Re: question about this group

[Guest guest]

Wow-- I'm not entirely " up " on the email list etiquette, but I *think*

that accusing people of ignoring new posters and having a clique-- might just

not be the right approach. (saying this as gently as I can)

The Dream Team is a special needs group that is also able to utilize this

list to get the word out to those who are or might be local, so their

Apraxic child(ren) can possibly join in with them to play ball.

Apraxic kids ARE Special Needs children, so they qualify to be able to play

on the Dream Team, so of course, those involved with the Dream Team and

this list would post the information here. It makes perfect sense for them to

be able to.

With this being a list-- it opens the doors for people all over the

country (world even) to join, so obviously some things posted wouldn't have

anything to do with all posters. This is just how it is with all

lists, isn't it? (unless it's geared ONLY for local only people)

When you say you posted something and no one assisted you-- there could be

a myriad of reasons. The end of the school year activities-- graduations,

parties, weekends etc-- are one of the biggest reasons why you might not see

a reply lately. Another reason-- is a large " bug " that has been

plaguing for a while. Not everyone gets the emails all the time-- and

many people miss emails altogether-- so your post may not be seen by those who

can help you with your problem/question specifically.

To come to a group as a new member and accuse people of being a clique--

honestly, I think you've overreacted just a bit.

I personally read all the emails that I get from this list-- but haven't

seen any posts recently-- so I know for MYSELF, the bug isn't putting

emails through.

Others may not have gotten to their inboxes yet-- the list of reasons why

people haven't replied could be very long and reasonable.

Another thought-- your question, or that of the other person-- especially

if they are similar questions, could very well be questions that perhaps no

one has experience with? Or maybe it's a question that's been repeated and

can easily be looked up in the list files? I would highly recommend new

members to always go straight to an e-list's files to see the previous

questions to see if they can have their questions solved by those.

Anyway-- since I never saw a post from you in the first place-- I can't

personally help you at this point. If you want to RE-POST your question, I'd

be happy to try and see if I can help. The one thing people will find here

on this list is that everyone is always willing to help. If that help

doesn't come quickly-- in my opinion, there has to be some sort of excusable

reason as to why not. I could be totally wrong-- but honestly-- this is a

great group of women who WANT to help others, and they WANT to educate people

on Apraxia, so PLEASE, have some grace when coming into a new group, it

might just be that people can't answer your question, rather than their not

wanting to, or that they are ignoring you.

Just my humble, and honest opinion-- since you asked. I hope you give

this group a chance and re-post your questions and allow a little more time for

people to reply. There are many knowledgeable people here that can help

you in your quest for answers.

Becky

In a message dated 6/28/2009 3:49:33 P.M. Eastern Daylight Time,

patriciacrichardson@... writes:

where is this group based that it is being used to notify us of the dream

team whatever being cancelled?

i thought this was a forum for parents with apraxic children...a place

where we could find answers to our concerns and questions.

granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who

posted a similar question which no one bothered answering. i am sensing a

clique here that new members simply are not welcomed into.

**************Make your summer sizzle with fast and easy recipes for the

grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000005)

[Guest guest]

Patty,

I don't believe there is a clique issue. Just parents who are busy, even more so

now that it is summer. Might I suggest posting your question again. Certainly,

if this group is not meeting your expectations, or if you are not comfortable

with haphazard replies. then maybe this is not for you.

Personally, I have learned a lot from parents here. Sometimes I search for

keywords to find answers. That might help. Best wishes,

MRL

>

> where is this group based that it is being used to notify us of the dream team

whatever being cancelled?

>

> i thought this was a forum for parents with apraxic children...a place where

we could find answers to our concerns and questions.

>

> granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted

a similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

>

[Guest guest]

Hi there. My name is Tara, I live in Ga and have a 3 year old little girl with

apraxia and hypotonia. What was your question? I think there may be something

wrong with the forum right now, I usually get several emails a day from this

group but the last few days there has been very little activity. (Very uncommon)

Post again. I'm sure people will get back to you and as far as clique I have not

found this to be the case. Good luck and welcome.

