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Re: Digest Number 6604

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I agree with 's posting as well as Michele's postings. Maureen,

while your child was very lucky with his private slp and school slp working

together, the reality is there are MANY, MANY OTHER CHILDREN who have

disabilities including apraxia who do not get speech or any of the services they

are entitled to., but it is a reality across the nation that any therapist or

teacher will ultimately do what the administration and special services

director tells them to do even if it means denying the children services in

order to keep their jobs. Maureen, while I respect your right as everyone

else's post their thoughts, I have to tell you upfront that I hope you also

understand that many parents are not as blessed and lucky as you to even

have private insurance or medicaid. Do you have any idea what happens to

those children?

In a message dated 7/3/2009 2:52:35 P.M. Central Daylight Time,

writes:

_Late talker/speech delay vs. apraxia? Learn about children's

communication _

( ;_ylc=X3oDMTJjdm84N2NoBF9TAzk3\

MzU5NzE1BGdycElkAzQyNjcwNQRncnBzcElkAzE3MDUxMjYxNzEEc2VjA2hkcgRzbGs

DaHBoBHN0aW1lAzEyNDY2NTA3MTg-)

Messages In This Digest (25 Messages)

1a.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION)_

(mip://0222d6d8/default.html#1a) From: helpingjon

1b.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION)_

(mip://0222d6d8/default.html#1b) From: Etheria

1c.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION)_

(mip://0222d6d8/default.html#1c) From: sandy lehmann

1d.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION)_

(mip://0222d6d8/default.html#1d) From:

1e.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION)_

(mip://0222d6d8/default.html#1e) From: Maureen

2.

_New to group with 23 month old diagnosed with apraxia of speech_

(mip://0222d6d8/default.html#2) From: angie3742

3.

_New and Introduction_ (mip://0222d6d8/default.html#3) From: khaoskat

4.

_Check out Womans's World_ (mip://0222d6d8/default.html#4) From:

curlyqkate2002

5.

_Solutions for Forced Vaccinations and Flu Pandemics_

(mip://0222d6d8/default.html#5) From: a DeVelbiss

6a.

_Re: Vaccination -(Now Rubella Titers-What do they mean?)_

(mip://0222d6d8/default.html#6a) From:

7.

_need your advice_ (mip://0222d6d8/default.html#7) From: caroline yassa

8a.

_Advocacy Anyone? Website Up!_ (mip://0222d6d8/default.html#8a) From:

socialwkr@...

8b.

_Re: Advocacy Anyone? Website Up!_ (mip://0222d6d8/default.html#8b)

From: NotefrmSue@...

9.

_Re; Speech Therapy transferring from public to private school questi_

(mip://0222d6d8/default.html#9) From: lorenzoandjo

10.

_Need recommendations for good SLP for undiagnosed apraxic three-year_

(mip://0222d6d8/default.html#10) From: Etheria

11a.

_Has anyone tried Yummi Bears Omega 3-6-9?_

(mip://0222d6d8/default.html#11a) From: melaniemursau@...

11b.

_Re: Has anyone tried Yummi Bears Omega 3-6-9?_

(mip://0222d6d8/default.html#11b) From: NotefrmSue@...

11c.

_Re: Has anyone tried Yummi Bears Omega 3-6-9?_

(mip://0222d6d8/default.html#11c) From:

12a.

_Joanne Obara/Day is out of the office._

(mip://0222d6d8/default.html#12a) From: Joanne Obara

13.

_To Repair a Brain... Mom on a quest!!!_ (mip://0222d6d8/default.html#13)

From: a DeVelbiss

14.

_Mouse Model Provides Clues to Human Language Development_

(mip://0222d6d8/default.html#14) From: a DeVelbiss

15a.

_Re: Vaccination_ (mip://0222d6d8/default.html#15a) From:

cyncallas@...

16a.

_Re: Pam Marshalla has a SALE!!!_ (mip://0222d6d8/default.html#16a) From:

curlyqkate2002

17.

_Hesitant, halting speech_ (mip://0222d6d8/default.html#17) From:

charles_w_2000

18.

_A bit about Nyteglori and her Twinkies (I am new here)_

(mip://0222d6d8/default.html#18) From: Nyteglori@...

_View All Topics_

( /messages;_ylc=X3oDMTJlNnZxYzR\

zBF9TAzk3MzU5NzE1BGdycElkAzQyNjcwNQRncnBzcElkAzE3MDUx

MjYxNzEEc2VjA2Rtc2cEc2xrA2F0cGMEc3RpbWUDMTI0NjY1MDcxOQ--?xm=1 & m=p & tidx=1)

| _Create New Topic_

( /post;_ylc=X3oDMTJlbXZ0cWhrBF9\

TAzk3MzU5NzE1BGdycElkAzQyNjcwNQRncnBzcElkAzE3MDUxMj

YxNzEEc2VjA2Rtc2cEc2xrA250cGMEc3RpbWUDMTI0NjY1MDcxOQ--)

Messages

1a.

_Re: new here- (PATTY'S ORIGINAL INTRO AND QUESTION) _

( /message/91591;_ylc=X3oDMTJxbn\

Q5dDZyBF9TAzk3Mz

U5NzE1BGdycElkAzQyNjcwNQRncnBzcElkAzE3MDUxMjYxNzEEbXNnSWQDOTE1OTEEc2VjA2Rtc2

cEc2xrA3Ztc2cEc3RpbWUDMTI0NjY1MDcxOQ--)

Posted by: " helpingjon " _babyjjmama@... _

(mailto:babyjjmama@...?Subject=

Re:%20new%20here-%20%20(PATTY'S%20ORIGINAL%20INTRO%20AND%20QUESTION))

_helpingjon _ (helpingjon)

Fri Jul 3, 2009 7:05 am (PDT)

My son was in a special needs preschool with the diagnosis of apraxia but

the speech therapists he had were not as motivated I guess as yours was.

