Re: Fw: update..haven't posted in a while PLUS a question

[Guest guest]

Hi

Yes that IS the main message that I was looking for!! Thank you! Now I don't

have to retype it!!! I swear, I looked and looked for it the other day and

couldn't find it at all..very strange..maybe I just kept skimming over it for

some reason..lol my mind is too fried from all the research I do that maybe now

it can't even handle more mundane tasks! HA

Hey thanks again and nice to " meet " you too. I'm glad you enjoyed reading

the update. Hopefully it was encouraging!

Also..here's an update the update (Liz) is now taking 2 of the

ProEFA caps. The first Omega's that I was giving her were by a company called

NEXGEN and were liquid ones geared specifically for children. It was while on

this that Liz's attention span really got much better. Her speech also improved

on this but not as much as when I put her on the ProEFA. The product from NEXGEN

had 370mg of EPA, 414mg of DHA, 20mg of omega 3, and 1.16 IU of E. Then when

the ProEFA arrived I switched her to that and gave her 1 cap a day. The

comparable amounts in 1 cap are 135mg of EPA, 90mg of DHA, 57.50 of other omega

3's and 15 IU of E. ProEFA also has Omega 6 and 9 which the other brand did not

have in it. After beginning the ProEFA, her speech had a major surge as did her

fine and large motor skills. BUT her attention span (which had previously

gotten so much better) began deteriorating quickly. SO I began thinking that

since the attention span had been doing so good while she was taking the other

product, and the other product had such a higher dose of EPA and DHA in it than

the ProEFA, I decided to up the ProEFA to 2 caps a day. The other thing I

noticed was that in the NEXGEN product, the DHA is actually higher than the EPA

so that might be the difference in the way it affects Liz also? I am not sure

what is going on yet..her attention span is still not back to where it was on

the NEXGEN (not even close) but it is better than it was when she was taking

just 1 cap. She has been taking the 2 caps for just over 1 week at this point.

One thing I have noticed is that now she wants to be so much more independent

and try things for herself and I am wondering if the " attention issue " is really

an issue at all OR is it just that the ProEFA is helping her to act more like a

typical 3.5 yr old.

Would anyone like to share their thoughts on this? Has anyone had a similiar

exp? I would like to know what y'all think.

THANKS

>

> I'm new and (still!) I need to introduce myself but I think I've read the

email posted. I was so happy to read her update, even if it was the first

time I 'met' her!

> I think the message somehow got missed amongst other that day. Here it is (if

it is the one you're talking about):

>

> [ ] update..haven't posted in a while

>

>

> Hi everyone. Since I haven't posted in a bit and had the ever elusive bit of

free time I figured I would let everyone know how we are doing. First off,

thanks to so many people who generously gave of their time and knowledge to help

my dughter and I, we are now on what I believe to be the " right track " YIPEEE

> I spoke with Terri McDearman from Wolfson's(ville, FL) who then

referred us to a SLP exp in apraxia named Judy Hammerneisly (SP?) who also works

at Wolson'e but at a location that is closer to me. She is wonderful and through

seeing her I was

> able to at last get a diagnosis (somewhat) for my daughter. She was diagnosed

as probable CAS with it being explained to me that she didn't say enough words

to provide a definitive diagnosis at this point. Soo..we went to Woflson's for a

while and began reaping the benefits of some oral motor therapy. Also at this

time my daughter was having other speech therapy and OT and PT which amounted to

> 13 therapies a week!! Some of them over an hour away..it was TOO MUCH. Too

much for me and too much for so I then began to work on a way to

resolve it. I liked all the SLP and didn't really want to cut anyone out so I

decided to consolidate the 2 half hour sessions we were getting in a week from

several of our therapists and made them into 1 hour sessions instead..(less

> traveling but same amount of time in therapy!) My daughter is tolerating it

very well..actually she does better with the longer sessions I think.

