Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 , Hi there! I knew that some of the " big guns " antibiotics were ototoxic - especially Gent, me thinks. Since my brain is now like swiss cheese, I don't remember for sure and don't feel like walking on my " bed of nails " to get the ol' PDR. But I thought this was primarily from IV use. I have noticed a gradual, but sustained hearing loss in myself, and so far, I've only been on orals. However, this symptom began BEFORE i was diagnosed. Have been off all abx's for a week due to metabolic acidosis...wish me luck at my blood draw this am. Although I hate being on the orals, I hate the idea of being off even more! And yes, ALL of my symptoms are exacerbated by the antibiotics, along with the development of some new ones What kind of IV access do you have? My doc is worried about my clotting risk and said something about a " mid-line " which I'm not sure what that is! I did Hospice nursing for a year where we try NOT to stick people, and then have been a school RN for a couple of years till unable to work for last 14 months due to illness, so I'm not current on the different types of lines, etc. I'm really struggling with the probable loss of my new career. I just went to nursing school at age 35, and now am 41. Doc says it is unlikely that I'll ever be able to work as a nurse again, and probable that I won't work again in any profession. Shoot, I wouldn't want me as my nurse! Shit for memory.....or severe CRS Syndrome (Can't Remember Sh%t). He is optimistic that we can halt the progression of the neurological damage, but not so hopeful that I will return to my previous level of functioning. Boo-hoo. Where do you live? What kind of nursing did you do? Did you do orals before the IV? Herxes are evil! Thanks for writing, NurseDeb (so as to not to be confused with the other Debs on this list) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 Hi NurseDeb, I have been on almost every oral abx for LD (plus bicillan shots) for over 2 yrs, and my hearing is getting worse and worse. Besides the usual humming, I am now hearing a very high pitched, shrill tone. Do you know if this is reversible if it is due to the abx? I'm sorry that you have had to put your career on hold, but just remember, you'll always be NurseDeb here! Thanks, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 I went deaf for about a month several years ago (have I already posted this?) and it was before I knew I had lyme. I was treated with abx for a month and the hearing did come back, although I also have ceertain sounds that drive me up the wall, and have to ask people to repeat themselves often. There was apparantly " no reason " I lost my hearing. I was really brushing up on my signing during that time! lol.... The human spirit is stronger than anything that can happen to it. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Since I have had the Bell's Palsy I have had increased sensitvity to noise and echoing in the affected ear. I think this is due to direct effects of the Bell's since the facial muscles control one of the bones in the ear. Lyra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Lyra, When I had Bells Palsy, I was sensative not just my hearing but also my skin on my face. Sheryl [ ] Re: Hearing Loss > > Since I have had the Bell's Palsy I have had increased sensitvity to > noise and echoing in the affected ear. I think this is due to direct > effects of the Bell's since the facial muscles control one of the > bones in the ear. > > Lyra > > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe from the list > -Digest - Switch your subscription to a digest format > -Normal - Switch your subscription to normal > > Please send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic > > The archives can be accessed at <A HREF= " " TARGET= " _new " ><FONT COLOR= " BLUE " > </FONT></A> > > The chat room is always open! > <A HREF= " /chat " TARGET= " _new " ><FONT COLOR= " BLUE " > /chat</FONT></A> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 In a message dated 7/5/2001 8:16:56 PM Eastern Daylight Time, Namkrats3@... writes: > > Hi NurseDeb, > I have been on almost every oral abx for LD (plus bicillan shots) for > over 2 yrs, and my hearing is getting worse and worse. Besides the usual > humming, I am now hearing a very high pitched, shrill tone. Do you know > if this is reversible if it is due to the abx? > > Dear Joan, Hi. I had been losing my hearing over a period of many years, not knowing why, by hindsight realizing it was due to (undiagnosed) Lyme disease. I had already been wearing hearing aids for approx 11 years when I finally figured out by myself that I must have Lyme disease (after scores of misdiagnoses by MD's), due to my lifestyle of hiking in the woods