Apraxia and Sleep Apnea

[Guest guest]

Gretchen-

Yes-- many kids wit Apraxia DO have Sleep Apnea. I don't know if I want

to say that it's a " common " thing with Apraxics, but it is pretty widely

known for our kids and it being a problem for them.

There were recently some articles out -- and if our Sleep Specialist knows

about it-- it's definitely an issue.

My son Asa, who is just turned 5, was dx'd with a " mild " Sleep apnea-- but

he has a weird case the Dr said because even though it's medically termed

as " mild " , he has an extremely severe affect of this mild apnea. She doesn't

know how this child survives with the sleep he's getting, basically. The

way that it's treated is through different methods, but the more common way

is to have the adenoids and tonsils totally removed.

The thing about Apraxics and apnea, is that it has to do with the low

tone-- and with apnea, the neck muscles relax to the point that it cuts off the

air supply. With kids who already have low tone, this becomes a pretty huge

problem obviously. Now-- the tonsils and adenoids can be of a perfectly

normal size (like my son's are) and this wouldn't cause a problem for

TYPICAL kids, but for the Apraxic kids with low tone, even a NORMAL sized set

of

adenoids and tonsils will cause breathing issues or apnea problems as they

sleep.

So picture how bad it can be with an Apraxic who has LARGER adenoids and

tonsils-- and you get the picture.

They are talking about removing my son's and his are " normal " sized--but

that's how much trouble it causes him. Others may not have as bad of an

effect on their sleeping-- so it's a case by case thing.

Find a good Sleep specialist-- get a sleep study done, until then, I

wouldn't " worry " about it, but know that Apnea is definitely a problem for our

kids, and it needs to be checked out- ESPECIALLY if your son has enlarged

adenoids and tonsils already!!!

Bek

In a message dated 7/15/2009 9:40:32 A.M. Eastern Daylight Time,

gretchie9@... writes:

Hello friends!

My son is almost 4 and was diagnosed with apraxia last year. Since

then, he's been in therapy 3 times a week. We also have visited a

developmental pediatrician and an ENT. We went to the ENT because of the way

he

often talks out of his nose, and because he wasn't sleeping well (often up

3, 4, and 5 times a night). The ENT recommended we remove his tonsils and

partially shave his adenoids because they were both enlarged. Following the

surgery in January, we didn't see much improvement in speech, but saw a

dramatic improvement in sleep patterns. Until recently that is. Coop is

back to his old ways - getting up at all hours of the night.

I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues

that can occur with apraxia, including sleep apnea at this year's CASANA

conference. Has anyone ever heard of this? Or has their child been

affected by it? I have no info on it, but it worries me upon seeing this that

might have sleep apnea along with his apraxia. I don't even know how

doctor's treat sleep apnea.

Thanks for the help!

Gretchen

(Columbus, OH_

[Guest guest]

-

When we were checking into Asa's sleep issues, the Sleep Specialist had

on hand a hard copy of an article from one of the medical journals (wishing

I knew which one) and it was all to do with Apraxics and Sleep Apnea and how

it is a problem for many Apraxics-- etc

I'd have to find out where it was from-- but she's a totally " medical " Dr,

and doesn't delve into things that are out of the box, so for HER to know

about it as a medically thinking Dr-- I was surprised because it wouldn't be

something I would normally see in her.

Bek

In a message dated 7/15/2009 10:44:19 A.M. Eastern Daylight Time,

kiddietalk@... writes:

If you check the archives here under the word 'apnea' there are around 300

messages, some which point to the parent's sleep apnea. If you put in the

words apraxia and apnea you get around 100 messages, and again not all

relate to the child and some are from the same person (and Gretchen I think you

posted the article about this back in Feb 2009)

We have almost ten thousand members and have been around for over a

decade. Yes there are children with apraxia and apnea, but in my opinion we

just

haven't heard enough about it here for me to think that a child is a risk

for one due to the other. There of course will be a percentage of children

in this group who have apnea, and a percentage out of this group who have

apnea. To me the amount that talk about it here fall within the norm.

Here's a few articles on it:

" Although snoring is a common symptom in children with obstructive sleep

apnea, it is important to remember that between 10-20 percent of normal

children snore (primary snoring) on a regular or intermittent basis. "

_http://pediatrics.http://pedhttp://pehttp://pediatrhtt_

(http://pediatrics.about.com/cs/sleep/a/sleep_apnea.htm)

" Approximately 10 percent of children are reported to snore. Ten percent

of these children (one percent of the total pediatric population) have

obstructive sleep apnea. "

_http://www.entnet.http://www.entnehttp://www.ehttp://www.http://www.ehtt_

(http://www.entnet.org/HealthInformation/Could-Child-Have-Sleep-Apnea.cfm)

Too bad these doctors didn't take the time to study the amount of children

with apraxia who have co existing hypotonia, sensory integration

dysfunction, and or motor planning issues in other areas of their body. I

didn't

read the original paper -did they Gretchen?

