Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 I'm trying the 3 week no milk products to see if they affect my almost 3 year old apraxic son. He ended up having part of an ice cream bar yesterday and had a loose messy diaper and gas in the evening. But, we've only been milk free for almost 2 weeks. Could this be an early indication? He spit up a lot as a baby and now I am wondering if it was the milk based formula. Other than that, I've never noticed any bad reactions to milk or milk products. He's been drinking milk and enjoys yogurt, cheeses, etc. Also, I just read on another post, I think it was about the multivitamin, that apraxic kids shouldn't get too much calcium? Can anyone elaborate? I think I need to find a biomed dr. in our area. I feel there is so much for me to learn in this that could help my son. He's benefitted from the PRO EFA fish oil. We are ready (started 5-6 months ago) to increase his dosage. Thanks, Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 YUP! That's a milk reaction! For some of our kids.... milk is a poison. It affects everything... their hearing, their balance, their tactility; Mark gets horrible dark circles around his eyes just by putting his hands around a milk jug! It's craaaazy! (but true). Mark gets severe brain fog when he consumes milk now and his speech slurs. Until we completely eliminated milk products, his voice had a very 'slushy' sound to it ALL of the time. We got rid of the milk and his voicing completely changed in a few weeks. The longer you are off of milk, the more your child develops and improves and grows with therapy.... they cheat and end up having some milk products and BAM... it's like they've never done a day of therapy for a few days! (plus some 'extreme' diarrhea!) May I recommend Rice Ice Cream (don't use soy) or some nice Fruit Ices.... as a substitute for our beloved ice cream? (That's the only item we really miss.) Note.... Mark CAN tolerate hard cheeses... not the soft ones but the hard ones only.... just as prescribed in the Specific Carbohydrate Diet.... but for now, I would go completely Milk/casien free and see how it affects his development. If you are going to look into DAN doctors, I would go to http://www.autism.com and type webcast into the search engine. They have webcasts delivered by some great DAN doctors that talk about all of the biomed areas.... Diets, methlyation, gut issues, immune issues, etc. Everything to start prepping you. Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 That could be a reaction. I did not have completely obvious milk kids yet both have milk issues. Spitting up a lot could be reflux...which could be a milk thing. Eczema, congestion, light yellow poop, could be milk-related. Some kids are overcalcified. Mine were. The best info on that is on the vitamin K board. When you become a member they send you a list of recommended labs that you can get at the ped if openminded. Apraxia labs are listed here in the links section as well. HTH, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 My son was r/xed with a lactose intolerance. I have used the soy based products, and I am wondering why we should not use them..... " Normal is a setting on a dryer " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 We have used coconut milk icecream from WF. It is delicious. Re: [ ] Milk products and calcium YUP! That's a milk reaction! For some of our kids.... milk is a poison. It affects everything... their hearing, their balance, their tactility; Mark gets horrible dark circles around his eyes just by putting his hands around a milk jug! It's craaaazy! (but true). Mark gets severe brain fog when he consumes milk now and his speech slurs. Until we completely eliminated milk products, his voice had a very 'slushy' sound to it ALL of the time. We got rid of the milk and his voicing completely changed in a few weeks. The longer you are off of milk, the more your child develops and improves and grows with therapy.... they cheat and end up having some milk products and BAM... it's like they've never done a day of therapy for a few days! (plus some 'extreme' diarrhea!) May I recommend Rice Ice Cream (don't use soy) or some nice Fruit Ices.... as a substitute for our beloved ice cream? (That's the only item we really miss.) Note.... Mark CAN tolerate hard cheeses... not the soft ones but the hard ones only.... just as prescribed in the Specific Carbohydrate Diet.... but for now, I would go completely Milk/casien free and see how it affects his development. If you are going to look into DAN doctors, I would go to http://www.autism. <http://www.autism.com> com and type webcast into the search engine. They have webcasts delivered by some great DAN doctors that talk about all of the biomed areas.... Diets, methlyation, gut issues, immune issues, etc. Everything to start prepping you. Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 soy is not good for metabolic system. [ ] Re: Milk products and calcium My son was r/xed with a lactose intolerance. I have used the soy based products, and I am wondering why we should not use them..... " Normal is a setting on a dryer " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 I have heard soy is problematic because too much estrogen for boys, if not organic the GMO stuff is problematic also. Still, only recently I tried to find a milk sub for my son only to discover problems with nearly every choice. A palmitate is not good and seems to be in nearly all of them. Cargeneen (sp?) posted about recemtly here is in a lot of the soy milks. That stuff is bad new and was responsible for bad regression here in my lesser affected kid. HTH Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 I have heard this.... looked for that stuff 'everywhere' in Edmonton, Canada.... but cannot find it! ....grrrrr! Mark does well with coconut products and cannot do soy at all. Janice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Soy is also very similiar in molecular composition as casien. In addition, many of our kids develop sensitivities to it (as mine has) because it is used in just about EVERYTHING that is processed. Try to stay away from processed food as much as possible. Head for the fresh food aisles and circle the perameters of the grocery store avoiding the inner aisles. Our kids do very poorly with chemicals such as MSG which is a neuro-toxin. They need as clean a diet as you can possibly manage. Now.... none of us are saints here.... MARK ESPECIALLY! but we do try to keep it very clean on a daily basis and use processed food minimally. Janice Mother of Mark, 13 [ ] Re: Milk products and calcium My son was r/xed with a lactose intolerance. I have used the soy based products, and I am wondering why we should not use them..... " Normal is a setting on a dryer " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Soy is good for people in many ways, what is the problem with it and why do you feel it should not be used? J **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\ searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 I haven't read through all the responses, but has anyone mentioned goat's milk yet? That's often a good substitute (I don't remember all the specifics, but I do remember reading in the past that the casein in it is much more easily digested and better for speech than cow's milk and other milk substitutes). From: ilizzy03 <lizlaw@...> Subject: [ ] Re: Milk products and calcium Date: Thursday, November 6, 2008, 10:29 AM I have heard soy is problematic because too much estrogen for boys, if not organic the GMO stuff is problematic also. Still, only recently I tried to find a milk sub for my son only to discover problems with nearly every choice. A palmitate is not good and seems to be in nearly all of them. Cargeneen (sp?) posted about recemtly here is in a lot of the soy milks. That stuff is bad new and was responsible for bad regression here in my lesser affected kid. HTH Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Intresting. I will have to talk to my doctor about this.....Thanks for the responses " Normal is a setting on a dryer " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Many of the children who 'react' poorly to milk ALSO react poorly to soy as they have a very similiar molecular make-up. If the milk is permeating the gut lining... in all likelihood, so will the soy. When we did electro dermal testing (aka biomeridian scan), I was shocked to see that Mark's negative response to soy was actually 'higher' then that of milk. He also tripped the scales to the ceiling with High Fructose Corn syrup..... and now I notice that he gets very slurry in his speech about 15 minutes after consumption. Now that stuff is not good for 'any' child because it really is 'crap' but the neurological affects to Mark are quite profound and when you first 'see' it..... shocking. My environmental doctor told me that kids who display intolerances due to intestinal permeability to one item..... generally have about 10 items or more that they cannot tolerate that remain 'hidden' until really searched for and ferrited out. I thought.....'nah, not my boy!' but it was indeed true and having eliminated the problem foods, my boy is really healing and getting better and better all of the time. Too bad I discovered this issue for him so late..... at 11-13.... you have missed so many milestones and have so much to make up for. Goal: remove the food sensitive items; get rid of the yeast and bacteria that are causing the gut permeability; remove all sugars so as not to feed the yeast and bacteria (includes starchy carbo's from diet) and then heal that gut! We used to be gluten sensitive as well but due to gut healing, have lost that problem. We are still working hard to heal further and lose more of the sensitivities. I am confident that we will be able to do so for everything..... except milk. Milk is so hard on Mark's system that I don't think he will ever be able to freely consume it..... enzymes work for him so that he can consume foods with trace milk amounts but to have an actual glass of milk or a bowl of ice-cream.... I am skeptical that he will ever be able to. Ensure that your child takes a good calcium/magnesium supplement at bedtime for best absorbtion. Janice Mother of Mark, 13 [sPAM]Re: [ ] Re: Milk products and calcium Soy is good for people in many ways, what is the problem with it and why do you feel it should not be used? J **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\ searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
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