> RIght around the time we began to go to Wolfson's, I also began communication

with the e School for the Deaf in ville. (my daughter is not deaf

but I had heard that it could be beneficial for her to go to a deaf school that

focuses on teaching children to speak) Long story short..we have been going to

therapies at e and my daughter has begun school there (only a half hour a

> week at this point but it is expected to be increased) I LOVE THIS SCHOOL!!!!

> I can not say enough great things about e and the people working there.

They really know what they are doing and are so caring and involved. My daughter

has blossomed since going there. I actually ended up not taking her to Wolfson's

anymore since e's provided basically the same thing, as Wolfson's was

predominantly oral motor exercises, and both places are over an hour away from

me. In addition School I began giving my daughter Omega 3-6-9 in January

and have seen her speech really take off. She using intonation much more now.

She has added several word approximations (ni ni for night night, up, wa wa for

water, my or should i say MY MY!! for mine lol, neh for no, thu thu for brother,

ganma for grandma (although she doesn't say this regularly), and in addition to

that she now says most of the consonant sounds on request and most of the short

vowel sounds. She can now say " oo " with the help of using a tube in her mouth to

help shape her mouth correctly. she says ah da for all done and ah wa for I want

and she says papa and she has begun saying the ending sounds when asked to

repeat words she doesn't say yet..ie: when asked to say dog she will say the G

sound.

> It is just freaking amazing!!!

> I am so so happy I can't even put it into words. She does still struggle and

grope to find the sounds but back around December all she was saying for

words/approximations was mama, baby and yes..she was saying some consonant

sounds, if I remember correctly, but wasn't able to repeat on request hardly

anything and never able to repeat any words at all. I honestly think the Omega

3-6-9's have had a huge part to play in her progress. The therapists agree.

> Not only has her speech improved her other soft signs have improved also. She

doesn't walk as awkward now due to the fact that her hypotonia in her trunk

muscles has improved. She is now able to imitate drawing lines and sometimes

circles(this is her newest accomplishment-way to go Lizzie girl!!! I am so proud

> of you!!!!!!) Her chewing and swallowing have also improved.

> So all in all we are doing fantastic. I can never ever say thank you enough

for all the help we have gotten from so many over the internet. I feel like such

a huge weight has been lifted from my shoulders and that I can finally breather

and that we are on the right track now.

> For others that are in the ville, FL area, I just wanted to say that I

would recommend checking into the e

> school and trying the Omega's I am using ProEFA(I give her 1 cap daily)

ordered from Nordic Naturals online but before I got that I was using some from

a local health food store for about 2 months and that was working also. Her

attention span improved significantly after beginning the Omegas. Sorry for any

typos..don't really have time to go back and sp check..time for the kids to wake

up soon...just wanted to update and pass on info that could be

> helpful to anyone else.

> is also now on the waiting list for neurodev. ped Dr

Childers..approx 12 months i was told and are being referred to see Dr Siddiqui

who is (form what I am being told) the other local neurodevelopmental ped in the

area) Supposedly the waiting list is shorter for him..I will keep y'all posted

on whether that it true or not.

> now has SSI also which surely helps in getting

> her the things she needs and to pay for gas to get to the appts

> She also uses sign language to communicate and is on a list to be evaluated

for an assisted communication device through her IEP.

> In addition to her therapies I also work with her at least once a day. and try

to work in speech into all areas of out life when possible.

>

> Hope everyone else is doing great..you all are in my prayers daily

>

> mom to -3.5 suspected global apraxia

> Luke-5 suspected PDD-NOS and/or Bipolar

> Kurt and -23

>

>

>

>

>

>

[Guest guest]

, my daughter had some behavioral problems when I started her on the

omegas that leveled off after several weeks. Maybe that is what is happening

with your daughter. I would give it maybe a month and see if it doesn't

improve.

