Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 In a message dated 1/3/2006 9:50:01 PM Eastern Standard Time, michellepbj@... writes: I have a 14 year old son with Aspergers Syndrome. It would be interesting to see the difference in boys and girls if you want to exchange info. Most of what I see on the e-mail is young children. I've already been there, and wow how lucky those parents are to have so many more resources than I did. There wasn't even internet when we started this long process. There are lots of parents of older kids on here as well. I have a 17 yo and a 9 yo, both with HFA. And yes, there was no internet back when. I learned a lot since then! Roxanna ô¿ö Autism Happens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 I have a 14 year old son with Aspergers Syndrome. It would be interesting to see the difference in boys and girls if you want to exchange info. Most of what I see on the e-mail is young children. I've already been there, and wow how lucky those parents are to have so many more resources than I did. There wasn't even internet when we started this long process. _____ From: [mailto: ] On Behalf Of Slick Sent: Tuesday, January 03, 2006 4:54 PM Subject: ( ) AUTISM I have a teen daughter 16 with autism and would like to share some of my experience with other parents that have children with disorders. Happy New Year to all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Actually, there was an internet of sorts back then, but only computer jocks like me used it, and only from the office! Liz On Jan 3, 2006, at 6:53 PM, kneeleee@... wrote: > > In a message dated 1/3/2006 9:50:01 PM Eastern Standard Time, > michellepbj@... writes: > > I have a 14 year old son with Aspergers Syndrome. It would be > interesting > to see the difference in boys and girls if you want to exchange info. > Most > of what I see on the e-mail is young children. I've already been > there, and > wow how lucky those parents are to have so many more resources than I > did. > There wasn't even internet when we started this long process. > > > > There are lots of parents of older kids on here as well. I have a 17 > yo and > a 9 yo, both with HFA. And yes, there was no internet back when. I > learned > a lot since then! > > > Roxanna ô¿ö > Autism Happens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 My AS daughter (so brilliant and so difficult at the same time) will be 15 within a month. It would be wonderful to share our experiences. It is a never ending story with ups and downs. I wish to have had all this information when she started school. You can email to the list or to ACuitino@... Is it just my own impression or is it a fact that mothers are the ones doing most of the work with AS children? It seems that fathers have more problems dealing with AS. Ana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Sorry you have had to wait so long to help your child. Doctors can be very frustrating and very ignorant about autism. Your son may have regressive autism, meaning at sometime between age 1 to 2 1/2 the on set of their condition begins and the child loses acquired language and stops developing appropriately for his/her age. I would recommend that you start by reading Dr. Jacklyne McCandless' book " Children with Starving Brains " which if you buy it from the following website, you will be invited to join a group where dr. McCandless post at frequently. http://www.autism-rxguidebook.com/DesktopDefault.aspx Also, please visit these two websites which have comprehensive info on Autism research, treatment, politics, recovery stories etc: http://www.generationrescue.org http://www.tacanow.com/ At the firt website (generationrescue.org), look for a recue angel closest to your area. This is a volunteer parent with an autistic child or formerly autistic child that will help you find the best treatment options in your area and help you find resources etc. Your child is still young and you can help him greatly. Do not feel bad. There is a lot of great advances made in the past few years and many kids DO RECOVER and many others have significant improvements. Time is of essence and I do recommend to look into a Gluten Free and Casein Free diet. tacanow website has a lot info on this. Hope this helps. Best, Haleh --- Olumide Okunuga <joshuanuga@...> wrote: > Hi, i have a son who is now five years old and doenst say a single word, we > live in Ireland and we noticed some problems in his general behaviour round > about the age of two, before then he would ave goodbye say daddy and all > seemed normal, on numerous visits to the doctors we were told that it was > just a phase and that he would likely grow out of this, untill recently we > have been searching for alternatives since we feel highly dissapointed with > the health care in Ireland. A friend sent on your link to me and i would > like information on how to go about helping our son, please help us > > Okunugas > > > --------------------------------- > Win a BlackBerry device from O2 with . Enter now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 > > Hi, i have a son who is now five years old and doenst say a single word, What helped my son with language is written here http://www.danasview.net/issues.