Re: Severe Apraxia - biomedical approach?

June 9, 2008

Been there, done that, now got the t-shirt and two talking recovered

kids! Get the books, get the DAN! and get your baby talking. The diet

worked for us dramatically. Go to a whole foods, no perservatives, all

natual organic diet of mostly fruits, vegetables, meats and NO gluten or

casein. If there is no negative reaction with the omega supplementing,

stick to it. Make sure his speech therapy is appropriate for a child

with apraxia. Look into NACD too for effective programs that work for

children with apraxia. There have been kids that did well with just the

omega supplementing, but if you are not seeing results, I would look

into other biomedical approaches. Its your baby, and if it feels right

to you, go for it.

You may want to consider methyl b12 with folinic acid, b6, magnesium and

carnitine. Gain some more knowledge first about biomedical, find a good

DAN, and go for it. It worked for us. Even on a dime, you can do

biomedical interventions and appropriate and effective therapy at home.

Look into the following biomedical to help you futher

mb12 valtrex or the website, stankurtz.com

GFCFkids

chelatingkids2

thoughtfulhousecenterforchildren

ApraxiaDyspraxiaBiomedSupport

And..... be sure to stay in touch with this group. There is a wealth of

information here from some real experts on all sorts of issues regarding

apraxia.

Nickerson

c3dem27 wrote:

> Hello,

> My son will be 3 next month and has severe apraxia. He currently has

> speech therapy 3x week and is on PROEFA, PROEPA and VIt. E.

> I have been reading a lot about the biomedical approach in Healing

> the New Childhood Epidenics by Dr. Bock. The book does not

> specifically list Apraxia but I believe many of the triggers he lists

> for the 4-A's (Autism, ADHD, Asthma and Allergies)could also apply to

> apraxia. Toxins, nutritional deficiencies, issues with immune and

> gastrointestinal systems etc.

> I was wondering if anyone with a child with apraxia has been to a DAN

> doctor and had testing done? The book mentions Nutritional changes

> like GF/CF diet; Supplements - like probiotics, Vit C, Vit A, Zinc;

> and Detoxification.

> I am thinking of starting him on a GF/CF diet and have already

> started him on probiotics. Not sure how much more to try...

> Just curious if anyone has had improvements with any of these changes?

>

> Thanks,

>

> ------------------------------------

>

June 9, 2008

Hi and everyone else,

My son was dx with Apraxia (some sensory issues too) at age 2 & amp; at age 3

by & nbsp;4 different SLPs. Thanks to this amazing group and the Late Talker book,

I started the vit. E and proefa proepa at 2.5 years old. The results from the

fish oils and the E were incredible enough to get me interested in the DAN

protocol! After seeing a DAN Dr., my now 4 yr old & nbsp;had hair, blood and

urine samples & nbsp;taken and I found out that he is OFF THE CHARTS with

aluminum, antimony and other heavy metals. On the other side he was severely

deficient in Zinc and other essentials. We went on & nbsp;the GFCF diet which was

hard at first because we are also Vegetarians. We are now & nbsp;6 months into the

diet and it & nbsp;has become & nbsp;very easy to follow. My son actually eats a lot

more variety & nbsp;than he used to (he was stuck on pizza, noodles, cereal

ect...) & nbsp;and the progress (behavior wise) is incredible. We are also using

supplements, probiotics and

B12. & nbsp; & nbsp;The increase in speech & nbsp;after just a month of this protocol

was so remarkable that & nbsp;I & nbsp;took him to the Children's Hospital here in

Colorado for a speech & nbsp;evaluation, to find out the 'they' didn't see any

signs of Apraxia but he still scored low & nbsp;for phonological & nbsp;errors. I

know that & nbsp;this DAN protocol is somewhat controversial but I also know that

years of speech therapy alone couldn't have gotten him to where he is

now. & nbsp;My sons & nbsp;Teachers, neighbors, friends and family have all noticed

the progress!! & nbsp;We took a trip recently to Florida and & nbsp;couldn't be 100%

on the diet & amp; & nbsp; " protocol " and & nbsp;he regressed dramatically which

proved to my Husband & amp; I that this is what is working!! & nbsp;I sometimes

wonder if my little guy has Apraxia or just Neuro toxins and beautiful head full

of metal poisoning!! I love and respect this group and I don't want to

offend anyone who might think

the GFCF and the DAN thing is too extreme but it & nbsp;has worked for us. I also

read DR. Bocks book and many more like it. & nbsp;So my advice & nbsp; to you is to

see a DAN DR. and try & nbsp;ANYTHING that you think might work. This is

not & nbsp;dangerous or unusual & nbsp;it is vitamins and healthy diet and being

conscieous of toxins!! I recommend this for everyone not just these amazing

children of ours who have sooo much to say!!! I hope this helps you.

