Re-Introduction

[Guest guest]

MARDI,

we welcome you with open arms..... i am leah, mom to the angel with cracked

wings(as my mother would say) Ashton, who is 8 and a half with ds,pdd, omd,

and a list of medical issues to long to detail. and to Cameron, my four year

old son going on 18.... i have found a shelter of people in here..on days i

want to crawl in my van and escape away from reality when dealing with ashton

and her " issues " , i take refuge in this set of people who are loving, kind,

depressed, knowledgable, friendly, caring, angry, happy, ectastic..........

confused and scared...... we all share the same feelings either at the same

time or different times, it doesnt matter because we are a " list " family so

to speak....so we welcome you and your daughter to our tears, hugs, laughter,

and stories..... as for the bike incident....that sounds like she has

character and she knows what shes wants in life........ which is good.....i

on the other hand at the old age of 27 dont even know what i want to be when

i grow up.....maybe i could have some of rose's direction....... take care

and always........god bless all, leah

[Guest guest]

Welcome back

The suaree was a huge success..............

Di, mom to Jake(17,nda) and 3 (DS)

Pennsylvania

Re-Introduction

Hi there,

My name is Jayne Hickey and I am Mom to , 15 mos. I just signed back

on the list, I've been off since May. I'm glad to be back and look forward

to reading everyones posts.

is doing great. Crawling everywhere (army/belly crawling) and

getting into everything. He will stand up against the couch, coffee table,

etc. if we set him up there. Just can't pull up yet, although he is trying.

Just said his first words a couple of weeks ago. " hi " and " uh-oh " . I think

my heart will burst, it's so full of love for that boy!

I started and continue to head up a family " support " group here in Rapid

Ciy, SD. I use the term " support " lightly. I don't know what else to call

it. We took the summer off and will reconnect August 26th for a picnic I am

putting together. Hopefully,as far as the group goes, people will rise to

the occasion and help out. Last year, I did it all and I can't face another

year of doing everything to keep this group going. My goal is to delegate!

I welcome suggestions anytime.

Missed the list, hope everyone had a great summer. Do I dare ask how the

suaree' went? That was the heated debate when I left the list. Is it taboo??

Jayne

Mom to 8 1/2, Emma 3 1/2, and 15mos (DS)

------------------------------------------------------------------------------

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[Guest guest]

Wow! Great job. If you ever come my way please feel free to drop in on one

of our IEP meetings anytime! Although I must admit this last IEP meeting

was pretty good. It's a new school and new people, let's wait and see what

happens as the newness wears off. I'm hoping that maybe this time we might

actually have someone who really wants to help Trisha learn instead of trying

to find ways of justifying why they can't do things to help.

It's so good to hear good news like yours.

Carol

[Guest guest]

Hi ,

GO,GO! Hurray!!!! I can understand the physical stuff.CONGRATULATIONS,well

done.

Charlyne,Pete,Cait LD 20,Zeb DS-? 8

[Guest guest]

In a message dated 4/9/01 8:17:26 PM Eastern Daylight Time,

doug.smith@... writes:

<< Mark one up for all of us. And I know I paved the way for the other

children to come. because of things they are now forces to implement!!!

YEA!!

>>

Way to go !!!!! A battle won for us all. :-)

Gail

Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-25,

Grandma to Errick-5

and wife to -my hero

[Guest guest]

Way to go lisa!!! thats outsatnding!! I love it when we show them they dont

know much when it comes to our kids, really, huge congrats and virtaual

vacation or a drink coming your way!shawna.