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 [ ] autism i am new with the autism my soon to be 4yr old has it any nfo would be great thanks fancy courtright@... ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 All kids with Autism have some similar issues as a whole (most have bad gut issues), however, they display lots of differences between one another(some are severe behavior problems, some do not display this). It would probably be easier to obtain the information you're looking for if you posted a brief introduction about your son - what he likes to do (watch TV), what your concerns(he stims on everything, smells everything) are what you're up for(biomedical info, behavior intervention, chelation, dietary interventions, educational help, etc.) Most of the people on this list have had some experience in all or some of the above mention interventions and can direct you places, sites, and possible people in your area that can be of local support. Just a thought, pour your heart out, I'm sure it's nothing we haven't felt ourselves at some point or another. Also, some advice from me would be to find someone who is familiar with what your life is like (having a child with Autism) so your venting will not fall on deaf ears and drive any friends you may left away, and seek some time (20 mins maybe) everyday and at least 1 full hour to yourself out of your house without your child/ren and spouse/significant other every week. I didn't take this advice when I first began this journey and I regretted it later. You will not be able to effectively take care of your child if you are not in good health (mentally and physically). I have found this listserve to be a HUGE help in the journey with my daughter, I hope that you will find it to be just as helpful. Just my 2 cent worth!!!! Good Luck, Chin Up!!!! Karyn [ ] autism i am new with the autism my soon to be 4yr old has it any nfo would be great thanks fancy courtright@... ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Hi Karyn, Welcome to the list. How long ago was your son diagnosed? Does he speak or otherwise communicate? Did he develop normally and then regress after a particular vaccine? I have a resource list I put together which I will post later today. S S i am new with the autism my soon to be 4yr old has it<BR> any nfo would be great<BR> thanks <BR> fancy courtright@...<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Here's a resource list I put together: Autism Spectrum Disorders Resource List Books Barron Judy & Barron, , " There’s a Boy In Here " , by mother & her son who has ASD. Buten, , " Through the Glass Wall: A Therapist’s Lifelong Journey to Reach the Children Of Autism " . Cave, MD, , " What Your Doctor May Not Have Told You About Childhood Vaccines " , by doctor about vaccines. Cohen, Cathi, " Raise Your Child’s Social IQ " , by LCSW about social skills. Cutler, Hall, " Hair Test Interpretation " , by PhD Chemist about determining heavy metal toxicity from hair test. Kaufman, Barry Neil, " Son-Rise " , by father of individual once dxed w/ASD about approach they created to reach him (and now teach to others) now called Son-Rise. Gillingham, Gail, " Autism: Handle With Care " , by social services worker about approaches for working with individuals with ASD. Gilpin, Wayne, " Laughing and Loving with Autism " , ASD humor primarily from parents. Gilpin, Wayne, " More Laughing and Loving with Autism " , ASD humor primarily from parents. Grandin, Temple, " Thinking in Pictures " , by adult with HFA. Gray, Carol, " Social Stories " , stories to help individuals w/ASD better understand social situations. , , " Running with " , by father of son w/ASD. Kephart, Beth, " A Slant of Sun " , by mother of child w/ASD. Kirby, , " Evidence of Harm " , about connection between thimerosal (mercury-containing preservative) in vaccines and connection to ASD. Kranowitz, Carol Stock, " The Out-of-Sync Child " , about sensory integration disorder. , , " Special Diets for Special Kids " , by mother of child with ASD about gluten-free, casein-free (GFCF) diet. Loe-Fisher, Barbara, " A Shot In the Dark " , by mother of vaccine-injured child about DPT dangers. , , " Out of Silence " , by father of son w/ASD. Maurice, , " Let me Hear Your Voice " , by mother of two children with ASD about their experience with ABA. McCandless, MD, Jacquelyn, " Children With Starving Brains " , by doctor and grandmother of child with ASD about biomedical factors in ASD and new approaches to address them. McDonnell, Jane , " News from the Border " , by mother of son with ASD. McKean, A., " Soon Will Come the Light " , by adult w/ ASD. Packer, J., " How rude! : the teenagers' guide to good manners, proper behavior, and not grossing people out " . Detailed and humorous explanation of manners for literal thinkers. Parks, Clara, " Exiting Nirvana " , by mother of daughter with ASD. , Dan, " Paid for the Privilege " , by social services worker about FC (facilitated communication. Rocha, , & Jorde, Krista, " Child