Anja

On Fri, Apr 17, 2009 at 9:17 PM, music_maker_68 <music_maker_68@...>wrote:

>

>

> Hi

> Yes that IS the main message that I was looking for!! Thank you! Now I

> don't have to retype it!!! I swear, I looked and looked for it the other day

> and couldn't find it at all..very strange..maybe I just kept skimming over

> it for some reason..lol my mind is too fried from all the research I do that

> maybe now it can't even handle more mundane tasks! HA

> Hey thanks again and nice to " meet " you too. I'm glad you enjoyed

> reading the update. Hopefully it was encouraging!

> Also..here's an update the update (Liz) is now taking 2 of the

> ProEFA caps. The first Omega's that I was giving her were by a company

> called NEXGEN and were liquid ones geared specifically for children. It was

> while on this that Liz's attention span really got much better. Her speech

> also improved on this but not as much as when I put her on the ProEFA. The

> product from NEXGEN had 370mg of EPA, 414mg of DHA, 20mg of omega 3, and

> 1.16 IU of E. Then when the ProEFA arrived I switched her to that and gave

> her 1 cap a day. The comparable amounts in 1 cap are 135mg of EPA, 90mg of

> DHA, 57.50 of other omega 3's and 15 IU of E. ProEFA also has Omega 6 and 9

> which the other brand did not have in it. After beginning the ProEFA, her

> speech had a major surge as did her fine and large motor skills. BUT her

> attention span (which had previously gotten so much better) began

> deteriorating quickly. SO I began thinking that since the attention span had

> been doing so good while she was taking the other product, and the other

> product had such a higher dose of EPA and DHA in it than the ProEFA, I

> decided to up the ProEFA to 2 caps a day. The other thing I noticed was that

> in the NEXGEN product, the DHA is actually higher than the EPA so that might

> be the difference in the way it affects Liz also? I am not sure what is

> going on yet..her attention span is still not back to where it was on the

> NEXGEN (not even close) but it is better than it was when she was taking

> just 1 cap. She has been taking the 2 caps for just over 1 week at this

> point. One thing I have noticed is that now she wants to be so much more

> independent and try things for herself and I am wondering if the " attention

> issue " is really an issue at all OR is it just that the ProEFA is helping

> her to act more like a typical 3.5 yr old.

> Would anyone like to share their thoughts on this? Has anyone had a

> similiar exp? I would like to know what y'all think.

> THANKS

>

>

>

> >

> > I'm new and (still!) I need to introduce myself but I think I've read the

> email posted. I was so happy to read her update, even if it was the

> first time I 'met' her!

> > I think the message somehow got missed amongst other that day. Here it is

> (if it is the one you're talking about):

> >

> > [ ] update..haven't posted in a while

> >

> >

> > Hi everyone. Since I haven't posted in a bit and had the ever elusive bit

> of free time I figured I would let everyone know how we are doing. First

> off, thanks to so many people who generously gave of their time and

> knowledge to help my dughter and I, we are now on what I believe to be the

> " right track " YIPEEE

> > I spoke with Terri McDearman from Wolfson's(ville, FL) who then

> referred us to a SLP exp in apraxia named Judy Hammerneisly (SP?) who also

> works at Wolson'e but at a location that is closer to me. She is wonderful

> and through seeing her I was

> > able to at last get a diagnosis (somewhat) for my daughter. She was

> diagnosed as probable CAS with it being explained to me that she didn't say

> enough words to provide a definitive diagnosis at this point. Soo..we went

> to Woflson's for a while and began reaping the benefits of some oral motor

> therapy. Also at this time my daughter was having other speech therapy and

> OT and PT which amounted to

> > 13 therapies a week!! Some of them over an hour away..it was TOO MUCH.

> Too much for me and too much for so I then began to work on a way

> to resolve it. I liked all the SLP and didn't really want to cut anyone out

> so I decided to consolidate the 2 half hour sessions we were getting in a

> week from several of our therapists and made them into 1 hour sessions

> instead..(less

> > traveling but same amount of time in therapy!) My daughter is tolerating

> it very well..actually she does better with the longer sessions I think.

