Potty Training

[Guest guest]

Hi Aime, My ds is 4 and he is about to be tested for AS and SPD, he has been dry in the day for about 1 year and 5 months now. I found it so hard to train him but he got there eventually. He still will not have a bowel movement on the toilet though, every time he needs to go we have to put a nappy ( diaper ) on him. We have tried not giving him the nappy and have tried everything to get him to go on the toilet but we have had no luck so far. He cries and becomes so anxious and upset if we don't put the nappy on him and we know that he is not constipated, so we know that it not because it hurts him to go. He would even just poo on the floor if he couldn't hold it any longer rather that doing it in the toilet. We have been given so much advice from doctors, nurses, psychologists and OT's but nothing has worked. We have tried everything, rewards, sticker chart, even have offered to get him a fav

toy if he could go on the toilet! His psychologist just said to give him the nappy and let do it in it. We have taken a more relaxed attitude to it now and he goes and brings me the nappy himself when he needs to go! I am sorry that i don't really have any advice for you but I just wanted to let you know that your not alone and that in time your daughter will get it sooner or later. Aime, how old is your dd? You didn't mention it in your post. Does dd do pee in her potty? Best of luck. Estelle, Ireland.Amie <amiedawn1@...> wrote: Did anyone experience more difficulties in potty training your HFA/ASD children? Does it take longer or are there any tricks that you used that worked well in regards to sensory children?I have been trying with my daughter for a year now, and each time I think we are getting close she starts holding in her bowel movements and refusing to go to the bathroom so I have to back off until that cycle ends. Very frustrating, and the only advice I have from the pediatrician is to "not push it", give her Apricot nectar and "P" fruits (Peach, pear, prune, etc) and not to worry as this is a phase that will pass. How long of a phase can it be!-Amie

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[Guest guest]

Thank you to everyone who posted. Even though it seems like there are

no " magic cures " I appreciate knowing that I am not alone in dealing

with this.

My Daughter will be 3 in a few weeks. I know I started a little young

with the potty training, but she hates her dirty diapers so much I

thought it would be easy to train her (one of her first words

was " Clean " as in " I need clean pants " ), instead she just learned to

hold it in...sigh...

I have gotten her to have a few bowel movements on the potty,

although only when I catch her trying to keep it in and I pick her

up, stripping her as we go, and plop her down on the potty before

she " squeezes " it to far back up. Needless to say she is not happy

with that and usually ends up screaming at me the entire time, but

seems to be relieved and suprised when it is out and over.

I have tried the " big girl underwear " , cool alert training pants, a

specail object to play with, the potty dance, stickers, stamps,

reward charts, warm bath, roll playing with her dolls, etc. I had run

out of ideas.

The bowel retention really bothers me, and the pediatricain seems so

unconcerned about it. It sounds like it is a common problem though,

and I really should try and not worry so much. Have any of you who

have children with this experianced any medical problems due to the

bowel retention?

A lot of preschools in this area will not take children who are not

potty trained, and I want to work on this as her speech therapists

say that socailization is so important to her right now. Patience is

a virtue I know, but sometimes it is difficult

-Amie

[Guest guest]

Oh Amie

Our dd's sound so similar!

We are in the process of Potty Training with our little one and are dealing with the retention issues also. That actually began earlier whenever we mention what she was doing (trying to get her to realize it and go potty) she would and still does retain. We have had to do more enemas than I care to remember...

She is also due to start a pre-school program in August...hope we are able to!

Looking for ideas also...