-------------- Original message from " patty " <patriciacrichardson@...>:

--------------

where is this group based that it is being used to notify us of the dream team

whatever being cancelled?

i thought this was a forum for parents with apraxic children...a place where we

could find answers to our concerns and questions.

granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted a

similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

[Guest guest]

there is definitely somethiug wrong with the list--technbically speaking of

course. Lots of mesages not getting through and it must be a problem

again, I've had my computer freeze many time spast few days.... And not too many

messages either....

elena

From: taranowakowski@... <taranowakowski@...>

Subject: Re: [ ] question about this group

Date: Sunday, June 28, 2009, 6:30 PM

Hi there. My name is Tara, I live in Ga and have a 3 year old little girl with

apraxia and hypotonia. What was your question? I think there may be something

wrong with the forum right now, I usually get several emails a day from this

group but the last few days there has been very little activity. (Very uncommon)

Post again. I'm sure people will get back to you and as far as clique I have not

found this to be the case. Good luck and welcome.

-------------- Original message from " patty " <patriciacrichardson@...>:

--------------

where is this group based that it is being used to notify us of the dream team

whatever being cancelled?

i thought this was a forum for parents with apraxic children...a place where we

could find answers to our concerns and questions.

granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted a

similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

[Guest guest]

Becky,

Well said.

Yvette A.

Sent from my iPhone

On Jun 28, 2009, at 4:59 PM, tbniesh@... wrote:

>

>

> Wow-- I'm not entirely " up " on the email list etiquette, but I *think*

> that accusing people of ignoring new posters and having a clique--

> might just

> not be the right approach. (saying this as gently as I can)

>

> The Dream Team is a special needs group that is also able to utilize

> this

> list to get the word out to those who are or might be local, so their

> Apraxic child(ren) can possibly join in with them to play ball.

> Apraxic kids ARE Special Needs children, so they qualify to be able

> to play

> on the Dream Team, so of course, those involved with the Dream Team

> and

> this list would post the information here. It makes perfect sense

> for them to

> be able to.

>

> With this being a list-- it opens the doors for people all

> over the

> country (world even) to join, so obviously some things posted

> wouldn't have

> anything to do with all posters. This is just how it is with all

> lists, isn't it? (unless it's geared ONLY for local only people)

>

> When you say you posted something and no one assisted you-- there

> could be

> a myriad of reasons. The end of the school year activities--

> graduations,

> parties, weekends etc-- are one of the biggest reasons why you might

> not see

> a reply lately. Another reason-- is a large " bug " that has been

> plaguing for a while. Not everyone gets the emails all the

> time-- and

> many people miss emails altogether-- so your post may not be seen by

> those who

> can help you with your problem/question specifically.

> To come to a group as a new member and accuse people of being a

> clique--

> honestly, I think you've overreacted just a bit.

>

> I personally read all the emails that I get from this list-- but

> haven't

> seen any posts recently-- so I know for MYSELF, the bug isn't

> putting

> emails through.

> Others may not have gotten to their inboxes yet-- the list of

> reasons why

> people haven't replied could be very long and reasonable.

>

> Another thought-- your question, or that of the other person--

> especially

> if they are similar questions, could very well be questions that

> perhaps no

> one has experience with? Or maybe it's a question that's been

> repeated and

> can easily be looked up in the list files? I would highly recommend

> new

> members to always go straight to an e-list's files to see the previous

> questions to see if they can have their questions solved by those.

>

> Anyway-- since I never saw a post from you in the first place-- I

> can't

> personally help you at this point. If you want to RE-POST your

> question, I'd

> be happy to try and see if I can help. The one thing people will

> find here

> on this list is that everyone is always willing to help. If that help

> doesn't come quickly-- in my opinion, there has to be some sort of

> excusable

> reason as to why not. I could be totally wrong-- but honestly-- this

> is a

> great group of women who WANT to help others, and they WANT to

> educate people

> on Apraxia, so PLEASE, have some grace when coming into a new group,

> it

> might just be that people can't answer your question, rather than

> their not

> wanting to, or that they are ignoring you.