>From: Doug <doug.smith@...>

>Reply-

>

>Subject: re-introduction

>Date: Mon, 09 Apr 2001 20:15:38 -0400

>

>I feel like a re-introduction is in order, I have been 'lurking' for

>months, while stressed out and fighting with my school district 'whats

>new huh?' my son was just dx with autismin Feb. he is 5 years old

>and has DS. I have 4 other boys alek 8, andrew 6, logan 3. and liam 1. I

>got physically sick over this whole delimma we all have or will go thru

>with the school system it is to bad that a IEP made my hair fall out and

>I couldn't sleep and I lost weight. I looked as bad as I felt. It

>totally wore me down. And when I gave birth to and he

>transitioned in to the public school system I thought the PPT had the

>word TEAM in it. insted I feel like I am reprsenting my innocent son to

>a Jury of nonbelivers. most of them anyway. I know the teachers were all

>told to keep quiet at the meeting and not mention anything about

>programming. or changes. nice huh? Well,they never sowme comming and I

>blew them away with knowledge and information and reports form

>specialists!!!

>my internet a and phone bills were over 300.00. well worth every penny

>when I left them speechless!!! The room was so full of people. 's

>teacher after the meeting was visibly emotional. she cried and told me

>in the 20 years she has been teaching all 20 years of ppt's that was the

>most emotional, intence, and longest 3 hours. and no one left early!!!

>ppt she has ever been involved in. A proud moment for who for

>the last 45minutes attended the meeting so we all understood that the

>'big picture' wasn't money but was there in the flesh. in all his

>active glory.

>

>Mark one up for all of us. And I know I paved the way for the other

>children to come. because of things they are now forces to implement!!!

>YEA!!

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Wow ,

That is really great. I admire your ability to care for all of your

children and have the extra but necessary strength to fight the school

battles. I too have won several battles and it has always been worth it. By

the way it sounds like you have had a case of depression by your symptoms,

losing weight, not sleeping, hair loss from stress etc, I have been there

many times with my son Brook and have always found that antidepressants and

anit anxiety medication helped me a great deal so that I could take care of

my family and have the energy to give Brook the best treatments and options

with schools, etc.

Marisa

Mom to Miles 14, Brook 11 DS/ASD, Genevieve 3yrs

[Guest guest]

Anne,

What a fun summer time activity for Chris. I would love to go to camp

for 6 weeks!

It was great to read your update.

I remember you writing about and attending his first conf.

What a brave guy.

I hope school goes better for him this fall. After re-charging at

camp I imagine he will be ready for just about anything.

Size 13 is a big foot. Our good friend who is 12 has a foot that big

also.

Vivian in WA ST

[Guest guest]

Hi Rick

Re-Welcome to the group. Your syptoms sound so much like mine. I

don't have it as bad as others here in this group so I think I've

only posted twice because of that. I feel like mine is mild yet, I

do suffer from much pain all over. I too, was misdiagnosed but with

Fibromyalgia and had been taking the wrong med's for many years. Now

I've found a rheumy but although he knows his stuff, I do not feel he

is understanding to the amount of pain I tell him I have. I know I

need to change dr's but I've really got such a hectic and busy

schedule that I cannot afford to take much more time off of work. I

work full time, go to school in the evenings and then do lots of

homework.

I had a small Cavalier car that was only a year almost 2 years old

and every time I'd get in or out, I felt it took an act of congress

to do that. I finally said fouey and went and got myself a Nissan

Altima. Much easier to get in and out. I, like you, if I am going I

can stand the aches and pains but if I sit or rest, then I cannot

seem to get up and going again. I hate the evenings when I'm at home

cause I usually will like to get in a tv show or two but to get up to

get anything or go to bed, Ouch! The dr has me now on two types of

NSAID's and an anti-fungal med. I am fortunate that I don't have a

bad case of psoriasis. Very mild compared to what I've seen and

read. I guess you can say I'm very lucky. But I have the arthritis

that is the other part. I guess you can say the arthritis to me is

worse. I have a few patches of psoriasis. It's so true about people

NOT understanding it. You look fine, you don't have any outword

signs but man, if only they could take over your body for a while.

Anyway, glad to have you back. Looking forward to your posting.

Hugs

Quyrah

> I am not new to the group, but I have been offline for some time.

My

> name is Rick (from New Jersey). I am 45 and have

> suffered with Psoriasis since 1983 (maybe before then, that just

> when I first recall the scales being uncontrollable). I've always

> been very active and physical (hiking, biking, basketball, etc...)

