Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Hello--I just wanted a little input......I have 21 month old twin boys who havent said a single word yet---lots of gesturing, babbling, pointing, taking my hand etc---just no words--We have done the whole EI process at 18 months and will be starting ST next week, after being on several waiting lists, for both to start together. Apraxia needs to be ruled out---They do give kisses, drink very well through straws, blow a flute and harmonica---they also drool. My question is this--I started the NN Pro Efa 2 weeks ago and havent seen any change at all---1 capsule/day. COuld this possible mean they dont have apraxia and maybe just arent ready to talk??? All of the parents in my local multiple moms support group reassured me that their twins didnt start talking until after 2--some close to 3---I am just concerned now about apraxia--my boys are fraternal---what are the chances??? I dread the thought of having 2 same aged children that will need so much individualized help that I cant give, unless I spilt myself in 2---I thought the hard times were behind me and now I feel caught off guard with this silent, sneaky disorder. Id appreciate any input re: the FO not working and what that may mean. Thanks Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Hi Tricia, First of all congratulations on your two little boys, and you'll get more info from others, but the first thing that caught my eye here is that you said they " may not have apraxia because there's no response to the fish oil " . First of all it's too early to tell f the fisil is working or not and that's not a logical conclusion anyway. They may or may not have apraxia,-- twins sometimes do develop their speech differently because they are together so much and learn to communicate in their own way-- or they may indeed have some speech problems and it may be apraxia, and fish oil may help, whether they have apraxia or not, ---but know that it's not just apraxic kids who respond well to Omega 3 --Fish Oil supplementation, many neuro typical children can benefit from this supplementation, and many children with other neuro-disorders also benefit. However, before any benefits can be rulled out or noted you need to give it a little more time and especially be sure there are no absorption problems which could interfere with any potential benefits the fish oil may have as was the case with my daughter. A doctor trained in biomedicine can help you understand the possible connections between the absorption, nutritional deficiencies and what ever your children may be experiencing in terms of speech. These doctors have MDs and also additional training in biomedicine, naturopathy, homeopathy etc. It's an integrative medicine field that works more with nutrition and supplements and not with the harsh Big Pharma drugs that typically only address the symptoms and not the underlying causes of the problem. Now, the apraxia diagnosis is a different issue and you need to see a specialist who knows apraxia --in most cases a knowledgeable, experienced SLP along with a knowledgeable developmental pediatrician who also understands apraxia to assess all possible developmental needs the children may have at this point. The apraxia may be a tentative diagnosis at this early age but the therapy is the same regardless until it can be ruled out and adequate progress is made. Appropriate and frequent speech therapy should be started right away, with good motor planning techniques. Please note that the Early Start team may or may not be the best option, they do not typically diagnose speech issues and only offer remediation for overall areas of concern. This is great for regular delays, but if your children do indeed have apraxia, you want a more definite diagnosis and especially the appropriate treatment which public programs can offer but are not bending over backwards to do, unless the parents know to ask for it and insist on outsourcing if the programs do not have SLPs trained in motor planning techniques. So a private SLP who knows apraxia, or a developmental pediatrician who again, knows apraxia, --but really knows it, not just says they've heard about it would be your best bet to secure a more accurate albeit tentative diagnosis. But that's enough for now to begin appropriate treatment. And then the fish oil is a whole other thing, a whole other specialty with the biomedically trained doctor. Now many parents try it on their own, just by reading this list archives and asking questions, and you can certainly do that and see results, but please note that if you do not, or just because you see some results it doesn't mean you're really doing it the best way. We're all different from a metabolic perspective and it is often the case that children who have speech issues, apraxia or not, can benefit from the supplementaion wiith fish oil and other things but really the best way to do it is under a doctor's supervision to fully get the benefits and identify all possible problems --like malabsorption. Hope this clarifies things a little. Good luck! -Elena--mom to Ziana --3.8 yrs--severe sopeech apraxia --but progressing well since appropriate diet/supplements and speech therapy have been implemented triciaesham <triciarnny@...