Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Really, what happened to we don't know? I know some kids who have been treated and have read of 2 cured. I think anything is possible but we won't know until we try. > > Autism is not curable, it just isn't. It is a part of who these kids are. > Just like you cannot cure obsessive compulsive disorder or diabetes or many > other conditions the therapies and bio medical interventions can make things a > whole lot better. If you believe your child can be cured that is great, but > autism is a complex neurological condition and it doesn't just go away. Many > autistic adults have been asked if they would like their autism to be gone, they > usually answer no. I hope some of my son's autistic tendencies get better, > every day we see new improvement in one area or another, but there really is > nothing to cure, he has autism and it is part of his being. The symptoms > get better usually as they get older and other interventions also help. They may > even improve so much no one ever knows that they have it. This is my belief. > If others believe that their children have been cured congratulations. Jen > **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & > more! (http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol? redir=htt > p://toolbar.aol.com/moviefone/download.html? ncid=emlcntusdown00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Jen, I totally agree with you. Plain and simple, autismt is not curable. Symptoms can be treated but autism is not curable. Saying autism is curable, I believe, is irresponsible and gives the impression to the general public that every child with autism is the same and curable. I believe this message hurts all the organizations that due great work in autism awareness and research. Great email! Matt From: jennyjudy@... <jennyjudy@...> Subject: Re: [ ] McCarthy Date: Monday, November 17, 2008, 7:52 PM Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen ************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola. com/promoclk/ 100000075x121277 4565x1200812037/ aol?redir= htt p://toolbar. aol.com/moviefon e/download. html?ncid= emlcntusdown0000 0001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Oh Gosh.... If you want to call up my house and ask Mark whether he'd like to be free of dyspraxia tomorrow..... he would absolutely state an emphatic YES!!! It is not a 'fun' condition and I don't believe that it is 'naturally' a part of him.... and most importantly.... NEITHER DOES HE!!! For he has many, many days where he is completely symptom free.... and guess what.... those are the days he cherishes and he feels like himself. Now we only have 'dyspraxic' days a couple of times a month and on those days.... he gets really down and depressed about it. Because now, he 'sees' the ADD and he 'sees' the brain fog and he 'sees' the bad articulation and it frustrates and annoys him to no end. For my son.... dyspraxia is a MEDICAL condition.... not a part of who he naturally is. But, like diabetes, he may always have it to some extent but.... like diabetes and cancer... we should ALWAYS be seeking a CURE! I don't see low muscle tone as a neurological issue but as a 'medical' issue. Believe me everyone... if you don't believe that your child can heal.. he won't ever find recovery. To heal your child you must picture him everyday as being recovered and then slowly work towards that picture.... baby step by baby step, the picture comes to life. You must believe and your child must believe..... Today my darling son headed off to school at 7:00 am to participate on the wrestling team! My daughter looked at his frail skinny body and remarked.... " he just doesn't give up, does he? " I smiled and said, " Yeah, kids with dyspraxia may have weak bodies but their spirit is darn tough! They just keep on trying until they finally get there! " Mark had a blast on the wrestling team today and easily fit into the lightest group with his skinny little arms and tall stature. He came home this afternoon to declare that he had just joined the curling team; he'd be home late on Fridays. I'm still trying to imagine him having the strength to throw that curlng rock down the lane! (I can barely do it). I watch him valiently work his push-ups; he's up to 16 now; a month ago he had to do wall pushups because he lacked the forearm strength to do regular ones. He's already started studying for his learners license which he plans to take several days after his birthday this Christmas. He knows that many people with dyspraxia cannot drive and he's determined that he will not suffer this handicap. This is HIM... not me, mom, pushing. If my son believed in dyspraxia and autism.... he'd never have flown to California this summer on his own to do Adventure Camp; he wouldn't have mountain biked down a MOUNTAIN in Utah with a guide (not with me, I was too chicken); he wouldn't have white water rafted last summer in BC, mountain climbed and repelled using ropes or done half of the things he's done even though he has struggled so with severe global dyspraxia; he'd never have done 3 