> and I believed that the soreness I lived with was just because I

> was so active. My feet and my back were constantly in pain. I was

> diagnosed with PA in 2000 (after bouncing from Dr. to Dr. with

> diagnosis from heel spurs to osteoarthritis, which i do have

> also.....). I'm sure that I have suffered with disease for some

> years before the diagnosis was made. Since then however, I have

> been on a myriad of NSAID's (changed often because I now also have

> high BP- which I'm convinced is related to my body's inflamation),

> Methotrexate for a yr, now on Enbrel for the last year or so.

>

> I believe that the Enbrel has stopped the progression of the

> disease, but I still suffer with severe bouts of fatigue. I have

>

> very painful hip, soreness in the feet, back, shoulder and neck,

> but I still work full time and I am busy with 5 children... I

> find that once I'm moving, I can keep going; once I stop, it takes

an

> act of congress to get me up. Getting out of a car is an

adventure...

>

> I also take Bextra now. If I don't take it, I find that I feel

> terrible. I think that the 'inflamitory process' really effects

> how I feel in general. The Enbrel has kept the degenerative issues

> from gettin worse, but the Bextra seems to keep the 'edge off' the

> general pain.

>

> Sorry for being long winded- espicially for my first posting, but

> the general population really doesn't understand what we go

> through every day. My symptoms are not as bad as some, but some

days, I

> dont even want to get out of bed.....

>

> Thanks for listening

>

> Wishing all of you less pain and much happiness,

> Rick

[Guest guest]

Hi Rick, Thanks for posting. I could relate to a lot of what you

said. I don't have the psoriasis so bad but the other things you

entioned sure ring a bell. I especially appreciate the site when I

am in pain.

Gail in Florida

[Guest guest]

Hi Gail;

Yes, the pain produces an isolation that others cannot identify

with. Chronic-long term pain is so difficult to manage sometimes.

Take care

Rick

-

[Guest guest]

> Hi Everyone,

>

> I am a major lurker here. Been following BFL for 18 mths with great

results. I have a little more time on my hands these days and so am

looking forward to lurking less!

>

Welcome!!!

Colleen

[Guest guest]

Thanks!

Laurie

>

> Welcome!!!

>

> Colleen

[Guest guest]

Hi Myream,

It's good to see you. Great job on getting to the gym. I know

exactly how you feel.

Jen

> Hi everybody,

>

> I've been a member of this group for almost 2 years now. I haven't

> been around for about a year though due to a very complicated

> pregnancy. I've always been a big fan of BFL but I've never

finished

> a challange. I have decided that its time. I gained a lot of

weight

> during my pregnancy and I'm up to 193lb. (I'm only 5 " 1')so I have a

> long way to go.

>

> I just started BFL again this week. Today, I went to the gym for

the

> first time, in a long time, and it was great. I did my upper body

> workout and I'm really feeling it. I'm a little nervous about

cardio

> tomorrow. I did 5 min. on the precore machine today and I was

dying.

> I was on bed rest for so long. Anyway good luck to everyone.

>

> By the way is anyone entering the official BFL challenge? I plan

on

> entering the August challenge. Just curious.

>

> Myream

[Guest guest]

Nice to see you! I think many of us are entered or entering the official

Challenge... and you're in good company. I've never really completed a

Challenge either. I'm " finishing " one this weekend, and starting another,

but I really only gave this one a little less than half effort. However, I

still have results, so I won't complain. I've gained strength, and some

muscle definition... and of course, if I had stuck religiously to the Plan,

I would have seen BETTER results.

BTW... what is the precore machine?

~Lydia

Re-introduction

Hi everybody,

I've been a member of this group for almost 2 years now. I haven't

been around for about a year though due to a very complicated

pregnancy. I've always been a big fan of BFL but I've never finished

a challange. I have decided that its time. I gained a lot of weight

during my pregnancy and I'm up to 193lb. (I'm only 5 " 1')so I have a

long way to go.

I just started BFL again this week. Today, I went to the gym for the

first time, in a long time, and it was great. I did my upper body

workout and I'm really feeling it. I'm a little nervous about cardio

tomorrow. I did 5 min. on the precore machine today and I was dying.