of Eternity " , by mother and her daughter with ASD who appears to perceive things beyond her experience. Sacks, Oliver, " Anthropologist on Mars " , collection of stories by famed neurologist about individuals with challenges and abilities: including one on Temple Grandin. Seroussi, Karyn, " Unraveling the Mystery of Autism and PDD: A Mother's Story of Research and Recovery " , story by mother of boy dxed with ASD about figuring out that he needed a gluten-free, casein-free diet. Stehli, Anabel, " Sound of a Miracle " , by mother of girl with ASD and their experience with AIT (auditory integration training). Stehli, Anabel, " Dancing in the Rain " , collection by above author about others’ experiences with AIT. Willey, Liane Holliday, " Pretending to be Normal " , by mother of child with ASD who realized after her daughter’s dx that she herself has Asperger’s. , Donna, " Nobody Nowhere " , by adult with ASD , Donna, " Somebody Somewhere " , by adult with ASD , Donna, " Like Color to the Blind " , by adult with ASD , Donna, " Autism: An Inside-Out Approach " , by adult with ASD Magazines Autism/Asperger’s Digest Autism Spectrum Quarterly Magazine Magazine Articles Mothering Magazine, March/April, 2001 “Show Us the Science” & “What About Mercury?” HYPERLINK " http://www.mothering.com " www.mothering.com Newsweek, 2001 Autism/Asperger’s Digest, “Toxic Metals: What You Can Do To Protect Your Child With Autism”, May/June 2002 National Geographic, November, 1972, “Mercury: Quicksilver, Slow Death” Time Magazine, May, 2006 Movies “Rainman” “Son-Rise” (made for TV movie, can be rented or purchased from Option Institute) “Autism: A World Apart”, 3 families show what it’s like to live with someone with autism. HYPERLINK " http://www.autism.org/movies.html " http://www.autism.org/movies.html this is a list of movies which include a character identified as having autism. The movies may not be particularly helpful for parents of individuals with autism but they may encounter people who refer to them. Websites and E-groups HYPERLINK " mailto:autismandenzymes " autismandenzymes e-group primarily of parents of kids w/ASD about autism and digestive enzymes. HYPERLINK " mailto:autism treatment " autism treatment e-group primarily of parents of kids w/ASD about the connections between mercury toxicity and autism and what they are doing about it. HYPERLINK " mailto:Antimonyandarsenic " Antimonyandarsenic e-group primarily of parents of kids w/ASD about the connections between arsenic and antimony toxicity and ASD. HYPERLINK " mailto:Gfcfkids " Gfcfkids e-group primarily of parents of kids w/ASD about gfcf diet. HYPERLINK " http://my-local-news.com/Health/Autism.htm " http://my-local-news.com/Health/Autism.htm news articles about autism from around the world. HYPERLINK " http://www.asperger.net/about.htm " http://www.asperger.net/about.htm website for Autism Asperger Publishers. HYPERLINK " http://www.andi.org " www.andi.org (Autism Network for Dietary Intervention created by Karyn Seroussi, mother of son dxed w/ASD, and ) HYPERLINK " http://www.ari.org " www.ari.org (Autism Research Institute: created and directed by Bernard Rimland, father of an adult with Autism) HYPERLINK " http://www.autismsocietyofwa.org/movies.html " www.autismsocietyofwa.org/movies.html , list of books and movies related to autism on Autism Society of Washington website. HYPERLINK " http://www.autismtreatmentcenter.org " www.autismtreatmentcenter.org , Option Institute and their Son-Rise program. HYPERLINK " http://www.futurehorizons-autism.com/ " www.futurehorizons-autism.com/ ,website for Future Horizons, publisher of books about ASD, started by father of son with ASD. HYPERLINK " http://www.gfcfdiet.com " www.gfcfdiet.com , about the GFCF diet. HYPERLINK " http://www.generationrescue.org " www.generationrescue.org by parents of child with ASD about treatment options. HYPERLINK " http://www.ont-autism.uoguelph.ca/books.shtml#1 " www.ont-autism.uoguelph.ca/books.shtml#1 , website with various lists of books on autism. HYPERLINK " http://www.tacanow.org " www.tacanow.org , about ASD resources. Abbreviations ABA Applied Behavior Analysis ADD Attention Deficit Disorder ADHD Attention Deficit Hyperactivity Disorder AIT Auditory Integration Training ARI Autism Research Institute AS Asperger Syndrome ASD Autism Spectrum Disorder(s) Bx behaviors CLO cod liver oil CST cranial sacral therapy DPT diptheria, pertussis, tetanus vaccine DTT discrete trial training Dx diagnosis GFCF gluten-free, casein-free GFCFSF gluten-free, casein-free, soy-free GFCFSFCF gluten-free, casein-free, soy-free, corn-free FC facilitated communication HepB Hepatitis B vaccine HFA high functioning autism IEP Individual Educational Plan ISP Individual Service Plan MMR Measles, Mumps, Rubella vaccine NAET Nambudripad’s Allergy Elimination Techniques NT Neuro-Typical (without disability) OT Occupational Therapy PECS Picture Exchange Communication System PDD Pervasive Developmental Disorder PT Physical Therapy SIB self-injurious behavior SID Sensory Integration Disorder ST Speech Therapy Sx symptoms Stims self-stimulatory behavior VBA Verbal Behavior Analysis ----- Original Message ----- <BR> From: fancy <BR> <BR> i am new with the autism my soon to be 4yr old has it<BR> any nfo would be great<BR> thanks <BR> fancy courtright@...