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Hello--I just wanted a little input......I have 21 month old twin boys

who havent said a single word yet---lots of gesturing, babbling,

pointing, taking my hand etc---just no words--We have done the whole

EI process at 18 months and will be starting ST next week, after being

on several waiting lists, for both to start together. Apraxia needs to

be ruled out---They do give kisses, drink very well through straws,

blow a flute and harmonica---they also drool. My question is this--I

started the NN Pro Efa 2 weeks ago and havent seen any change at

all---1 capsule/day. COuld this possible mean they dont have apraxia

and maybe just arent ready to talk??? All of the parents in my local

multiple moms support group reassured me that their twins didnt start

talking until after 2--some close to 3---I am just concerned now about

apraxia--my boys are fraternal---what are the chances??? I dread the

thought of having 2 same aged children that will need so much

individualized help that I cant give, unless I spilt myself in 2---I

thought the hard times were behind me and now I feel caught off guard

with this silent, sneaky disorder. Id appreciate any input re: the FO

not working and what that may mean. Thanks Tricia

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Hi Tricia,

First of all congratulations on your two little boys, and you'll get more info

from others, but the first thing that caught my eye here is that you said they

" may not have apraxia because there's no response to the fish oil " . First of

all it's too early to tell f the fisil is working or not and that's not a

logical conclusion anyway.

They may or may not have apraxia,-- twins sometimes do develop their speech

differently because they are together so much and learn to communicate in their

own way-- or they may indeed have some speech problems and it may be apraxia,

and fish oil may help, whether they have apraxia or not, ---but know that it's

not just apraxic kids who respond well to Omega 3 --Fish Oil supplementation,

many neuro typical children can benefit from this supplementation, and many

children with other neuro-disorders also benefit.

However, before any benefits can be rulled out or noted you need to give it a

little more time and especially be sure there are no absorption problems which

could interfere with any potential benefits the fish oil may have as was the

case with my daughter. A doctor trained in biomedicine can help you understand

the possible connections between the absorption, nutritional deficiencies and

what ever your children may be experiencing in terms of speech. These doctors

have MDs and also additional training in biomedicine, naturopathy, homeopathy

etc. It's an integrative medicine field that works more with nutrition and

supplements and not with the harsh Big Pharma drugs that typically only address

the symptoms and not the underlying causes of the problem.

Now, the apraxia diagnosis is a different issue and you need to see a specialist

who knows apraxia --in most cases a knowledgeable, experienced SLP along with a

knowledgeable developmental pediatrician who also understands apraxia to assess

all possible developmental needs the children may have at this point. The

apraxia may be a tentative diagnosis at this early age but the therapy is the

same regardless until it can be ruled out and adequate progress is made.

Appropriate and frequent speech therapy should be started right away, with good

motor planning techniques. Please note that the Early Start team may or may

not be the best option, they do not typically diagnose speech issues and only

offer remediation for overall areas of concern. This is great for regular

delays, but if your children do indeed have apraxia, you want a more definite

diagnosis and especially the appropriate treatment which public programs can

offer but are not bending over backwards to do, unless the parents know to ask

for it and insist on outsourcing if the programs do not have SLPs trained in

motor planning techniques. So a private SLP who knows apraxia, or a

developmental pediatrician who again, knows apraxia, --but really knows it, not

just says they've heard about it would be your best bet to secure a more

accurate albeit tentative diagnosis. But that's enough for now to begin

appropriate treatment.

And then the fish oil is a whole other thing, a whole other specialty with the

biomedically trained doctor. Now many parents try it on their own, just by

reading this list archives and asking questions, and you can certainly do that

and see results, but please note that if you do not, or just because you see

some results it doesn't mean you're really doing it the best way. We're all

different from a metabolic perspective and it is often the case that children

who have speech issues, apraxia or not, can benefit from the supplementaion

wiith fish oil and other things but really the best way to do it is under a

doctor's supervision to fully get the benefits and identify all possible

problems --like malabsorption.

Hope this clarifies things a little.

Good luck!

-Elena--mom to Ziana --3.8 yrs--severe sopeech apraxia --but progressing well

since appropriate diet/supplements and speech therapy have been implemented

triciaesham <triciarnny@...> wrote: Hello--I just wanted a little

input......I have 21 month old twin boys

who havent said a single word yet---lots of gesturing, babbling,

pointing, taking my hand etc---just no words--We have done the whole

EI process at 18 months and will be starting ST next week, after being

on several waiting lists, for both to start together. Apraxia needs to

be ruled out---They do give kisses, drink very well through straws,

blow a flute and harmonica---they also drool. My question is this--I

started the NN Pro Efa 2 weeks ago and havent seen any change at

all---1 capsule/day. COuld this possible mean they dont have apraxia

and maybe just arent ready to talk??? All of the parents in my local

multiple moms support group reassured me that their twins didnt start

talking until after 2--some close to 3---I am just concerned now about

apraxia--my boys are fraternal---what are the chances??? I dread the

thought of having 2 same aged children that will need so much

individualized help that I cant give, unless I spilt myself in 2---I

thought the hard times were behind me and now I feel caught off guard

with this silent, sneaky disorder. Id appreciate any input re: the FO

not working and what that may mean. Thanks Tricia

----------

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My son definitely has apraxia (mostly resolved now) and is not a fish oil