as much as possible " for my health. " I then found a " lyme specialist " who ran tests, which right away were positive. I should note that I did not get hearing aids right away, that the loss was over a long period of time, but always steadily decreasing (or maybe I should say that the loss was steadily increasing?). Skipping over to the hearing loss part: everyone, including all the prior doctors, insisted that I had gone to too many loud rock concerts, when, in fact, I not only avioded loud noises like the plague (because they hurt so much), but, being an opera & classical music lover, have never been to a single rock concert in my entire life. I was on IV Rocephin for approx 7 months, which helped a great many of my symptoms, but not my eyeball pain or hearing. Then I was on IV Claforan for approx 5 months, which, while being a very difficult drug to tolerate, gave me back my ability to read by " curing " my eyeball pain, and gave me back most of my hearing. The Claforan IV was nothing short of a miracle for me. I no longer wear hearing aids at all & hear much better now without them than I ever did with them. I've been off all ABX since May 3, 2001, and, while various symptoms are coming back the longer I'm off them, I still have my ability to read & my hearing back (not perfect, but far better than before). So, Joan, I do think that there is real hope for you. I had hearing loss which presented as loud noises being painful, soft noises being impossible to hear, a narrow range of distinguishable sounds, and the total inability to block out background noises. I never had the constant humming or high pitched shrill tones that you describe, but I think we had many similarities. Hope this helps lots of you out in cyberspace. Hugs, a Aida in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 a, Thank you for your very thorough response to Joan's inquiry - you did a much better job than I could have because this is another thing that I have been worried about. I first noticed I kept needing to turn the volume up on the TV, and as time went by, many noises fell into that " noxious " category - they actually hurt my brain! Unfortunately, my darling little devil, I mean angel-baby, generates most of the more annoying ones...........bless his heart! The summer has been trying since I have tried to NOT medicate him for ADHD as much as possible in hopes of putting some weight on him. Joan, Sorry - I wish I had something to add to this. I do know that some of the " big-gun " abx's like Gentamycin are ototoxic and that often the hearing loss from that is permanent. But if ours is caused by say, inflammation from this lovely infection, then perhaps it will improve as the infection is brought under control. But honestly, I don't know for sure and hate to sound like a know-it-all. Perhaps there are others who will share the experience with this and we will learn the answer together? Thanks! NurseDeb Re: [ ] Re: hearing loss In a message dated 7/5/2001 8:16:56 PM Eastern Daylight Time, Namkrats3@... writes: > > Hi NurseDeb, > I have been on almost every oral abx for LD (plus bicillan shots) for > over 2 yrs, and my hearing is getting worse and worse. Besides the usual > humming, I am now hearing a very high pitched, shrill tone. Do you know > if this is reversible if it is due to the abx? > > Dear Joan, Hi. I had been losing my hearing over a period of many years, not knowing why, by hindsight realizing it was due to (undiagnosed) Lyme disease. I had already been wearing hearing aids for approx 11 years when I finally figured out by myself that I must have Lyme disease (after scores of misdiagnoses by MD's), due to my lifestyle of hiking in the woods as much as possible " for my health. " I then found a " lyme specialist " who ran tests, which right away were positive. I should note that I did not get hearing aids right away, that the loss was over a long period of time, but always steadily decreasing (or maybe I should say that the loss was steadily increasing?). Skipping over to the hearing loss part: everyone, including all the prior doctors, insisted that I had gone to too many loud rock concerts, when, in fact, I not only avioded loud noises like the plague (because they hurt so much), but, being an opera & classical music lover, have never been to a single rock concert in my entire life. I was on IV Rocephin for approx 7 months, which helped a great many of my symptoms, but not my eyeball pain or hearing. Then I was on IV Claforan for approx 5 months, which, while being a very difficult drug to tolerate, gave me back my ability to read by " curing " my eyeball pain, and gave me back most of my hearing. The Claforan IV was nothing short of a miracle for me. I no longer wear hearing aids at all & hear much better