Best,

From: c3dem27 & lt;c3dem@... & gt;

Subject: [ ] Severe Apraxia - biomedical approach?

Date: Sunday, June 8, 2008, 7:25 PM

Hello,

My son will be 3 next month and has severe apraxia. He currently has

speech therapy 3x week and is on PROEFA, PROEPA and VIt. E.

I have been reading a lot about the biomedical approach in Healing

the New Childhood Epidenics by Dr. Bock. The book does not

specifically list Apraxia but I believe many of the triggers he lists

for the 4-A's (Autism, ADHD, Asthma and Allergies)could also apply to

apraxia. Toxins, nutritional deficiencies, issues with immune and

gastrointestinal systems etc.

I was wondering if anyone with a child with apraxia has been to a DAN

doctor and had testing done? The book mentions Nutritional changes

like GF/CF diet; Supplements - like probiotics, Vit C, Vit A, Zinc;

and Detoxification.

I am thinking of starting him on a GF/CF diet and have already

started him on probiotics. Not sure how much more to try...

Just curious if anyone has had improvements with any of these changes?

Thanks,

June 9, 2008

Hi ,

From others on this list you will find that a biomedical approach to most

neurological conditions, including apraxia can show some good results. Not a

magical cure by any means, but for some the results have been pretty

spectacular, for others they have helped some, others claim no benefits, but

biomedicine really optimizes neurological and immune system functioning. When

done right, it really optimizes overall health and it is bound to have some

impact even if not directly on the particular condition and ultimately it is all

connected.

So there are no absolute guarantees with anything, it is all trial and error to

a certain degree. There are common profiles, but each child may respond

differently and new things must be tried. But if anything can help, biomedicine

certainly has a very good chance I think it all depends on what else is going

on and if you are addressing all the issues present. What you've been giving

him is a good start, but the biomedical doctor will be able to test and learn

more about your child's specific metabolic profile and pinpoint issues such as

malabsorption for example which is huge in this population for some reason--my

daughter was not absorbing any of the good fatty acids I'd been giving her since

birth, before I ever knew she had a deficiency or speech apraxia.

So yes, the diet/supplements have helped or daughter a lot. She is 3.9 yrs,

severely appraxic but since appropriate diet/supplements and speech therapy

(Prompt and others) we are seeing very good steady progress. She's more

focused, less tantruming, more able to sit through the speech card ordeal and

even enjoys it now, picks up more new words all the time, started to ask

questions, speak in sentences some, her skin has improved too. What can I tell

you, compared to a year ago before we got the diagnosis and started appropriate

treatment she's just a completly different child. Both the therapy and the diet

supplements have helped, but since the B12 was started the speech has really

blossomed and her ability to communicate and be interested in all forms of

communication. We can reason with her most of the time, she express affection

more , and not just physically but in words too; said " I wov you daddy " for the

first time and YES, we melted....

I will cut and paste from a previous post in case you missed it, but it explains

why I think it is best to do all this nutritional support under the supervision

of a biomedical doctor--because winging it may work some, but there may be

things you're missing, not identifying in time and so even though you're giving

the right supplements, they may not be right for him, or they may not be

absorbed, or additional ones may be needed in his case given his specific

metabolic/genetic make up.

************

To summarize, none of the alternative integrative food intolerance testing,

treatments, supplements should be done on your own even if you could potentially

get the labs to do it. You really need someone expert to interpret results and

lead you in the right direction.

Sometimes tests don't give you a clear picture and it's the cluster that must be

interpreted or you will miss something very important. It's really all by trial

and error, adjusting things for each individual's metabolic profile and it's a

lot more work for the doctors who practice biomedicine and a lot more work for

the patient and more lab tests, but it's all worth it because that's the only

way to even begin o understand what goes on with our immune system and

neurological functioning. That's just how biomedicine is, very individualized,

but the expert need to interpret is actually just as great as ever if not

greater, but you also need to be a full participant in the process, not just the

patient who goes to the doctor to be " fixed' by a magic pill the way the

traditional medical model functions most of the time--, and with sometimes

tragic results I might add.

