Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 I have a quick question for the parents on here with Apraxic children. The children that were dx with Apraxia, do they have/had other issues at the time of the diagnosis? My son's sp seems to be heading down the road of thinking he has Apraxia, but he does not seem to show signs of any of the other conditions associated with it. He doesn't appear to have oral apraxia (no issues with feeding, he seems to have decent control over his tongue, etc.) and I read that alot of Apraxic children have sensory issues, which my son doesn't seem to have (a few things here and there, but nothing severe ~ for ex. he doesn't like to have sand on his hands, but he will touch it, and has no other sensory issues with textures). Anyway, so I read that children with Apraxia usually have other issues/conditions. So, I am wondering for the parents on here... does that hold true in your case? Or, are there parents on here that have children that " just " have verbal apraxia. TIA, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Beth - I have a 3 year 3 month old son with severe verbal apraxia. He had/has no oral motor issues or major sensory issues, and while he has some sensory issues, they had not presented until just recently (Loud noises bother him is the one i can think of at the moment). He was diagnosed at 2 years 11 months at the Kaufman Center with Severe Verbal Apraxia only. So yes, I think while it's rare to have a child with just verbal apraxia it can and does happen. How old is your son? [ ] Apraxia question I have a quick question for the parents on here with Apraxic children. The children that were dx with Apraxia, do they have/had other issues at the time of the diagnosis? My son's sp seems to be heading down the road of thinking he has Apraxia, but he does not seem to show signs of any of the other conditions associated with it. He doesn't appear to have oral apraxia (no issues with feeding, he seems to have decent control over his tongue, etc.) and I read that alot of Apraxic children have sensory issues, which my son doesn't seem to have (a few things here and there, but nothing severe ~ for ex. he doesn't like to have sand on his hands, but he will touch it, and has no other sensory issues with textures). Anyway, so I read that children with Apraxia usually have other issues/conditions. So, I am wondering for the parents on here... does that hold true in your case? Or, are there parents on here that have children that " just " have verbal apraxia. TIA, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 , My son who had extremely severe global dyspraxia did not have it at 3 either. At 3 he had a little speech delay; at 4 he began presenting with gross motor delay plus speech delay; at 5 he had speech delay plus gross motor plus fine motor delay. At 6, he had the same delays but they were all now classified as 'severe' delays. At 7, he was diagnosed with global dyspraxia. It was progressive so be extremely watchful and proactive. Anything and everything that you can do now to prevent the commencement of global dyspraxia... DO!!! Janice Mother of Mark, 13 [ ] Apraxia question I have a quick question for the parents on here with Apraxic children. The children that were dx with Apraxia, do they have/had other issues at the time of the diagnosis? My son's sp seems to be heading down the road of thinking he has Apraxia, but he does not seem to show signs of any of the other conditions associated with it. He doesn't appear to have oral apraxia (no issues with feeding, he seems to have decent control over his tongue, etc.) and I read that alot of Apraxic children have sensory issues, which my son doesn't seem to have (a few things here and there, but nothing severe ~ for ex. he doesn't like to have sand on his hands, but he will touch it, and has no other sensory issues with textures). Anyway, so I read that children with Apraxia usually have other issues/conditions. So, I am wondering for the parents on here... does that hold true in your case? Or, are there parents on here that have children that " just " have verbal apraxia. TIA, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Hi - you might want to go to this web page and see Bilker on http://www.debtsmart.net/talk/index.html He apparently has " only " verbal apraxia and no sensory issues. My son DOES have other issues along with the severe verbal apraxia. > > I have a quick question for the parents on here with Apraxic children. > The children that were dx with Apraxia, do they have/had other issues > at the time of the diagnosis? My son's sp seems to be heading down the > road of thinking he has Apraxia, but he does not seem to show signs of > any of the other conditions associated with it. He doesn't appear to > have oral apraxia (no issues with feeding, he seems to have decent > control over his tongue, etc.) and I read that alot of Apraxic children > have sensory issues, which my son doesn't seem to