- C.A.E.P.Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID

( ) Re: Potty Training

Thank you to everyone who posted. Even though it seems like there are no "magic cures" I appreciate knowing that I am not alone in dealing with this. My Daughter will be 3 in a few weeks. I know I started a little young with the potty training, but she hates her dirty diapers so much I thought it would be easy to train her (one of her first words was "Clean" as in "I need clean pants"), instead she just learned to hold it in...sigh...I have gotten her to have a few bowel movements on the potty, although only when I catch her trying to keep it in and I pick her up, stripping her as we go, and plop her down on the potty before she "squeezes" it to far back up. Needless to say she is not happy with that and usually ends up screaming at me the entire time, but seems to be relieved and suprised when it is out and over. I have tried the "big girl underwear", cool alert training pants, a specail object to play with, the potty dance, stickers, stamps, reward charts, warm bath, roll playing with her dolls, etc. I had run out of ideas.The bowel retention really bothers me, and the pediatricain seems so unconcerned about it. It sounds like it is a common problem though, and I really should try and not worry so much. Have any of you who have children with this experianced any medical problems due to the bowel retention? A lot of preschools in this area will not take children who are not potty trained, and I want to work on this as her speech therapists say that socailization is so important to her right now. Patience is a virtue I know, but sometimes it is difficult -Amie

[Guest guest]

My son is 6 and 4 months and just know starting to get through the night without wetting the bed...

-------------- Original message from April Sunderlin <aprilsunderlin26@...>: --------------

Amie,

my son was 5 years before he was potty trined! I feel for you! He did and still does hold his bowels. His bottom will bleed fro mmaking himself constipated. When i see that hes got a sore botton I givehim pickles and black olives! He loves them and they loosen him up so I just let him eat as much as it takes for him to go!! it's frustrating cause they can't tell you!! When it finally happened I was told to take the goodnights(pull ups)away. when he was told no more diapers then he just started to go potty. It was an exciting experience for him and us! Let me know how it goes!!!! Hang in there!

AprilAmie <amiedawn1 > wrote:

Did anyone experience more difficulties in potty training your HFA/ASD children? Does it take longer or are there any tricks that you used that worked well in regards to sensory children?I have been trying with my daughter for a year now, and each time I think we are getting close she starts holding in her bowel movements and refusing to go to the bathroom so I have to back off until that cycle ends. Very frustrating, and the only advice I have from the pediatrician is to "not push it", give her Apricot nectar and "P" fruits (Peach, pear, prune, etc) and not to worry as this is a phase that will pass. How long of a phase can it be!-Amie

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

From: Amie <amiedawn1@...>

Date: 2007/05/06 Sun AM 12:55:37 CDT

Subject: ( ) Re: Potty Training

I was told to let go of it after my daughter was 3 and still wasn't going number

2. She finally went at 3.5 and was completely trained after that. I think the

potty and the food thing are just up to them..I don't think many of our

interventions as parents do anything. Many of my friends at the time had their

kids " trained " at 2.5 using M & Ms or whatever, but they went on to have accidents

for a year or more. Delia never had an accident after 3.5 and was completely dry

all night.

Thank you to everyone who posted. Even though it seems like there are

no " magic cures " I appreciate knowing that I am not alone in dealing

with this.

My Daughter will be 3 in a few weeks. I know I started a little young

with the potty training, but she hates her dirty diapers so much I

thought it would be easy to train her (one of her first words

was " Clean " as in " I need clean pants " ), instead she just learned to

hold it in...sigh...

I have gotten her to have a few bowel movements on the potty,

although only when I catch her trying to keep it in and I pick her

up, stripping her as we go, and plop her down on the potty before

she " squeezes " it to far back up. Needless to say she is not happy

with that and usually ends up screaming at me the entire time, but

seems to be relieved and suprised when it is out and over.

I have tried the " big girl underwear " , cool alert training pants, a

specail object to play with, the potty dance, stickers, stamps,

reward charts, warm bath, roll playing with her dolls, etc. I had run

out of ideas.

The bowel retention really bothers me, and the pediatricain seems so

unconcerned about it. It sounds like it is a common problem though,

and I really should try and not worry so much. Have any of you who

have children with this experianced any medical problems due to the

bowel retention?