now without them than I ever did with them. I've been off all ABX since May 3, 2001, and, while various symptoms are coming back the longer I'm off them, I still have my ability to read & my hearing back (not perfect, but far better than before). So, Joan, I do think that there is real hope for you. I had hearing loss which presented as loud noises being painful, soft noises being impossible to hear, a narrow range of distinguishable sounds, and the total inability to block out background noises. I never had the constant humming or high pitched shrill tones that you describe, but I think we had many similarities. Hope this helps lots of you out in cyberspace. Hugs, a Aida in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 are you based in UK or USA? regards julie(uk) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 In a message dated 11/6/04 7:15:17 AM Mountain Standard Time, SSRI medications writes: > Now that I'm learning from you guys that this is a common problem with the > brain injured/SSRI victims, > the plot is definintely thickening in my quest to find relief for while > we've got the benefit of taxpayer funded medical appointments with no > co-payments and a medical power of attorney so that the M.D.'s have to > communciate with me. > Another cause of this type of hearing loss is excessive amounts of Tylenol. It happened to a friend of ours, started out with tinnitus, and then he became totally deaf, and now he's in a research group that includes other people who took Tylenol in high doses over a long period of time. They've only just recognized this side effect. He had the cochlear implant, which malfunctioned, so he's worse off now than he was before becuase the implant makes a loud buzzing noise all the time, even worse than tinnitus. " Blind Reason " a novel of pharmaceutical intrigue Think your antidepressant is safe? Think again. It's Unsafe At Any Dose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Margaret Without the ossicles you won't hear very much. The normal procedure would be to reconstruct the hearing using a TORP (Total Ossicular Replacement Prosthesis) - it's often a small titanium rod that sits in the middle ear. This is usually done six months or a year after the initial surgery once the ear has healed and has remained free from further growth of ctoma. They can reconstruct an eardrum too, if that's also missing. Phil hearing loss I recently (Feb. 2) had tympanomastoidectomy operation done. My doctor had to remove the malleus, incus and stapes bones. As my ear is so full of the packing (she also enlarged my ear canal), I can't tell what the hearing loss will be like. Has anyone else had this done and what was your hearing like after everything was "normal?" Thanks,Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Thanks, Phil. Before my operation I discussed the possibility of a prosthetic replacement but she ended up having to remove too much surrounding where the rod would go for it to really be a viable option. Sounds like it'll be a hearing aid eventually. In the meantime...this packing? Really driving me nuts. It's only been a week. Please tell me I'll get used to it! Margaret > Hi Margaret > > Without the ossicles you won't hear very much. The normal procedure would be to reconstruct the hearing using a TORP (Total Ossicular Replacement Prosthesis) - it's often a small titanium rod that sits in the middle ear. This is usually done six months or a year after the initial surgery once the ear has healed and has remained free from further growth of ctoma. They can reconstruct an eardrum too, if that's also missing. > > Phil > hearing loss > > > > > I recently (Feb. 2) had tympanomastoidectomy operation done. > My doctor had to remove the malleus, incus and stapes bones. > As my ear is so full of the packing (she also enlarged my ear > canal), I can't tell what the hearing loss will be like. Has anyone > else had this done and what was your hearing like after > everything was " normal? " > > Thanks, > Margaret > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Margaret Reconsruction is almost always possible but you may have to find an ambitious surgeon who is willing to try. I was always told that reconstruction wasn't possible but then I had a kind of temporal bone resection surgery - a radical surgery that removes much of the ear structure and rebuilds it using cartilage etc. The surgeon decided to try and reconstruct the hearing at the same - I think it was a little bit of an experiment. The whole procedure took ten hours and was, according to the doctor, "tricky". Besides the torp it also used a tiny piston that goes through the oval window into the inner ear. There was no guarantees that the reconstruction would work but it did. Not great hearing but