Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Hi All, I really need some body's opinion and advice. I'm very confused. Few days ago, my daughter was diagnosed as high moderate side of apraxia by the director of Neurology department in children hospital. Same day, my daughter's private SLP who has been tasting her apraxia, told us that my daughter doesn't seem to have apraxia, though she admits that she is trouble understanding her. I have been believed in that she may have apraxia by reading these apraxia website. She is certainly struggling with letting the words out and trouble making correct sentence, she gets lost when she talk about something. Most of the people I know donft understand 70% of her words include my husband even school teacher. My daughter's Private ST is very sweet and quite young. My daughter likes her, but I don't know if I should keep her whom doesn't believe her diagnose. My daughter is in Private ST for close to 9 month, but because she has not been treated as apraxia therapy her improvement has been very slow. We are very irritated because we have been paying for this therapy (we've got denial from Insurance company) for more than 8 months and doesn't see any significant improvement. Be honest we could not afford this therapy anymore. One more question is my teacher is curious to know what is going on with her as she knows my daughter had app. with Dr. Should I keep mouth shot until upcoming IEP meeting in the end of May? This IEP meeting is very important for my daughter. Not only she is in the transaction period from Preschool to Kinder, and we are hoping that school district will pay for her private therapy. As the summer vacation is head of her, we are very nervous. If my daughter has apraxia, I believe she does, she really needs very intensive individual therapy, and we could not afford to keep her out of ST during the summer. We were told from IEP last fall that she is doing great, she talks a lot, she'll be fine next year for kinder. I don't believe so. Any advice and opinion is greatfuly appreciate. Thank you Mich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Hi Mich, My daughter is three and we noticed last spring that she wasn't talking much. I addressed this issue with her pediatrician at her three year check-up and here are the steps that les Dad and I went threw before she was diagnosed with Childhood Apraxia last week. First we took her to get her hearing checked, she does have some conductive hearing loss but not enough to effect her speech, then we took her to Special services threw the school district to get a full evaluation done with some counselors and a speech therapist(just so you know the school will eval the child but not diagnose) so on the same week we took here for an evaluation at Seattle Childrens to a speech pathologist, to finially get the diagnosis of Childhood Apraxia and had the speech pathologist send his report to the school so that they can take the two evals and figure out how much speech therapy my daughter will actually need each week while she is at school.I am taking her to a Neurodevelopmental eval next week just to cover our everything.As far as Insurance, My husband has Insurance but we to have limited income and my daughter has ALOT of other health isses, so we went to the state and applied for extra insurance to cover costs that our primary isurance won't, here in Washington state DSHS has insurance programs that only cost a family $15.00 a month and they pay everything else, I would ask for another eval and go to the district office if you have to, there is a thing called " no child left behind " law and thats why these schools have these programs, don't let the doctors or schools give you the run around.Hope I could be some help, Christian [ ] I'm very confused. Hi All, I really need some body's opinion and advice. I'm very confused. Few days ago, my daughter was diagnosed as high moderate side of apraxia by the director of Neurology department in children hospital. Same day, my daughter's private SLP who has been tasting her apraxia, told us that my daughter doesn't seem to have apraxia, though she admits that she is trouble understanding her. I have been believed in that she may have apraxia by reading these apraxia website. She is certainly struggling with letting the words out and trouble making correct sentence, she gets lost when she talk about something. Most of the people I know donft understand 70% of her words include my husband even school teacher. My daughter's Private ST is very sweet and quite young. My daughter likes her, but I don't know if I should keep her whom doesn't believe her diagnose. My daughter is in Private ST for close to 9 month, but because she has not been treated as apraxia therapy her improvement has been very slow. We are very irritated because we have been paying for this therapy (we've got denial from Insurance company) for more than 8 months and doesn't see any significant improvement. Be honest we could not afford this therapy anymore. One more question is my teacher is curious to know what is going on with her as she knows my daughter had app. with Dr. Should I keep mouth shot until upcoming IEP meeting in the end of May? This IEP meeting is very important for my daughter. Not only she is in the transaction period from Preschool to Kinder, and we are hoping that school district will pay for her private therapy. As the summer vacation is head of her, we are very nervous. If my daughter has apraxia, I believe she does, she