Re: Re: Landau-Kleffner Syndrome anyone?

May 5, 2009

My son was not diagnosed, but LKS for him two years ago. I'm only

responding because when I asked here there then was very little

response. As my son's apraxia was treated and he started speaking

more we became more aware of his language difficulties. He seems to

function at a much higher level than what he really is functioning at

because he has developed fabulous compensating techniques. As his

speech became more clear his language errors started to sound more

aphasic. Epileptic aphasias including LKS were suspected.

For my son LKS was ruled out with an EEG. First he had a sleep

deprived one where he mostly fought sleep. Then a few weeks later he

had a drug induced sleeping EEG. I was told that even if he didn't

experience a seizure during an EEG the EEG would come out abnormal if

the child has LKS. Ruling out LKS doesn't rule out other absence

seizure disorders. Some choose to do 24 hour EEG studies to look for

other kinds of absence seizures, but in our son's case he didn't have

a lot of symptoms of seizures and even if he was having them here and

there the doc didn't feel medications would improve things enough to

be worth the side effects. When he was younger he would have staring

spells, but other than having " off " days now and then he has no other

signs of seizures.

Hope this helps a little. I think I have since seen at least one post

on this list from a parent whose child has LKS. Hopefully they will

see this.

Miche

On Tue, May 5, 2009 at 3:51 PM, hildy gogal <hildygogal@...> wrote:

>

> Anyone have a child dx with Landau-Kleffner Syndrome? If so, how did you

> get the dx?

> What prompted the doctor down that road? What tx are you providing? Are

> there any support groups & where is the latest reseach?

>

> Thank you in advance for any information you can provide.

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