Anyway, here's my experience with food intolerance tersting and supplements and

I can tell you that our insurance covered most of the doctor visits and testing.

The supplements are covered by the flexible spending/or medical deductions at

the end of the year and some may even be covered by some insurance plans, it all

depends on the exact diagnosis and plan you have.

So this was written earlier:

Allergy testing is tricky and there is no sure test but rather a cluster of

symptoms and tests that at some point all point in one direction. My daughter

is actually the classical gluten intolerant child without digestive symptoms

therefore not a true Celiac and regular doctors would have told me to relax and

go home because she is not intolerant to gluten, and interestingly enough the

blood test done also did not signal gluten but casein and other food items she

was eating at the time. So they are not 100% accurate and in fact no tests ever

are, but we've just somehow learned to assume that when the reality is that the

more sensitive the test, the more complexities it has, the more chances for

false negatives and false positives, though those are not as frequent I think.

It's pretty much a collaborative trial and error process guided by a good

integrative health practitioner and tests as needed to clarify. Supposedly the

elimination diet is the best at identifying food

intolerances but that can't really be done with a child for obvious

reasons--it's hard top do, and they can't really tell us all their symptoms,

especially our kids with apraxia.

My daughter was apparently only affected in her skin outbreaks (scalp psoriasis

and eczema on hands, legs, thighs, diaper area +yeast as well, and all of this

started when we introduced wheat and dairy when she was weaned at around 1 year)

But at the time I was not aware of her neurological dysfunction and the regular

pediatrician I was seeing was just treating the separate symptoms without any

success. She also had minor SID in her upper lip and a slightly protruding

tongue when in relaxed play or concentrated on something plus slight on and off

toe walking, but again, since her apraxia had not been identified yet, the

pediatrician assured me this was all perfectly normal and the lip/tongue issues

we didn't even pay attention to. And in fact aside from the severe speech

disorder we now know about she is a happy, healthy little girl thankfully--but

the affected neurological profile is there and should be looked at as a whole to

fully understand what her disorder amounts

to and what the possible treatment options are.

So I suspected the gluten intolerance because my husband has issues with his

skin too and scalp and he even has some digestive stuff on and off, but he does

not test positive for the gluten test--just borderline normal and neither did my

daughter. Also his grandmother who was reportedly intolerant to milk in

childhood, outgrew it--so they thought-- and developed schizophrenia in her

thirties after a flu shot that affected her very badly. So all these are

related, some people are just more sensitive to environmental and other toxins

from food. Some doctors were treating schizophrenics with a gluten free diet

back in the 60s some improved some didn't, Big Pharma with the meds won out in

the end and as you know the diet is not that easy to keep if you don't cook from

scratch and eat out, so my guess is a lot of those that did not go into

remission may have been getting some gluten without knowing it in sauces,

vinegar etc. Minute amounts can affect the brain--there's no

fooling it.

Anyway, I took Ziana to an integrative pediatrician wanting to rule out the food

intolerances and get to the bottom of her skin disorders, I didn't even think

too much about the speech being connected at the time. Boy did I have a lot to

learn!!! We did the tests --blood, urine--fecal--and some food intolerances

were clearly present though not the gluten apparently but the casein yes and the

doctor said it is rare for the casein test to be positive without a gluten

intolerance being present as well, plus we had all the other clues. Very often

the gluten is really the main problem and casein gets added on plus soy and corn

often enough since the proteins are similar somehow or just further inflame a

problem area caused by the gluten peptides. So tests are not always conclusive

and must be interpreted by someone who knows and looks at the complete picture.

But they tests did provide clues and all the clues added together showed us she

had some major malabsorbancy issues and also some difficulties with

detoxification. So far for us I would say the B12 has had the greatest effect

and I have yet to try a higher does of vitamin E.

Anyway, I told you all this to show you that the best way to do all this is

under the supervision of an integrative pediatric health care practitioner--not

your run of the mill allergy specialist or gastroenterlogist because they either

just work with allergy shots and I feel most of them are really clueless about

the true implications and complexities of these intolerances and only treat the

symptoms when they are severe enough to meet their pre-established criteria .

Unless the vili are ciompletly destroyed as with the true Celiacs, they

generally dismiss the idea of a " leaky gut " and the other allergies that

develop, or the neurological symptoms. Anyway most integrative pediatricians

have MDs as well, they are regular doctors with added specialties because they

too feel that drugs and surgery are not the only means to address health. These

integrative/alternative MDs, also known as DAN trained doctors are your best bet

to be sure you're not missing anything,

misinterpreting results and effects, or not staying enough with them when

effects can be slower to show up sometimes. or it could be your child has

different issues, different intolerances and a different set of supplements may

help.

