Thanks!! >> > Jess >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Hi all I'm new to this board though have been on others a bit. My 4 yo has fragile x syndrome and associated behaviours and while we've made great progress being cgcfsf his speech is a big concern. We are a bilingual house too so maybe he's getting too much input but the way he speaks is a worry- his words can often be crystal clear at first but then will generally become less clear until they become unintelligible again. He tries sentences more than single words and has huge anxiety issues. He crams his mouth with food and chews his blankie still. What might help him? He gets some basic speech therapy at preschool but we haven't seen any improvement since that started. He seems to have a problem with fish oils making him v hyper and I haven't been able to source a soy free vitamin e here! Any suggestion welcome, Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Hi! My son is 3.2 years old. We speak Spanish at home and I am still wondering how to switch him into English: slowly or suddenly? He understands Spanish but we have tested his English and he is lost. If he is really apraxic (his therapist has not been able to confirm or rule out because he just started trying to repeat a month ago, before that he would not even try)... If he is really apraxic it will take him forever to be able to speak a second language (I think). The therapist insists that once he speaks one, he will get the second one. That's how it is for a " regular " child. I am not so sure about a child with Apraxia. In the US, English is definitely more important than Spanish to succeed. Any experiences to share? Laimi shaddie_2 <shaddie_2@...> wrote: Hi all I'm new to this board though have been on others a bit. My 4 yo has fragile x syndrome and associated behaviours and while we've made great progress being cgcfsf his speech is a big concern. We are a bilingual house too so maybe he's getting too much input but the way he speaks is a worry- his words can often be crystal clear at first but then will generally become less clear until they become unintelligible again. He tries sentences more than single words and has huge anxiety issues. He crams his mouth with food and chews his blankie still. What might help him? He gets some basic speech therapy at preschool but we haven't seen any improvement since that started. He seems to have a problem with fish oils making him v hyper and I haven't been able to source a soy free vitamin e here! Any suggestion welcome, Sx --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Isn't the therapist right? Same theory behind sign language correct? > Hi all I'm new to this board though have been on others a bit. My 4 yo has fragile x syndrome > and associated behaviours and while we've made great progress being cgcfsf his speech is a > big concern. We are a bilingual house too so maybe he's getting too much input but the way > he speaks is a worry- his words can often be crystal clear at first but then will generally > become less clear until they become unintelligible again. He tries sentences more than single > words and has huge anxiety issues. He crams his mouth with food and chews his blankie still. > What might help him? He gets some basic speech therapy at preschool but we haven't seen > any improvement since that started. He seems to have a problem with fish oils making him v > hyper and I haven't been able to source a soy free vitamin e here! Any suggestion welcome, > Sx > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
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