>

> Just my humble, and honest opinion-- since you asked. I hope you give

> this group a chance and re-post your questions and allow a little

> more time for

> people to reply. There are many knowledgeable people here that can

> help

> you in your quest for answers.

>

> Becky

>

>

> In a message dated 6/28/2009 3:49:33 P.M. Eastern Daylight Time,

> patriciacrichardson@... writes:

>

> where is this group based that it is being used to notify us of the

> dream

> team whatever being cancelled?

>

> i thought this was a forum for parents with apraxic children...a place

> where we could find answers to our concerns and questions.

>

> granted, i just joined, but i have posted a question days ago that

> NO ONE

> bothered to assist me with. I also noticed another new group member

> who

> posted a similar question which no one bothered answering. i am

> sensing a

> clique here that new members simply are not welcomed into.

>

> **************Make your summer sizzle with fast and easy recipes for

> the

> grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000005)

>

>

[Guest guest]

We're not like that at all! we're only an online group! People have lives. maybe

your child you wrote about is your oldest or your only. A lot of us have older

children who are now--home for the summer!! As much as we'd like to be on here

all day--we do have lives outside of our online friends. Even the moderators

have lives and dont post as often as we do when school is in session.

Did you introduce yourself to the group so we get to know your child? Or just

post an issue and wait for an answer? Maybe it was an issue that the people who

WERE on that day did not have experience with.

I do not get emails---I read everything on the site. this is normally a very

active group. I only see what was posted the day that I am able to get away from

my kids being home for a few minutes to be able to check in. If I find the

time--I can look back at stuff that I missed--but there are no cliques here.

Post your question again-- but dont attack us when we dont even know you yet.

>

> granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted

a similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

>

[Guest guest]

Hey Patty,

I am not sure which question was yours or even if it was moderated and not

allowed and did not make it to the boards. From my experience here, a majority

of the people who post here believe highly in fish oils and some believe only in

fish oils. Fish oils is good and for some a miracle worker, but severe APRAXIA

is a symptom of a much bigger issue than EFA (Essential Fatty Acid) deficiency.

For some, EFA's work wonders, and I am happy for those. For others, EFA's in

itself are not the entire answer and actually make our children have behavioral

symptoms that do not disappear as time goes on without discontinuation of the

Fish Oils.

Another plausible explanation is no one knew the answer to your question.

Perhaps the group owner should have responded, but maybe she is out of town?

Did your message get posted..did you see it posted?

People do get wrapped up in their own situations sometimes, generally speaking

in life, and fail to respond to those questions with which they have either had

no experience, or do not aply to them. I am sorry if this is this case.

Please repost your question and perhaps we can help you.

[Guest guest]

It is very interesting how defensive people get and so ready to jump on someone

for expressing how they feel. Instead of several people attacking the person

who felt unwelcome to the group I would have thought they would have tried to be

more welcoming by explaining why the group may not have answered in a bit more

friendly way instead of attacking back. None of us knows what she may be going

through on her end or how other groups have responded before. I have been on

many groups that do have little cliches in them so that is not out of the realm

of possibilities. I do not think she meant to imply that no one has lives

outside of this list. She asked some questions that evidently people got very

defensive about and she mentioned how she was feeling about the group. So how

does the group respond? By attacking her back. Now in my opinion that is just

as bad as her asking questions and expressing her opinion. It's funny how we

can all " take " the time to answer something that we don't like but are too busy

to write when someone asks a question and say I don't have any answers but ask

again and hopefully someone else might have the answer. Is it too much to let

someone know their questions were read so they don't think they are being

ignored? So just maybe the wrong impression was being given by the group

without them even realizing it, instead of jumping on a new person for voicing

how it seems to them, why not take that opportunity to be more supportive and

welcoming so the new people see that and not see the defensiveness and return

attacking. Yes, has been acting up but not everyone knows this. We can't

always assume that everyone on the list is savvy to the ends and outs of how a

list works. Two wrongs do not make a right and instead of taking this

opportunity to demonstrate that the group is not like what it appeared to this

person, I'm afraid you may have actually demonstrated the opposite. I, too am

new to this list but not new to nor apraxia. Please understand I am not

defending the questioner's actions but at the same time I'm not defending the

responders' actions either.