All chronic degenerative illnesses, neurological especially, if there is no

known cause like a bullet through the head or accident or identifiable stroke,

must be carefully investigated from a metabolic perspective. There is increasing

evidence of this, the British Medical Journal of Neurology has an interesting

article urging all neurologists to consider food intolerances, and gluten and

casein in particular whenever there is unexplained pathology. The link

gut/environmental toxins and the brain is much greater than we could have ever

imagined, and even if it is not the initial cause or absolute cure of some of

these disorders, optimizing neurological functioning is the best way to ensure

that speech therapy and all our other efforts will have a maximum effect.

My daughter improved behaviorally right away, and the her skin some and her

speech some and her speech really took off once we started the B12 which she was

clearly deficient in. And BTW, I recently discovered so am I, either a

malabsorbancy of similar nature or some other factor, I'm investigating too. So

maybe it's not just from my husband side of the family, she may have had the

gluten intolerance stacked up against her with both parents have gluten issues.

Alzheimer's also has been linked to gluten peptides and my father has had a

rather early onset around 67 yrs. The point is a lot more people than was ever

suspected should not be eating gluten sugar is another big inflammatory

substance and of course all the other refined starches and processed foods.

So it's very clear that some kids and even adults are more susceptible than

others. Just to give you an idea, after the B12 shots first weeks or so, I

learned I was doing them wrong, too deep and she was peeing it all out too soon,

so the effects were not continuous. When I started doing it more under the

skin, she had a panting like experience, almost as if she had trouble holding

her tongue in her mouth for a few days. I believe she was probably for the first

time just getting some feeling in that area and she kept touching her tongue

like it was something she had never felt before. We were concerned of course

and the doctor told us this is not uncommon, just as going off gluten made her

upper lip sensitivities more intense. Again, she was now feeling things she'd

never felt.

And very often when kids do not show improvement on the diet it really can be

because of co-existing factors like corn, soy and other temporary food

intolerances that occur as a result of the leaky gut and these too must be

addressed. A good probiotic given daily, all foods to which there's a definite

immune response avoided until the leaky gut heals. So you see it's not that

simple and it's easy to overlook things if you're just doing it on your own

without guidance and supervision and tests that can tell you more about what

other issues may be present.

We're just about to test to see if she still has antibodies to the foods she was

eating while on gluten (almonds, eggs, melon, avocado bananas, pineapple,

walnuts etc.) I know she still responds pretty severely with the corn on her

skin, we just tested that recently and she broke out in rashes all over her

body. of course the corn was at preschool, which means not organic = GM since

all corn is now genetically modified if not organic--thanks to Monsanto.

And corn wasn't even a food she showed a strong response to, but wee noticed it

made her really hyper so we avoided it as we did the soy for the same reasons

and my husband has noted a strong reaction to soy in his case. These things

take a lot of investigation and patience. And it's unfortunate that a lot of

the gluten replacement items contain soy and corn--both known to produce

reactions in many gluten intolerant individuals. It's really all trial and

error. And indeed not all autistic or apraxic children may be intolerant to

gluten or respond well to fish oil. But so many of them seem to, and it really

is a metabolic issue in many cases that it is worth trying--the right way, under

the care of a knowledgeable physician as I've said, to be sure nothing is

overlooked or the whole thing aborted prematurely before the effects can be

noted.

Good luck and let me know if you have any questions.

Elena-mom to Ziana -age 3.8 severely apraxic, but progressing wonderfully since

on the right diet/supplements/speech therapy techniques and frequency

c3dem27 <c3dem@...> wrote: Hello,

My son will be 3 next month and has severe apraxia. He currently has

speech therapy 3x week and is on PROEFA, PROEPA and VIt. E.

I have been reading a lot about the biomedical approach in Healing

the New Childhood Epidenics by Dr. Bock. The book does not

specifically list Apraxia but I believe many of the triggers he lists

for the 4-A's (Autism, ADHD, Asthma and Allergies)could also apply to

apraxia. Toxins, nutritional deficiencies, issues with immune and

gastrointestinal systems etc.