hours a day of home therapy after school and right now.... at this present moment, he wouldn't be wearing a patch on his left eye while working on his hand-writing. He'd have given up.... and he would have become a depressed and wounded soul. I am so so thankful that he doesn't believe that he's 'Stuck' with this nasty disease called dyspraxia..... I am so glad that he's chosen to FIGHT with every fiber of his being...because if he had simply 'accepted' dyspraxia.... he wouldn't be half the wonderful, daring soul that he currently IS! Be careful as to how you want to define dyspraxia in your life; for us, we wage WAR on it every single day and I won't give up.... not til my dying breath... looking for a CURE for this awful condition.... and my son.... well, he's decided that dyspraxia will not DEFINE him nor will it CONTROL him... NEVER! I am not trying to yell here... but I do want to emphasize that 'mindset' is a key ingredient to healing.... the decision to 'fight' makes us powerful and strong. It is an 'important' part of healing and overcoming dyspraxia. So... choose your course carefully, you will find what you envision and imagine.... Janice Mother of Mark, 13 [sPAM]Re: [ ] McCarthy Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 > > Autism is not curable, it just isn't. It is a part of who these kids are. > Just like you cannot cure obsessive compulsive disorder or diabetes or many > other conditions the therapies and bio medical interventions can make things a > whole lot better. If you believe your child can be cured that is great, but > autism is a complex neurological condition and it doesn't just go away. Many > autistic adults have been asked if they would like their autism to be gone, they > usually answer no. I hope some of my son's autistic tendencies get better, > every day we see new improvement in one area or another, but there really is > nothing to cure, he has autism and it is part of his being. The symptoms > get better usually as they get older and other interventions also help. They may > even improve so much no one ever knows that they have it. This is my belief. > If others believe that their children have been cured congratulations. Jen > **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & > more! (http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol? redir=htt > p://toolbar.aol.com/moviefone/download.html? ncid=emlcntusdown00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 I will quote something McCarthy has said several times " You can get hit by a bus and will not be cured from the injuries but you can recover. Your child will not be cured from autism, but he/she may recover " From: jennyjudy@... <jennyjudy@...> Subject: Re: [ ] McCarthy Date: Monday, November 17, 2008, 7:52 PM Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen ************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola. com/promoclk/ 100000075x121277 4565x1200812037/ aol?redir= htt p://toolbar. aol.com/moviefon e/download. html?ncid= emlcntusdown0000 0001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I read your e mail in my own rocking chair. I like the rocking chair. I hope you are not having too much trouble getting out of it yet. I remember those days with fond memories. **************You Rock! One month of free movies delivered by mail from blockbuster.com (http://pr.atwola.com/promoclk/100000075x1212639737x1200784900/aol?redir=https:/\ /www.blockbuster.com/signup/y/reg/p.26978/r.email_footer) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I feel the same way about apraxia. **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I think we need to keep trying for a cure and I am a supporter of Mc Carthy and this is not a black and white issue. People can regress . My mother in law died from cancer she had radiation for a year and then went 7 years with no symptoms until her leg started to hurt and then she found out her cancer was back. She did 6 months later. If says her son is cured it is ok with me. I think it is great. Hope everyone else can replicate the same treatment and become asymptomatic but we need to understand that we are not all the same be tolerant of others who are different and realize that we are who we are because of our experiences. I had 3 sons. One of them had bipolar disorder. It was treatable with medication and he would go along time without symptoms until he quit taking his medication and then the symptoms would reappear. I feel compelled to respond to your e mail in honor of Danny. Danny had an accidental overdose 2 years ago and died. Most of the time I just read the emails. Thank you for responding. I know it is controversial and many people feel passionately on one side or the other. We all want to cure the world of things that we consider to hold us back but we also have to accept that not everyone can or wants to be cured. Some of us have accepted ourselves the way we are. I know that this message was not intended for me and I apologize if I have offended anyone in anyway. I thank you for posting. **************You Rock! One month of free movies delivered by mail from blockbuster.com (http://pr.atwola.com/promoclk/100000075x1212639737x1200784900/aol?redir=https:/\ /www.blockbuster.com/signup/y/reg/p.26978/r.email_footer) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 'Many autistic adults have been asked if they would like their autism to be gone, they usually answer no.' Well they didn't ask me. Do you know how hard it is to stem and rock when you are 8 months pregnant!!! (smile) From: jennyjudy@... <jennyjudy@...