Re: Newbie : )

[Guest guest]

Hi !

I'm new too, only 4 days in and ouch! lol I had a mini break down

yesterday morning. I came off of counting " points " for food and knowing

the fat, calories, fibre in everything so it's hard to eat more. But at

least it's healthy! I feel better too. Not so tired when I wake up.

Tink

phjc63 wrote:

> Hello!

>

> I am on Day 5 of my 1st Challenge... I feel great, but I would love

> to have some extra support- this seems like a great board! I am still

> a bit unsure if I am doing everything right- but I am trying. And

> good grief, I am sore from my workouts! I am used to really limiting

> my calories, so this is a big change for me- it makes me nervous to

> be eating more, but I KNOW this is a much healthier approach. Anyway,

> just wanted to introduce myself

>

>

>

>

>

[Guest guest]

Heyyyy I know you Tink

[Guest guest]

kee hee...peek a boo !

Welcome to the group!

lol

phjc63 wrote:

> Heyyyy I know you Tink

>

>

>

>

>

[Guest guest]

Hi ,

Welcome! I can't write too long right now because I have a toddler at

large (who has recently discovered the joys of wall-art...lol!) but I

saw your post and I had to comment that I can totally relate. In fact,

I think I basically wrote the same post 3 months ago. (Just change the

name a few letters and the gender of the child!) My DS is almost 23

months old, and has been receiving speech therapy for 3 months. He was

also starting to talk around 14 months and then lost his words. (He

eventually lost them all, around 19 months). When he lost his words,

he also used " Mama " for everything. He also is extremely quiet, rarely

babbles, and has normal hearing. (Sound familiar?)

My son does have SPD and gets OT once a week in addition to ST once a

week. I also strongly suspect apraxia for my son, but I have been

assured over and over that it is too early to tell for sure. I too am

proactive and didn't want to waste any time while his brain is still

developing so quickly. It's frustrating to not know exactly what is

going on because I want to help him so desperately. Patience is not my

strong suit.

We have been on fish oil about 5 weeks now. While I didn't see much of

a difference with speech, I did see an increase in his attention span,

and so did his ST. Now this past week, I did see that language surge

I've been hoping for!! He got back " uh oh " , made up 2 signs (we've

been doing sign for the past 3 months) and started saying " bye-bye " !!

And consistently!!! He has also started trying to imitate words. His

attempts are inconsistent, and rely on his favorite sound ( " ba " ) and a

very small number of other consonants, but he is trying! It's amazing

and I am so excited!!

Anyway, my DS is now trying to push me away from the computer, but I

wanted to just let you know how much I relate. The emotional part of

this can definitely be tough. And I know especially at first there is

so much to learn, it really can be overwhelming. But it does get

better. I still have moments where I am overwhelmed, but many more

where I have hope. This board is a great place to learn a lot.

It's really hard without support. Big hugs to you!! You are doing the

right thing by learning as much as you can and being proactive. I'm

just at the beginning of this journey too, so I don't have much

advice, but wanted to let you know that you are not alone!!

Corie

>

>

[Guest guest]

Thank you so much for your reply! I have so desperately just wanted someone to

relate too. It just makes it easier. Everything does sound the same. She also

likes to use Bah alot. We'll have to keep each other posted on anything we learn

along the way. Have fun chasing the little one around!

 

From: vcromero1 <vcromero1@...>

Subject: [ ] Re: Newbie : )

Date: Monday, November 24, 2008, 10:09 AM

Hi ,

Welcome! I can't write too long right now because I have a toddler at

large (who has recently discovered the joys of wall-art...lol! ) but I

saw your post and I had to comment that I can totally relate. In fact,

I think I basically wrote the same post 3 months ago. (Just change the

name a few letters and the gender of the child!) My DS is almost 23

months old, and has been receiving speech therapy for 3 months. He was

also starting to talk around 14 months and then lost his words. (He

eventually lost them all, around 19 months). When he lost his words,

he also used " Mama " for everything. He also is extremely quiet, rarely

babbles, and has normal hearing. (Sound familiar?)

My son does have SPD and gets OT once a week in addition to ST once a

week. I also strongly suspect apraxia for my son, but I have been

assured over and over that it is too early to tell for sure. I too am

proactive and didn't want to waste any time while his brain is still

developing so quickly. It's frustrating to not know exactly what is

going on because I want to help him so desperately. Patience is not my

strong suit.