A lot of preschools in this area will not take children who are not

potty trained, and I want to work on this as her speech therapists

say that socailization is so important to her right now. Patience is

a virtue I know, but sometimes it is difficult

-Amie

" I must have walked ten million miles

Must have walked ten million miles

Wore some shoes that weren't my style

Fell into the rank and file

So just say I was here a while

A fool in search of your sweet smile

Ten million miles "

~Patty ~

[Guest guest]

I'm somewhat new at this and someone may have suggested this already but when I had trouble with my son I went down to the dollar store and bought all kinds of little toys, wrapped them up in very bright colored paper and put them in a big wicker basket that I kept in the bathroom. Everytime we did what we needed to do my son got to pick one little gift, unwrapped it and we had no more fussing. May be worth a try. BAmie <amiedawn1@...> wrote: Thank you to everyone who posted. Even though it seems like there are no

"magic cures" I appreciate knowing that I am not alone in dealing with this. My Daughter will be 3 in a few weeks. I know I started a little young with the potty training, but she hates her dirty diapers so much I thought it would be easy to train her (one of her first words was "Clean" as in "I need clean pants"), instead she just learned to hold it in...sigh...I have gotten her to have a few bowel movements on the potty, although only when I catch her trying to keep it in and I pick her up, stripping her as we go, and plop her down on the potty before she "squeezes" it to far back up. Needless to say she is not happy with that and usually ends up screaming at me the entire time, but seems to be relieved and suprised when it is out and over. I have tried the "big girl underwear", cool alert training pants, a specail object to play with, the potty dance, stickers, stamps, reward charts, warm bath, roll playing

with her dolls, etc. I had run out of ideas.The bowel retention really bothers me, and the pediatricain seems so unconcerned about it. It sounds like it is a common problem though, and I really should try and not worry so much. Have any of you who have children with this experianced any medical problems due to the bowel retention? A lot of preschools in this area will not take children who are not potty trained, and I want to work on this as her speech therapists say that socailization is so important to her right now. Patience is a virtue I know, but sometimes it is difficult -Amie

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[Guest guest]

I didn't have a probelm with potty training my daughter, but she still has accidents at night. and she is 6. Do other people have issues like this with their kids?

Cheryl

( ) Potty Training

Does AS make it a little harder to potty train?

[Guest guest]

My son is 10 and has accidents almost every night. We try limiting liquids after 6 and that seems to help, but not all the time. I want to try this Be-Dry from Natives Remedies.

Has anyone tried their products?

Ide

( ) Potty Training

Does AS make it a little harder to potty train?

Never miss a thing. Make your homepage.

[Guest guest]

I think it does. My son has been dry at night since age three but wasn't dry during the day until a few months after his fourth birthday. He is now six and has started having daytime accidents again. Still dry all night though.

( ) Potty Training

Does AS make it a little harder to potty train?

[Guest guest]

Hi Ide,

My son was 8 and still wetting the bed every night. We used a

bedwetting alarm and after only one week wearing the alarm, he never

wet the bed at night again. It's a SleepDry alarm by Star Child

Labs at the following link:

http://www.grogans.com/servlet/shop?cmd=I & id=STARSLEEPDRY

It does cost about $54 but in my opinion was well worth it for him

not to be wetting the bad at night anymore.

>

> My son is 10 and has accidents almost every night. We try

limiting liquids after 6 and that seems to help, but not all the

time. I want to try this Be-Dry from Natives Remedies.

>

> Has anyone tried their products?

>

> Ide

>

>

> ( ) Potty Training

>

>

> Does AS make it a little harder to potty train?

>

>

>

>

>

>

_____________________________________________________________________

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> Looking for last minute shopping deals?

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[Guest guest]

-Our son quit wetting the bed a couple weeks ago and he is 9.5. We

quit giving him milk at bedtime. My husband says when he himself

drinks milk at bedtime, he has to get up to go to the bathroom before

morning. we tested it. The weird thing was that my aunt (in her 70s)

has had a long time problem of having to get up at night and she moved

milk from bedtime to earlier and she quit having to get up so much.