something - i'd lost the bones in that ear many years earlier and didn't ever remember hearing out of it before. Phil ps No, you probably won't ever feel comfortable with the packing but that makes it all the more of a relief when they eventually take it out. Thanks, Phil. Before my operation I discussed the possibility of a prosthetic replacement but she ended up having to remove too much surrounding where the rod would go for it to really be a viable option. Sounds like it'll be a hearing aid eventually. In the meantime...this packing? Really driving me nuts. It's only been a week. Please tell me I'll get used to it!Margaret> Hi Margaret> > Without the ossicles you won't hear very much. The normal procedure would be to reconstruct the hearing using a TORP (Total Ossicular Replacement Prosthesis) - it's often a small titanium rod that sits in the middle ear. This is usually done six months or a year after the initial surgery once the ear has healed and has remained free from further growth of ctoma. They can reconstruct an eardrum too, if that's also missing.> > Phil> hearing loss> > > > > I recently (Feb. 2) had tympanomastoidectomy operation done. > My doctor had to remove the malleus, incus and stapes bones. > As my ear is so full of the packing (she also enlarged my ear > canal), I can't tell what the hearing loss will be like. Has anyone > else had this done and what was your hearing like after > everything was "normal?" > > Thanks,> Margaret> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Jody, The packing comes out by them pulling it out. You may ask for some eardrops to keep the packing moist so as to help it come out easier. I always have a headache when they yank mine out. --- Jody <bolter6@...> wrote: > Hi, > Arghhh, packing. Thankfully mine started to work > it's way out and now I feel free again!! (Also > grateful, as was worrying about how it would be > getting it taken out - am world's biggest chicken!) > > Goodluck, how much longer do you need to keep it in > for? > > Jody > > " Humans have a knack for choosing precisely the > things that are worst for them. " - Albus Dumbledore > > > > hearing loss > > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy > operation > done. > > My doctor had to remove the malleus, incus and > stapes > bones. > > As my ear is so full of the packing (she also > enlarged my ear > > canal), I can't tell what the hearing loss > will be like. Has > anyone > > else had this done and what was your hearing > like after > > everything was " normal? " > > > > Thanks, > > Margaret > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Jody, I think the packing will be in for a while. The Dr. said she'll take some out each time I go in. That doesn't sound very promising. There was a little popping this morning and now it feels different deeper in the ear. Is that something happening with the packing? It's the ear canal packing that's driving me nuts. How long did yours take to disolve? My Dr. said to use the Floxin several times a day and that would help speed it up. Margaret > > Hi Margaret > > > > Without the ossicles you won't hear very much. The normal > procedure would be to reconstruct the hearing using a TORP > (Total Ossicular Replacement Prosthesis) - it's often a small > titanium rod that sits in the middle ear. This is usually done six > months or a year after the initial surgery once the ear has healed > and has remained free from further growth of ctoma. They can > reconstruct an eardrum too, if that's also missing. > > > > Phil > > hearing loss > > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy operation > done. > > My doctor had to remove the malleus, incus and stapes > bones. > > As my ear is so full of the packing (she also enlarged my ear > > canal), I can't tell what the hearing loss will be like. Has > anyone > > else had this done and what was your hearing like after > > everything was " normal? " > > > > Thanks, > > Margaret > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hi, Arghhh, packing. Thankfully mine started to work it's way out and now I feel free again!! (Also grateful, as was worrying about how it would be getting it taken out - am world's biggest chicken!) Goodluck, how much longer do you need to keep it in for? Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore hearing loss> > > > > I recently (Feb. 2) had tympanomastoidectomy operation done. > My doctor had to remove the malleus, incus and stapes bones. > As my ear is so full of the packing (she also enlarged my ear > canal), I can't tell what the hearing loss will be like. Has anyone > else had this done and what was your hearing like after > everything was "normal?" > > Thanks,> Margaret> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 My packing has come out. I think it all floated out amongst the rubbish that has been coming out of the ear. When you say always get a headache, how many times have you had it done? I fear once was enough for me! Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore hearing loss> > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy> operation > done. > > My doctor had to remove the malleus, incus and> stapes > bones. > > As my ear is so full of the packing (she also> enlarged my ear > > canal), I can't tell what the hearing loss> will be like. Has > anyone > > else had this done and what was your hearing> like after > > everything was "normal?" > > > > Thanks,> > Margaret> > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Jody, I have had 3 surgeries and am expecting a fourth. The last time they did removal and reconstruction all in one step. This time the tumor was so big they decided to do in 2 stages. Trust me, all of the packing in your ear didn't come out. There's lots in there! --- Jody <bolter6@...> wrote: > My packing has come out. I think it all floated out > amongst the rubbish that has been coming out of the > ear. > > When you say always get a headache, how many times > have you had it done? I fear once was enough for > me! > > Jody > > " Humans have a knack for choosing precisely the > things that are worst for them. " - Albus Dumbledore > > > > hearing loss > > > > > > > > > > > > > > > I recently (Feb. 2) had > tympanomastoidectomy > > operation > > done. > > > My doctor had to remove the malleus, incus > and > > stapes > > bones. > > > As my ear is so full of the packing (she > also > > enlarged my ear > > > canal), I can't tell what the hearing loss > > will be like. Has > > anyone > > > else had this done and what was your > hearing > > like after > > > everything was " normal? " > > > > > > Thanks, > > > Margaret > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Margaret, My Doc doesn't like the disolving packing. He said it makes the ear a big sticky mess. --- margaretmayfield <margaretmayfield@...> wrote: > > Jody, I think the packing will be in for a while. > The Dr. said she'll > take some out each time I go in. That doesn't sound > very > promising. There was a little popping this morning > and now it > feels different deeper in the ear. Is that > something happening > with the packing? It's the ear canal packing that's > driving me > nuts. How long did yours take to disolve? My Dr. > said to use the > Floxin several times a day and that would help speed > it up. > > Margaret > > > > > Hi Margaret > > > > > > Without the ossicles you won't hear very much. > The normal > > procedure would be to reconstruct the hearing > using a TORP > > (Total Ossicular Replacement Prosthesis) - it's > often a small > > titanium rod that sits in the middle ear. This > is usually done > six > > months or a year after the initial surgery once > the ear has > healed > > and has remained free from further growth of > ctoma. They can > > reconstruct an eardrum too, if that's also > missing. > > > > > > Phil > > > hearing loss > > > > > > > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy > operation > > done. > > > My doctor had to remove the malleus, incus > and stapes > > bones. > > > As my ear is so full of the packing (she > also enlarged my > ear > > > canal), I can't tell what the hearing loss > will be like. Has > > anyone > > > else had this done and what was your hearing > like after > > > everything was " normal? " > > > > > > Thanks, > > > Margaret > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 hi Margaret, I was told following my cwd surgery, that reconstruction would be "risky" and impossible, as there was no room... Anyway, two years later, my surgeon finally said YES, it could be done and so we went ahead. I have a titanium torp and my hearing improved by about 20 to 40 decibels. So I agree with Phil... reconstruction is possible, sometimes you just have to wait. Lynn -----Original Message-----From: Phil [mailto:psmorris@...] Sent: February 14, 2005 12:32 AMcholesteatoma Subject: Re: Re: hearing loss Hi Margaret Reconsruction is almost always possible but you may have to find an ambitious surgeon who is willing to try. I was always told that reconstruction wasn't possible but then I had a kind of temporal bone resection surgery - a radical surgery that removes much of the ear structure and rebuilds it using cartilage etc. The surgeon decided to try and reconstruct the hearing at the same - I think it was a little bit of an experiment. The whole procedure took ten hours and was, according to the doctor, "tricky". Besides the torp it also used a tiny piston that goes through the oval window into the inner ear. There was no guarantees that the reconstruction would work but it did. Not great