=====

[Guest guest]

Hello friends!

 

My son  is almost 4 and was diagnosed with apraxia last year.  Since then,

he's been in therapy 3 times a week.  We also have visited a developmental

pediatrician and an ENT.  We went to the ENT because of the way he often talks

out of his nose, and because he wasn't sleeping well (often up 3, 4, and 5 times

a night).  The ENT recommended we remove his tonsils and partially shave his

adenoids because they were both enlarged.  Following the surgery in January, we

didn't see much improvement in speech, but saw a dramatic improvement in sleep

patterns.  Until recently that is.  Coop is back to his old ways - getting up at

all hours of the night.

 

I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues that

can occur with apraxia, including sleep apnea at this year's CASANA conference. 

Has anyone ever heard of this?  Or has their child been affected by it?  I have

no info on it, but it worries me upon seeing this that  might have sleep

apnea along with his apraxia.   I don't even know how doctor's treat sleep

apnea. 

 

Thanks for the help!

 

Gretchen

(Columbus, OH_

[Guest guest]

If you check the archives here under the word 'apnea' there are around 300

messages, some which point to the parent's sleep apnea. If you put in the words

apraxia and apnea you get around 100 messages, and again not all relate to the

child and some are from the same person (and Gretchen I think you posted the

article about this back in Feb 2009)

We have almost ten thousand members and have been around for over a decade. Yes

there are children with apraxia and apnea, but in my opinion we just haven't

heard enough about it here for me to think that a child is a risk for one due to

the other. There of course will be a percentage of children in this group who

have apnea, and a percentage out of this group who have apnea. To me the amount

that talk about it here fall within the norm.

Here's a few articles on it:

" Although snoring is a common symptom in children with obstructive sleep apnea,

it is important to remember that between 10-20 percent of normal children snore

(primary snoring) on a regular or intermittent basis. "

http://pediatrics.about.com/cs/sleep/a/sleep_apnea.htm

" Approximately 10 percent of children are reported to snore. Ten percent of

these children (one percent of the total pediatric population) have obstructive

sleep apnea. "

http://www.entnet.org/HealthInformation/Could-Child-Have-Sleep-Apnea.cfm

Too bad these doctors didn't take the time to study the amount of children with

apraxia who have co existing hypotonia, sensory integration dysfunction, and or

motor planning issues in other areas of their body. I didn't read the original

paper -did they Gretchen?

=====

[Guest guest]

Hi Gretchen -

 

I don't know if there's a relationship between apraxia and sleep apnea, but I do

know that my son, Josh, was diagnosed with sleep apnea when he was about 4 weeks

old (he's 11 years old now) - he decided to stop breathing while taking a bottle

- pretty scary to have paramedics do CPR on the front lawn!  Anyhow, at that

time, he was treated with caffeine (the equivalent of about a small drop in the

bottom of a coffee cup), went right on rice cereal to counter any ulcerative

effects of the caffeine, and was on a sleep monitor until he was about 8 or 9

months old and things seemed to have resolved in re the apnea.  Obviously, he

wasn't speaking at that time.  He did get a lot of sounds going, lots of

consonant sounds, then had a febrile seizure when he was about 16 months old

(kept having ear infections and one clearly got really bad!) and lost all his

sounds.  At a little over 4yo, he was using " ba " for everything. "   His speech

therapist had already

suggested that apraxia was the culprit and that was confirmed by a neuro when

he was about 3.5yo.  That's when I joined this group, started Josh on fish oils,

and he was saying words (hard to understand but definitely words) about 3-4

weeks after starting the oils.