> wrote: Hello--I just wanted a little input......I have 21 month old twin boys who havent said a single word yet---lots of gesturing, babbling, pointing, taking my hand etc---just no words--We have done the whole EI process at 18 months and will be starting ST next week, after being on several waiting lists, for both to start together. Apraxia needs to be ruled out---They do give kisses, drink very well through straws, blow a flute and harmonica---they also drool. My question is this--I started the NN Pro Efa 2 weeks ago and havent seen any change at all---1 capsule/day. COuld this possible mean they dont have apraxia and maybe just arent ready to talk??? All of the parents in my local multiple moms support group reassured me that their twins didnt start talking until after 2--some close to 3---I am just concerned now about apraxia--my boys are fraternal---what are the chances??? I dread the thought of having 2 same aged children that will need so much individualized help that I cant give, unless I spilt myself in 2---I thought the hard times were behind me and now I feel caught off guard with this silent, sneaky disorder. Id appreciate any input re: the FO not working and what that may mean. Thanks Tricia ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 My son definitely has apraxia (mostly resolved now) and is not a fish oil responder. There are quite a few kids here who aren't. Because so many kids DO respond it's a great first thing to try. I'd keep it up for a few more weeks, and if they aren't resistant to taking it keep them on it anyway because it is healthy for them. My son made no progress in two years of speech therapy, but after starting Prompt therapy he made slow and steady progress. After two years of prompt we started Vitamin E and he had a HUGE spurt and is now age appropriate in one word speech production! Miche On Sat, Jun 7, 2008 at 1:39 PM, triciaesham <triciarnny@...> wrote: > Hello--I just wanted a little input......I have 21 month old twin boys > who havent said a single word yet---lots of gesturing, babbling, > pointing, taking my hand etc---just no words--We have done the whole > EI process at 18 months and will be starting ST next week, after being > on several waiting lists, for both to start together. Apraxia needs to > be ruled out---They do give kisses, drink very well through straws, > blow a flute and harmonica---they also drool. My question is this--I > started the NN Pro Efa 2 weeks ago and havent seen any change at > all---1 capsule/day. COuld this possible mean they dont have apraxia > and maybe just arent ready to talk??? All of the parents in my local > multiple moms support group reassured me that their twins didnt start > talking until after 2--some close to 3---I am just concerned now about > apraxia--my boys are fraternal---what are the chances??? I dread the > thought of having 2 same aged children that will need so much > individualized help that I cant give, unless I spilt myself in 2---I > thought the hard times were behind me and now I feel caught off guard > with this silent, sneaky disorder. Id appreciate any input re: the FO > not working and what that may mean. Thanks Tricia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 I agree with and Elena in that you can't take the lack of response to fish oils as the sign that it's not apraxia. The fish oils based on the most recent feedback appears to work for over 90% - but that still leaves a number that don't respond to it. Out of that 10 or so % some found some found success by doing various things such as stopping constipation medication or eliminating cod liver oil. Even still -some apraxic children have no change with or without the oil therapy. There's been a dramatic rise in apraxia which used to be rare and it's happening in families with no genetic history of speech impairments -it probably doesn't work for the rare child who would have had apraxia 50 years ago. My suspicion is that those children have apraxia for a different reason then the majority. It's only been 2 weeks. The oils typically " work " in a day to 3 weeks and the first signs are not always speech but...(from an archive) common changes in an apraxic or other speech disordered child on EFAs from what I've read and heard and seen. 1. Increase in babbling or attempts at sounds. 2. Increase in imitation. Changes also can be looked for in (what you see as positive or negative) sleep attention appetite focus behavior stools Even though we know through the younger siblings of the older apraxic children that the EFAs have worked for babies -your children are not yet even 2 years old so a bit early to know if there are apraxic. And from what you are saying it doesn't sound like that have oral apraxia. Just to clarify however apraxia is not the inability to do an action -it's the inability to do it " on command " That means if you ask your child to give kisses or make a funny face or lick peanut butter off their lick they can do it when asked. Drooling for a child your children's age is still considered normal. Outside of not speaking yet is there anything else that concerns you? Have you read The Late Talker book? Here's some links that may help Late Talker or Apraxia http://www.cherab.org/information/speechlanguage/questionsanswers.html Late Blooming or Language Problem http://www.ldonline.org/article/6232 Speech and Language Milestone Chart http://www.ldonline.org/article/6313 Huge hugs to you and your little boys. I hope they are " just " late talker! It's clear no matter what your children are under the care of a mom that is on it -so they are being provided the best chance possible for success! ) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Wow, , this really makes me want to try the vitamin E. My daughter responded really well to the GF/CF SF/CF diet; fish oil she's been getting since birth but she's severely apraxic so I don't really count her as responding to that necessarily or I may not have the right dosage/mix of fatty acids. Recently the doctor has added the GLA and that seems to be making a bit more difference but it's hard to tell exactly at this point since she is on an up swing. The B12 shots have had the greatest impact given her gluten issues she was very deficient--as I am it seems but I never had speech issues. Also the PROPMT therapy made a huge difference too. I was now thinking about switching to a different oil to see if that makes a difference since her big thing was absorption. She was deficient in the Omega3 in spite of the massive doses she was getting since birth. Well, not so much the first 2 years before I knew about her speech disorder. Anyway, the absorption factor seems to be very big, and some kids do well withe vitamin E, as Dr. said, there may be something in the way the fish oil and vitamin E interact. I definitely will try it next. Thanks for sharing! -Elena ==mom to Ziana age 3.9 --severely apraxic, but making steady progress since Prompt, diet/supplements were implemented Grassia <miche37@...