Consider yourself fortunate. I wonder if your experience is the exception or

the rule though.

I always say the only thing worse than no therapy is bad therapy. So I

actually requested the therapist not work on articulation if all she was going

to do is say the word slowly and have him keep repeating it back to her

incorrectly over and over and over. So here he has this HUGE need and it is

not being addressed by the school. I see this as a failure, at least in our

case. And I am actually a special education teacher ... taught for almost

ten years and have a masters in special education ... so I can assure you I

am not anti-establishment when it comes to the schools. But I am

disappointed by what I have experienced sitting on the other side of the table

in my

son's case.

Michele

> > >

> > > hello all. found this group while reading The Late Talker, of course

:)

> > >

> > > just read the nutritional supplements page and can't believe they

didn't

> > put that at the BEGINNING of the book!

> > >

> > > My son is 2 1/2 now and almost 40 pounds. we came to his apraxic

> > diagnosis via his SLP a few weeks ago.

> > >

> > > He is visited by his SLP and ahis Ot once a week. (I personally

think it

> > needs to be bumped up to twice a week at least, since he'll have to

> > transfer out of early intervention in 6 months when he's 3).

> > >

> > > He also just started getting visits from a behavioral therapist once

> > every other week. she is helping gabe deal with his anxiety which

stems from

> > his frustration at not being understood - or getting his way. he is a

very

> > stubborn child with two equally stubborn parents :)

> > >

> > > so, I am only giving one 1000mg fish oil tablet (nature made) a day

> > because we just started and i haven't been able to get to the pharmacy

yet

> > where the Nordic Natural stuff is sold locally.

> > >

> > > all the anagrams and dosages per child per age are all quite

confusing.

> > >

> > > any recommendations for my son. again, he's 2 1/2, weighs about 38

lbs.

> > he does this nasally language and is extrememly expressive. also very

smart

> > and funny. don't know " HOW " apraxic he is.

> > >

> > > concerned mom

> > > " HOPE SPEAKS!! " ,

> > >

> > > Patty

> > >

> >

> >

> >

> >

> >

> > ************ ************<WBR>**Make your summer sizzle with fast and

eas

> > grill. (_http://food.http://food.<WBRhttp://food.<WBRhttp://foo_

(http://food.aol.com/grilling?ncid=emlcntusfood00000005) )

> >

> >

> > [Non-text portions of this message have been removed]

> >

>

>

>

>

>

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Guest guest

Nope--and its very interesting that you can attack someone's IQ but I cannot

attack a naive statement that SD SLP's are useless and not worth our time.

Sounds like someone is terribly misinformed.

Moderators: I thought personal attacks would not be tolerated!! Isnt even

bringing up IQ because I dont agree with your version of Apraxia treatment a

personal attack??????

I give very useful advice that have helped many parents in the four years

since my 8dd was diagnosed. While some parent--hmmmmm--suggest off the wall

alternatives to therapy that has been proven to work.And suggesting we spend

money on private therapy that some parents out there may not have! You have only

been doing this a couple years--but act like you're the be all/end all authority

on how we should deal with speech therapy and the system--one that you chose to

pull your child ou of voluntarily because it was not working. Does NOT mean it

wont work for the rest of us!!

>

> Maureen, Do you attack everyone?

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What is UP with (a very small number) of you people???? I check these emails to

get information and support and all I've been seeing lately is a pile of angry,

adolescent, self serving, arrogant (need more adjectives?) posts. Yes, we're all

emotional about our kids situations and how much we do to support them but why

can't we respect the experiences and opinions of others?

Tamsin

(mother of a 5 year old little girl with global dyspraxia and seizure disorder)

>

> Maureen, Do you attack everyone? (check the posts, as I posed that question

before now) I am glad you did not make me out to be a liar on that one also!

> There are a few who take things out of text here. I think it is clear who

those are.

> I think she got it straight from the get go. It is amazing to witness the

variety of IQ's on this forum.

> I, for one, would appreciate it greatly if you stop aggressively attacking

people on this forum. (myself and others)

> Last I checked, a forum was for all to post their individual knowledge and

ideas. It is much like a bulletin board. The last bulletin board I read was in a

grocery store. All the papers posted on the bulletin board were very different

and not everyone offered the same service or had a similar posting of sorts.

There was much variety, which gave the onlookers much to draw their attention

to. Some services I did not need and some seemed intriguing. I even made mental

notes of some for future use. I did not see even one posting on that bulletin

board that said aomething to the effect of " Don't believe what so-in-so's

bulletin says because their so, so wrong. " I " did " , however notice that a few

posters looked as if they were trying to cover someone else's post, but it was

not obviously an attempt to block the information. My assumption was that there

was a limited space on the board. It was apparent on that particular board that

everyone was at least courteous enough to still permit the other postings.

(Probably because they were offering different posts and we not competing for

the same service. Just my guess.)

> It is a shame that some people are so blinded (like a horse with blinders on)

and fail to see what is happening in the rest of the world around them.

>

>

> forum Definition

>

> (Plural " fora " or " forums " ) Any discussion group accessible through a dial-in

{BBS} (e.g. {GEnie}, {CI$}), a {mailing list}, or a {Usenet} {newsgroup} (see

{network, the}). A forum functions much like a {bulletin board}; users submit

{postings} for all to read and discussion ensues. Contrast real-time {chat} or

point-to-point personal {e-mail}. [{Jargon File}] (1998-01-18)

>

>

>

>

>

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