<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! 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Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 > > i am new with the autism my soon to be 4yr old has it > any nfo would be great If you describe your child's issues, people can give you ideas on what helped to eliminate that issue. Here is my stories of recovery page http://www.danasview.net/recover.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Hey, I think the original post was by courtright@...<BR> I responded, but because the 1 yr old has to have her hands everywhere mine are she sent the email the first time without my response. Thanks for list though, it's great!!!! Karyn > > Hi Karyn, > Welcome to the list. How long ago was your son diagnosed? Does he speak > or otherwise communicate? Did he develop normally and then regress after > a particular vaccine? I have a resource list I put together which I will > post later today. > S S > > > > > i am new with the autism my soon to be 4yr old has it<BR> > any nfo would be great<BR> > thanks <BR> > fancy courtright@...<BR> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 On Feb 16, 2008 2:07 PM, Cowen <mlcowen@...> wrote: > Dear Dr. Novella: > > I read with interest your article in The Skeptical Inquirer about autism. > > I am a member of the " stubborn vocal minority " about whom you > write. > > I am particularly interested in your belief that the claim that > the Amish do not vaccinate and that the Amish are autism > free is false. > > The Amish issue really seems to be at the heart of the matter. > > I wonder if you would be willing to advocate the conduct of > a valid study of the Amish population. > > I have read and heard other representatives of the " vaccines- > are-safe " group that a study of the Amish would not be valuable and > would show us nothing. Their theory seems to be that the Amish > gene pool is different from the general pool and, therefore, > a result in that population would not be generalizable. > > Nevertheless, a result that shows that the Amish are autism > free would be interesting! > > > > L. Cowen III > 770-471-9800 office > 770-472-6392 fax > 770-363-8263 cell > mlcowen@... <mlcowen%40> > www.martincowen.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Montreal Canada Dr. Novella I am in some what of unique situation that on a regular occasion that I work with the Amish Community of Ohio . What people might not be aware , that the amish of the Ohio do vacinate their childreen , where as the Amish of PA do not . More importanly , I have talk to elder of the Amish community in Ohio , he confirm they do have cases of autism in there community and that they are aware that there cousin in PA do not. now that would be interested in do a sample study ???? > > > Dear Dr. Novella: > > > > I read with interest your article in The Skeptical Inquirer about autism. > > > > I am a member of the " stubborn vocal minority " about whom you > > write. > > > > I am particularly interested in your belief that the claim that > > the Amish do not vaccinate and that the Amish are autism > > free is false. > > > > The Amish issue really seems to be at the heart of the matter. > > > > I wonder if you would be willing to advocate the conduct of > > a valid study of the Amish population. > > > > I have read and heard other representatives of the " vaccines- > > are-safe " group that a study of the Amish would not be valuable and > > would show us nothing. Their theory seems to be that the Amish > > gene pool is different from the general pool and, therefore, > > a result in that population would not be generalizable. > > > > Nevertheless, a result that shows that the Amish are autism > > free would be interesting! > > > > > > > > L. Cowen III > > 770-471-9800 office > > 770-472-6392 fax > > 770-363-8263 cell > > mlcowen@... <mlcowen%40> > > www.martincowen.com > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Autism Spectrum Disorder = Diagnostic Trashcan " Let's just call it Autism " ,,,,,,direct quote from the pediatric neurologist while diagnosing my son. Nosheen Khan <nosheen.khan90@...> wrote: Autism Spectrum Disorders - What Does the Term " Autism Spectrum Disorder " (ASD) Mean? Medical professionals often use the term Autism Spectrum Disorders (or ASD for short) to explain the large variety of symptoms, signs and characteristics associated with a diagnosis of Autism. As we all know, more and more children are getting diagnosed with Autism everyday. According to the Center for Disease Control, Autism now occurs in one out of every 150 individuals. Some researchers account for the increase in Autism due to us better understanding the entire Autism spectrum. The Autism spectrum, however, is sometimes difficult for parents to understand. Some parents say things like: " My child has Autism, but he does not do that! " or they will ask " My child will interact with other