have (a few things > here and there, but nothing severe ~ for ex. he doesn't like to have > sand on his hands, but he will touch it, and has no other sensory > issues with textures). > > Anyway, so I read that children with Apraxia usually have other > issues/conditions. So, I am wondering for the parents on here... does > that hold true in your case? Or, are there parents on here that have > children that " just " have verbal apraxia. > > TIA, > > Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 These conversations interest me greatly. My son had all the signs of global apraxia yet the therapists were so happy he was not autistic they told me not to chase it, he was just a late walker and talker. When he lost words after ear tube surgery and then needed a ridiculously high eye rx for glasses at not yet 3 then everyone said " Oh, he just could not see or hear us he'll be fine. " He was not fine. Not even close. His constipation, diarrhea and colick since birth told that story. He was not getting the right nutrients, things bothered him. As we healed him more sensory issues came up solely I think because he could hear and see better. A year after the surgery was to make him talk stole words from him he is talking. Nothing he can't say but a few things he could say better. Zero motor planning issues and it looks like the glasses are on their way out. When the Prompt Therapist met him she said " It is very rare to meet a kid with just verbal apraxia these days. " I had to keep from laughing in her face. From the stories on this board it seems to me some the pure verbal kids are growing in or out of their pure verbal apraxia status. > > , > > My son who had extremely severe global dyspraxia did not have it at 3 either. At 3 he had a little speech delay; at 4 he began presenting with gross motor delay plus speech delay; at 5 he had speech delay plus gross motor plus fine motor delay. At 6, he had the same delays but they were all now classified as 'severe' delays. At 7, he was diagnosed with global dyspraxia. > > It was progressive so be extremely watchful and proactive. Anything and everything that you can do now to prevent the commencement of global dyspraxia... DO!!! > > Janice > Mother of Mark, 13 > > > [ ] Apraxia question > > I have a quick question for the parents on here with Apraxic children. > The children that were dx with Apraxia, do they have/had other issues > at the time of the diagnosis? My son's sp seems to be heading down the > road of thinking he has Apraxia, but he does not seem to show signs of > any of the other conditions associated with it. He doesn't appear to > have oral apraxia (no issues with feeding, he seems to have decent > control over his tongue, etc.) and I read that alot of Apraxic children > have sensory issues, which my son doesn't seem to have (a few things > here and there, but nothing severe ~ for ex. he doesn't like to have > sand on his hands, but he will touch it, and has no other sensory > issues with textures). > > Anyway, so I read that children with Apraxia usually have other > issues/conditions. So, I am wondering for the parents on here... does > that hold true in your case? Or, are there parents on here that have > children that " just " have verbal apraxia. > > TIA, > > Beth > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 We're relatively new to the Apraxia diagnosis. Can anyone share what other " issues " can accompany Apraxia? Nearest we can tell, that's all my 3 year 9 month old son has. He was adopted from China 13 months ago, so w3e dont know what his history is. Thanks! Darin > > Beth - > > I have a 3 year 3 month old son with severe verbal apraxia. He had/has no oral motor issues or major sensory issues, and while he has some sensory issues, they had not presented until just recently (Loud noises bother him is the one i can think of at the moment). He was diagnosed at 2 years 11 months at the Kaufman Center with Severe Verbal Apraxia only. So yes, I think while it's rare to have a child with just verbal apraxia it can and does happen. > > How old is your son? > [ ] Apraxia question > > > I have a quick question for the parents on here with Apraxic children. > The children that were dx with Apraxia, do they have/had other issues > at the time of the diagnosis? My son's sp seems to be heading down the > road of thinking he has Apraxia, but he does not seem to show signs of > any of the other conditions associated with it. He doesn't appear to > have oral apraxia (no issues with feeding, he seems to have decent > control over his tongue, etc.) and I read that alot of Apraxic children > have sensory issues, which my son doesn't seem to have (a few things > here and there, but nothing severe ~ for ex. he doesn't like to have > sand on his hands, but he will touch it, and has no other sensory > issues with textures). > > Anyway, so I read that children with Apraxia usually have other > issues/conditions. So, I am wondering for the parents on here... does > that hold true in your case? Or, are there parents on here that have > children that " just " have verbal apraxia. > > TIA, > > Beth > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 My son doesn't have sensory stuff, just minor flukes, but nothing that interferes with life, and has only mild dyspraxia in his fingers which isn't a problem anymore. He had mild oral apraxia which wasn't noticed initially. He couldn't touch the back of his front teeth with his tongue, couldn't drink from a cup until age 3 and not properly until after age 6, but he could drink from a straw no problem. He couldn't pucker to kiss until after age 3, same with blowing out candles. But he's been the best nurser of my three kids (he's child #2 and I work as a breastfeeding counselor so I notice minor latch weirdness) and he always chewed and swallowed normally, although he tends to overstuff his mouth. His muscle tone is fine, not low or high, etc. He also has language issues which I believe is something separate from the apraxia. Miche On Sat, May 10, 2008 at 11:58 AM, Beth <bboivin@...> wrote: > I have a quick question for the parents on here with Apraxic children. > The children that were dx with Apraxia, do they have/had other issues > at the time of the diagnosis? My son's sp seems to be heading down the > road of thinking he has Apraxia, but he does not seem to show signs of > any of the other conditions associated with it. He doesn't appear to > have oral apraxia (no issues with feeding, he seems to have decent > control over his tongue, etc.) and I read that alot of Apraxic children > have sensory issues, which my son doesn't seem to have (a few things > here and there, but nothing severe ~ for ex. he doesn't like to have > sand on his hands, but he will touch it, and has no other sensory > issues with textures). > > Anyway, so I read that children with Apraxia usually have other > issues/conditions. So, I am wondering for the parents on here... does > that hold true in your case? Or, are there parents on here that have > children that " just " have verbal apraxia. > > TIA, > > Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 - can you please explain- " progressive " my son has had speech delays but as he is getting older he also seems more behind in GM and FM than before, or actuality maybe just not developing at the same rate of speed as before. The disparity is more noticeable. Does that make sense? What do I need to look for and what can I do? Thanks- Ren and FYI my son has " other issues " mainly sensory integration. > > , > > My son who had extremely severe global dyspraxia did not have it at 3 either. At 3 he had a little speech delay; at 4 he began presenting with gross motor delay plus speech delay; at 5 he had speech delay plus gross motor plus fine motor delay. At 6, he had the same delays but they were all now classified as 'severe' delays. At 7, he was diagnosed with global dyspraxia. > > It was progressive so be extremely watchful and proactive. Anything and everything that you can do now to prevent the commencement of global dyspraxia... DO!!! > > Janice > Mother of Mark, 13 > > > [ ] Apraxia question > > I have a quick question for the parents on here with Apraxic children. > The children that were dx with Apraxia, do they have/had other issues > at the time of the diagnosis? My son's sp seems to be heading down the > road of thinking he has Apraxia, but he does not seem to show signs of > any of the other conditions associated with it. He doesn't appear to > have oral apraxia (no issues with feeding, he seems to have decent > control over his tongue, etc.) and I read that alot of Apraxic children > have sensory issues, which my son doesn't seem to have (a few things > here and there, but nothing severe ~ for ex. he doesn't like to have > sand on his hands, but he will touch it, and has no other sensory > issues with textures). > > Anyway, so I read that children with Apraxia usually have other > issues/conditions. So, I am wondering for the parents on here... does > that hold true in your case? Or, are there parents on here that have > children that " just " have verbal apraxia. > > TIA, > > Beth > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 That is how dyspraxia works. As they age, they get more and more behind in all areas. My son started with an itty-bitty speech delay.... nothing too crazy. Over time it became a whole body delay affecting all of his systems, gross motor, fine motor, vision, speech, auditory processing.... it just escalated in teeny weeny unnoticeable bits over time until one day, he was completely different from anyone else. By the time he was in grade one, it was apparent that he was different from his peers but not so bad. By the time he was in grade 3, he was a complete outcast and had a very tough time surviving, not just the classes and the work involved but the bullying and the teasing and the other nonsense. Life was a misery for him and I felt so aweful for the