Re: Introduction and a Few Questions

[Guest guest]

> problems with breast milk, especially since she has never had any

> antibiotics, solids, formula, or anything else that could cause her to

> have a damaged gut.

Has she been vaccinated? Does she sleep on a mattress that contains

antimony [flame retardant] or use pajamas with antimony? Does she

have lead exposure? Those are common reasons for leaky gut.

> that is due to the diet or just because I eliminated diary which

> seemed to be triggering her symptoms.

Dairy is a common problem food for many kids.

> Now for my questions...

> 1) The book " Enzymes and Autism " says that people generally see

> improvement with enzymes in 3 weeks, or 4 at the most. Would this

> still be true for us even though we don't have behavioral or digestive

> issues?

Usually.

> 2) Can I still benefit from the enzymes even though I am only able to

> take a small amount?

Usually, altho you might consider trying a different brand or type.

You might not tolerate one of the specific enzymes in the specific

product you are using.

> 3) Would there be any benefit to taking a small amount of Candidase in

> between meals in addition to the small dose of Digest Gold with meals

> (which might or might not make DD's eczema worse, who knows), or do I

> need to try to work up to a whole cap of Digest Gold with meals before

> adding Candidase?

Either would be fine.

Dana

[Guest guest]

Hi Amy,

I had some questions about a few things you said- and some input too. First,

when you say she speaks in sentences, are her words approximations that are

constant, or do they change? For instance, if " juice " is pronounced " duce " one

time and " zu " another time. Also, at age 4 have you had her in for an official

diagnose of apraxia? By age four, the diagnose should be there. To answer your

questions; if she has apraxia, then group therapy won't be enough. I have a 9

year old (no other issues as well) who was stuck in group therapy for 5 years

with very little progress. And apraxic children can not benefit from a group

setting where other children are getting therapy for other types of speech

disorders. As far as mainstreaming, by age 5 or kindergarden she most definitely

should be mainstreamed if at all possible. It will help her socially as well as

help her speech by listening and interacting with children her own age. There is

always the fear of your

child being ridiculed by other children, but we have found (for the most part)

that we as mothers fear for our children more than they fear for themselves.

Children can often be much more resilient to ridicule than we are for them. As

for your other question -it has been known for apraxia to be familial but seeing

as how your son is only two and a possible late talker, bare this in mind: My

personal experience was my second child (non-apraxic) was a late talker and an

unintelligible talker at that. This was mainly due to the fact that his only

role model (other than my self) was an apraxic sister. One huge difference

between the two; the apraxic child could not produce the phonics of the alphabet

while the non-apraxic child could  reproduce all sounds found in the English

language - just chose not to. By age four my son was speaking intelligibly and

became my apraxic daughter's best interpreter.

Receptive language skills are almost always above average in apraxic children

(as is intelligence) and although a lot of children have fine motor issues,

there is a percentage (and my daughter is included in this area as well) where

fine motor skills exceed their age limit. Hope some of this helped.

Joy and Shyann 9 yrs

________________________________

From: Amy Kim <amy_san@...>

Sent: Tuesday, November 4, 2008 7:48:33 PM

Subject: [ ] Introduction and a Few Questions

I just joined your group yesterday. I have a just over 4 year old

daughter unofficially diagnosed with apraxia by her speech

pathologists. When she was first evaluated for therapy at around 2,

she had only a few words that she rarely used. Her receptive language

was amazing, the therapist stopped evaluating when she hit a level of

a 4 year old. She has no challenges with motor skills and is

especially ahead in her fine motor skills. At just before 3 her

speech exploded and she started speaking in sentences.. Since then she

never stopped talking but it very hard to understand. She's not

extremely social but this year started going to an integrated

preschool and is making some friends. She has group therapy a couple

times a week. She has a 2 year old brother who I don't think has

apraxia although he seems to be a late talker. I'll be talking to his

pediatrician next week.

So a few questions... for those of you that have children with apraxia

but have no other challenges, are your kids in a mainstream school or

in some kind of special classroom?

Also, how many that have one child with apraxia also have others?

And my last question for now, would you think that the amount of

speech therapy she is getting now is enough? Again, it's a group

session 1-2 times a week. Or would you push for more?

Thanks and looking forward to learning a lot to help my little girl!