I was on bed rest for so long. Anyway good luck to everyone.

By the way is anyone entering the official BFL challenge? I plan on

entering the August challenge. Just curious.

Myream

[Guest guest]

Hay,

I just realized that I spelled it wrong in my post. It's precor. I

really can't even begin to describe it so I pasted a link that you

can check out.

http://www.precor-efx.com/cpr_efx_556.php

> Nice to see you! I think many of us are entered or entering the

official

> Challenge... and you're in good company. I've never really

completed a

> Challenge either. I'm " finishing " one this weekend, and starting

another,

> but I really only gave this one a little less than half effort.

However, I

> still have results, so I won't complain. I've gained strength, and

some

> muscle definition... and of course, if I had stuck religiously to

the Plan,

> I would have seen BETTER results.

>

> BTW... what is the precore machine?

> ~Lydia

>

> Re-introduction

>

> Hi everybody,

>

> I've been a member of this group for almost 2 years now. I haven't

> been around for about a year though due to a very complicated

> pregnancy. I've always been a big fan of BFL but I've never

finished

> a challange. I have decided that its time. I gained a lot of

weight

> during my pregnancy and I'm up to 193lb. (I'm only 5 " 1')so I have a

> long way to go.

>

> I just started BFL again this week. Today, I went to the gym for

the

> first time, in a long time, and it was great. I did my upper body

> workout and I'm really feeling it. I'm a little nervous about

cardio

> tomorrow. I did 5 min. on the precore machine today and I was

dying.

> I was on bed rest for so long. Anyway good luck to everyone.

>

> By the way is anyone entering the official BFL challenge? I plan

on

> entering the August challenge. Just curious.

>

> Myream

>

>

>

>

[Guest guest]

Oh! Okay! So, basically an elliptical trainer. I haven't tried anything

beyond the treadmill yet... but I vary the speed and incline a great deal,

and figure I'll stick with it 'til it starts to bore me.

Re-introduction

>

> Hi everybody,

>

> I've been a member of this group for almost 2 years now. I haven't

> been around for about a year though due to a very complicated

> pregnancy. I've always been a big fan of BFL but I've never

finished

> a challange. I have decided that its time. I gained a lot of

weight

> during my pregnancy and I'm up to 193lb. (I'm only 5 " 1')so I have a

> long way to go.

>

> I just started BFL again this week. Today, I went to the gym for

the

> first time, in a long time, and it was great. I did my upper body

> workout and I'm really feeling it. I'm a little nervous about

cardio

> tomorrow. I did 5 min. on the precore machine today and I was

dying.

> I was on bed rest for so long. Anyway good luck to everyone.

>

> By the way is anyone entering the official BFL challenge? I plan

on

> entering the August challenge. Just curious.

>

> Myream

>

>

>

>

[Guest guest]

* Hello:

My name is Cat and I am returning after some time off. I see a lot of

new faces here as well as some familiar ones and I am delighted to be

back!

Cat

*

Welcome back Cat! Hope time off was a good thing.

Terry

[Guest guest]

> Hello:

> My name is Cat and I am returning after some time off.

Welcome Cat, so nice to see you here. I have missed your words of wisdom on

blending.

Jane

Adobe Soapworks

[Guest guest]

At 08:34 PM 5/30/2005, you wrote:

>Hello:

>My name is Cat and I am returning after some time off. I see a lot of

>new faces here as well as some familiar ones and I am delighted to be

>back!

>Cat

The famous Cat! Some of you may remember some posts I made within the past

few months, answering time-honored questions here about how to either

soften the sharpness of alcohol, remove fusel oils from alcohol, or use

glycerin in perfume as a fixative. I went back in the archives and pulled

out some stuff, and IIRC, it was all from Cat. She was on extended holiday,

and NP will be the richer for it now that she has returned. If anybody is

interested in historic perfumes, she's also your source for info.

Welcome back, Cat you're a real treasure-trove of info for NP and we missed

you!