 

So, I don't know if his apraxia was related to the sepsis he was born with

(blood infection from birth - body temp went down to 93.6 at 6 days old!), the

apnea, the febrile seizure, or something else.  Don't know if this helped you at

all -

 

Sherry and Josh

[Guest guest]

Yes, I agree that removal of the tonsils/adenoids may  help any child with

apnea.  A year ago this past January, our ENT told me that Josh needed his

tonsils out because he kept getting sore throats, etc., and the tonsils were

slightly enlarged.  At the time, the ENT asked if Josh had any trouble sleeping

- and he really did not.  He slept (and still sleeps) like a log, he does not

wake during the nigh except on very rare occasionst, he snored but his breathing

is fine (according to sleep study), but the ENT said he might sleep even better

and deeper without the tonsils and adenoids.  I have not seen a difference in

sleep - he still goes to bed by 8:00, he does not snore quite as much but he

still does snore, and he sleeps through to 5:30.  Daytime, he sometimes takes a

snooze, most days goes through without snoozing (depends on what else he is

doing or had done the day before - low muscle tone/fatigue issues).  I have read

and heard that you

really don't ever get rid of apnea - so it's something I keep my eye on since

he was an infant and we got the diagnosis of apnea.  But as for the

tonsillectomy/adenoidectomy affecting it - haven't noticed any change in sleep

or speech (ENT said he thought Josh had a nasal quality to his voice but I

really had not ever noticed it).

 

Sherry and Josh

From: tbniesh@... <tbniesh@...>

Subject: Re: [ ] Apraxia and Sleep Apnea

Date: Wednesday, July 15, 2009, 10:55 AM

Gretchen-

Yes-- many kids wit Apraxia DO have Sleep Apnea. I don't know if I want

to say that it's a " common " thing with Apraxics, but it is pretty widely

known for our kids and it being a problem for them.

There were recently some articles out -- and if our Sleep Specialist knows

about it-- it's definitely an issue.

My son Asa, who is just turned 5, was dx'd with a " mild " Sleep apnea-- but

he has a weird case the Dr said because even though it's medically termed

as " mild " , he has an extremely severe affect of this mild apnea. She doesn't

know how this child survives with the sleep he's getting, basically. The

way that it's treated is through different methods, but the more common way

is to have the adenoids and tonsils totally removed.

The thing about Apraxics and apnea, is that it has to do with the low

tone-- and with apnea, the neck muscles relax to the point that it cuts off the

air supply. With kids who already have low tone, this becomes a pretty huge

problem obviously. Now-- the tonsils and adenoids can be of a perfectly

normal size (like my son's are) and this wouldn't cause a problem for

TYPICAL kids, but for the Apraxic kids with low tone, even a NORMAL sized set of

adenoids and tonsils will cause breathing issues or apnea problems as they

sleep.

So picture how bad it can be with an Apraxic who has LARGER adenoids and

tonsils-- and you get the picture.

They are talking about removing my son's and his are " normal " sized--but

that's how much trouble it causes him. Others may not have as bad of an

effect on their sleeping-- so it's a case by case thing.

Find a good Sleep specialist-- get a sleep study done, until then, I

wouldn't " worry " about it, but know that Apnea is definitely a problem for our

kids, and it needs to be checked out- ESPECIALLY if your son has enlarged

adenoids and tonsils already!!!

Bek

In a message dated 7/15/2009 9:40:32 A.M. Eastern Daylight Time,

gretchie9 (DOT) com writes:

Hello friends!

My son is almost 4 and was diagnosed with apraxia last year. Since

then, he's been in therapy 3 times a week. We also have visited a

developmental pediatrician and an ENT. We went to the ENT because of the way he

often talks out of his nose, and because he wasn't sleeping well (often up

3, 4, and 5 times a night). The ENT recommended we remove his tonsils and

partially shave his adenoids because they were both enlarged. Following the

surgery in January, we didn't see much improvement in speech, but saw a

dramatic improvement in sleep patterns. Until recently that is. Coop is

back to his old ways - getting up at all hours of the night.

I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues

that can occur with apraxia, including sleep apnea at this year's CASANA

conference. Has anyone ever heard of this? Or has their child been

affected by it? I have no info on it, but it worries me upon seeing this that

might have sleep apnea along with his apraxia. I don't even know how

doctor's treat sleep apnea.

Thanks for the help!

Gretchen

(Columbus, OH_

[Guest guest]

Hi Gretchen and everyone,

 

My son who is 10 (11 on the 31st) has severe oral and verbal dyspraxia and

severe asthma has sleep apnea from a toddler to present. From the time was

born to age 8 yrs he had the worst sleep issues at night. He was up all hrs of

the night with frequent wakings. He use to wake up with severe gasping for

breath and severe coughing spells in the middle of the night. We thought

(doctors and I) that he was waking from sleep having  severe asthma attacks for

some reason. He had constant croup episodes also during this time. After many

different asthma meds and oral steriods to nebulizer and inhalers used. Nothing

worked to relieve these episodes. They worked short term  for a while.