hearing but something - i'd lost the bones in that ear many years earlier and didn't ever remember hearing out of it before. Phil ps No, you probably won't ever feel comfortable with the packing but that makes it all the more of a relief when they eventually take it out. Thanks, Phil. Before my operation I discussed the possibility of a prosthetic replacement but she ended up having to remove too much surrounding where the rod would go for it to really be a viable option. Sounds like it'll be a hearing aid eventually. In the meantime...this packing? Really driving me nuts. It's only been a week. Please tell me I'll get used to it!Margaret> Hi Margaret> > Without the ossicles you won't hear very much. The normal procedure would be to reconstruct the hearing using a TORP (Total Ossicular Replacement Prosthesis) - it's often a small titanium rod that sits in the middle ear. This is usually done six months or a year after the initial surgery once the ear has healed and has remained free from further growth of ctoma. They can reconstruct an eardrum too, if that's also missing.> > Phil> hearing loss> > > > > I recently (Feb. 2) had tympanomastoidectomy operation done. > My doctor had to remove the malleus, incus and stapes bones. > As my ear is so full of the packing (she also enlarged my ear > canal), I can't tell what the hearing loss will be like. Has anyone > else had this done and what was your hearing like after > everything was "normal?" > > Thanks,> Margaret> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Wow, that sounds so different to what I had. I have had three lots of packing work their way out of my ear (I'm two and half weeks post op). However I was told by the dr to come back three weeks post op to have packing taken out. The only thing that I was told was disolvable were the stitches (thank goodness!) I wasn't given any ear drops or anything...I do understand your irratation however as mine drove me nuts too (especially by the end of the day) and outside bit had gone rock hard from dried blood and was digging painfully into my ear. Hang in there and lets make a pact never to do this again!!! It's just not fun... Goodluck and hang in there Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore hearing loss> > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy operation > done. > > My doctor had to remove the malleus, incus and stapes > bones. > > As my ear is so full of the packing (she also enlarged my ear > > canal), I can't tell what the hearing loss will be like. Has > anyone > > else had this done and what was your hearing like after > > everything was "normal?" > > > > Thanks,> > Margaret> > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 , So is it possible to have both disolving and non-disolving packing? It makes sense about the disolving kind being messy, cause it's gotta come out somewhere! I've noticed my ear making some very slight popping-type sounds over the last two days and I don't have quite the " cotton jammed in my ear " feeling. Margaret > > > > Hi Margaret > > > > > > > > Without the ossicles you won't hear very much. > > The normal > > > procedure would be to reconstruct the hearing > > using a TORP > > > (Total Ossicular Replacement Prosthesis) - it's > > often a small > > > titanium rod that sits in the middle ear. This > > is usually done > > six > > > months or a year after the initial surgery once > > the ear has > > healed > > > and has remained free from further growth of > > ctoma. They can > > > reconstruct an eardrum too, if that's also > > missing. > > > > > > > > Phil > > > > hearing loss > > > > > > > > > > > > > > > > > > > > I recently (Feb. 2) had tympanomastoidectomy > > operation > > > done. > > > > My doctor had to remove the malleus, incus > > and stapes > > > bones. > > > > As my ear is so full of the packing (she > > also enlarged my > > ear > > > > canal), I can't tell what the hearing loss > > will be like. Has > > > anyone > > > > else had this done and what was your hearing > > like after > > > > everything was " normal? " > > > > > > > > Thanks, > > > > Margaret > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Yeah, The popping sound is ok. It is the packing moving around in your ear and absorbing all the fluids from the surgery. Fear not, --- margaretmayfield <margaretmayfield@...