Re: Apraxia/dyspraxia-- JANICE OR LIZ???

[Guest guest]

The MRI decision is one only you can make. In my family we have a

fluoride issue and if I recall correctly a lot of anesthesia is 95%

fluoride. When my son came out of tube surgery last year he had

trouble waking up, the nurses were concerned and came and got me (why

they did not get the doctor escapes me). He did wake up and was a

little out of it but he just had surgery. A day and a half later he

awoke screaming. His entire room smelled like bad old spice. I

brought him downstairs and until I got his fleece pajamas off (he was

sweating profusely) he was running around like a lunatic literally

running his head into the wall. We have never had that before or

since. That, according to the nurse, is a delayed reaction, not

common but does happen. That was not the worst of it. The vocabulary

he gained in one day after the surgery left. It took us 9 to 10

months to get him talking consistently. He is here in all his glory

now. I do not believe that theft of speech was entirely the

anesthesia but it on top of other allergens and environmental and

genetic conditions which, when addressed, have allowed my boy to

speak.

I cannot say this will happen to your child. What I can say is this:

I would want to know what the MRI is looking for. I would then

research the condition they were looking for, see if current symptoms

match and ask a lot of questions. If the MRI is needed there is more

than one anesthesia option and I would review what the options were

with the anesthesiologist to see what a good fit is (this is the

purpose of you meeting with them in the first place and if your kid

has neuro issues they need to know which ones so they can help). As I

understand it, nitrous oxide is particularly bad for our kids. A

pharmacist told me that but I have no links.

There is another member on this board whose daughter needed surgerry

recently (Tara?) who researched it more thoroughly and found a

solution.

Obviously if the MRI is needed you just want the least harmful

anesthesia.

Best Wishes!

Liz

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[Guest guest]

Tara didn't need surgery but she did have an MRI in April. I think the

option Liz might be thinking of is Chloral Hydrate.She has a history

of Hydrocephalus- so her MRI's were to check the status of that, never

for speech issues. Its a very nasty liquid they used to give her for

quick MRI's or CT scans and the amount given is based on weight. As

she got older and needed more-it got tougher to get her to sleep with

it -she may have also developed a resistance to it. It just puts them

to sleep for the test. I have not noticed a drop/increase in her

speech after a test like this- but have not really thought to look for

it. This most recent MRI was 3hrs long- so Chloral Hydrate was not an

option. One doctor told me they do not use Chloral Hydrate in

hospitals anymore. I have no idea how widespread that fact is or just

here in NY. Chloral Hydrate had been used for her EEG's done outside

the hospital too. You can ask if its an option- but if the test is

necessary= you will get through it. good luck.

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[Guest guest]

I had forgotten about this but was referrin to a mom, Tara

Romanovskt??? and I forget her daughter's name.