really needs very intensive individual therapy, and we could not afford to keep her out of ST during the summer. We were told from IEP last fall that she is doing great, she talks a lot, she'll be fine next year for kinder. I don't believe so. Any advice and opinion is greatfuly appreciate. Thank you Mich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Hi Christian, Thank you so much for sharing your experience with your daughter. We went through every thing EI, EI eval, IEP their eval, eval from children hospital in Boston 3 times since right before she turn 3. She has been in the ST from district school since she was 3 and we added the private ST 9 months ago(Paying from our pocket). We were so desperate few month ago. We were running out a money for her therapy and what it's worse she is not making any progress. Nobody could not tell us what is causing her speech problem. Only hint that gave me was the last evaluation done by SLP in children, stated she needs apraxia frame work of intensive therapy. I passed on this info to school and Private ST, no one paid attention to her for last 3 months. That's why I pushed her Neurologist to give her diagnose and get SPT's opinion. I'd certainly request eval from school and get neurophsicologial eval individually before the IEP meeting, just to be ready. I also would get letter from Dr as now she has a diagnose to submit the insurance company. If doesn't work, I'll try some found or negotiate with school to pay for the treatment. Again thank you for your advice. Mich  ________________________________ From: Christian Wilcox <christian73@...> Sent: Friday, March 20, 2009 2:37:53 AM Subject: Re: [ ] I'm very confused. Hi Mich, My daughter is three and we noticed last spring that she wasn't talking much. I addressed this issue with her pediatrician at her three year check-up and here are the steps that les Dad and I went threw before she was diagnosed with Childhood Apraxia last week. First we took her to get her hearing checked, she does have some conductive hearing loss but not enough to effect her speech, then we took her to Special services threw the school district to get a full evaluation done with some counselors and a speech therapist(just so you know the school will eval the child but not diagnose) so on the same week we took here for an evaluation at Seattle Childrens to a speech pathologist, to finially get the diagnosis of Childhood Apraxia and had the speech pathologist send his report to the school so that they can take the two evals and figure out how much speech therapy my daughter will actually need each week while she is at school.I am taking her to a Neurodevelopmental eval next week just to cover our everything.As far as Insurance, My husband has Insurance but we to have limited income and my daughter has ALOT of other health isses, so we went to the state and applied for extra insurance to cover costs that our primary isurance won't, here in Washington state DSHS has insurance programs that only cost a family $15.00 a month and they pay everything else, I would ask for another eval and go to the district office if you have to, there is a thing called " no child left behind " law and thats why these schools have these programs, don't let the doctors or schools give you the run around.Hope I could be some help, Christian [childrensapraxiane t] I'm very confused. Hi All, I really need some body's opinion and advice. I'm very confused. Few days ago, my daughter was diagnosed as high moderate side of apraxia by the director of Neurology department in children hospital. Same day, my daughter's private SLP who has been tasting her apraxia, told us that my daughter doesn't seem to have apraxia, though she admits that she is trouble understanding her. I have been believed in that she may have apraxia by reading these apraxia website. She is certainly struggling with letting the words out and trouble making correct sentence, she gets lost when she talk about something. Most of the people I know don�ft understand 70% of her words include my husband even school teacher. My daughter's Private ST is very sweet and quite young. My daughter likes her, but I don't know if I should keep her whom doesn't believe her diagnose. My daughter is in Private ST for close to 9 month, but because she has not been treated as apraxia therapy her improvement has been very slow. We are very irritated because we have been paying for this therapy (we've got denial from Insurance company) for more than 8 months and doesn't see any significant improvement. Be honest we could not afford this therapy anymore. One more question is my teacher is curious to know what is going on with her as she knows my daughter had app. with Dr. Should I keep mouth shot until upcoming IEP meeting in the end of May? This IEP meeting is very important for my daughter. Not only she is in the transaction period from Preschool to Kinder, and we are hoping that school district will pay for her private therapy. As the summer vacation is head of her, we are very nervous. If my daughter has apraxia, I believe she does, she really needs very intensive individual therapy, and we could not afford to keep her out of ST during the summer. We were told from IEP last fall that she is doing great, she talks a lot, she'll be fine next year for kinder. I don't believe so. Any advice and opinion is greatfuly appreciate. Thank you Mich Quote Link to comment Share on other sites More sharing options...
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