> Subject: Re: [ ] McCarthy Date: Monday, November 17, 2008, 7:52 PM Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen ************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola. com/promoclk/ 100000075x121277 4565x1200812037/ aol?redir= htt p://toolbar. aol.com/moviefon e/download. html?ncid= emlcntusdown0000 0001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I believe my child can heal, but completely get rid of a neurological condition for which right now there is no cure, no not right at the moment do I believe in a 100% cure. Recovery and cure have two different meanings. Apraxia and autism are two different things. I am sure my son would love to be able to say all that is on his mind as well. I do believe my son will achieve greatness but I am not ignoring he has a medical condition. I look for the positive everyday and my son leads a positive life with lots of goals to reach and he knows we all support him. I will continue to research, fight and look for anything that may help my son, and I do believe in my heart he will talk. I was just trying to convey that telling people that something is curable when it isn't is misleading and can cause parents who are new to this to try everything presented to them to help their child that may just be wasting money and precious time. I believe in my son more than anyone. Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 , you are too funny! Thanks for my morning chuckle. I sure needed it today! I yelled at Mark today for losing his school binder and I feel awful. I did exactly what I 'wasn't' supposed to do....bawl him out! What I am supposed to do is to create 'consequences' but I forgot until after he left for school..... That is on my NACD program and I forgot.... shoot! GUILT, GUILT, GUILT! That is what we have issues with mostly now-a-days.... organization and attention to the 'small' things in life. Patching his right eye while practicing fine motor skills is working beyond my wildest dreams (along with supplementing with piracetam) and his writing skills are almost normalized now. AMAZING.... one silly eye issue plus a LOT of muscle work has really gotten this issue tackled for him. I notice that he still has some visual discrimination issues.... trouble seeing outlines... and I think that I will research this a little since it may be the key to getting his organizational abilities up to par. So...one BIG issue conquored.... and one 'little one' to go! I am continuing with pleoptics to stimulate his central detail vision but I confess that this is an exercise that I often forget to do.... I'll have to put it up higher on to my radar screen. That's how you heal dyspraxia.... tackling one developmental issue at a time or many little developmental issues at a a time. But you CAN tackle these things and succeed; you just need to decide to do the research on your child and try to figure out 'why' they cannot do things.... you need to look straight to the root of the senses that are not working (for us right now it is the eyes) and then figure out how to stimulate that neural pathway. I think that I just want to say that there are many in the autistic adult community that are just so darn frustrated with therapy that doesn't work, with people trying to 'change' them that I completely 'get' where they are coming from. But today, we have a new generation and a whole host of new therapy, biomedical and medical techniques at our disposal. Our kids are not adults; they are still just kids and their mindset; who they think they are and how they feel about themselves is just developing. When I went with the 'system' techniques and before I learned that many of my son's issues were actually medical... well, he was a pretty depressed and defeated little boy. He had given up. So had I. We were just 'existing' with dyspraxia and we were not challenging dyspraxia... so my boy never got better. He didn't improve and would not have improved had I not changed my approach when he was 11. Changing the way we see dyspraxia.... as an ailment to be fought; as a medical condition that can be alleviated via healing.... well, this changed how he saw himself. He was able to separate his personal identity from that of dyspraxia. Today, Dyspraxia is something he " HAS " not something he " IS " . This may not seem like a huge differentiation but really... in terms of our personal identity.... it is enormous! This change in mindset; the idea that when he works hard, he defeats dyspraxia has given him the courage to fight. Because he has seen results and his life has changed tremendously after starting to fight back.... I don't believe that he'll ever