My introduction:

I am the mom to a beautiful 17 year old young lady who has Down Syndrome (DS),

Autism, Apraxia, HOH (Hard of Hearing), Sensory issues, hypotonia, low vision

and the list goes on. I am always looking for information to help my child and

to advocate for her needs. She is currently in a private school placed by her

school district (after much advocating). She uses multi-modal ways to

communicate, Sign, AAC, Voice, gestures, pictures etc. This past year the

school district finally provided her with a signing assistant (not interpreter)

to help her learn more signs as she knew more than those teaching her did and

needed someone more fluent in sign to help her learn more. We are in the middle

of a tough IEP meeting or I should say meetings as we never seem to get an IEP

finished at one setting and I will be filing a state complaint as this past year

her IEP has not been implemented as written.

Carol

Trishasmom

She isn't typical, She's Trisha!

From: Maureen

Sent: Monday, June 29, 2009 7:49 AM

Subject: [ ] Re: question about this group

We're not like that at all! we're only an online group! People have lives.

maybe your child you wrote about is your oldest or your only. A lot of us have

older children who are now--home for the summer!! As much as we'd like to be on

here all day--we do have lives outside of our online friends. Even the

moderators have lives and dont post as often as we do when school is in session.

Did you introduce yourself to the group so we get to know your child? Or just

post an issue and wait for an answer? Maybe it was an issue that the people who

WERE on that day did not have experience with.

I do not get emails---I read everything on the site. this is normally a very

active group. I only see what was posted the day that I am able to get away from

my kids being home for a few minutes to be able to check in. If I find the

time--I can look back at stuff that I missed--but there are no cliques here.

Post your question again-- but dont attack us when we dont even know you yet.

>

> granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted a

similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

>

[Guest guest]

For what it's worth, I wasn't upset by the original poster's comments--

but I must admit was quite shocked by how it was said.

My response to her wasn't said in a defensive, " attack back " mode-- but in

a very, matter-of-fact mode.

I was personally just trying to let her know the many reasons why people

might not have responded, and that it might be better to re-post the question

and assume that others are just busy.

If anyone felt my response was an attack-- my sincere apologies.

Becky

In a message dated 6/29/2009 12:31:28 P.M. Eastern Daylight Time,

Csvillars@... writes:

It is very interesting how defensive people get and so ready to jump on

someone for expressing how they feel. Instead of several people attacking the

person who felt unwelcome to the group I would have thought they would

have tried to be more welcoming by explaining why the group may not have

answered in a bit more friendly way instead of attacking back.

**************Make your summer sizzle with fast and easy recipes for the

grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000005)

[Guest guest]

Well said. I have felt many of these responses were quite frankly " pathetic " . I

hope she stays in the group. I think we should all start all over. Welcome.

Please post your question again. There are many people here who would love to

help and not jump down your throat.

--------- [ ] Re: question about this group

We're not like that at all! we're only an online group! People have lives. maybe

your child you wrote about is your oldest or your only. A lot of us have older

children who are now--home for the summer!! As much as we'd like to be on here

all day--we do have lives outside of our online friends. Even the moderators

have lives and dont post as often as we do when school is in session.

Did you introduce yourself to the group so we get to know your child? Or just

post an issue and wait for an answer? Maybe it was an issue that the people who

WERE on that day did not have experience with.