pain that he endured. It all felt so hopeless and I had no idea that this was going to happen to him. Had I known..... After grade 3, he went to special education and would have never left but then when he was at the end of grade 5, I discovered home therapy. Within 2 years of intensive home therapy, he has left special education and caught up with his peers. System therapy does not work on our globally dyspraxic kids. They must have daily therapy at home and they must have a lot of opportunities to work their fine motor skills.....for this is indeed the worst area. Most/many adult dyspraxics cannot write but must keyboard. My son has been working on his hands daily for the last 2 years with little progress. If only I had started when he was a little baby and still developing perhaps I could have saved him from this..... The key to our children is strengthening their body core. If you can afford it, take your son to hippotherapy as young as possible. After that, take him horse back riding for this works core body tone throughout the body for our dyspraxic kids like no other exercise. Add this to daily home therapy.... home therapy items that are fantastic are playground equipment. Monkey bars work cortical grasp and binocular vision. The tire swing works the vestibular. Sand is good for tactility and climbing is wonderful for motor planning. You have every thing you need at your local playground to work your childs systems and you must do so with absolute dedication and vigor.... but you CAN.... I have had to work every muscle grouping separately for my son since I have not had access to hippotherapy and horse backriding. Each muscle grouping takes close to 2-3 months and often longer to achieve muscle mass from which to work body/muscle tone. Good muscle tone is necessary for motor planning. This is hard and requires that you have helping in designing a suitable program for your child. Hope this gives you direction and purpose. The YOUNGER you address this stuff, the lesser it will be and the easier it will be to remediate. By the time the system diagnoses your child with a delay..... they are months or years behind and this is not easily to remediate. If you know in advance that this possibility is there, then do the work and get it happening and save yourself years of therapy bills. Be " proactive " for the system is reactive. Doctors wait for the child to be 'good and behind' before they are willing to diagnose. Don't want to scare you but if you are seeing it.... then please, please, please save your child from the aweful experiences of my son and address it as soon as possible....and save your son from full blown dyspraxia. You CAN do this! You really, really can. Janice Mother of Mark, 13 [sPAM][ ] Re: Apraxia question - can you please explain- " progressive " my son has had speech delays but as he is getting older he also seems more behind in GM and FM than before, or actuality maybe just not developing at the same rate of speed as before. The disparity is more noticeable. Does that make sense? What do I need to look for and what can I do? Thanks- Ren and FYI my son has " other issues " mainly sensory integration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Hello , I retrieved your info from the Apraxia website. My 3 year old child was recently diagnosed by his speech therapist. I'm looking for any information on available treatment as well as any support groups for the family. Best Regards, _____ From: jeannne buesser [mailto:jbmistletoe@...] Sent: Wednesday, February 23, 2011 10:23 AM ApraxiaNetworkOfBergenCountyegroups; egroups Subject: apraxia question Currently, I am working with the Teaneck school district to get him in a program for the upcoming school year. Do you happen to know if there are any programs that are all year/ summer for his age group? He is 3. Best Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 , In what city & state are you located? Warmest wishes, Barbara A , M.S.,CCC-SLP CEO, Help Me Speak, LLC www.helpmespeak.com 2500 Wallington Way Suite 103 Marriottsville, MD 21104 410-442-9791 Ask me about NutriiVeda! On Feb 23, 2011, at 10:24 AM, jeannne buesser <jbmistletoe@...> wrote: > Hello , > I retrieved your info from the Apraxia website. > My 3 year old child was recently diagnosed by his speech therapist. > I'm looking for any information on available treatment as well as any > support groups for the family. > Best Regards, > > > _____ > > From: jeannne buesser [mailto:jbmistletoe@...] > Sent: Wednesday, February 23, 2011 10:23 AM > ApraxiaNetworkOfBergenCountyegroups; > egroups > Subject: apraxia question > > Currently, I am working with the Teaneck school district to get him in a > program for the upcoming school year. Do you happen to know if there are any > programs that are all year/ summer for his age group? He is 3. > > Best Regards, > > > > Quote Link to comment Share on other sites More sharing options...
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