light sensitivity/irlen syndrome/autism

November 26, 2008

thanks -- I save it for me to sit down and read tomorrow night after

Turkey dinner!

bek

In a message dated 11/26/2008 7:26:50 P.M. Eastern Standard Time,

loveisfosteringhere@... writes:

Bek,

I was reading through your email and it reminded me of a syndrome (that I

and my son have been tested for and that we have and it is apparently genetic

in nature) that is called Irlen Syndrome. I would highly suggest visiting

their site at _http://irlen.http://irlhttp://irle_

(http://irlen.com/index.php?s=index)

Look through the entire site, especially the testimonials - especially the

" the day we got our glasses " one. These people had autism and it changed

their lives. I cried when I read it. A quick summary is that the lightwaves

from the fluorescent lights cause haffock on some people, as well as white

boards. Now what do most schools use today - fluorescent lighting and white

boards. Another intereting note is that someone (I can't remember who at the

moment, maybe environmentalists or PG & E or ??????) are trying to ban

incondescent lights -which would be a horrible situation for people who have

this

syndrome The Irlen screener who helped us had a petition to try to stop this.

The plus side to this - a quick and inexpensive " fix " - unlike so many other

things that people here deal with!!!!

Also, according to the Irlen syndrome site, some of the distortions maybe be

exagerrated because I see rivers, but I don't see what exactly what they

show. I see a ton of small rivers all over the page. I KNEW my son had

something wrong, but I didn't know what and when I heard about this I had him

tested. I was sitting next to him watching the testing being done. I was

perfectly fine before the testing started, but I started getting sick and a

migraine

headache come on. I had to quick the testing, take some meds and go lay

down. I didn't even know that I had a problem. You see we all think that we

see normal. What we don't know we don't know!

I would encourage everybody to check this site out.

Blessings to You,

******************************************************************************

*************************************************************************

Peace I leave with you, my peace I give unto you: not as the world giveth

give I unto you. Let not your heart be troubled, neither let it be afraid.

14:27

________________________________

From: " _tbniesh@..._ (mailto:tbniesh@...) " <_tbniesh@..._

(mailto:tbniesh@...) >

_ childrensaprachi_

(mailto: )

Sent: Tuesday, November 25, 2008 9:25:13 PM

Subject: Re: [childrensapraxianeSubject: & fillings--oooh long reply

Nelia-

I am SO thinking that it's the PERFECT TIMING for you to ask me about

this!!!!

The reason is-- I am convinced that I have some really big issues with

mercury poisoning-- or whatever anyone wants to call it.

When they removed my fillings-- there were a few pieces that I caught

before they would have been swallowed/ingested. THANK GOD! They were large

enough

pieces that they should have seen, too! I was a bit surprised that they were

not more careful with the removal, because everyone knows how dangerous

mercury is-- RIGHT? <sigh>

But I still ingested the powder fumes and that's not too great

Anyway-- yes-- I was VERY concerned about it when I became pregnant almost

immediately after-- or found out right as it was all happening. I wish I

could tell you that I feel fine or that I have no concerns-- but that would

be a

huge lie

I almost came on to the BioMed group that some here are on to ask them

about how to chelate the mercury safely from my system and also from the

baby. I

feel horrible, and I have since I had those fillings taken out. I am

exhausted beyond measure, and it doesn't go away. My body just HURTS and

ACHES like

the dickens, and it doesn't go away, and I am also struggling with PPD

moreso

than ever before.

I just feel SICK-- not as in cold sick, but SICK SICK and I feel ill

overall. I had pretty much decided over the weekend that I would call my

Primary

Dr and ask them to run a blood test to see what the metal levels were, but I

have no idea what that blood test is called (anyone????) I really think it's

the mercury from the fillings because that's about how long I've been

feeling yucky.

Now-- about the baby-- again, I wish I could tell you that I had no

concerns-- but that would ALSO be a big lie!!! Having (already) two neuro

kids with

sensory issues-- I can now pick it up in a heartbeat and see things in other

kids when we're out and about-- etc.

Aramis was SUPER FUSSY for the first 3-4mos. He would cry when we went into

a store that had flourescent lighting or those bright lights (CFC lights)

JUST LIKE MY NEURO boys BOTH did! He literally cries from the moment I walk

into the store til the moment I walk out. (he HAS improved though). Not only

that, but he would scream the moment I put him into the carseat and drove

til

the moment I took him out of the seat-- quite literally for the first

(whole)

4 mos! Again-- JUST LIKE MY NEURO BOYS BOTH DID!

I think this is linked to the vestibular issues you'd see with sensory kids,

and the lighting of course is the sensitivity to lights you'd see. Also-- he

would react to any sudden noises and they would frighten him--not in a

typical newborn way, but differently. We nicknamed him " scaredy cat " because

of

this! LOL

this again makes me think of noise sensitivity that you'd see with sensory

issues.