stop fighting. He's made a personal decision not to let dyspraxia rule; he's made the decision to conquor it. Our kids need to be fighters. What they lack in physical strength, they need to develop in personal strength. They need to believe in themselves and in their ability to overcome whatever challenges are tossed their way. So.... how do I 'know' intrinsically that a lot of my child's issues are really medical with neurological outcomes? Because we have recovered most of his facilities, that's how. I used to belong to an adult dyspraxia board and I listened to the stories told by the many adults while doing home therapy every day. One by one, I read on while my son was conquoring the issues of complaint that the adults had. My boy was lucky. Via their stories and via my research, he had access to therapies that these adults did not have. In part because of them, he got better. They did reject me when I tried to tell them of our success and did not want to hear it..... I understand and I get why. I also know that as Mark ages, it gets harder and harder to change 'instilled' neurodevelopmental pathways. If all of those adults did the exact same therapies that Mark had done, they probably would not have achieved the same success. Their neurological issues are more 'hard-wired'. That is why you will see more stories of the really little kids.... aged between 2 and 6... achieve complete recovery while few of the older kids ever do. Today, while we are mostly healed.... Mark still has an 'imprint' of dyspraxia in his being. I believe that this is due to us having overcome these issues after he was so much older. I believe that the little ones, the toddlers and the young children.... have an even better prognosis. As we have rid ourselves of most of the 'physical' issues that define dyspraxia... what is left are the medical issues and that is a great part of my current focus. Mark's body is still ailing though he has overcome the neurological condition to a great extent. When he has a 'medical' relapse and his body is ailing, some of the neurological symptoms return. Thus, I know that I am on the right track here. His body lets me know. I clean up his body and the neurological symptoms go away. Do I think that dyspraxia is " completely " curable? I don't know. I'll let you know if we ever achieve it! BUT.... I must believe that it is. Of course, in order to achieve this, I must be able to completely heal my son's immune system and that includes auto-immune issues. That's a pretty tough one! However I must believe in my heart of hearts that we can overcome even this.... for this is what drives me and maybe..... in the end, I'll settle for recovery rather then an outright cure! The one thing that I do know now.... is that Mark, himself will never settle. He has made a personal decision that comes with maturity and understanding... he has decided to stand up and fight. And for that, I applaud him. I don't know where along the therapy stream that he developed this. I think that in some small way, it has always been part of him and at one point, he just really internalized it. The one thing that I notice about all apraxic/dyspraxic children is that they have this 'never-give-up' personal will. It is a beautiful part of their spirit. Okay.... rambling now! Janice Mother of Mark, 13 said, Well they didn't ask me. Do you know how hard it is to stem and rock when you are 8 months pregnant!!! (smile) From: jennyjudy@... <jennyjudy@...> Subject: Re: [ ] McCarthy Date: Monday, November 17, 2008, 7:52 PM Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen ************ **Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola. com/promoclk/ 100000075x121277 4565x1200812037/ aol?redir= htt p://toolbar. aol.com/moviefon e/download. html?ncid= emlcntusdown0000 0001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I don't believe that to be a kind statement at all that a person should find a different group just because they dont believe in what you do. I want my son to be cured, I want his autism and apraxia cured, I am doing everything in my power to help him, I am a mother who loves her son so much, I would sell everything I have to cure him from these things, but I can't. There is only so much that supplements and bio medical treatments can do. If you feel that your child is cured I said that is great, congratulations, I just said I didn't believe it to be that simple to cure a neurological disorder like autism or apraxia. My posts were not attacking anyone in any way. I think it is you that should find another group. Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 I believe it is curable for a certain percentage of children. The toughest part is finding out what damage your child has. Every child is different - a supplement or treatment that helps one child won't necessarily help another. What did the damage in the first place is still a point of contention. I'm one who truly believes that my son was born with a vulnerability to start with and the vaccines hurt him because of this vulnerability. I saw him regress in front of my own eyes - the day after receiving 4 shots - could not sit up, drooling, looked like he was given a sedative. He was never the same again. Lost his speech and eye contact. 