We have been on fish oil about 5 weeks now. While I didn't see much of

a difference with speech, I did see an increase in his attention span,

and so did his ST. Now this past week, I did see that language surge

I've been hoping for!! He got back " uh oh " , made up 2 signs (we've

been doing sign for the past 3 months) and started saying " bye-bye " !!

And consistently! !! He has also started trying to imitate words. His

attempts are inconsistent, and rely on his favorite sound ( " ba " ) and a

very small number of other consonants, but he is trying! It's amazing

and I am so excited!!

Anyway, my DS is now trying to push me away from the computer, but I

wanted to just let you know how much I relate. The emotional part of

this can definitely be tough. And I know especially at first there is

so much to learn, it really can be overwhelming. But it does get

better. I still have moments where I am overwhelmed, but many more

where I have hope. This board is a great place to learn a lot.

It's really hard without support. Big hugs to you!! You are doing the

right thing by learning as much as you can and being proactive. I'm

just at the beginning of this journey too, so I don't have much

advice, but wanted to let you know that you are not alone!!

Corie

>

>

[Guest guest]

Hi !

My daughter is 9 so I know what you are going through. I really can relate to

how you feel emotionally! My husband said the same thing. We had a brief

separation when Shyann was two and that's when I finally got some help

professionally. Seven years later he knows she has apraxia; but his family still

think it's lack of good parenting. Believe me, living with people's denial is

something I think we all go through and often live with on a daily basis. So

believe me, we are here for you! Anytime you need someone, no matter what you

are up against, we are here! We look forward to hearing from you again and

letting us know how things are going. I especially want to know that you are

coping with everything when family arn't backing you! Take care,

Joy and Shyann, age 9

________________________________

From: Dunnagan <ibeecarrie@...>

Apraxia Group < >

Sent: Sunday, November 23, 2008 10:21:08 PM

Subject: [ ] Newbie : )

Hi! I'm new to the group. I appreciate being here. My name is . I am a mom

of three. My youngest is suspected of being  apraxic. This is just a hunch for

now I guess as my daughter is only 19 months old. I'm an extreemly proactive

parent and having some limited medical background from my previous life before

kids, I know how crucial it is to jump on these things early.

 

My dd used to be able to say da-da, bye-bye, puppy/dahdee, uh-oh, and ball at 14

months. Now at almost 19 mos. she's down to Ma-ma (for everything) and ball

(bah). She is mouse quiet when she plays and has never baby babbled. Hearing

test came back normal. She has no history of any ear infections or illness,

never been on an antibiotic, nothing. She did however have an adverse reaction

to her vaccines at 4 months. She siezed and quit breathing.. Supposedly she has

no residual effects. (I digress.)

 

Anyway, she's getting ST one day a week for an hour. I love her SLP, beyond

pleased. I also just started her on ProEFA. The SLP also mentioned getting

therapy 2 day's a week, maybe some OT. I think she wants more time with her

first.

 

I am currently running the emotional/mental gamut. Maybe she's fine? She's just

a little behind? I'm overwhelmed, I hope I'm doing everything I can for her.

I am learning and teaching her sign language. I work with her everyday but can't

seem to get her to mimic sounds.

 

My husband thinks she's fine, just a late talker and that I'm nuts. I hope he's

right, but I'm so hurt and angry that he is so against doing what is best for

her. Did I say, I hope he's right?

 

I don't have alot of family support so here I am. You poor unlucky ppl. If you

got through all of this, thank you! I know there is nothing anyone can really

do, but, if someone can relate, I'll take that.

 

~

 

 

[Guest guest]

Hi ,

You so are not alone in this journey! We started this roller coaster ride when

my son was

18 months old. Everyone told me he was just a late talker too...but my " mom

intuition "

told me differently. He now is 2 1/2 years old and has been diagnosed with

severe

apraxia, hypotonia, and sensory processing dysfunction. His neurologist just

calls it

dyspraxia because he also has gross motor and fine motor issues...I just thought

he was

really clumsy! But after reading " The Late Talker " and " The Out of Sync Child " ,

plus

belonging to this message board, I have learned a tremendous amount about

Larsyn's

disabilities. You are doing the right thing by being proactive. Even if it

turns out she is just

a late talker, the therapies haven't hurt her! But if she has apraxia and any of

the soft

signs you will be so happy you started therapy when she is so young! Just know

it might

be a really slow process, at least it has been for us. I you have any questions

about our

journey, please e-mail me.....

