Re: New to group with 23 month old diagnosed with apraxia of speech

July 3, 2009

Yes. 26 months here and a friend just had her's diagnosed at 24 months.

Welcome to the group.

I did a trial this week of low protein diet (thinking metabolic disorder is

causing the neurological symptom of Apraxia.) GUESS WHAT THE RESULT WAS???

:0))))) When they signed and spoke, I UNDERSTOOD THEM BOTH!!!! :0)))) I have a 6

years with apraxia and a two year with apraxia, both males. I study genetics a

lot and lately I have been in search of answers due to the apraxia.

I know metabolic disorders show up as autsomal recessive. Hence, why all girls

(5 betweeen us both) and both boys are not.

My gut was right....it is something they are eating. Now, to find out exactly

which foods are good and which are not.

I am not saying this will cure all apraxias, but considering, it is very

reasonable to look into it since to -years-old is young to diagnose the

condition.

I have been looking for common denominators in a varied world of apraxics. This

" may " be the answer. It would certainly explain why some days kids do well and

other days they do not (their DIET).

I do know that different states do different newborn metabolic screenings; they

do not test for them all. SO, your babies may have had a screen, which in itself

is not reiable, but may not have been tested for the correct things or in the

correct way.

Just a thought, but try an elimination diet. Many have tried gluten free, like

me, many do caesin free, and there is also what we are trying now>>>low protein.

>

> Hi all. I just joined the group and admittedly do not know my way around just

yet. But I wanted to send a message out in case anyone out there was in a

similar situation as we are....my 23 month old (third child) was diagnosed with

apraxia of speech. Of course, I'm filled with mixed emotions. I read and

research everything I come across in every area of my life - so, I feel like I

already have a very good understanding of apraxia of speech including

supplementing with fish oil, etc. But I also realize I need a support group -

an empathetic shoulder to lean on once in awhile - as well as, experienced

parents who have already been thru what we are about to go thru. So...to keep

it short for now, I just wanted to see if there is anyone here that may have a

similar situation with a child being diagnosed so young. Thanks in advance and

I look forward to learning my way around. --Angie

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