Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Thanks Elena, I'm still pretty new to all of this, as I was only verbally told that he has apraxia - mid April - after the IEP, by his SLP. Then I had the busiest summer that I've ever had in my life (and I'm 47 and have had a lot of summers), so my recent started in April, ended the beginning of June and I started up again in September (or maybe October????). Anyhow, I did call your doctor and I actually got an appointment with Dr. Wolf in two weeks. I am partly afraid and partly ecstatic! We'll just have to take one day at a time. I know that I want to help this little boy to the best of my ability, so I hope she tells me something that is new to us (ie: willing to run some tests and maybe get to the bottom of things). I'll keep you updated. Thanks again! Blessings to You, ********************************************************************************\ *********************************************************************** Peace I leave with you, my peace I give unto you: not as the world giveth give I unto you. Let not your heart be troubled, neither let it be afraid. 14:27 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Wow , if you've got a school SLP say he has apraxia you're in good hands there. Usually they just say he's speech is an area of need and recommend 2-3 sessions of group therapy per week--whatever that means--but for an apraxic kid it's not much and they never make much progress with such inappropriate remediation. Anyway, I know what busy is too especially when you have a child after 40 as is our case. Yes, I had her at 44 and it is the most wonderful and the most difficult thing I ever did, but not the having her part, not at all, that was easy even though it took us 4 years of treatment but compared to all this speech/metabolic/ malabsorption/therapies and where are the money and appropriate services for all this going to come?--well compared to all this the having her part was easy It's a perpetual research project but if you leave no stone unturned you know you would have done your best. Ideally you would get an official evaluation with his most likely diagnosis, the school SLP and IEP stuff doesn't hold water with insurance and you need both, the school can't do it all for sure and you can't pay for it all for sure so you need to work with both the school system and the other medical and therapy providers which means you need insurance and good letters of medical necessity. Does your son have an autism diagnosis as well? Dr. Wolf will help you figure things out but you want the speech diagnosis to be correct regardless of what other issues may be present and I'm not sure Dr. Wolf can really diagnose apraxia herself, though she might, but you still need a good evaluation report to present for school services for IEP, for insurance etc. Fill out the form carefully and also write up your own questions on a sheet of paper, I really do prepare very intensively for every visit because you want to make the most of it and not spend time asking questions you can find the answer to elsewhere nor trying to remember things etc. and ideally someone else should be with you so your son can be entertained and you can talk to Dr. Wolf as sometimes kids can hinder the process and this first visit is very important to get all the info down. Good luck! Elena From: Vander Vere <loveisfosteringhere@...> Subject: [ ] To Elena - (ie:Doctors) Date: Sunday, November 2, 2008, 7:48 PM Thanks Elena, I'm still pretty new to all of this, as I was only verbally told that he has apraxia - mid April - after the IEP, by his SLP. Then I had the busiest summer that I've ever had in my life (and I'm 47 and have had a lot of summers), so my recent started in April, ended the beginning of June and I started up again in September (or maybe October????). Anyhow, I did call your doctor and I actually got an appointment with Dr. Wolf in two weeks. I am partly afraid and partly ecstatic! We'll just have to take one day at a time. I know that I want to help this little boy to the best of my ability, so I hope she tells me something that is new to us (ie: willing to run some tests and maybe get to the bottom of things). I'll keep you updated. Thanks again! Blessings to You, ********************************************************************************\ *********************************************************************** Peace I leave with you, my peace I give unto you: not as the world giveth give I unto you. Let not your heart be troubled, neither let it be afraid. 14:27 ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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