I was wondering if anyone with a child with apraxia has been to a DAN

doctor and had testing done? The book mentions Nutritional changes

like GF/CF diet; Supplements - like probiotics, Vit C, Vit A, Zinc;

and Detoxification.

I am thinking of starting him on a GF/CF diet and have already

started him on probiotics. Not sure how much more to try...

Just curious if anyone has had improvements with any of these changes?

Thanks,

June 9, 2008

,

You will find that many of us LOVE Dr. Bock's book and that many of us are under

the care of a DAN or similiar doctor who works with neurological illnesses from

a biomedical standpoint.

My son is under the care of an environmental specialist. We did some wonderful

testing with Metametrix Labratories and he was found to have low Omega 6, COQ10,

carnitine, glutathione, vitamin A. In addition he had elevated levels of Trans

Fats (Yuck!). He also had elevated levels of mercury and lead in his whole

blood.

Given his elevated levels of lead and mercury, we proceded to do a challenge

with oral DMSA and omited seafood from his diet (because of the mercury content

in seafood) and his lead levels came out quite high. We have since been using

an oral chelator to remove the lead from his system and it has really improved

his attention and his focus. His energy levels are much better and he is doing

extremely well via this protocol. If you watch any of Dr. Usmans' lectures at

the autism.com website, you will learn that she finds that many of the

apraxic/dyspraxic children test high in lead.

In addition, we dropped milk from our diet ages ago. It was the only thing that

reduced the congestion in my son's ears and stopped the drooling and the slushy

sound in his voice. While he still has a slightly nasally quality to his voice,

he has 'mostly' recovered from his apraxia BUT.... he is very sensitive.... if

he has any 'bad' food, his slushy speech comes back and he has trouble with his

oral motor once more. We have recently dropped gluten from our diet and see

gains in that area as well. For the most part, we do not use any type of

artificials in our food. Thus.... no MSG, no artificial flavours or colours or

HBT. The 'cleaner' I keep the diet, the better my son does.

Of course, he is 13 and he cheats on his diet probably every 3rd day or so! As

you can imagine, he does regress a lot! We try to manage regressions with Tri

Salts, epsom salts baths. The worst offender for my son is milk products. Milk

completely steals his balance, his speech and 'everything' in about 15 minutes

of consumption. He tends to get a lot of 'trace' milk products in foods and so

we really do have to watch it. Gluten is not as bad but it still affects him.

The best item that has saved our soul with all of this are the dietary enzymes

that you can buy at Houston Neutraceuticals. I use No Fenol and Peptzyde for my

son daily. But we also use Tri Enza at other times as well.

So..... I would say that you're on the right track and you need to keep on

reading! Biomedical in conjunction with the right therapy match for your child

(very important) really does lead to recovery.

I would consider my son recovered at this juncture though it is definately

'managed' recovery. I look forward to the day when he is completely healed and

he won't have to watch his diet or take supplements. We are not there yet but I

am confident that it will happen in the future.

Janice

Mother of Mark, 13 apraxia/global dyspraxia

[sPAM][ ] Severe Apraxia - biomedical approach?

Hello,

My son will be 3 next month and has severe apraxia. He currently has

speech therapy 3x week and is on PROEFA, PROEPA and VIt. E.

I have been reading a lot about the biomedical approach in Healing

the New Childhood Epidenics by Dr. Bock. The book does not

specifically list Apraxia but I believe many of the triggers he lists

for the 4-A's (Autism, ADHD, Asthma and Allergies)could also apply to

apraxia. Toxins, nutritional deficiencies, issues with immune and

gastrointestinal systems etc.

I was wondering if anyone with a child with apraxia has been to a DAN

doctor and had testing done? The book mentions Nutritional changes

like GF/CF diet; Supplements - like probiotics, Vit C, Vit A, Zinc;

and Detoxification.

I am thinking of starting him on a GF/CF diet and have already

started him on probiotics. Not sure how much more to try...

Just curious if anyone has had improvements with any of these changes?

Thanks,

June 9, 2008

Hi and welcome!

Your child is in great hands with you that's for sure! You didn't

mention...are you seeing any progress with all you are doing so far?

Please let us know.

Intense appropriate therapy is always a given -but...

In general those that have children that don't respond to the fish

oils and E go the more extreme biomedical and diets to try to find

something that works. The fish oils and E are biomedical 101. Even

though at some point of the journey -not necessarily at 3 -many of us

give our child probiotics and/or zinc which is in carn-aware which

some of us try with our kids -if you check the archives over the

years -many have found success just using the fish oils alone. In

the past few years there are more that use the vitamin E with the

fish oils and have seen improvements in areas such as sensory

and " fine tuning " in speech and other improvements as well.