> wrote: My son definitely has apraxia (mostly resolved now) and is not a fish oil responder. There are quite a few kids here who aren't. Because so many kids DO respond it's a great first thing to try. I'd keep it up for a few more weeks, and if they aren't resistant to taking it keep them on it anyway because it is healthy for them. My son made no progress in two years of speech therapy, but after starting Prompt therapy he made slow and steady progress. After two years of prompt we started Vitamin E and he had a HUGE spurt and is now age appropriate in one word speech production! Miche On Sat, Jun 7, 2008 at 1:39 PM, triciaesham wrote: > Hello--I just wanted a little input......I have 21 month old twin boys > who havent said a single word yet---lots of gesturing, babbling, > pointing, taking my hand etc---just no words--We have done the whole > EI process at 18 months and will be starting ST next week, after being > on several waiting lists, for both to start together. Apraxia needs to > be ruled out---They do give kisses, drink very well through straws, > blow a flute and harmonica---they also drool. My question is this--I > started the NN Pro Efa 2 weeks ago and havent seen any change at > all---1 capsule/day. COuld this possible mean they dont have apraxia > and maybe just arent ready to talk??? All of the parents in my local > multiple moms support group reassured me that their twins didnt start > talking until after 2--some close to 3---I am just concerned now about > apraxia--my boys are fraternal---what are the chances??? I dread the > thought of having 2 same aged children that will need so much > individualized help that I cant give, unless I spilt myself in 2---I > thought the hard times were behind me and now I feel caught off guard > with this silent, sneaky disorder. Id appreciate any input re: the FO > not working and what that may mean. Thanks Tricia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Thank you for your informative response---other than the not talking---the only other thing that concerns me is that they cant/wont blow bubbles from a wand and that one of my sons is a tip toe walker--other than that---from what my untrained eyes can see everything else is fine. Thank you for your well wishes! They dont seem to mind the NN at all, I put it in their yogurt drinks.! > > I agree with and Elena in that you can't take the lack of > response to fish oils as the sign that it's not apraxia. The fish > oils based on the most recent feedback appears to work for over 90% - > but that still leaves a number that don't respond to it. Out of that > 10 or so % some found some found success by doing various things such > as stopping constipation medication or eliminating cod liver oil. > Even still -some apraxic children have no change with or without the > oil therapy. There's been a dramatic rise in apraxia which used to > be rare and it's happening in families with no genetic history of > speech impairments -it probably doesn't work for the rare child who > would have had apraxia 50 years ago. My suspicion is that those > children have apraxia for a different reason then the majority. > > It's only been 2 weeks. The oils typically " work " in a day to 3 > weeks and the first signs are not always speech but...(from an > archive) > common changes in an apraxic or other speech disordered child on > EFAs from what I've read and heard and seen. > > 1. Increase in babbling or attempts at sounds. > 2. Increase in imitation. > Changes also can be looked for in (what you see as positive or > negative) > sleep > attention > appetite > focus > behavior > stools > > Even though we know through the younger siblings of the older apraxic > children that the EFAs have worked for babies -your children are not > yet even 2 years old so a bit early to know if there are apraxic. > And from what you are saying it doesn't sound like that have oral > apraxia. Just to clarify however apraxia is not the inability to do > an action -it's the inability to do it " on command " That means if > you ask your child to give kisses or make a funny face or lick peanut > butter off their lick they can do it when asked. Drooling for a > child your children's age is still considered normal. > > Outside of not speaking yet is there anything else that concerns > you? Have you read The Late Talker book? > > Here's some links that may help > Late Talker or Apraxia > http://www.cherab.org/information/speechlanguage/questionsanswers.html > > Late Blooming or Language Problem > http://www.ldonline.org/article/6232 > > Speech and Language Milestone Chart > http://www.ldonline.org/article/6313 > > Huge hugs to you and your little boys. I hope they are " just " late > talker! It's clear no matter what your children are under the care > of a mom that is on it -so they are being provided the best chance > possible for success! ) > > > ===== > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.