Anya

http://anyamccoy.com

" Always do right. This will gratify some people and astonish the rest. "

Mark Twain

[Guest guest]

My name is I have been on this board for several years. I haven't posted in the last year,. as I was the caretaker for my late hubby who had lung and liver cancer. I am starting to face the fact that I need a new knee. I had a meneuiscus in 2 places in 2002. I had it repaired, it took 9 months to really heal. But it was only buying me some time. He said my knee was a 3 and a 5 would get me a knee replacement In 2000 I had a spinal tumor removed from L4-5 of my back and was just recovering when the knee tore out. I am overweight, however I have always been active and very strong. I never walked fast but I could outlast lots of people. the same surgeon did both the operations. he did good work, but he made me come right away home as he was afraid I would get staff. since several in my family had gotten it. well it was a very hard time, as my hubby was handicapped , he was a lot of

help and company, but this time I will have no one. I best hope would be to hire a private nurse , or go to a place where I could stay a week at least. I should say I am 62. also which type of replacemnet works best. I only want to do this once Does any one know any great places to go and have the surgery and follow up. I live in florida. I am dreading this much more that the one before. I think mainly because of being alone and the time before I tore my knee so it had to be taken care of, this time I am just turning myself in. the pain and lack of bending in my knee is really limiting my life and lately it feels like I am walking on a golf ball and I am sure this is referal pain from knee. I need some wisdom fom those who have been thru this. I have my hubbys wheel chair but that isn't how I want to end up so I want to avoid it if possible. thanks

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[Guest guest]

Dear Bree,

Wow sounds like you have had a tough time of it. Do you have a Home Health Care Agency that can send someone to your home to help out. I did that before I had my knees replaced and plan on going back to it when I get a little stronger. The agency I work for has people who go to your house anywhere from 1 to 24 hours. We have all levels of care from skilled nursing to CNA's to companions. You might want to check out the Visiting Nurse Association in your city to see what they can offer. That is who I went with for my home care with nursing (incision care and coumadine monitoring) and also a home Physical Therapist. I was very impressed with the VNA and the great people who came to my home. They even put up with my cats. LOL

Good Luck and speedy recovery to you!!!!!

Contessa

-- Re: re-introduction

My name is I have been on this board for several years. I haven't posted in the last year,. as I was the caretaker for my late hubby who had lung and liver cancer.

I am starting to face the fact that I need a new knee. I had a meneuiscus in 2 places in 2002. I had it repaired, it took 9 months to really heal. But it was only buying me some time. He said my knee was a 3 and a 5 would get me a knee replacement

In 2000 I had a spinal tumor removed from L4-5 of my back and was just recovering when the knee tore out.

I am overweight, however I have always been active and very strong. I never walked fast but I could outlast lots of people.

the same surgeon did both the operations. he did good work, but he made me come right away home as he was afraid I would get staff. since several in my family had gotten it.

well it was a very hard time, as my hubby was handicapped , he was a lot of help and company, but this time I will have no one. I best hope would be to hire a private nurse , or go to a place where I could stay a week at least.

I should say I am 62. also which type of replacemnet works best. I only want to do this once

Does any one know any great places to go and have the surgery and follow up. I live in florida. I am dreading this much more that the one before. I think mainly because of being alone and the time before I tore my knee so it had to be taken care of, this time I am just turning myself in.

the pain and lack of bending in my knee is really limiting my life and lately it feels like I am walking on a golf ball and I am sure this is referal pain from knee.

I need some wisdom fom those who have been thru this. I have my hubbys wheel chair but that isn't how I want to end up so I want to avoid it if possible. thanks

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Hello ! I am from Florida but now living in the Netherlands. When reading your re-introduction I saw that you feel like you have a "golf ball on the bottom of your foot". Has anyone ever told you what that could be from? I experience the same feeling, depending on the day ....whether it is just something feels like it is there to the point of it being the size of a golf ball and because of that I tend to put my weight on another part of the foot which affects my balance. This has only happened to me since I have had my TKR. As far as finding someone in your area, have you called your hospital to find out the background of orthopedic surgeons in your area? Or, a doctor that you trust for other issues ask him/her? Good luck. Val

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Hi Val,

How are you doing ? Is that sore you had on you leg better? I went to see the dr yesterday and he told me I had a infection in the leg that had the sore on the sore is gone I just have this dry skin and it looks like one big indian burn thats what the dr said .For the infection I'm taking cefadroxil 500 mg generic for Duricef 500mfg I don't think I ever took these before.