Unless your child has allergies or a condition which requires a

special diet I wouldn't go the special diet route. I grew up on one

and it's not just the expense and difficulty of watching every

ingredient your child eats (or plays with in some cases) but there is

a social aspect as well.

There is still much debate on detoxification. Dr. Oz himself was

shocked that there was no difference in 2 groups of women that " party

often " that needed to detox. The results speak for themselves.

Those that subjected themselves to drinking stuff like onion juice

had no difference in any level than those that got to eat strawberry

waffles.

Investigating Food Myths with Dr. Oz

An audience member named Alysha says she is a big believer in " detox

diets " —such as fasting or cutting out all processed foods. " Up front,

you don't feel very great, but in the end, I always feel like I have

a lot more energy. I'm very focused, maybe a little bit lighter.

Maybe, not always, " she says.

But do these diets really work? On The Truth About Food, researches

created their own version of a detox diet, which incorporated common

principles of the most popular detox diets. Then, it was time to put

it to the test. At a country retreat, 10 women who say they party

often—and pay the price—were divided into two groups. The first group

was put on a detox program. To help researchers scientifically

compare the results, the other group ate a normal diet.

Before the trial began, the urine and saliva of all of the women were

tested to determine their levels of toxins. Another sample would be

analyzed at the end of the week to see if the diet helped to flush

the impurities from their systems.

Each day, the detox group followed a rigorous diet, starting the day

with fresh vegetable juice with ingredients such as spinach, garlic

and onions. Over the course of the week, this group drank beet root

shakes and ate seaweed salad.

Meanwhile, the control group ate a hearty balanced diet of pasta, red

meat, wine, coffee, chocolate and potato chips. At the end of the

test, the women dropped off the last 24 hours' worth of urine and

saliva for analysis.

The detox diet group didn't seem to be enjoying their food—was the

sacrifice worth it? " It had no impact at all, " Dr. Oz says. " I was

surprised by this, because I really thought we'd see more of an

effect. "

Dr. Oz says the women involved in the experiment were generally

healthy, even though they drank a bit more than they should and might

not have been taking ideal care of themselves. " But what we did find

was that the liver was doing the same things. You had the same kinds

of toxicities, " he says. " Because toxins that we get into our body go

to our fatty tissues. They go to places like the liver and the brain.

It takes more than 10 days to get them out. "

Even though detox diets can't cleanse the body of toxins in such a

short amount of time, Dr. Oz says these diets can be useful as a jump-

start to healthier eating. " Now that you've moved to a whole new

place in what you tolerate and expect in life, it's easier to go from

there, " he says.

http://www2.oprah.com/health/oz/oz_20070917_350_115.jhtml

It's kind of like this group. Some need to make their kid drink the

onion juice -but for most of us we can give our child strawberry

waffles and we get the same awesome results. Don't make them drink

the onion juice unless they have to. To know for sure if they have

to you first have to give the basic stuff a chance -at least a few

months. A few members more recently expressed that they feel guilty

if they don't try more than the basic - I have 2 boys who both had

special needs -both overcame with the basics and appropriate therapy.

For me as a child that was diagnosed as celiac and had to grow up on

a special diet which saved my life and kept me out of the hospitals

so often -I would feel guilty making my kids go through a special

diet if they didn't have to.

=====

June 9, 2008

What is nbsp?

We are also using

supplements, probiotics and

> B12. & nbsp; & nbsp;The increase in speech & nbsp;after just a month of

this protocol was so remarkable that & nbsp;I & nbsp;took him to the

June 9, 2008

I do think women who party too much are detoxing, or attempting to

detox something very different than what may be at issue in small

children. My question with a kid would be always: is this safe. Also,

the GFCF diet is not so much a detox diet but rather an attempt at

addressing allergins. There are genes that you can get tested to see

if gluten is at issue. Some of those are listed in message 53243

along with other relevant testing. If gluten is an issue casein is a

suspect but there is not a great way to test casein other than

elimination diets. No matter what diet you have for your kid nutrient

dense is the goal. Some folks think a corn chip diet is a great GFCF

idea. NOT.

I wish you well on your journey.

>

> Hi and welcome!

>

> Your child is in great hands with you that's for sure! You didn't

> mention...are you seeing any progress with all you are doing so far?

> Please let us know.