Also was a very loud and noisy snorer.

 

I finally got an appointment with an ENT  who ordered a ton of tests. Turns out

that has sleep apnea which was causing his air way to close while laying

down. Resulting in the gasping and coughing episodes. They actually were very

similar to asthma attacks . The ent sugested that since had enlarged

tonsils and adenoids that we remove them.

 

I had them removed in April 2006. Turns out that s tonsils were green with

infection very bad one worst case the ENT had ever seen (he is very good but is

known to do tonsil and adenoiod surgery he does a lot of them ). The cause of

all the croup problems were caused by this horrible infection in his throat so

he claimed. ( Have not had one episode of croup since). Adenoids were a problem

too. The weird thing with was that had never had a strep throat in his

life . Just tons of respiratory stuff very sickly child.

 

Now the good news is that has not had one episode of sleep apnea related

issues sinc ehe had them removed. No more gasping for air (except when asthma

related) and no more middle of night coughing episodes unless sick. No more

croup not one bout since either. His speech has improved dramatically also. Much

clearer now. Coming along nicely actually but still very severe .

 

This just one experience in many. I wish you the best of luck. I was able to

help.

 

Jeanne and

NH

From: gretchie9@... <gretchie9@...>

Subject: [ ] Apraxia and Sleep Apnea

Date: Wednesday, July 15, 2009, 8:32 AM

Hello friends!

 

My son  is almost 4 and was diagnosed with apraxia last year.  Since then,

he's been in therapy 3 times a week.  We also have visited a developmental

pediatrician and an ENT.  We went to the ENT because of the way he often talks

out of his nose, and because he wasn't sleeping well (often up 3, 4, and 5 times

a night).  The ENT recommended we remove his tonsils and partially shave his

adenoids because they were both enlarged.  Following the surgery in January, we

didn't see much improvement in speech, but saw a dramatic improvement in sleep

patterns.  Until recently that is.  Coop is back to his old ways - getting up at

all hours of the night.

 

I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues that

can occur with apraxia, including sleep apnea at this year's CASANA conference. 

Has anyone ever heard of this?  Or has their child been affected by it?  I have

no info on it, but it worries me upon seeing this that  might have sleep

apnea along with his apraxia.   I don't even know how doctor's treat sleep

apnea. 

 

Thanks for the help!

 

Gretchen

(Columbus, OH_

[Guest guest]

I have a 3 year old that cam home from the nicu on an apnea monitor. She was

taken off it at a year when she started pulling the wires off. We also did tubes

in ears and adnoids out at the same time just because they were large. My

daughter is a restless sleeper. Toss' and turns through the night and usually

wakes up at least 1 time between 1am and 3 am. I just recenlty went to see a Dr.

in Florida that works with kids with issues from Autism to different syndromes.

He spent 2 hours with us and put my daughter on a few supplements to help with

tone and speech. One of them being melotonin for sleep. He felt she wasn' t

getting enough rem sleep so we give her 1 mg 20 minutes b4 bed. We just started

tonight so I don't know if it will work or not. We are also in Florida doing a 3

week intense therapy program at therapeeds so she might sleep well just from

pure exhaustion.

--------- Re: [ ] Apraxia and Sleep Apnea

Date: Wednesday, July 15, 2009, 10:55 AM

Gretchen-

Yes-- many kids wit Apraxia DO have Sleep Apnea. I don't know if I want

to say that it's a " common " thing with Apraxics, but it is pretty widely

known for our kids and it being a problem for them.

There were recently some articles out -- and if our Sleep Specialist knows

about it-- it's definitely an issue.

My son Asa, who is just turned 5, was dx'd with a " mild " Sleep apnea-- but

he has a weird case the Dr said because even though it's medically termed

as " mild " , he has an extremely severe affect of this mild apnea. She doesn't

know how this child survives with the sleep he's getting, basically. The

way that it's treated is through different methods, but the more common way

is to have the adenoids and tonsils totally removed.

The thing about Apraxics and apnea, is that it has to do with the low

tone-- and with apnea, the neck muscles relax to the point that it cuts off the

air supply. With kids who already have low tone, this becomes a pretty huge

problem obviously. Now-- the tonsils and adenoids can be of a perfectly

normal size (like my son's are) and this wouldn't cause a problem for

TYPICAL kids, but for the Apraxic kids with low tone, even a NORMAL sized set of

adenoids and tonsils will cause breathing issues or apnea problems as they

sleep.