Hmmm Our daughter has been on potato milk since she was 2.5 - never

has had a bedwetting issue. I don't drink it at bedtime and i don't

have to get up.

Regina

[Guest guest]

Yvette,

I wish I could remember for sure. The more I trhnk about it, the more I think

that Wheeler may not have given a reason for why kids with PDD are the

hardest to potty train.

Marlowe

[Guest guest]

On Apr 2, 5:39am, " tpalvado " wrote:

}

} Anyone else having trouble? n is 4 and is still not pt. I think a lot =

} of people blame me for it because I'm his mother. He cannot communicate and=

} that's why he's not going. He can't tell me when he has to go. I don't thi=

} nk he can tell but I'm not sure because of his communication troubles. Also=

} , every day he tells me that his tummy hurts. Some days he's constipated an=

} d has trouble going and other days he goes 3-4 times a day. Should I put hi=

} m on a gluten free diet? I am thinking about it. I just want to get others =

} opinions first. Does it work? I am hoping that they will provide GF food at=

} his school. He goes to a day clinic. It's just like a regular school only =

} he takes his ST, PT, OT, and his Mental Health Therapy there. I am very new=

} at this and don't know what I'm doing or what to do to help him.

First off, late potty training is very common in our kids. Don't feel

bad and don't let anyone blame you. Do some googling and you will

find books and information.

The tummy hurting, being constipated some days and going a lot on others

sounds like an issue you should bring up with his doctor. I would have it

checked out before starting a drastic diet. Some pepple do feel the diet

helps, but it is a huge commitment and pretty hard to live with.

Willa

[Guest guest]

Hi Tina

You are definately NOT alone on the potty training issue! If you do a message

" SEARCH " here on the group site for " potty training " , you will see many mails