responder. There are quite a few kids here who aren't. Because so many

kids DO respond it's a great first thing to try. I'd keep it up for a few

more weeks, and if they aren't resistant to taking it keep them on it anyway

because it is healthy for them. My son made no progress in two years of

speech therapy, but after starting Prompt therapy he made slow and steady

progress. After two years of prompt we started Vitamin E and he had a HUGE

spurt and is now age appropriate in one word speech production!

Miche

On Sat, Jun 7, 2008 at 1:39 PM, triciaesham <triciarnny@...> wrote:

> Hello--I just wanted a little input......I have 21 month old twin boys

> who havent said a single word yet---lots of gesturing, babbling,

> pointing, taking my hand etc---just no words--We have done the whole

> EI process at 18 months and will be starting ST next week, after being

> on several waiting lists, for both to start together. Apraxia needs to

> be ruled out---They do give kisses, drink very well through straws,

> blow a flute and harmonica---they also drool. My question is this--I

> started the NN Pro Efa 2 weeks ago and havent seen any change at

> all---1 capsule/day. COuld this possible mean they dont have apraxia

> and maybe just arent ready to talk??? All of the parents in my local

> multiple moms support group reassured me that their twins didnt start

> talking until after 2--some close to 3---I am just concerned now about

> apraxia--my boys are fraternal---what are the chances??? I dread the

> thought of having 2 same aged children that will need so much

> individualized help that I cant give, unless I spilt myself in 2---I

> thought the hard times were behind me and now I feel caught off guard

> with this silent, sneaky disorder. Id appreciate any input re: the FO

> not working and what that may mean. Thanks Tricia

>

>

>

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I agree with and Elena in that you can't take the lack of

response to fish oils as the sign that it's not apraxia. The fish

oils based on the most recent feedback appears to work for over 90% -

but that still leaves a number that don't respond to it. Out of that

10 or so % some found some found success by doing various things such

as stopping constipation medication or eliminating cod liver oil.

Even still -some apraxic children have no change with or without the

oil therapy. There's been a dramatic rise in apraxia which used to

be rare and it's happening in families with no genetic history of

speech impairments -it probably doesn't work for the rare child who

would have had apraxia 50 years ago. My suspicion is that those

children have apraxia for a different reason then the majority.

It's only been 2 weeks. The oils typically " work " in a day to 3

weeks and the first signs are not always speech but...(from an

archive)

common changes in an apraxic or other speech disordered child on

EFAs from what I've read and heard and seen.

1. Increase in babbling or attempts at sounds.

2. Increase in imitation.

Changes also can be looked for in (what you see as positive or

negative)

sleep

attention

appetite

focus

behavior

stools

Even though we know through the younger siblings of the older apraxic

children that the EFAs have worked for babies -your children are not

yet even 2 years old so a bit early to know if there are apraxic.

And from what you are saying it doesn't sound like that have oral

apraxia. Just to clarify however apraxia is not the inability to do

an action -it's the inability to do it " on command " That means if

you ask your child to give kisses or make a funny face or lick peanut

butter off their lick they can do it when asked. Drooling for a

child your children's age is still considered normal.

Outside of not speaking yet is there anything else that concerns

you? Have you read The Late Talker book?

Here's some links that may help

Late Talker or Apraxia

http://www.cherab.org/information/speechlanguage/questionsanswers.html

Late Blooming or Language Problem

http://www.ldonline.org/article/6232

Speech and Language Milestone Chart

http://www.ldonline.org/article/6313

Huge hugs to you and your little boys. I hope they are " just " late

talker! It's clear no matter what your children are under the care

of a mom that is on it -so they are being provided the best chance

possible for success! :o)

=====

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Wow, , this really makes me want to try the vitamin E. My daughter

responded really well to the GF/CF SF/CF diet; fish oil she's been getting since

birth but she's severely apraxic so I don't really count her as responding to

that necessarily or I may not have the right dosage/mix of fatty acids.

Recently the doctor has added the GLA and that seems to be making a bit more

difference but it's hard to tell exactly at this point since she is on an up

swing.

The B12 shots have had the greatest impact given her gluten issues she was very

deficient--as I am it seems but I never had speech issues. Also the PROPMT

therapy made a huge difference too. I was now thinking about switching to a

different oil to see if that makes a difference since her big thing was

absorption. She was deficient in the Omega3 in spite of the massive doses she

was getting since birth. Well, not so much the first 2 years before I knew

about her speech disorder.