So picture how bad it can be with an Apraxic who has LARGER adenoids and

tonsils-- and you get the picture.

They are talking about removing my son's and his are " normal " sized--but

that's how much trouble it causes him. Others may not have as bad of an

effect on their sleeping-- so it's a case by case thing.

Find a good Sleep specialist-- get a sleep study done, until then, I

wouldn't " worry " about it, but know that Apnea is definitely a problem for our

kids, and it needs to be checked out- ESPECIALLY if your son has enlarged

adenoids and tonsils already!!!

Bek

In a message dated 7/15/2009 9:40:32 A.M. Eastern Daylight Time,

gretchie9 (DOT) com writes:

Hello friends!

My son is almost 4 and was diagnosed with apraxia last year. Since

then, he's been in therapy 3 times a week. We also have visited a

developmental pediatrician and an ENT. We went to the ENT because of the way he

often talks out of his nose, and because he wasn't sleeping well (often up

3, 4, and 5 times a night). The ENT recommended we remove his tonsils and

partially shave his adenoids because they were both enlarged. Following the

surgery in January, we didn't see much improvement in speech, but saw a

dramatic improvement in sleep patterns. Until recently that is. Coop is

back to his old ways - getting up at all hours of the night.

I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues

that can occur with apraxia, including sleep apnea at this year's CASANA

conference. Has anyone ever heard of this? Or has their child been

affected by it? I have no info on it, but it worries me upon seeing this that

might have sleep apnea along with his apraxia. I don't even know how

doctor's treat sleep apnea.

Thanks for the help!

Gretchen

(Columbus, OH_

[Guest guest]

Melatonin has been a life saver for us! Our developmental pediatrician suggested

it. It doesn't keep him asleep, just helps put him to sleep. They do have

extended release tablets, but he is too young for those. Occasionally when he

wakes up in the middle of the night I might give him 0.5mg to 1 mg more. (He

does NOT have sleep apnea, if he did, I wouldn't be giving him any type of

sedative).

-Jenna

>

> I have a 3 year old that cam home from the nicu on an apnea monitor. She was

taken off it at a year when she started pulling the wires off. We also did tubes

in ears and adnoids out at the same time just because they were large. My

daughter is a restless sleeper. Toss' and turns through the night and usually

wakes up at least 1 time between 1am and 3 am. I just recenlty went to see a Dr.

in Florida that works with kids with issues from Autism to different syndromes.

He spent 2 hours with us and put my daughter on a few supplements to help with

tone and speech. One of them being melotonin for sleep. He felt she wasn' t

getting enough rem sleep so we give her 1 mg 20 minutes b4 bed. We just started

tonight so I don't know if it will work or not. We are also in Florida doing a 3

week intense therapy program at therapeeds so she might sleep well just from

pure exhaustion.

> -------------- Original message from sherry silvern <srsilvern@...>:

--------------

[Guest guest]

Does anyone know where an article is that covers the medical issues related to

apraxia. The original note says that Dr. Amy Newmeyer and Sue Caspari covered

it in meetings. What are the details? What else should I look out for?

Also I have asked my doctor for a sleep study because of s restless

sleep and have not been able to convince him. Any suggestions or research to

help my convince the doctor? What do I do next?

Thank you!

>

> From: tbniesh@... <tbniesh@...>

> Subject: Re: [ ] Apraxia and Sleep Apnea

>

> Date: Wednesday, July 15, 2009, 10:55 AM

>

> Gretchen-

>

> Yes-- many kids wit Apraxia DO have Sleep Apnea. I don't know if I want

> to say that it's a " common " thing with Apraxics, but it is pretty widely

> known for our kids and it being a problem for them.

> There were recently some articles out -- and if our Sleep Specialist knows

> about it-- it's definitely an issue.

>

> My son Asa, who is just turned 5, was dx'd with a " mild " Sleep apnea-- but

> he has a weird case the Dr said because even though it's medically termed

> as " mild " , he has an extremely severe affect of this mild apnea. She doesn't

> know how this child survives with the sleep he's getting, basically. The

> way that it's treated is through different methods, but the more common way

> is to have the adenoids and tonsils totally removed.

>

> The thing about Apraxics and apnea, is that it has to do with the low

> tone-- and with apnea, the neck muscles relax to the point that it cuts off

the

> air supply. With kids who already have low tone, this becomes a pretty huge

> problem obviously. Now-- the tonsils and adenoids can be of a perfectly

> normal size (like my son's are) and this wouldn't cause a problem for

> TYPICAL kids, but for the Apraxic kids with low tone, even a NORMAL sized set

of

> adenoids and tonsils will cause breathing issues or apnea problems as they

> sleep.