>

> Intense appropriate therapy is always a given -but...

>

> In general those that have children that don't respond to the fish

> oils and E go the more extreme biomedical and diets to try to find

> something that works. The fish oils and E are biomedical 101. Even

> though at some point of the journey -not necessarily at 3 -many of

us

> give our child probiotics and/or zinc which is in carn-aware which

> some of us try with our kids -if you check the archives over the

> years -many have found success just using the fish oils alone. In

> the past few years there are more that use the vitamin E with the

> fish oils and have seen improvements in areas such as sensory

> and " fine tuning " in speech and other improvements as well.

>

> Unless your child has allergies or a condition which requires a

> special diet I wouldn't go the special diet route. I grew up on one

> and it's not just the expense and difficulty of watching every

> ingredient your child eats (or plays with in some cases) but there

is

> a social aspect as well.

>

> There is still much debate on detoxification. Dr. Oz himself was

> shocked that there was no difference in 2 groups of women

that " party

> often " that needed to detox. The results speak for themselves.

> Those that subjected themselves to drinking stuff like onion juice

> had no difference in any level than those that got to eat strawberry

> waffles.

>

> Investigating Food Myths with Dr. Oz

>

> An audience member named Alysha says she is a big believer in " detox

> diets " —such as fasting or cutting out all processed foods. " Up

front,

> you don't feel very great, but in the end, I always feel like I have

> a lot more energy. I'm very focused, maybe a little bit lighter.

> Maybe, not always, " she says.

>

> But do these diets really work? On The Truth About Food, researches

> created their own version of a detox diet, which incorporated common

> principles of the most popular detox diets. Then, it was time to put

> it to the test. At a country retreat, 10 women who say they party

> often—and pay the price—were divided into two groups. The first

group

> was put on a detox program. To help researchers scientifically

> compare the results, the other group ate a normal diet.

>

> Before the trial began, the urine and saliva of all of the women

were

> tested to determine their levels of toxins. Another sample would be

> analyzed at the end of the week to see if the diet helped to flush

> the impurities from their systems.

>

> Each day, the detox group followed a rigorous diet, starting the day

> with fresh vegetable juice with ingredients such as spinach, garlic

> and onions. Over the course of the week, this group drank beet root

> shakes and ate seaweed salad.

>

> Meanwhile, the control group ate a hearty balanced diet of pasta,

red

> meat, wine, coffee, chocolate and potato chips. At the end of the

> test, the women dropped off the last 24 hours' worth of urine and

> saliva for analysis.

>

> The detox diet group didn't seem to be enjoying their food—was the

> sacrifice worth it? " It had no impact at all, " Dr. Oz says. " I was

> surprised by this, because I really thought we'd see more of an

> effect. "

>

> Dr. Oz says the women involved in the experiment were generally

> healthy, even though they drank a bit more than they should and

might

> not have been taking ideal care of themselves. " But what we did find

> was that the liver was doing the same things. You had the same kinds

> of toxicities, " he says. " Because toxins that we get into our body

go

> to our fatty tissues. They go to places like the liver and the

brain.

> It takes more than 10 days to get them out. "

>

> Even though detox diets can't cleanse the body of toxins in such a

> short amount of time, Dr. Oz says these diets can be useful as a

jump-

> start to healthier eating. " Now that you've moved to a whole new

> place in what you tolerate and expect in life, it's easier to go

from

> there, " he says.

> http://www2.oprah.com/health/oz/oz_20070917_350_115.jhtml

>

> It's kind of like this group. Some need to make their kid drink the

> onion juice -but for most of us we can give our child strawberry

> waffles and we get the same awesome results. Don't make them drink

> the onion juice unless they have to. To know for sure if they have

> to you first have to give the basic stuff a chance -at least a few

> months. A few members more recently expressed that they feel guilty

> if they don't try more than the basic - I have 2 boys who both had

> special needs -both overcame with the basics and appropriate

therapy.

> For me as a child that was diagnosed as celiac and had to grow up on

> a special diet which saved my life and kept me out of the hospitals

> so often -I would feel guilty making my kids go through a special

> diet if they didn't have to.

