? about the role of a neurologist

[Guest guest]

I am still fairly new to this board and thank everyone who responded to my

earlier post.

I was at a doctor's appointment today for myself and was talking with my doctor

a bit about

my concerns about my daughter's speech. He suggested that I take her to see a

friend of his

who is evidently the head of the children's neurology clinic at our local

Children's hospital.

This was the first time that someone suggested a neurologist and I have read

other folks on

this board who have taken their little ones to see a neurologist. What is the

role of a

neurologist in treating apraxia?

A little bit about my daughter's situation. She recently turned 3 and has a

repaired cleft lip

and palate. Her speech is very limited and she mainly uses sign language to

communicate.

She has very poor control of her tongue when attempting to make speech sounds.

She can

say a few words and sounds. She can say some vowel sounds, M, G, almost an N,

and K. She

currently has speech twice a week with two different therapists that coordinate

their

treatments. (One via the local school district and one private).

Thanks,

Jen

[Guest guest]

Has the ENT not been helpful? A neuro is OK. Better yet a

neurodevelopmental pediatrician. Cleft palates are often accompanied by

other stuff, including speech issues so hinest;ly, getting help, in a

way, should be easier. Have you seen a geneticist?

[Guest guest]

Yes, the cleft team did a genetic eval the first time they saw her and thought

everything was

okay in that regard. We only see the cleft team once a year and her ENT has been

mostly

concerned about her ears (tubes, checking hearing etc.). Her hearing seems to be

fine from

everything that has been tested so far.

thanks.

Jen

>

> Has the ENT not been helpful? A neuro is OK. Better yet a

> neurodevelopmental pediatrician. Cleft palates are often accompanied by

> other stuff, including speech issues so hinest;ly, getting help, in a

> way, should be easier. Have you seen a geneticist?

>

[Guest guest]

My son does not have a cleft palate but does haexcessive tissue from

gum connecting to lip and a bebign heart thing. Both are related to a

deletion on the 22nd chromosome that is typically seen with cleft

palate and sometimes seen with apraxia. Both were found by accident

and now we have to go to the geneticist who cleared him for recheck

on this which is why I mentioned it. Fluid in our kids seems to be a

peekaboo thing. Best found with close and often tympanograms. Tubes

did my boy a lot of good. The wrong anesthesia did not.

> >

> > Has the ENT not been helpful? A neuro is OK. Better yet a

> > neurodevelopmental pediatrician. Cleft palates are often

accompanied by

> > other stuff, including speech issues so hinest;ly, getting help,

in a

> > way, should be easier. Have you seen a geneticist?

> >

>