> So picture how bad it can be with an Apraxic who has LARGER adenoids and

> tonsils-- and you get the picture.

>

> They are talking about removing my son's and his are " normal " sized--but

> that's how much trouble it causes him. Others may not have as bad of an

> effect on their sleeping-- so it's a case by case thing.

> Find a good Sleep specialist-- get a sleep study done, until then, I

> wouldn't " worry " about it, but know that Apnea is definitely a problem for our

> kids, and it needs to be checked out- ESPECIALLY if your son has enlarged

> adenoids and tonsils already!!!

>

> Bek

>

> In a message dated 7/15/2009 9:40:32 A.M. Eastern Daylight Time,

> gretchie9 (DOT) com writes:

>

> Hello friends!

>

> My son is almost 4 and was diagnosed with apraxia last year. Since

> then, he's been in therapy 3 times a week. We also have visited a

> developmental pediatrician and an ENT. We went to the ENT because of the way

he

> often talks out of his nose, and because he wasn't sleeping well (often up

> 3, 4, and 5 times a night). The ENT recommended we remove his tonsils and

> partially shave his adenoids because they were both enlarged. Following the

> surgery in January, we didn't see much improvement in speech, but saw a

> dramatic improvement in sleep patterns. Until recently that is. Coop is

> back to his old ways - getting up at all hours of the night.

>

> I heard that Dr. Amy Newmeyer and Sue Caspari talked about medical issues

> that can occur with apraxia, including sleep apnea at this year's CASANA

> conference. Has anyone ever heard of this? Or has their child been

> affected by it? I have no info on it, but it worries me upon seeing this that

> might have sleep apnea along with his apraxia. I don't even know how

> doctor's treat sleep apnea.

>

> Thanks for the help!

>

> Gretchen

> (Columbus, OH_

>

>

[Guest guest]

Unfortunately, Removal of tonsils and adenoids won't stop the snoring or the

apnea. It also won't keep the child from getting strep, which is omnipresent in

the throat anyways....adenoidectomy and tonsilectomy won't prevent the problems

and frequently they get worse.

For those who have had success, that is great.

[Guest guest]

-

You said that the snoring or apnea won't stop, but I just wanted to point

out that it's on an individual basis.

The apnea itself won't " go away " , but the SYMPTOMS of the apnea usually

does. The thing about Apraxics and Apnea, if the tonsils and adenoids are

too large for them on top of the fact that the muscles in the neck collapse as

they sleep-- these kids can't breath. Getting rid of those things usually

DO alleviate one part of the problem and help them breath b etter as they

sleep

Bek

In a message dated 7/20/2009 8:38:32 A.M. Eastern Daylight Time,

agirlnamedsuess@... writes:

Unfortunately, Removal of tonsils and adenoids won't stop the snoring or

the apnea. It also won't keep the child from getting strep, which is

omnipresent in the throat anyways....adenoideUnfortunately, Removal of tonsils

and

adenoids won't stop the snoring or the apn

For those who have had success, that is great.

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000009)

[Guest guest]

I have a son with speech apraxia who at 2.5 only had about 4 words. He snored

and was a restless sleeper. We had his tonsils and adenoids removed and within

3 weeks he began saying words and repeating and imitating everything. Now five

months later he has 100s of words and has begun speaking in sentences. I think

this had everything to do with the surgery. He has had speech therapy 4x per

week since 2 and only right after the surgery was any significant progress made.

We had a sleep study done and it revealed mild sleep apnea but nothing severe.

I don't trust those studies entirely because he was hooked up to so many wires

and was miserable, I can't imagine they got an accurate result. Now after the

surgery he sleeps quietly. I know this surgery was the best thing we could have

done for our son and that we can't begin to imagine the effect lack of good

sleep has on our children.

>

> -

>

> When we were checking into Asa's sleep issues, the Sleep Specialist had

> on hand a hard copy of an article from one of the medical journals (wishing

> I knew which one) and it was all to do with Apraxics and Sleep Apnea and how

> it is a problem for many Apraxics-- etc

>

> I'd have to find out where it was from-- but she's a totally " medical " Dr,

> and doesn't delve into things that are out of the box, so for HER to know

> about it as a medically thinking Dr-- I was surprised because it wouldn't be

> something I would normally see in her.