> > RIght around the time we began to go to Wolfson's, I also began

> communication with the e School for the Deaf in ville. (my

> daughter is not deaf but I had heard that it could be beneficial for her to

> go to a deaf school that focuses on teaching children to speak) Long story

> short..we have been going to therapies at e and my daughter has begun

> school there (only a half hour a

> > week at this point but it is expected to be increased) I LOVE THIS

> SCHOOL!!!!

> > I can not say enough great things about e and the people working

> there. They really know what they are doing and are so caring and involved.

> My daughter has blossomed since going there. I actually ended up not taking

> her to Wolfson's anymore since e's provided basically the same thing,

> as Wolfson's was predominantly oral motor exercises, and both places are

> over an hour away from me. In addition School I began giving my

> daughter Omega 3-6-9 in January and have seen her speech really take off.

> She using intonation much more now. She has added several word

> approximations (ni ni for night night, up, wa wa for water, my or should i

> say MY MY!! for mine lol, neh for no, thu thu for brother, ganma for grandma

> (although she doesn't say this regularly), and in addition to that she now

> says most of the consonant sounds on request and most of the short vowel

> sounds. She can now say " oo " with the help of using a tube in her mouth to

> help shape her mouth correctly. she says ah da for all done and ah wa for I

> want and she says papa and she has begun saying the ending sounds when asked

> to repeat words she doesn't say yet..ie: when asked to say dog she will say

> the G sound.

> > It is just freaking amazing!!!

> > I am so so happy I can't even put it into words. She does still struggle

> and grope to find the sounds but back around December all she was saying for

> words/approximations was mama, baby and yes..she was saying some consonant

> sounds, if I remember correctly, but wasn't able to repeat on request hardly

> anything and never able to repeat any words at all. I honestly think the

> Omega 3-6-9's have had a huge part to play in her progress. The therapists

> agree.

> > Not only has her speech improved her other soft signs have improved also.

> She doesn't walk as awkward now due to the fact that her hypotonia in her

> trunk muscles has improved. She is now able to imitate drawing lines and

> sometimes circles(this is her newest accomplishment-way to go Lizzie girl!!!

> I am so proud

> > of you!!!!!!) Her chewing and swallowing have also improved.

> > So all in all we are doing fantastic. I can never ever say thank you

> enough for all the help we have gotten from so many over the internet. I

> feel like such a huge weight has been lifted from my shoulders and that I

> can finally breather and that we are on the right track now.

> > For others that are in the ville, FL area, I just wanted to say

> that I would recommend checking into the e

> > school and trying the Omega's I am using ProEFA(I give her 1 cap daily)

> ordered from Nordic Naturals online but before I got that I was using some

> from a local health food store for about 2 months and that was working also.

> Her attention span improved significantly after beginning the Omegas. Sorry

> for any typos..don't really have time to go back and sp check..time for the

> kids to wake up soon...just wanted to update and pass on info that could be

> > helpful to anyone else.

> > is also now on the waiting list for neurodev. ped Dr

> Childers..approx 12 months i was told and are being referred to see Dr

> Siddiqui who is (form what I am being told) the other local

> neurodevelopmental ped in the area) Supposedly the waiting list is shorter

> for him..I will keep y'all posted on whether that it true or not.

> > now has SSI also which surely helps in getting

> > her the things she needs and to pay for gas to get to the appts

> > She also uses sign language to communicate and is on a list to be

> evaluated for an assisted communication device through her IEP.

> > In addition to her therapies I also work with her at least once a day.

> and try to work in speech into all areas of out life when possible.

> >

> > Hope everyone else is doing great..you all are in my prayers daily

> >

> > mom to -3.5 suspected global apraxia

> > Luke-5 suspected PDD-NOS and/or Bipolar

> > Kurt and -23

> >

> >

> >

> >

> >

> >