Re: need help with a neurologist

[Guest guest]

That is digusting. Doctors are mostly lame - in my opinion (the good ones are so

few- and not all of us can see those)

Ok- tell us what kind of help and services you want for your daughter- is she

getting any therapy at the moment?

Does she have coordination issues/dyspraxia?

Where did you see this neuro?

I will email you my tel#

Iveta

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] need help with a neurologist

Hi everyone,

I had reserved an appointment with my neurologist to get some help for my

daughter, really this doctor deals with patients very bad, he said no SEVERE

VERBAL APRAXIA IS a developmental, not a neurological disorder, so we cant

approve for her any speech therapy, and the most bad thing how can he says on

his paper, motor skills is normal, but he tries several times with my daughter

for ex to catch aball shecant, also to do same movements, all of this very hard

to beleive.

then he went out of his room for 15m , and come back, says everything ok,

APRAXIA IS DEVELOPMENTAL, we cant provide services for anythings, go to your

school to review.

and THEN HIS NURSE SAID YOU SHOULDNT FOLLOW UP WITH THE DOCTOR AGAIN, THIS IS

REALLY HORRIABLE, HOW CAN THEY DEAL WITH PATIENT LIKE THIS BEFORE MY DAUGHTER IS

A KID.

IAM UNDER MEDI-CAL PROGRAM, UNDER THE STATE TOO, SO WHAT I CAN DO TO HELP MY

DAUGHTER .

[Guest guest]

no, it sounds like that particular MD really sucks and he needed to go out of

the room for 15 min to check his class notes from university. Find another one

who is supportive of you- they do exist!

________________________________

From: " lucy2max@... " <lucy2max@...>

Sent: Friday, May 29, 2009 12:57:30 PM

Subject: Re: [ ] need help with a neurologist

That is digusting. Doctors are mostly lame - in my opinion (the good ones are so

few- and not all of us can see those)

Ok- tell us what kind of help and services you want for your daughter- is she

getting any therapy at the moment?

Does she have coordination issues/dyspraxia?

Where did you see this neuro?

I will email you my tel#

Iveta

Sent from my BlackBerry® smartphone with SprintSpeed

[ ] need help with a neurologist

Hi everyone,

I had reserved an appointment with my neurologist to get some help for my

daughter, really this doctor deals with patients very bad, he said no SEVERE

VERBAL APRAXIA IS a developmental, not a neurological disorder, so we cant

approve for her any speech therapy, and the most bad thing how can he says on

his paper, motor skills is normal, but he tries several times with my daughter

for ex to catch aball shecant, also to do same movements, all of this very hard

to beleive.

then he went out of his room for 15m , and come back, says everything ok,

APRAXIA IS DEVELOPMENTAL, we cant provide services for anythings, go to your

school to review.

and THEN HIS NURSE SAID YOU SHOULDNT FOLLOW UP WITH THE DOCTOR AGAIN, THIS IS

REALLY HORRIABLE, HOW CAN THEY DEAL WITH PATIENT LIKE THIS BEFORE MY DAUGHTER IS

A KID.

IAM UNDER MEDI-CAL PROGRAM, UNDER THE STATE TOO, SO WHAT I CAN DO TO HELP MY

DAUGHTER .

[Guest guest]

I would take a couple minutes and search his name online and see if you can make

a complaint or review of his services on a website. I look at these and I'm

sure others do too.

Don't get discouraged that you went to a bad one. When I moved to Washington, I

got out the yellow pages and called a whole bunch of pediatricians and asked

their office personnel if they were open to metabolic testing and treatment of

autism. I also told them my child would not be getting any more immunizations.

It took awhile, but I am proud to say I found him! A really great doctor who

was willing to look beyond the diagnosis and test for imbalances in his body.

He is an older man, of middle eastern descent, and has a background in

endocrinology and treating lead poisoning. He looked at our son's hair tests

and told us he was willing to follow my son during our low-dose chelation

protocol (Andy Cutler method). He even prescribed MB-12 injections for us.

Since we started seeing him, my son has made vast improvements.

You have to remember that YOU hire the doctor, he/she is working for YOU, not

the other way around. It's going to take some time and effort, but I suggest

making a bunch of phone calls to Medi-cal, speech therapists, advocacy groups,

and wherever so you can hook up with the best person in the area for your

daughter.

Focus on what you think she really needs, maybe you want someone who knows about

PROMPT therapy? Make sure you know what you are going to ask before you start

calling. This means you need to do some research to see what therapies are best

for her and WHO specializes in that kind of treatment, and then you can start

calling. Driving an hour away might be worth it if you find the right one.

Good luck!

Liz

>

> Hi everyone,

>

> I had reserved an appointment with my neurologist to get some help for my

daughter, really this doctor deals with patients very bad, he said no SEVERE

VERBAL APRAXIA IS a developmental, not a neurological disorder, so we cant

approve for her any speech therapy, and the most bad thing how can he says on

his paper, motor skills is normal, but he tries several times with my daughter

for ex to catch aball shecant, also to do same movements, all of this very hard

to beleive.

>

> then he went out of his room for 15m , and come back, says everything ok,

APRAXIA IS DEVELOPMENTAL, we cant provide services for anythings, go to your

school to review.

>

> and THEN HIS NURSE SAID YOU SHOULDNT FOLLOW UP WITH THE DOCTOR AGAIN, THIS IS

REALLY HORRIABLE, HOW CAN THEY DEAL WITH PATIENT LIKE THIS BEFORE MY DAUGHTER IS

A KID.

>

> IAM UNDER MEDI-CAL PROGRAM, UNDER THE STATE TOO, SO WHAT I CAN DO TO HELP MY

DAUGHTER .

>

>

>

>

>