>

> =====

>

June 9, 2008

Liz think the nbsp was some type of computer html thing that's been

showing up in some messages recently " Non-Breaking Space " . Just in

case however here's a list of what else it could be:

NBSP Non-Breaking Space (HTML)

NBSP Narrow Band Signal Power

NBSP National Biometric Security Project

NBSP National Breast Screening Programme

NBSP NHS Breast Screening Programme (UK)

NBSP No Bull Stuff Please (polite form)

NBSP Non Breaking Space Publishing

NBSP North Bay Science Project (Sonoma State University)

http://acronyms.thefreedictionary.com/NBSP

=====

June 9, 2008

Hi, all.

& amp;nbsp is html for a backspace. & nbsp; & nbsp; I am a software consultant and am

familiar with such things. & nbsp; It shows up probably because the translation

from html to plain text was not done probably by some email software.

Xun

From: kiddietalk & lt;kiddietalk@... & gt;

Subject: [ ] Re: Severe Apraxia - biomedical approach?

Date: Monday, June 9, 2008, 9:32 AM

Liz think the nbsp was some type of computer html thing that's been

showing up in some messages recently " Non-Breaking Space " . Just in

case however here's a list of what else it could be:

NBSP Non-Breaking Space (HTML)

NBSP Narrow Band Signal Power

NBSP National Biometric Security Project

NBSP National Breast Screening Programme

NBSP NHS Breast Screening Programme (UK)

NBSP No Bull Stuff Please (polite form)

NBSP Non Breaking Space Publishing

NBSP North Bay Science Project (Sonoma State University)

http://acronyms. thefreedictionar y.com/NBSP

=====

June 9, 2008

My son has severe apraxia as well as autism. He also has global motor

planning issues and very low tone. He was unable to even use sign

language until after using EFAs for six weeks at the age of five. He

began vitamin E and a few weeks later was able to begin TRYING to

speak. Needless to say - after that we enlisted the help of a doctor

that is also a DAN doctor. Almost all of the biomed interventions

we've done have helped his receptive, expressive (verbal and sign)

communication immensely - as well as his academic skills and

social/play skills. I always think of apraxia as the " fifth A " . Every

kid is different so you have to play around a little to find the best

thing for your child. We targeted bowel (due to chronic constipation)

and tone at first. HTH,

>

> Hello,

> My son will be 3 next month and has severe apraxia. He currently

has

> speech therapy 3x week and is on PROEFA, PROEPA and VIt. E.

> I have been reading a lot about the biomedical approach in Healing

> the New Childhood Epidenics by Dr. Bock. The book does not

> specifically list Apraxia but I believe many of the triggers he

lists

> for the 4-A's (Autism, ADHD, Asthma and Allergies)could also apply

to

> apraxia. Toxins, nutritional deficiencies, issues with immune and

> gastrointestinal systems etc.

> I was wondering if anyone with a child with apraxia has been to a

DAN

> doctor and had testing done? The book mentions Nutritional changes

> like GF/CF diet; Supplements - like probiotics, Vit C, Vit A, Zinc;

> and Detoxification.

> I am thinking of starting him on a GF/CF diet and have already

> started him on probiotics. Not sure how much more to try...

> Just curious if anyone has had improvements with any of these

changes?

>

> Thanks,

>

June 9, 2008

,

Thanks for this post. My son is almost 3 1/2 with global dypsraxia,

hypotonia, and DSI. He's making progress in his disabled preschool

and outside therapies but I always quesiton if I should try more. I

put him on the fish oil 2 mos ago and once they settled into his body

I definitely saw an increase in volume of speech and grammatical

improvements. I want to add in the vitamin E but I'm waiting till the

break between school and ESY so I can watch for behavior changes. I'd

say he's making progress but I know he has limited attention to

things he's uninterested in. I go back and forth about the gluten

free/casein free diets. I feel like I don't know what I should do. On

the one hand, he's making progress, getting better, with things but

on the other hand I know he needs to work on his attention span and

has a LONG way to go to catch up. His developmental pediatrician, who

saw him at the end of April, was pleased with his progress over the

10 mos since he last saw him and said my son doesn't present like

kids with these gluten sensitivities but reading all these posts I

wonder how does he know that? My son only drinks milk and loves carbs

even though we've worked on varying his diet through a feeding

center. I guess I sit on the fence as to which way to go here. I read

these posts and wonder should I try this b/c he seems to far behind

and yet I know how difficult this diet will be? If my son is making

progress with the therapy and fish oil, do I need to push him further

with the diet which does seem to yield positive results for so many?

I guess I'm just venting my indecision here. For those who decided on

these diets, how did you come to this decision? Did start by

eliminating gluten or casein first? Just wondering if there's a way

to test this out for results slowly. Thanks