All of this is quite worrisome to me. NOW-- I will say that he's SUPER fast

with development- - he's ALREADY doing the whole crawling thing. He started

the

military crawl (on the belly) at 4 mos, and was up on all fours 2 wks

later-- doing a lunge/hop thing, and now he's doing a full crawl/creeping- -

*BUT*

BUT BUT

I've started getting concerned about HOW he's creeping, because he's

starting to lift his legs UP and not do the correct cross-pattern motion

that IS

VITAL!!! (AGAIN like both my neuro boys!!!!)

So yes-- I'm concerned and I've seen enough sensory issues to get worried

and start praying for the little guy. With the creeping-- I spoke with the

Neuro chiro that is working with our 9 1/2 yr old (ADHD and possible Aspie)

and

he said that I can't STOP the baby from crawling/creeping, so it's best to

flop him on his back and force a cross pattern mimick type thing as a

therapy to

at least get him to crawl the RIGHT WAY to avoid serious issues in the long

run. So-- it's a bit funny, but we're doing PT exercises with a 5 mos old!

LOL And it's interesting to get 2 people to do that motion in the right

timing

and speed, too! LOL

I don't know what is to come-- but I PRAY that there won't be any issues

with him and that this is only me overreacting. (I'm not-- because the

issues

are definitely there) but I pray that it won't be a PROBLEM in the long term.

I do need to figure out what can get this mercury out of my system though.

My sister swears that the Waiora NCD and Agarigold would do it-- and it's

100%

safe for me AND baby (even if given directly) so it can't hurt to try it. If

anyone else has any suggestions, I'm open to hearing it-- he's 5 mos and is

11 1/2 lbs (tiny guy) and I'm not sure what else is out there that's safe.

What would I recommend you doing?? Do something that I didn't do and that I

seriously regret--- get them taken out by a highly trained dentist that does

this holisitically and RIGHT! I had someone tell me that in order to do it

the right way you're supposed to be hooked up to an IV or something-- I bet

you

could search on the proper way and the healthiest way to get them taken

out. But-- if you can't find anyone to do it in the area, then I would NOT

suggest getting them taken out til after you've had the baby and have weaned.

I really wish that I hadn't been so impatient to get my teeth done-- and I'm

not exactly sure WHY I was at the time-- <sigh>

It is what it is

those are my thoughts-- sorry you asked?

Bek

In a message dated 11/25/2008 1:37:22 P.M. Eastern Standard Time,

nelia_nunes@ hotmail.com writes:

Hi Becky,

This is going to sound very random, but I was searching on this board

for " mercury fillings " and reading the posts that came up with those

words in them. I was doing that because I just recently got 2 silver

fillings removed and we want to start trying for baby #2 and I am

trying to figure out how long I should wait before we start trying. We

REALLY want to start trying ASAP. We've put off trying for a year due

to various things that I won't bore you with! Anyways, I noticed a

post from last year where you said you had fillings removed right

before getting pregnant and you were worried about that. I see that

little Aramis was born a few months ago (congrats!!) little Aramis was bor

asking if you see any delays or sensory issues with Aramis (that could

be a result of the fillings being removed)? What did you do, if

anything, to remove the mercury from your system? I saw that someone

recommended Epson salts?

Thank you!

Nelia

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November 26, 2008

Bek,

I was reading through your email and it reminded me of a syndrome (that I and

my son have been tested for and that we have and it is apparently genetic in

nature) that is called Irlen Syndrome. I would highly suggest visiting their

site at http://irlen.com/index.php?s=index

Look through the entire site, especially the testimonials - especially the " the

day we got our glasses " one. These people had autism and it changed their

lives. I cried when I read it. A quick summary is that the lightwaves from the

fluorescent lights cause haffock on some people, as well as white boards. Now

what do most schools use today - fluorescent lighting and white boards. Another

intereting note is that someone (I can't remember who at the moment, maybe

environmentalists or PG & E or ??????) are trying to ban incondescent lights

-which would be a horrible situation for people who have this syndrome The

Irlen screener who helped us had a petition to try to stop this.

The plus side to this - a quick and inexpensive " fix " - unlike so many other

things that people here deal with!!!!

Also, according to the Irlen syndrome site, some of the distortions maybe be

exagerrated because I see rivers, but I don't see what exactly what they show.

I see a ton of small rivers all over the page. I KNEW my son had something

wrong, but I didn't know what and when I heard about this I had him tested. I

was sitting next to him watching the testing being done. I was perfectly fine

before the testing started, but I started getting sick and a migraine headache

come on. I had to quick the testing, take some meds and go lay down. I didn't

even know that I had a problem. You see we all think that we see normal. What

we don't know we don't know!

I would encourage everybody to check this site out.