Jenna Weil (mom to Larsyn 2.6 yo and Chance 5 yo)

North Tustin, CA

>

>

> Hi! I'm new to the group. I appreciate being here. My name is . I am a

mom of

three. My youngest is suspected of being  apraxic. This is just a hunch for now

I guess as

my daughter is only 19 months old. I'm an extreemly proactive parent and having

some

limited medical background from my previous life before kids, I know how crucial

it is to

jump on these things early.

>  

> My dd used to be able to say da-da, bye-bye, puppy/dahdee, uh-oh, and ball at

14

months. Now at almost 19 mos. she's down to Ma-ma (for everything) and ball

(bah). She

is mouse quiet when she plays and has never baby babbled. Hearing test came back

normal. She has no history of any ear infections or illness, never been on an

antibiotic,

nothing. She did however have an adverse reaction to her vaccines at 4 months.

She siezed

and quit breathing. Supposedly she has no residual effects. (I digress.)

>  

> Anyway, she's getting ST one day a week for an hour. I love her SLP, beyond

pleased. I

also just started her on ProEFA. The SLP also mentioned getting therapy 2 day's

a week,

maybe some OT. I think she wants more time with her first.

>  

> I am currently running the emotional/mental gamut. Maybe she's fine? She's

just a little

behind? I'm overwhelmed, I hope I'm doing everything I can for her.

> I am learning and teaching her sign language. I work with her everyday but

can't seem

to get her to mimic sounds.

>  

> My husband thinks she's fine, just a late talker and that I'm nuts. I hope

he's right, but

I'm so hurt and angry that he is so against doing what is best for her. Did I

say, I hope he's

right?

>  

> I don't have alot of family support so here I am. You poor unlucky ppl. If you

got

through all of this, thank you! I know there is nothing anyone can really do,

but, if

someone can relate, I'll take that.

>  

> ~

>  

>  

>

>

>

>

>

[Guest guest]

Thank you Joy! I'm glad things worked out for you!

Dh is hot and then cold.

Nothing is going to stop me from fighting for my sweet girl!

I have a line, HOPEFULLY to a pharmacist/scientist at one of the area hospitals

who has compounded for apraxia before. I'm anxious to see what he comes up with

for my dd.

And I'm going to press for the additional therapy at her next session.

From: Joy Hansen <shyautumnbear@...>

Subject: Re: [ ] Newbie : )

Date: Monday, November 24, 2008, 7:31 PM

Hi !

My daughter is 9 so I know what you are going through. I really can relate to

how you feel emotionally! My husband said the same thing. We had a brief

separation when Shyann was two and that's when I finally got some help

professionally. Seven years later he knows she has apraxia; but his family still

think it's lack of good parenting. Believe me, living with people's denial is

something I think we all go through and often live with on a daily basis. So

believe me, we are here for you! Anytime you need someone, no matter what you

are up against, we are here! We look forward to hearing from you again and

letting us know how things are going. I especially want to know that you are

coping with everything when family arn't backing you! Take care,

Joy and Shyann, age 9

____________ _________ _________ __

From: Dunnagan <ibeecarrie (DOT) com>

Apraxia Group < @groups. com>

Sent: Sunday, November 23, 2008 10:21:08 PM

Subject: [childrensapraxiane t] Newbie : )

Hi! I'm new to the group. I appreciate being here. My name is . I am a mom

of three. My youngest is suspected of being  apraxic. This is just a hunch for

now I guess as my daughter is only 19 months old. I'm an extreemly proactive

parent and having some limited medical background from my previous life before

kids, I know how crucial it is to jump on these things early.

 

My dd used to be able to say da-da, bye-bye, puppy/dahdee, uh-oh, and ball at 14

months. Now at almost 19 mos. she's down to Ma-ma (for everything) and ball

(bah). She is mouse quiet when she plays and has never baby babbled. Hearing

test came back normal. She has no history of any ear infections or illness,

never been on an antibiotic, nothing. She did however have an adverse reaction

to her vaccines at 4 months. She siezed and quit breathing.. Supposedly she has

no residual effects. (I digress.)