Anyway, the absorption factor seems to be very big, and some kids do well withe

vitamin E, as Dr. said, there may be something in the way the fish oil

and vitamin E interact. I definitely will try it next. Thanks for sharing!

-Elena ==mom to Ziana age 3.9 --severely apraxic, but making steady progress

since Prompt, diet/supplements were implemented

Grassia <miche37@...> wrote: My son definitely has apraxia

(mostly resolved now) and is not a fish oil

responder. There are quite a few kids here who aren't. Because so many

kids DO respond it's a great first thing to try. I'd keep it up for a few

more weeks, and if they aren't resistant to taking it keep them on it anyway

because it is healthy for them. My son made no progress in two years of

speech therapy, but after starting Prompt therapy he made slow and steady

progress. After two years of prompt we started Vitamin E and he had a HUGE

spurt and is now age appropriate in one word speech production!

Miche

On Sat, Jun 7, 2008 at 1:39 PM, triciaesham wrote:

> Hello--I just wanted a little input......I have 21 month old twin boys

> who havent said a single word yet---lots of gesturing, babbling,

> pointing, taking my hand etc---just no words--We have done the whole

> EI process at 18 months and will be starting ST next week, after being

> on several waiting lists, for both to start together. Apraxia needs to

> be ruled out---They do give kisses, drink very well through straws,

> blow a flute and harmonica---they also drool. My question is this--I

> started the NN Pro Efa 2 weeks ago and havent seen any change at

> all---1 capsule/day. COuld this possible mean they dont have apraxia

> and maybe just arent ready to talk??? All of the parents in my local

> multiple moms support group reassured me that their twins didnt start

> talking until after 2--some close to 3---I am just concerned now about

> apraxia--my boys are fraternal---what are the chances??? I dread the

> thought of having 2 same aged children that will need so much

> individualized help that I cant give, unless I spilt myself in 2---I

> thought the hard times were behind me and now I feel caught off guard

> with this silent, sneaky disorder. Id appreciate any input re: the FO

> not working and what that may mean. Thanks Tricia

>

>

>

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Guest guest

Thank you for your informative response---other than the not

talking---the only other thing that concerns me is that they cant/wont

blow bubbles from a wand and that one of my sons is a tip toe

walker--other than that---from what my untrained eyes can see

everything else is fine. Thank you for your well wishes! They dont

seem to mind the NN at all, I put it in their yogurt drinks.!

>

> I agree with and Elena in that you can't take the lack of

> response to fish oils as the sign that it's not apraxia. The fish

> oils based on the most recent feedback appears to work for over 90% -

> but that still leaves a number that don't respond to it. Out of that

> 10 or so % some found some found success by doing various things such

> as stopping constipation medication or eliminating cod liver oil.

> Even still -some apraxic children have no change with or without the

> oil therapy. There's been a dramatic rise in apraxia which used to

> be rare and it's happening in families with no genetic history of

> speech impairments -it probably doesn't work for the rare child who

> would have had apraxia 50 years ago. My suspicion is that those

> children have apraxia for a different reason then the majority.

>

> It's only been 2 weeks. The oils typically " work " in a day to 3

> weeks and the first signs are not always speech but...(from an

> archive)

> common changes in an apraxic or other speech disordered child on

> EFAs from what I've read and heard and seen.

>

> 1. Increase in babbling or attempts at sounds.

> 2. Increase in imitation.

> Changes also can be looked for in (what you see as positive or

> negative)

> sleep

> attention

> appetite

> focus

> behavior

> stools

>

> Even though we know through the younger siblings of the older apraxic

> children that the EFAs have worked for babies -your children are not

> yet even 2 years old so a bit early to know if there are apraxic.

> And from what you are saying it doesn't sound like that have oral

> apraxia. Just to clarify however apraxia is not the inability to do

> an action -it's the inability to do it " on command " That means if

> you ask your child to give kisses or make a funny face or lick peanut

> butter off their lick they can do it when asked. Drooling for a

> child your children's age is still considered normal.

>

> Outside of not speaking yet is there anything else that concerns

> you? Have you read The Late Talker book?

>

> Here's some links that may help

> Late Talker or Apraxia

> http://www.cherab.org/information/speechlanguage/questionsanswers.html

>

> Late Blooming or Language Problem

> http://www.ldonline.org/article/6232

>

> Speech and Language Milestone Chart

> http://www.ldonline.org/article/6313

>

> Huge hugs to you and your little boys. I hope they are " just " late

> talker! It's clear no matter what your children are under the care

> of a mom that is on it -so they are being provided the best chance

> possible for success! :o)

>

>

> =====

>

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