> wrote: > > , > So is it possible to have both disolving and > non-disolving > packing? It makes sense about the disolving kind > being messy, > cause it's gotta come out somewhere! I've noticed > my ear > making some very slight popping-type sounds over the > last two > days and I don't have quite the " cotton jammed in my > ear " feeling. > > Margaret > > > > > > > Hi Margaret > > > > > > > > > > Without the ossicles you won't hear very > much. > > > The normal > > > > procedure would be to reconstruct the > hearing > > > using a TORP > > > > (Total Ossicular Replacement Prosthesis) - > it's > > > often a small > > > > titanium rod that sits in the middle ear. > This > > > is usually done > > > six > > > > months or a year after the initial surgery > once > > > the ear has > > > healed > > > > and has remained free from further growth of > > > ctoma. They can > > > > reconstruct an eardrum too, if that's also > > > missing. > > > > > > > > > > Phil > > > > > hearing loss > > > > > > > > > > > > > > > > > > > > > > > > > I recently (Feb. 2) had > tympanomastoidectomy > > > operation > > > > done. > > > > > My doctor had to remove the malleus, > incus > > > and stapes > > > > bones. > > > > > As my ear is so full of the packing (she > > > also enlarged my > > > ear > > > > > canal), I can't tell what the hearing > loss > > > will be like. Has > > > > anyone > > > > > else had this done and what was your > hearing > > > like after > > > > > everything was " normal? " > > > > > > > > > > Thanks, > > > > > Margaret > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Margaret, My son has had the popping sounds as well, his happened when we put the floxin drops in. The doc says it is just the packing deep in his ear absorbing the drops and starting to " melt " . Barbara >From: " margaretmayfield " <margaretmayfield@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: hearing loss >Date: Tue, 15 Feb 2005 20:36:15 -0000 > > >, >So is it possible to have both disolving and non-disolving >packing? It makes sense about the disolving kind being messy, >cause it's gotta come out somewhere! I've noticed my ear >making some very slight popping-type sounds over the last two >days and I don't have quite the " cotton jammed in my ear " feeling. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 OK guys, one last question about the packing, I promise! I now get that the packing further in is the disolving kind. Is it just going to hang out in there until she takes the rest of the packing out, then run out? I'm sorry to be a dork about this but my next appt. isn't until next week. Thanks Margaret > Margaret, > My son has had the popping sounds as well, his happened when we put the > floxin drops in. The doc says it is just the packing deep in his ear > absorbing the drops and starting to " melt " . > Barbara > > >From: " margaretmayfield " <margaretmayfield@y...> > >Reply-cholesteatoma > >cholesteatoma > >Subject: Re: hearing loss > >Date: Tue, 15 Feb 2005 20:36:15 -0000 > > > > > >, > >So is it possible to have both disolving and non-disolving > >packing? It makes sense about the disolving kind being messy, > >cause it's gotta come out somewhere! I've noticed my ear > >making some very slight popping-type sounds over the last two > >days and I don't have quite the " cotton jammed in my ear " feeling. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Margaret, All of my sons packing was supposedly dissolvable. When we went in for follow up the doc took out a little bit of the packing so he could get a better look at his ear. It was apparently some that hadn't quite dissolved yet. The packing behind his eardrum is dissolvable but a lot of it is still there, we are supposed to continue with the drops for a while to help it dissolve faster. My son's ears haven't had too much drainage, so I'm not sure what yours will do Barbara >From: " margaretmayfield " <margaretmayfield@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: hearing loss >Date: Wed, 16 Feb 2005 19:25:08 -0000 > > >OK guys, one last question about the packing, I promise! I now >get that the packing further in is the disolving kind. Is it just going >to hang out in there until she takes the rest of the packing out, >then run out? I'm sorry to be a dork about this but my next appt. >isn't until next week. > >Thanks >Margaret > > > Margaret, > > My son has had the popping sounds as well, his happened >when we put the > > floxin drops in. The doc says it is just the packing deep in his >ear > > absorbing the drops and starting to " melt " . > > Barbara > > > > >From: " margaretmayfield " <margaretmayfield@y...> > > >Reply-cholesteatoma > > >cholesteatoma > > >Subject: Re: hearing loss > > >Date: Tue, 15 Feb 2005 20:36:15 -0000 > > > > > > > > >, > > >So is it possible to have both disolving and non-disolving > > >packing? It makes sense about the disolving kind being >messy, > > >cause it's gotta come out somewhere! I've noticed my ear > > >making some very slight popping-type sounds over the last >two > > >days and I don't have quite the " cotton jammed in my ear " >feeling. > > > > > > Quote Link to comment Share on other sites More sharing options...
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