>

> Bek

>

>

> In a message dated 7/15/2009 10:44:19 A.M. Eastern Daylight Time,

> kiddietalk@... writes:

>

>

>

>

>

> If you check the archives here under the word 'apnea' there are around 300

> messages, some which point to the parent's sleep apnea. If you put in the

> words apraxia and apnea you get around 100 messages, and again not all

> relate to the child and some are from the same person (and Gretchen I think

you

> posted the article about this back in Feb 2009)

>

> We have almost ten thousand members and have been around for over a

> decade. Yes there are children with apraxia and apnea, but in my opinion we

just

> haven't heard enough about it here for me to think that a child is a risk

> for one due to the other. There of course will be a percentage of children

> in this group who have apnea, and a percentage out of this group who have

> apnea. To me the amount that talk about it here fall within the norm.

>

> Here's a few articles on it:

>

> " Although snoring is a common symptom in children with obstructive sleep

> apnea, it is important to remember that between 10-20 percent of normal

> children snore (primary snoring) on a regular or intermittent basis. "

>

> _http://pediatrics.http://pedhttp://pehttp://pediatrhtt_

> (http://pediatrics.about.com/cs/sleep/a/sleep_apnea.htm)

>

> " Approximately 10 percent of children are reported to snore. Ten percent

> of these children (one percent of the total pediatric population) have

> obstructive sleep apnea. "

> _http://www.entnet.http://www.entnehttp://www.ehttp://www.http://www.ehtt_

> (http://www.entnet.org/HealthInformation/Could-Child-Have-Sleep-Apnea.cfm)

>

> Too bad these doctors didn't take the time to study the amount of children

> with apraxia who have co existing hypotonia, sensory integration

> dysfunction, and or motor planning issues in other areas of their body. I

didn't

> read the original paper -did they Gretchen?

>

> =====

>

[Guest guest]

What a true success story about your son! Thank you so much for sharing.

My son will be exacting 2 1/2 on Wed. the 22nd, he has about 15 words and gets

ST 4x a week. He does not seem to have any sleep issues at all. Hearing your

story, I almost wish he had. Is it pretty common for children with apraxia to

get there tonsils and adenoids removed and to have such a HUGE improvement

after? If so, I am running to an E and T to have my son's removed! lol

Thanks again for sharing such a beautiful story.

Carolyn

________________________________

From: meredithlweiss <meredithlweiss@...>

Sent: Monday, July 20, 2009 2:01:56 PM

Subject: [ ] Re: Apraxia and Sleep Apnea

I have a son with speech apraxia who at 2.5 only had about 4 words. He snored

and was a restless sleeper. We had his tonsils and adenoids removed and within

3 weeks he began saying words and repeating and imitating everything. Now five

months later he has 100s of words and has begun speaking in sentences. I think

this had everything to do with the surgery. He has had speech therapy 4x per

week since 2 and only right after the surgery was any significant progress made.

We had a sleep study done and it revealed mild sleep apnea but nothing severe.

I don't trust those studies entirely because he was hooked up to so many wires

and was miserable, I can't imagine they got an accurate result. Now after the

surgery he sleeps quietly. I know this surgery was the best thing we could have

done for our son and that we can't begin to imagine the effect lack of good

sleep has on our children.

>

> -

>

> When we were checking into Asa's sleep issues, the Sleep Specialist had

> on hand a hard copy of an article from one of the medical journals (wishing

> I knew which one) and it was all to do with Apraxics and Sleep Apnea and how

> it is a problem for many Apraxics-- etc

>

> I'd have to find out where it was from-- but she's a totally " medical " Dr,

> and doesn't delve into things that are out of the box, so for HER to know

> about it as a medically thinking Dr-- I was surprised because it wouldn't be

> something I would normally see in her.

>

> Bek

>

>

> In a message dated 7/15/2009 10:44:19 A.M. Eastern Daylight Time,

> kiddietalk@. .. writes:

>

>

>

>

>

> If you check the archives here under the word 'apnea' there are around 300

> messages, some which point to the parent's sleep apnea. If you put in the

> words apraxia and apnea you get around 100 messages, and again not all

> relate to the child and some are from the same person (and Gretchen I think

you

> posted the article about this back in Feb 2009)

>

> We have almost ten thousand members and have been around for over a

> decade. Yes there are children with apraxia and apnea, but in my opinion we

just

> haven't heard enough about it here for me to think that a child is a risk

> for one due to the other. There of course will be a percentage of children

> in this group who have apnea, and a percentage out of this group who have

> apnea. To me the amount that talk about it here fall within the norm.