 

Anyway, she's getting ST one day a week for an hour. I love her SLP, beyond

pleased. I also just started her on ProEFA. The SLP also mentioned getting

therapy 2 day's a week, maybe some OT. I think she wants more time with her

first.

 

I am currently running the emotional/mental gamut. Maybe she's fine? She's just

a little behind? I'm overwhelmed, I hope I'm doing everything I can for her.

I am learning and teaching her sign language. I work with her everyday but can't

seem to get her to mimic sounds.

 

My husband thinks she's fine, just a late talker and that I'm nuts. I hope he's

right, but I'm so hurt and angry that he is so against doing what is best for

her. Did I say, I hope he's right?

 

I don't have alot of family support so here I am. You poor unlucky ppl. If you

got through all of this, thank you! I know there is nothing anyone can really

do, but, if someone can relate, I'll take that.

 

~

 

 

[Guest guest]

Hi

I just wanted to say that you are not alone!! It is so frustrating

to just not know the reason for the lack of speech. My 3 yr old

daughter was preemie so for a while I kept telling myself that she

wasn't talking due to that. Now at 3 the only things she says are

Mama, baby (pronouned bebe) and calls most everything ba ba ba. She

also wasn't a babler when she was a baby. I had a hunch too that

something was amiss when she was younger but I guess I didn't really

want to believe it and so I pushed it away and blamed it on the

prematurity. I sure wish I hadn't done that now. I would advise you

to treat it as apraxia ..falls under the can't hurt might help

theory. My daughter is doing fantastic with the sign language and I

think it is improving her speech also. Since we have begun it she

has said more consonants and tries to talk more too. I think the

stress from not being able to communicate to us was lifted by being

able to sign and now she focuses more on trying to speak since she

understands that when she does communicate in any fashion it helps

her to get what she is wanting to get from us. I have tried many of

the sign language videos and I love the videos Signing Times..you can

get them online (they aren't cheap) or some libraries carry

them..Ebay is a good place to check also. I am getting ready to try

a series of videos called Baby Bumblebee which are supposed to be

good for speech and for signing.

I feel sad for you that you don't have much support near you..this

board (even though I just joined it very recently) has made me feel

so much better...like I am not in this alone. Hopefully you will

find that it does the same for you.

Best wishes to you

>

>

> Hi! I'm new to the group. I appreciate being here. My name is

. I am a mom of three. My youngest is suspected of being 

apraxic. This is just a hunch for now I guess as my daughter is only

19 months old. I'm an extreemly proactive parent and having some

limited medical background from my previous life before kids, I know

how crucial it is to jump on these things early.

>  

> My dd used to be able to say da-da, bye-bye, puppy/dahdee, uh-oh,

and ball at 14 months. Now at almost 19 mos. she's down to Ma-ma (for

everything) and ball (bah). She is mouse quiet when she plays and has

never baby babbled. Hearing test came back normal. She has no history

of any ear infections or illness, never been on an antibiotic,

nothing. She did however have an adverse reaction to her vaccines at

4 months. She siezed and quit breathing. Supposedly she has no

residual effects. (I digress.)

>  

> Anyway, she's getting ST one day a week for an hour. I love her

SLP, beyond pleased. I also just started her on ProEFA. The SLP also

mentioned getting therapy 2 day's a week, maybe some OT. I think she

wants more time with her first.

>  

> I am currently running the emotional/mental gamut. Maybe she's

fine? She's just a little behind? I'm overwhelmed, I hope I'm doing

everything I can for her.

> I am learning and teaching her sign language. I work with her

everyday but can't seem to get her to mimic sounds.

>  

> My husband thinks she's fine, just a late talker and that I'm nuts.

I hope he's right, but I'm so hurt and angry that he is so against

doing what is best for her. Did I say, I hope he's right?

>  

> I don't have alot of family support so here I am. You poor unlucky

ppl. If you got through all of this, thank you! I know there is

nothing anyone can really do, but, if someone can relate, I'll take

that.

>  

> ~

>  

>  

>

>

>

>

>