Blessings to You,

********************************************************************************\

***********************************************************************

Peace I leave with you, my peace I give unto you: not as the world giveth give

I unto you. Let not your heart be troubled, neither let it be afraid.

14:27

________________________________

From: " tbniesh@... " <tbniesh@...>

Sent: Tuesday, November 25, 2008 9:25:13 PM

Subject: Re: [ ] Becky & fillings--oooh long reply

Nelia-

I am SO thinking that it's the PERFECT TIMING for you to ask me about

this!!!!

The reason is-- I am convinced that I have some really big issues with

mercury poisoning-- or whatever anyone wants to call it.

When they removed my fillings-- there were a few pieces that I caught

before they would have been swallowed/ingested. THANK GOD! They were large

enough

pieces that they should have seen, too! I was a bit surprised that they were

not more careful with the removal, because everyone knows how dangerous

mercury is-- RIGHT? <sigh>

But I still ingested the powder fumes and that's not too great

Anyway-- yes-- I was VERY concerned about it when I became pregnant almost

immediately after-- or found out right as it was all happening. I wish I

could tell you that I feel fine or that I have no concerns-- but that would be a

huge lie

I almost came on to the BioMed group that some here are on to ask them

about how to chelate the mercury safely from my system and also from the baby. I

feel horrible, and I have since I had those fillings taken out. I am

exhausted beyond measure, and it doesn't go away. My body just HURTS and ACHES

like

the dickens, and it doesn't go away, and I am also struggling with PPD moreso

than ever before.

I just feel SICK-- not as in cold sick, but SICK SICK and I feel ill

overall. I had pretty much decided over the weekend that I would call my Primary

Dr and ask them to run a blood test to see what the metal levels were, but I

have no idea what that blood test is called (anyone????) I really think it's

the mercury from the fillings because that's about how long I've been

feeling yucky.

Now-- about the baby-- again, I wish I could tell you that I had no

concerns-- but that would ALSO be a big lie!!! Having (already) two neuro kids

with

sensory issues-- I can now pick it up in a heartbeat and see things in other

kids when we're out and about-- etc.

Aramis was SUPER FUSSY for the first 3-4mos. He would cry when we went into

a store that had flourescent lighting or those bright lights (CFC lights)

JUST LIKE MY NEURO boys BOTH did! He literally cries from the moment I walk

into the store til the moment I walk out. (he HAS improved though). Not only

that, but he would scream the moment I put him into the carseat and drove til

the moment I took him out of the seat-- quite literally for the first (whole)

4 mos! Again-- JUST LIKE MY NEURO BOYS BOTH DID!

I think this is linked to the vestibular issues you'd see with sensory kids,

and the lighting of course is the sensitivity to lights you'd see. Also-- he

would react to any sudden noises and they would frighten him--not in a

typical newborn way, but differently. We nicknamed him " scaredy cat " because of

this! LOL

this again makes me think of noise sensitivity that you'd see with sensory

issues.

All of this is quite worrisome to me. NOW-- I will say that he's SUPER fast

with development- - he's ALREADY doing the whole crawling thing. He started the

military crawl (on the belly) at 4 mos, and was up on all fours 2 wks

later-- doing a lunge/hop thing, and now he's doing a full crawl/creeping- -

*BUT*

BUT BUT

I've started getting concerned about HOW he's creeping, because he's

starting to lift his legs UP and not do the correct cross-pattern motion that IS

VITAL!!! (AGAIN like both my neuro boys!!!!)

So yes-- I'm concerned and I've seen enough sensory issues to get worried

and start praying for the little guy. With the creeping-- I spoke with the

Neuro chiro that is working with our 9 1/2 yr old (ADHD and possible Aspie) and

he said that I can't STOP the baby from crawling/creeping, so it's best to

flop him on his back and force a cross pattern mimick type thing as a therapy to

at least get him to crawl the RIGHT WAY to avoid serious issues in the long

run. So-- it's a bit funny, but we're doing PT exercises with a 5 mos old!

LOL And it's interesting to get 2 people to do that motion in the right timing

and speed, too! LOL

I don't know what is to come-- but I PRAY that there won't be any issues

with him and that this is only me overreacting. (I'm not-- because the issues

are definitely there) but I pray that it won't be a PROBLEM in the long term.

I do need to figure out what can get this mercury out of my system though.

My sister swears that the Waiora NCD and Agarigold would do it-- and it's 100%

safe for me AND baby (even if given directly) so it can't hurt to try it. If

anyone else has any suggestions, I'm open to hearing it-- he's 5 mos and is

11 1/2 lbs (tiny guy) and I'm not sure what else is out there that's safe.

What would I recommend you doing?? Do something that I didn't do and that I

seriously regret--- get them taken out by a highly trained dentist that does

this holisitically and RIGHT! I had someone tell me that in order to do it

the right way you're supposed to be hooked up to an IV or something-- I bet you