I do not get emails---I read everything on the site. this is normally a very

active group. I only see what was posted the day that I am able to get away from

my kids being home for a few minutes to be able to check in. If I find the

time--I can look back at stuff that I missed--but there are no cliques here.

Post your question again-- but dont attack us when we dont even know you yet.

>

> granted, i just joined, but i have posted a question days ago that NO ONE

bothered to assist me with. I also noticed another new group member who posted a

similar question which no one bothered answering. i am sensing a clique here

that new members simply are not welcomed into.

>

[Guest guest]

Me too Becky! I was not attacking anyone. I remember what it was like to be home

with one child who was my only world...and what it was like to wonder why no one

got back to me as fast as I thought they should. Now that I have 3--I see that

things take time to get too and it does not mean there are cliques or that we

were attacking anyone. All I said was people have lives that get in the way of

wanting to be online all day long, something thats easier to do in the winter

when all of our older kids are in school and its too friggin cold to be

outside.It also helps when theres no one here going--how are YOU going to

entertain US today??? In fact--thats what happening right now as I write this!!

>

> For what it's worth, I wasn't upset by the original poster's comments--

> but I must admit was quite shocked by how it was said.

> My response to her wasn't said in a defensive, " attack back " mode-- but in

> a very, matter-of-fact mode.

> I was personally just trying to let her know the many reasons why people

> might not have responded, and that it might be better to re-post the question

> and assume that others are just busy.

>

> If anyone felt my response was an attack-- my sincere apologies.

>

> Becky

>

>

> In a message dated 6/29/2009 12:31:28 P.M. Eastern Daylight Time,

> Csvillars@... writes:

>

> It is very interesting how defensive people get and so ready to jump on

> someone for expressing how they feel. Instead of several people attacking the

> person who felt unwelcome to the group I would have thought they would

> have tried to be more welcoming by explaining why the group may not have

> answered in a bit more friendly way instead of attacking back.

>

> **************Make your summer sizzle with fast and easy recipes for the

> grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000005)

>

>

>

[Guest guest]

Yes-- The Dream Team is a local NJ group that Jeanne sends emails out for.

It's a Special Needs Baseball team-- GREAT opportunities for the kids.

Bek

In a message dated 6/30/2009 4:02:16 P.M. Eastern Daylight Time,

kiddietalk@... writes:

Patty I am so sorry that this message is a bit funny to me but the dream

team is probably some local NJ group that Jeanne Buesser sends on messages

about. Most of us know nothing at all about it

**************Make your summer sizzle with fast and easy recipes for the

grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000005)

[Guest guest]

Patty I am so sorry that this message is a bit funny to me but the dream team is

probably some local NJ group that Jeanne Buesser sends on messages about. Most

of us know nothing at all about it

I'm the group owner and I don't even know what it is! I can tell you that I

haven't answered any messages lately because both my main computer was in the

shop the past 2 weeks and I'm traveling right now and have had limited time to

answer questions here. Over the years it seems to me the messages that get the

most responses are those that are the ones most people are also either going

through or worrying about..but keep in mind you might have joined the group on a

Tuesday just a day after a 3 week discussion on the very topic you are concerned

about. You may notice in general I post lots of archives because the exact same

questions and concerns do come up over and over and over. I would answer your

question but I have to first look for where it is.

I agree with everyone who said just repost. There are a bunch of us here (like

me) who have kids that are now tweens or teens and mainstreamed and doing well

who volunteer to outreach here to help others -but we do it because we care.

None of us really know each other -so the clique thing isn't the case. As one

of the parents said most of us have busy lives outside of this group and we come

here to read and answer questions when we can. Unfortunately we do miss

questions like yours at times and I'm so sorry.

Here's some new to apraxia messages that may help from our Cherab Facebook page

too

New to apraxia info

http://www.facebook.com/lisa.geng#/topic.php?uid=115029735601 & topic=7329

http://www.facebook.com/lisa.geng#/topic.php?uid=115029735601 & topic=9360

Hope that helps for now! Wait one more thing...if there is a dream team then I

say we are ALL members of it!

