Re: Re: Vitamin E Oil Update-LISA

[Guest guest]

Hi ,

 

I read your post below and wanted to ask if he is currently on any Vitamin E ?

If you don't mind me asking, what is your son on now with respect to ProEFA,

ProEPA and Vitamin E and how much does he weigh?

 

Thanks again for your advice,

Demi

From: Jill <jills2daughters@...>

Subject: [ ] Re: Vitamin E Oil Update

Received: Tuesday, May 5, 2009, 2:33 PM

Very good advice!!! In most cases that I've heard of it has been the

fish oil that produced the surges. With Vit. E or any other vitamin

that could be toxic at high levels, it is best to heed on the side of

caution. You can only know where the benefit has come from if you

have tried each separately. Best to start with the fish oils. I've

heard of too many negative outcomes with high levels of Vit. E. If

you wish to add in some E, I'd only do it in small doses and under

the guidance of your child's pediatrician.

Jill - Another Jill, not the OP.

>

> Jill the good news is good to hear as always. But as I said in my

last message to you - again you only had your child on the fish oils

alone for a week or so prior to adding the extreme dosage of vitamin

E. How do you know what's creating the surges?

>

> I'm thrilled that your child has not experienced any side effects

yet. Please be aware for your precious child's sake that in the

medical cases I posted for you the last time the myopathy that

develops from too much vitamin e happened in months in adults- and

increased death rate was from just 400 IUs in various individuals in

the meta analysis I posted. From what I posted from the experts you

are giving your child over 3 times upper tolerable level of vitamin e

which would only be appropriate if your child had some very rare

severe metabolic disorder or under the care of a medical specialist

in this area.

>

>

> Why not make sure your child even needs all this vitamin e? Why

not give it a try with just the fish oils alone for...I don't know a

month or two? Why not try stopping the vitamin E and not the fish

oils and let us know if you still see the surges that (again) if you

check the archives -even recent ones (today?) we all see on the fish

oils alone. You could have your child on the right formula of fish

oils and for example feeding him twinkies and seeing surges right

now -but of course you wouldn't credit the twinkie would you? To me

what's really sad is that I used that example as an extreme but a

twinkie a day 'may' be healthier than 1000 IUs of vitamin E a day for

a child. I'd check with a neurodevelopmental medical doctor with a

background in pediatrics and get their opinion. Why take any chance

with your child?

>

> And again -my son Tanner regressed 2 times prior to being on speak

on just vitamin E alone when I raised the alpha over the gamma -it's

all in the archives. Also..I wouldn't be so quick to assume that all

the severe side effects reported in this group were from vitamin k.

As Clint Eastwood so famously says you feeling lucky? To me

vitamin e in mega dosages is taking a chance. Again why take any

chance with your own precious child? Especially when for most -for

thousands -for over a decade now -the right formula of fish oils

alone work. And they worked for the person's child that even started

this (IMO) mess with vitamin e in our group -check the archives.

>

> =====

>