>

> Here's a few articles on it:

>

> " Although snoring is a common symptom in children with obstructive sleep

> apnea, it is important to remember that between 10-20 percent of normal

> children snore (primary snoring) on a regular or intermittent basis. "

>

> _http://pediatrics. http://pedhttp: //pehttp: //pediatrhtt_

> (http://pediatrics. about.com/ cs/sleep/ a/sleep_apnea. htm)

>

> " Approximately 10 percent of children are reported to snore. Ten percent

> of these children (one percent of the total pediatric population) have

> obstructive sleep apnea. "

> _http://www.entnet. http://www. entnehttp: //www.ehttp: //www.http:

//www.ehtt_

> (http://www.entnet. org/HealthInform ation/Could- Child-Have- Sleep-Apnea.

cfm)

>

> Too bad these doctors didn't take the time to study the amount of children

> with apraxia who have co existing hypotonia, sensory integration

> dysfunction, and or motor planning issues in other areas of their body. I

didn't

> read the original paper -did they Gretchen?

>

> =====

>

[Guest guest]

This is the article that helped me make the decision to have them removed. I am

so glad I read it.

http://www.mdconsult.com/das/article/body/116464824-2/jorg=journal & source= & sp= & s\

id=/N/644214/s0887899408001069.pdf?issn=0887-8994

Best of luck to all of you.

> >

> > -

> >

> > When we were checking into Asa's sleep issues, the Sleep Specialist had

> > on hand a hard copy of an article from one of the medical journals (wishing

> > I knew which one) and it was all to do with Apraxics and Sleep Apnea and how

> > it is a problem for many Apraxics-- etc

> >

> > I'd have to find out where it was from-- but she's a totally " medical " Dr,

> > and doesn't delve into things that are out of the box, so for HER to know

> > about it as a medically thinking Dr-- I was surprised because it wouldn't

be

> > something I would normally see in her.

> >

> > Bek

> >

> >

> > In a message dated 7/15/2009 10:44:19 A.M. Eastern Daylight Time,

> > kiddietalk@ .. writes:

> >

> >

> >

> >

> >

> > If you check the archives here under the word 'apnea' there are around 300

> > messages, some which point to the parent's sleep apnea. If you put in the

> > words apraxia and apnea you get around 100 messages, and again not all

> > relate to the child and some are from the same person (and Gretchen I think

you

> > posted the article about this back in Feb 2009)

> >

> > We have almost ten thousand members and have been around for over a

> > decade. Yes there are children with apraxia and apnea, but in my opinion we

just

> > haven't heard enough about it here for me to think that a child is a risk

> > for one due to the other. There of course will be a percentage of children

> > in this group who have apnea, and a percentage out of this group who have

> > apnea. To me the amount that talk about it here fall within the norm.

> >

> > Here's a few articles on it:

> >

> > " Although snoring is a common symptom in children with obstructive sleep

> > apnea, it is important to remember that between 10-20 percent of normal

> > children snore (primary snoring) on a regular or intermittent basis. "

> >

> > _http://pediatrics. http://pedhttp: //pehttp: //pediatrhtt_

> > (http://pediatrics. about.com/ cs/sleep/ a/sleep_apnea. htm)

> >

> > " Approximately 10 percent of children are reported to snore. Ten percent

> > of these children (one percent of the total pediatric population) have

> > obstructive sleep apnea. "

> > _http://www.entnet. http://www. entnehttp: //www.ehttp: //www.http:

//www.ehtt_

> > (http://www.entnet. org/HealthInform ation/Could- Child-Have- Sleep-Apnea.

cfm)

> >

> > Too bad these doctors didn't take the time to study the amount of children

> > with apraxia who have co existing hypotonia, sensory integration

> > dysfunction, and or motor planning issues in other areas of their body. I

didn't

> > read the original paper -did they Gretchen?

> >

> > =====

> >

[Guest guest]

Since this requires membership to have full access, I thought I would upload a

PDF file of this complete journal article for those of you interested in reading

it.

You can go to the Files on the left of the home page or click here

/files/

Hope that helps

Lori

>

> This is the article that helped me make the decision to have them removed. I

am so glad I read it.

>

>

http://www.mdconsult.com/das/article/body/116464824-2/jorg=journal & source= & sp= & s\

id=/N/644214/s0887899408001069.pdf?issn=0887-8994

>

> Best of luck to all of you.

>

>

[Guest guest]

I also agree! In July we had my sons adenoids taken out.(he is apraxic) He

always had a runny nose, snored, and has a forward tongue thrust. the snoring

and runny nose is gone and he has more room for his tongue now.