=====

[Guest guest]

carol- you rock, girlfriend! like i told megan, actually, i wasn't offended by

the nasty post, i was more offended that newbies don't seem to even register on

the radar of the group. i am not some young flippant girl who is seeking

attention. it just seemed that after my post was ignored, i saw another new

group member's post get ignored as well and it just struck a wrong chord with

me. every desperate parent deserves an answer to their questions. i am new to

this difficult world of speech disorders --i came to this group as a means to

maneuver through it.

but look what talking about the " pink elephant " did! i hit a few nerves and

even got a few responses. just goes to show that you have to be the squeaky

wheel sometimes

[Guest guest]

I actually had no trouble finding her message and I reposted it in message

#91526.

The question was a common question about Fish Oils to the group.

As I posted in " 91526 " message posting, I do not use Fish Oils as much a others

do here anymore because it was not the solution for us and caused many

nondisappearing behavioral problems.

Patty, I really figured I would leave that question to the someones in the group

that is Fish Oil bound. I did not answer you post personally because I had no

comment. Did you get the e-mail I sent to you about your concerns, though?

[Guest guest]

Rusty, welcome to the group. Ignore the $37 e-mails, they have nothing to do

with what we are all about. Hopefully the owner of this group will take care of

that problem and we can get back to helping each other. Ask questions and you

will get answers.

ew

question about this group

I have just recently joined this group hoping to learn about sprouting and

excited to try to get back to sprouting that I did many, many years ago.

Since I joined the majority of emails I've seen are asking me for $37 or

giving a coupon...not just once, but day after day.

If I have to pay to be in this group and to learn how to sprout I think it

would be best that I unsubscribe

Rusty

Mew Years Message & Special Offer

There is the initial radiance of Beneficence with which all are blessed.

The more we give it away, the more we live in harmony, the more we receive

from Mercy and Compassion. There is no shortage. The deeper you are willing

to go, the more you will receive. This is not a reward based system but a

natural law. It is just the way it is, it is good to know... although most

of you in this sprouting group likely knew this... I just wanted to remind

you being this is a new year and all

For more infomation on the very secrets of life and certain

enlightenment send 37$ and if you are lucky and have a coupon you can get a

discount.

Happy sprouting, happy fermenting, happy New Year, Bacteria Pimp

------------------------------------

[Guest guest]

Rusty,

Welcome to the group.  I haven't kept up on all your posts, but I wanted to

mention  that I can sometimes find broccoli seeds at health food stores....if I

run out

of mine from .  Broccoli is one of my favs.

Sherry

________________________________

From: " 99tomatoes@... " <99tomatoes@...>

Sent: Fri, January 1, 2010 4:49:52 PM

Subject: Re: question about this group

 

Rusty, welcome to the group. Ignore the $37 e-mails, they have nothing to do

with what we are all about. Hopefully the owner of this group will take care of

that problem and we can get back to helping each other. Ask questions and you

will get answers.

ew

question about this group

I have just recently joined this group hoping to learn about sprouting and

excited to try to get back to sprouting that I did many, many years ago.

Since I joined the majority of emails I've seen are asking me for $37 or

giving a coupon...not just once, but day after day.

If I have to pay to be in this group and to learn how to sprout I think it

would be best that I unsubscribe

Rusty

Mew Years Message & Special Offer

There is the initial radiance of Beneficence with which all are blessed.

The more we give it away, the more we live in harmony, the more we receive

from Mercy and Compassion. There is no shortage. The deeper you are willing

to go, the more you will receive. This is not a reward based system but a

natural law. It is just the way it is, it is good to know... although most

of you in this sprouting group likely knew this... I just wanted to remind

you being this is a new year and all

For more infomation on the very secrets of life and certain

enlightenment send 37$ and if you are lucky and have a coupon you can get a

discount.

Happy sprouting, happy fermenting, happy New Year, Bacteria Pimp

------------ --------- --------- ------