Amy

[Guest guest]

Thanks, Joy, for your response. I would say she speaks in constant

approximations. I usually can tell what she is saying because when

she substitutes sounds for other sounds in certain words they are

usually the same. So she may not be saying words correctly but she

says the same word each time. For example her brother's name Micah,

she always says Mitah. What does this mean?

She has not had an official diagnosis of apraxia. Her Ped seems happy

that she is in therapy and her therapists are hesitant to " label " what

she has. I say she has apraxia because I've been doing a lot of

reading online and some of the signs such as she can't blow her nose,

only breathes in, has trouble eating certain foods. When she was

little she couldn't lick her lips or stick out her tongue, but she can

now. And a host of other things all seem to point that direction.

Plus when pressed, her therapists will say they would say she has

apraxia although they don't want to label it, blah blah blah. I don't

even know where to go to get an official diagnosis. What did everyone

else do?

It sounds like my experience is similar to yours. My daughter also

has very high fine motors skills but just average gross motor skills.

And I believe my son is a late talker in part from listening to my

daughter. I've heard him mispronounce words right after she does!

I've also heard him say most sounds that my daughter can't.

Thanks again for your input!

Amy

>

> Hi Amy,

> I had some questions about a few things you said- and some input

too. First, when you say she speaks in sentences, are her words

approximations that are constant, or do they change? For instance, if

" juice " is pronounced " duce " one time and " zu " another time. Also, at

age 4 have you had her in for an official diagnose of apraxia? By age

four, the diagnose should be there. To answer your questions; if she

has apraxia, then group therapy won't be enough. I have a 9 year old

(no other issues as well) who was stuck in group therapy for 5 years

with very little progress. And apraxic children can not benefit from a

group setting where other children are getting therapy for other types

of speech disorders. As far as mainstreaming, by age 5 or kindergarden

she most definitely should be mainstreamed if at all possible. It will

help her socially as well as help her speech by listening and

interacting with children her own age. There is always the fear of your

> child being ridiculed by other children, but we have found (for the

most part) that we as mothers fear for our children more than they

fear for themselves. Children can often be much more resilient to

ridicule than we are for them. As for your other question -it has

been known for apraxia to be familial but seeing as how your son is

only two and a possible late talker, bare this in mind: My personal

experience was my second child (non-apraxic) was a late talker and an

unintelligible talker at that. This was mainly due to the fact that

his only role model (other than my self) was an apraxic sister. One

huge difference between the two; the apraxic child could not produce

the phonics of the alphabet while the non-apraxic child could

reproduce all sounds found in the English language - just chose not

to. By age four my son was speaking intelligibly and became my apraxic

daughter's best interpreter.

>

> Receptive language skills are almost always above average in apraxic

children (as is intelligence) and although a lot of children have fine

motor issues, there is a percentage (and my daughter is included in

this area as well) where fine motor skills exceed their age limit.

Hope some of this helped.

> Joy and Shyann 9 yrs

>

>

>

>

> ________________________________

> From: Amy Kim <amy_san@...>

>

> Sent: Tuesday, November 4, 2008 7:48:33 PM

> Subject: [ ] Introduction and a Few Questions

>

>

> I just joined your group yesterday. I have a just over 4 year old

> daughter unofficially diagnosed with apraxia by her speech

> pathologists. When she was first evaluated for therapy at around 2,

> she had only a few words that she rarely used. Her receptive language

> was amazing, the therapist stopped evaluating when she hit a level of

> a 4 year old. She has no challenges with motor skills and is

> especially ahead in her fine motor skills. At just before 3 her

> speech exploded and she started speaking in sentences.. Since then she

> never stopped talking but it very hard to understand. She's not

> extremely social but this year started going to an integrated

> preschool and is making some friends. She has group therapy a couple

> times a week. She has a 2 year old brother who I don't think has

> apraxia although he seems to be a late talker. I'll be talking to his

> pediatrician next week.

> So a few questions... for those of you that have children with apraxia

> but have no other challenges, are your kids in a mainstream school or

> in some kind of special classroom?

> Also, how many that have one child with apraxia also have others?

> And my last question for now, would you think that the amount of

> speech therapy she is getting now is enough? Again, it's a group

> session 1-2 times a week. Or would you push for more?

> Thanks and looking forward to learning a lot to help my little girl!

> Amy

>

>

>

>

>

>

>