's son is RECOVERED not cured... her words. Sorry you don't believe it. I've brought my son probably 80% so far. I won't stop until it's complete. If you have a child that responds to simple vitamins it convinces you that you CAN help them and there is something that can be done. If you don't believe a child can be recovered you should join some other - parents are doing this as we speak. > > Autism is not curable, it just isn't. It is a part of who these kids are. > Just like you cannot cure obsessive compulsive disorder or diabetes or many > other conditions the therapies and bio medical interventions can make things a > whole lot better. If you believe your child can be cured that is great, but > autism is a complex neurological condition and it doesn't just go away. Many > autistic adults have been asked if they would like their autism to be gone, they > usually answer no. I hope some of my son's autistic tendencies get better, > every day we see new improvement in one area or another, but there really is > nothing to cure, he has autism and it is part of his being. The symptoms > get better usually as they get older and other interventions also help. They may > even improve so much no one ever knows that they have it. This is my belief. > If others believe that their children have been cured congratulations. Jen > **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & > more! (http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol? redir=htt > p://toolbar.aol.com/moviefone/download.html? ncid=emlcntusdown00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Janice - to you give your son acetyl-l-carnitine? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 We will never find a cure unless we actually LOOK for it! With all of the current research being done, I do believe that we will have one within my lifetime.... probably within the next 10 years. I'm not willing to write my son off that quickly! ....and I am willing to 'push' harder for a cure becuase that's what it takes..... it takes dissatisfied parents to advocate and to push harder and harder for the scientific community to respond. What really is the difference between healing and curing? For me, if we heal all of the different neurological pathways, all of the signs and symptoms, all of the digestive issues and bring a person forth to their " natural " potential and all of the body parts functioning as they should.... are they not healed and in this, are they not cured of the condition? We tend to say that our children are apraxic, they are autistic, etc..... but we always say, I had a stroke (not I am a stroke), I have cancer (not I am cancer). In this choice of words, we consign our children to a state of 'being' which sticks to them like cement. I guess that we are so close to the end now.... so close to complete recovery that I DO believe in it. I believe in it because I personally am witnessing it. Are we 100% yet? No. But think of it..... I started neurodevelopmental therapy with a severely globally apraxic/dyspraxic child when he was 11.5. I started biomed when he was 12.5 and began seriously addressing gut issues/metals when he was 13. ....and today my son who is almost 14 is pretty darn close to being 100%. So..... wonder what he would have been like today had I started when he was 3 or even 6? Jen, I am not directing this post to you personally and I completely 'get' what your say.... you don't wish to have false hope and send incorrect messages out to the world. I respect that. These conditions are definately ones that parents need to wage war against and fight in order to win..... and we need to ensure that research continues; we must demand it from our society. Janice Mother of Mark, 13 [sPAM]Re: [ ] McCarthy I believe my child can heal, but completely get rid of a neurological condition for which right now there is no cure, no not right at the moment do I believe in a 100% cure. Recovery and cure have two different meanings. Apraxia and autism are two different things. I am sure my son would love to be able to say all that is on his mind as well. I do believe my son will achieve greatness but I am not ignoring he has a medical condition. I look for the positive everyday and my son leads a positive life with lots of goals to reach and he knows we all support him. I will continue to research, fight and look for anything that may help my son, and I do believe in my heart he will talk. I was just trying to convey that telling people that something is curable when it isn't is misleading and can cause parents who are new to this to try everything presented to them to help their child that may just be wasting money and precious time. I believe in my son more than anyone. Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Janice, I love your posts; they are extremely informative and descriptive. I was so frustrated when I was pregnant that I was a really difficult person to be around. " Getting lost " in my rocking has always been relaxing for me; so the larger my belly got the more difficult it became. I can usually miss a day or two of rocking but if I miss longer than that ........ you don't want to be around me. After my daughter was born, there was so much going on that I didn't even think about rocking (which was weird for me). But, I clearly remember at around 3 weeks, I felt the " urge " to stem (rock) so I made sure my daughter was asleep, grabbed some headphones and just sat in the floor and rocked and rocked. So, you can imagine why my ex-husband thought I was a loon!! (smile) If I ever get married again, I'm going to make sure he has a lot of Quirks so we can balance each other out! I have so many questions concerning the neurological only belief concerning the cause for or what is Autism. I mean if that is the only cause then we all have some form of Autism. I wonder if people would people consider me Cured? My twin and I went into the military on Buddy Passes and we were both diagnosed with autistic like behavior and ADHD. I remember while in Basic Training, we used to stand in formation for so long. I tried so hard to pay attention but one day, it happened, I got lost. So when the drill sergeant yelled " Formation March " , the Squadron marched off....and left me. I didn't even realize everyone had left until the Drill Sergeant yelled in my ear. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 , At NACD, they teach us that when you stim, you are playing with a neurological pathway that is broken and that you are strengthening that 'brokenness' as stimming is indeed adictive.... but rocking... as a stim... I don't think that one is too too bad. Eye stims are the worst since they affect the function of the eye for normal use. I suspect rocking must fulfill some sensory issue with the inner ear and the vestibular? Perhaps this is why it gives you so much comfort? Mark used to rock for a time as well when he was in special ed. It stopped when we left special ed and after we did the creeping, crawling, marching, skipping program with him. Perhaps there is some pathway in his central nervous system that didn't get fully taken care of that this program addressed? I know that with regards to birth reflexes; if we don't inhibit certain reflexes to develop postoral reflexes, the person has underlying 'needs' and deficincies in their physical make-up ie. the central nervous system that continue on forever. Until we went back to the 'beginning' and worked Marks CNS.... he just couldn't develop further in many, many areas. We had to go back to babyhood for him. If NACD has you doing exercises with your boy, maybe you'll get some side benefits too! Those ADD moments.....that is how our regressions look like these days. Mark had a regression last Friday and was really out of it. It annoyed him because he felt like he couldn't seem to sustain his attention during basketball practice. He indicated that small, stupid things kept on distracting him and he felt really 'lost in space'. His first question to me after practice was.... " did you give me a new pill or something? Red dye? Why couldn't I focus? " I looked at his ears; they were FLAMING red and he had a rash on his lower cheeks and his words were stiff. This is definately an alergic reaction to 'something' either food or chemical.... possibly phenols... don't know what it was but I know that it was 'something'. I like quirky guys ! Usually they are smart and witty..... I'm sure that you will find that man who is 'just' right for you! I did and though we are not married (we are both still pretty scared of the M word), we have been together for 6 years now..... he completely accepts my Mark and his boy (a superstar athelete) has been the best OT I have ever had for my boy! The right guy is out there and when " you " are ready.... he'll find you, don't worry! Right now, I would guess that we have dyspraxia 'under control' and stabilized rather then cured but..... I would like to see a cure down the road! Maybe I'm dreaming.... but that is what I'm aiming for! The thing is... since every child is so individual there could not 'rationally' be a single cure to cover all of our kids..... just treatment plans. PS. I used to smoke.... guess that was a 'stim' too? perhaps not... but it certainly was 'addictive' behaviour! Better a rocker then a smoker! Yuck... can't believe I used to do that. Take care, Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 , I think your response to Jen's email is harsh. She is stating the very obvious that autism is not curable but is more apart of our children and their make up, She mentions interventions as being a key to tool to a child's success in overcoming their autism sx. Asking someone to just leave because you disagree with their position on curable vs recovery is harsh and unfair. These are the same challenges we face with the outside public when our kids want to join public schools, events, sports, etc. Just because our kids are not atypical and have their own special quirks...should they leave those groups too? It is imperative we teach tolerance and acceptance to the general public about our children and their challenges. Matt From: ckrupa3672 <ckrupa3672@...