coming up with similar problems. I am sure it is a fairly common problem in kids

with ASD. All my friends from 's school have had problems with their boys

and the potty. only started using the lawn for a wee at 3 years old and

gradually moved on to the potty and later toilet. The bowel movements was a

completely different story! He only started using the toilet for those in March

this year and he turned 5 this June. He insisted on having a nappy for the BM

and as soon as he was done he would come to have the nappy taken off. At night

he wore a night nappy, so when I refused to put a nappy on him during the day he

waited until night to have his BM. He suffered from irregular BM and

constipation, so we sorted that out first by giving him a mild laxative,

lactulose, 10 ml twice daily every day. We also started using a probiotic powder

in his milk once a day. He started having daily BM (in a nappy). That's when I

decided to take away the night nappy. He wet his bed once, and never again after

that. As for the BM, I bought Buzz lightyear and Woody figurines and kept them

in dad's cupboard. is besotted with Toy story. He was allowed to hold and

look at the toys, still in their boxes, for about 5 minutes and then I would put

them away. Cruel, I know, and I have not read about it in any potty trainig book

(and I have read most of those!), but we were at our wits end!I explained in

various ways that if he did a poop on the toilet he could take the toys out the

boxes and play with them forever and he could keep them in his room with his

other toys. We still had to use a nappy when things got really bad and he could

not hold it and cried and danced around, but we kept trying.With the laxative

making the stools soft, and the motivation to get Buzz and Woody, he eventually

gave in. He cried a lot and seemed so scared and I felt like the worst mother on

earth, but he now has daily BM. He will not go to public toilets for a BM, but

has recently started using the toilet at grans house as well. One step at a

time! He did use the toilet when we stayed in our holiday home recently, and was

okay with that as well. Annika, his little sister, started potty training at age

22 months, all by herself. Because of I was not going to rush her either,

but she just did it herself! I think seeing his baby sister do her BM on the

toilet also helped.And as disgusting as it may seem, we called him to watch when

any of the other family members had BMs. He was very interested in the process

and wanted to observe it all. I also made a " social story " with pictures of a

toilet, a potty, a nappy, a person standing to wee, a person sitting on the

toilet, a picture showing what looks like poop in the toilet, toilet paper,a

person washing hands. We told the story of how was a big boy and did not

like a dirty nappy on his bum anymore. He was going to stand and wee, and if he

feels a poop in his tummy he was going to sit and do it on the toilet. He would

tell the story to us using the picture story even before he attempted a BM on

the toilet. I think the story helped motivate him to really be that big boy, and

it also took away the uncertainty of what exactly is involved in going to the

toilet for a BM.

Well, that's how we did it eventually, but I would suggest you do the message

search as many other parents describe what worked for them and their particular

situation. Every child is different and you will have to figure out and do what

works for n.

The main thing is to be patient, remember many have walked that road and let him

set the pace.

Regards

Mirinda (mom to , 5, ASD and Annika, 2, NT)

South Africa

>

> Anyone else having trouble? n is 4 and is still not pt. I think a lot of

people blame me for it because I'm his mother. He cannot communicate and that's

why he's not going. He can't tell me when he has to go. I don't think he can

tell but I'm not sure because of his communication troubles. Also, every day he

tells me that his tummy hurts. Some days he's constipated and has trouble going

and other days he goes 3-4 times a day. Should I put him on a gluten free diet?

I am thinking about it. I just want to get others opinions first. Does it work?

I am hoping that they will provide GF food at his school. He goes to a day

clinic. It's just like a regular school only he takes his ST, PT, OT, and his

Mental Health Therapy there. I am very new at this and don't know what I'm doing

or what to do to help him.

>

>

> Tina

>

[Guest guest]

Tina,

Welcome to the group! Both of my two ds's (hfa) were late potty training so you are far from alone!! The first time through, I did stress out some and heard the comments from other people. But like someone else said, just tell them it's private and move on. I used to say to myself, "He won't graduate in pampers" and I hoped I was right. lol. And I was!

A few ideas I have thought of: Make some picture cards about going potty. We used these with a little guy I worked with who is non-verbal. The mom stuck the cards on velcro and put one on the fridge and in front of the bathroom and bedroom. So if he had to go, all he needed to do was bring us the picture card. You can also make up a "social story" about going potty - the process. I did this with my younger ds - I took pictures of him going through the process and put them in a little pocket sized photo album. Then I wrote little captions (he could read) about it. So we read through that from time to time. Alternately, you could use drawings or get pictures off the internet to use. With my older ds, what seemed to work best was just being calm and I always told him, "Oh well, maybe next time!" or "When you get to be a big boy, you will use the potty like a big boy!" and things like that. I think it helped keep him focused and not upset that he didn't make it. Also, with the little guy I worked with, we made sure to take him to the bathroom on a regular basis and at one point, it was every hour.

As for the diet, it would be too difficult to say if it would help with his tummy troubles. You should first see a doctor and determine what is going on exactly. If he has a poor limited diet, it could be related to that and you would want to talk to the nutritionist and try ways to even things out there. If he is allergic to dairy or other products, then the doc can work with you to figure that out and eliminate foods to see if it will help.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Potty Training

Anyone else having trouble? n is 4 and is still not pt. I think a lot of people blame me for it because I'm his mother. He cannot communicate and that's why he's not going. He can't tell me when he has to go. I don't think he can tell but I'm not sure because of his communication troubles. Also, every day he tells me that his tummy hurts. Some days he's constipated and has trouble going and other days he goes 3-4 times a day. Should I put him on a gluten free diet? I am thinking about it. I just want to get others opinions first. Does it work? I am hoping that they will provide GF food at his school. He goes to a day clinic. It's just like a regular school only he takes his ST, PT, OT, and his Mental Health Therapy there. I am very new at this and don't know what I'm doing or what to do to help him.

Tina