I see the dr next Friday I hope that it clears up I'm using Sulfadiazin cream once a day and cover it with gauze for Pain I'm taking Propoxyphene 100w/APAP 650 tabs Generic for Darvcocet-n-100 the first two bottles said take every six hours this last bottle of pain pills are the same and it says take every eight hours I wonder if they made a mistake .Well you take care and have a nice day.

Susie

-------------- Original message ------------- far has said that he plans on spreading some of his ashes in the islands. Didn't say which

-------------- Original message -------------- From: Val Schinning <vschinning@...>

Hello !

I am from Florida but now living in the Netherlands. When reading your re-introduction I saw that you feel like you have a "golf ball on the bottom of your foot". Has anyone ever told you what that could be from? I experience the same feeling, depending on the day ....whether it is just something feels like it is there to the point of it being the size of a golf ball and because of that I tend to put my weight on another part of the foot which affects my balance. This has only happened to me since I have had my TKR.

As far as finding someone in your area, have you called your hospital to find out the background of orthopedic surgeons in your area? Or, a doctor that you trust for other issues ask him/her?

Good luck.

Val

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

re-introduction My name is I have been on this board for several years. I haven'tposted in the last year,. as I was the caretaker for my late hubby who hadlung and liver cancer. I am starting to face the fact that I need a new knee. I had a meneuiscus in2 places in 2002. I had it repaired, it took 9 months to really heal. But itwas only buying me some time. He said my knee was a 3 and a 5 would get me aknee replacement In 2000 I had a spinal tumor removed from L4-5 of my back and was justrecovering when the knee tore out.I am overweight, however I have always been active and very strong. I neverwalked fast but I could outlast lots of people.the same surgeon did both the operations. he did good work, but he made mecome right away home as he was afraid I would get staff. since several in myfamily had gotten it. well it was a very hard time, as my hubby was handicapped , he

was a lot of help and company, but this time I will have no one. I best hope would beto hire a private nurse , or go to a place where I could stay a week atleast. I should say I am 62. also which type of replacemnet works best. I onlywant to do this onceDoes any one know any great places to go and have the surgery and follow up.I live in florida. I am dreading this much more that the one before. I thinkmainly because of being alone and the time before I tore my knee so it hadto be taken care of, this time I am just turning myself in. the pain and lack of bending in my knee is really limiting my life andlately it feels like I am walking on a golf ball and I am sure this isreferal pain from knee.I need some wisdom fom those who have been thru this. I have my hubbys wheelchair but that isn't how I want to end up so I want to avoid it if possible.thanks ######### as usual I forgot a couple of things, while I was pushing hubby wheelchair I developed bulging disc. I had a Mri and didn't even bother to go to the doctor to have him tell me about it. My hubby was so helpless by that time. he passed on december 14. So I am also having a lot of pain in my right upper thigh, most especailly at night when I lay down, so I have had to end up sleeping on my back which is killing my knee as it doesn;t like the total stretch. I was wondering if the gold ball feeling under my left foot was also a result of back or maybe knee. also after I walk about 10 minutes my feet start to burn and after another minute or so they go completley numb. I have to stop and rest and then I can go again. when I had the spinal tumor, my greatest symptoms was feeling like my leg were made of concrete. I had to actually lift it with my hands to get it in the car. I haven't called any doc yet , I am so fearful. I

don't have family support. I had the care for my hubby all by myself, adn he was already paralized on dominate side. i was able to keep him at home until the last month. His mind was going and he forgot how to talk and walk then how to eat.. anyway thanks for listing, I will let you know how it turns out.

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