> Subject: [ ] Re: McCarthy Date: Tuesday, November 18, 2008, 5:08 PM I believe it is curable for a certain percentage of children. The toughest part is finding out what damage your child has. Every child is different - a supplement or treatment that helps one child won't necessarily help another. What did the damage in the first place is still a point of contention. I'm one who truly believes that my son was born with a vulnerability to start with and the vaccines hurt him because of this vulnerability. I saw him regress in front of my own eyes - the day after receiving 4 shots - could not sit up, drooling, looked like he was given a sedative. He was never the same again. Lost his speech and eye contact. 's son is RECOVERED not cured... her words. Sorry you don't believe it. I've brought my son probably 80% so far. I won't stop until it's complete. If you have a child that responds to simple vitamins it convinces you that you CAN help them and there is something that can be done. If you don't believe a child can be recovered you should join some other - parents are doing this as we speak. > > Autism is not curable, it just isn't. It is a part of who these kids are. > Just like you cannot cure obsessive compulsive disorder or diabetes or many > other conditions the therapies and bio medical interventions can make things a > whole lot better. If you believe your child can be cured that is great, but > autism is a complex neurological condition and it doesn't just go away. Many > autistic adults have been asked if they would like their autism to be gone, they > usually answer no. I hope some of my son's autistic tendencies get better, > every day we see new improvement in one area or another, but there really is > nothing to cure, he has autism and it is part of his being. The symptoms > get better usually as they get older and other interventions also help. They may > even improve so much no one ever knows that they have it. This is my belief. > If others believe that their children have been cured congratulations. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Thanks Matt!! Jen **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 I read your post to my husband. He was a navy guy. **************Check out smokin’ hot deals on laptops, desktops and more from Dell. Shop Deals (http://pr.atwola.com/promoclk/100000075x1213345834x1200842686/aol?redir=http://\ ad.doubleclick.net/clk;209513277;31396581;l) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 very well said Matt. __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Janice, I always love what you post. You are right! Our children are not defined by their diganosis. I do not like the term autistic. I say my boys have autism. It does not define them. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 I think that the closer you get to complete recovery.... the more you believe in it. I would bet that the majority here who are stating that recovery is possible.... actually have kids that are close to complete recovery or for whom the parents have discovered a major 'key' to their healing! ..... and I would 'guess' that the people who argue against recovery have not made as many gains and have kids who are 'tougher nuts'. We all have different perspectives and we are all at different stages in this and as well..... all of our kids are unique and different. What works to recover my kid may help other kids but for a different subset of children.... it may do nothing. It is important to practice tolerance. I hope to inspire and to encourage others with my posts and I so hope that I have not personally alienated a single mother or dad. This is a tough course that we all follow, full of small leaps in development which send us to euphoria and then just as full of regressions which send us down in the dumps. (They still make me depressed, even after all these years... and I 'know' that regressions are a part of the process/path to healing). What we do have, I hope... is the support of each other through all of the good days, the bad days and the days that you just don't believe that your child will get better. I fervantly call out to those that feel like this will " never " end.... Don't give up hope.... Don't give up searching or researching.... We will all be there for you and will hold your hand through ALL of the days, both the good and the bad. Take care everyone, Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Janice-- you are my hero and I agree with all that you've said bek In a message dated 11/18/2008 8:19:07 A.M. Eastern Standard Time, jscott@... writes: Oh Gosh.... If you want to call up my house and ask Mark whether he'd like to be free of dyspraxia tomorrow....If you want to call up my house and ask Mark wheth It is not a 'fun' condition and I don't believe that it is 'naturally' a part of him.... and most importantly.It is not a 'fun' condition and I don't believe that it is 'naturally' a part of him.... and most importantly.<WBR>... NEITHER DOES HE!!! For he has many, many days where he is completely symptom free.... and guess what.... those are the days he cherishes and he feels like himself. Now we only have 'dyspraxic' days a couple of times a month and on those days.... he gets really down and depressed about it. Because now, he 'sees' the For my son.... dyspraxia is a MEDICAL condition...For my son.... dyspraxia is a MEDICAL condition...<WBR>. not a part of who he naturally is. But, like diabetes, he may always have it to some extent but.... like diabetes and cancer... we should ALWAYS be seeking a CURE! I don't see low muscle Believe me everyone... if you don't believe that your child can heal.. he won't ever find recovery. To heal your child you must picture him everyday as being recovered and then slowly work towards that picture.... baby step by baby step, the picture comes to life. You must believe and your child must believe..... Today my darling son headed off to school at 7:00 am to participate on the wrestling team! My daughter looked at his frail skinny body and remarked.... " he just doesn't give up, does he? " I smiled and said, " Yeah, kids with dyspraxia may have weak bodies but their spirit is darn tough! They just keep on trying until they finally get there! " Mark had a blast on the wrestling team today and easily fit into the lightest group with his skinny little arms and tall stature. He came home this afternoon to declare that he had just joined the curling team; he'd be home late on Fridays. I'm still trying to imagine him having the strength to throw that curlng rock down the lane! (I can barely do it). I watch him valiently work his push-ups; he's up to 16 now; a month ago he had to do wall pushups because he lacked the forearm strength to do regular ones. He's already started studying for his learners license which he plans to take several days after his birthday this Christmas. He knows that many people with dyspraxia cannot drive and he's determined that he will not suffer this handicap. This is HIM... not me, mom, pushing. If my son believed in dyspraxia and autism.... he'd never have flown to California this summer on his own to do Adventure Camp; he wouldn't have mountain biked down a MOUNTAIN in Utah with a guide (not with me, I was too chicken); he wouldn't have white water rafted last summer in BC, mountain climbed and repelled using ropes or done half of the things he's done even though he has struggled so with severe global dyspraxia; he'd never have done 3 hours a day of home therapy after school and right now.... at this present moment, he wouldn't be wearing a patch on his left eye while working on his hand-writing. He'd have given up.... and he would have become a depressed and wounded soul. I am so so thankful that he doesn't believe that he's 'Stuck' with this nasty disease called dyspraxia...He'd have given up.... and he would have become a depressed and wounded soul. I am so so thankful that he doesn't believe thatHe'd have given up.... and he would have become a depressed and wounde Be careful as to how you want to define dyspraxia in your life; for us, we wage WAR on it every single day and I won't give up.... not til my dying breath... looking for a CURE for this awful condition...Be careful as to how you want to define dyspraxia in your life; for us, we wage WAR on it every single d I am not trying to yell here... but I do want to emphasize that 'mindset' is a key ingredient to healing.... the decision to 'fight' makes us powerful and strong. It is an 'important' part of healing and overcoming dyspraxia. So... choose your course carefully, you will find what you envision and imagine.... Janice Mother of Mark, 13 [sPAM]Re Autism is not curable, it just isn't. It is a part of who these kids are. Just like you cannot cure obsessive compulsive disorder or diabetes or many other conditions the therapies and bio medical interventions can make things a whole lot better. If you believe your child can be cured that is great, but autism is a complex neurological condition and it doesn't just go away. Many autistic adults have been asked if they would like their autism to be gone, they usually answer no. I hope some of my son's autistic tendencies get better, every day we see new improvement in one area or another, but there really is nothing to cure, he has autism and it is part of his being. The symptoms get better usually as they get older and other interventions also help. They may even improve so much no one ever knows that they have it. This is my belief. If others believe that their children have been cured congratulations. Jen ************************<WBR>**Get the Moviefone Toolbar. Showtimes, thea & more!(_http://pr.atwola.http://pr.atwhttp://pr.atwolahttp://pr.atwolahttp://pr ..htt_ (http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=htt) _p://toolbar.p://toolbar.<WBRp://toolbarp://toolbap://toolbar.<WBRp://_ (file:///p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol?redir=h\ ttp://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) Quote Link to comment Share on other sites More sharing options...
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