kids, does he still have Autism? " The answer is simply that Autism is a spectrum, but what exactly does this mean? A spectrum means that there are children with Autism symptoms on one side, the other side, and everywhere in between. For example, let's take a look at communication and the Autism spectrum. You might have one child on one end of the spectrum that is non-verbal and will only use gestures to tell his or her needs. Then, you might have a child on the other end of the spectrum that can tell you every small detail and then some about his favorite dinosaurs. Both of these children have Autism, but they are on opposite ends of the Autism spectrum for their communication skills. All of the fundamental deficits of Autism are a spectrum: communication, social skills, and behavior. Each child with Autism has skills that vary on each of the spectrums. Also, all of the types of autistic disorders make up this " Autism spectrum " . The different types of autistic disorders include: Autism, Asperger Syndrome, and Pervasive Developmental – Not Otherwise Specified (PDD-NOS). Autism in Infants & Toddlers: What Should you Look for? Today, it’s really not possible to diagnose an infant younger than 18 months with autism. If you are concerned, however, you can always monitor and track your child’s growth and development milestones. There are some very useful checklists as well as growth and development tables available at http://www.cdc.gov/ncbddd/autism/ActEarly/ccp/downloadmaterials.html for children of all ages. These milestones do not apply to just autism. You should look to see if your infant is not meeting any of these normal milestones. It is important to remember, however, that all children and infants develop at a different pace. Just because your infant does not reach a certain milestone on the normal cycle does not mean your child has autism or any other condition, it just might mean you should consult your physician. Below are some of the red flags you should watch for in your infant to make sure he or she is developing at the right pace. If any of the following occur, it is a good idea to seek advice from your pediatrician or family physician: By 18 Months of Age: Does not search for objects that are hidden while he or she watches Says no single words (“mama” or “dada”) Does not learn to use gestures, such as waving or shaking head Does not point to objects or pictures Experiences a dramatic loss of skills he or she once had By 24 Months of Age: Cannot walk by 18 months Fails to develop a mature heel-toe walking pattern after several months of walking, or walks only on his toes Does not speak at least 15 words Does not use two-word sentences by age 2 By 15 months, does not seem to know the function of common household objects (brush, telephone, bell, fork, spoon) Does not imitate actions or words by the end of this period Does not follow simple instructions by age 2 Cannot push a wheeled toy by age 2 Experiences a dramatic loss of skills he or she once had You are also invited to join my group FamiliesAndHomeForAll Please feel free to send your private comments on, webmaster@... Miss Nosheen khan (Dr) http://healthforadvice.com A Dream Girl to whom u love --------------------------------- No Cost - Get a month of Blockbuster Total Access now. Sweet deal for users and friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 In a message dated 7/29/2008 2:54:10 A.M. Eastern Daylight Time, beebie10@... writes: Israel is about to do a clinical study on Autism using LDN. FYI.Beverlyhttp://clinicaltrials.gov/ct2/show/NCT00318162?cond=%22Child+Development+Disorders%2C+Pervasive%22 Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 http://www.ithyroid.com/autism.htm Love, Gabby. :0) http://stemcellforautism.blogspot.com/ " I know of nobody who is purely Autistic or purely neurotypical. Even God had some Autistic moments, which is why the planets all spin. " ~ Jerry Newport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Back under the bridge please.... ________________________________ From: Reynolds <peter@...> Sent: Tuesday, February 3, 2009 3:15:10 AM Subject: Re: [ ] Autism Another TROLL... qtxncmjhxjtp wrote: > > > In this article I will discuss what autism is and what some of the > common misconceptions are concerning autism. Autism is a neurological > disability that affects an individual's ability to communicate and > socialize with others. They might also be experiencing issues with > motor skills and processing information as well. Autism affects each > child and adult differently. There is no such thing as typical Autism > behaviors. > The exact cause of Autism is not known. It is believed to be the > result of abnormalities in the brain structure. Brain scans of > individuals who have been diagnosed with Autism show such > differences. It is also believed that heredity and genetics play a > role in the development of Autism. > Autism often occurs in those who have other medical issues including > Fragile X Syndrome, Sclerosis, Rubella, and toxic diseases that are > related to issues during the pregnancy. There is a debate that > standard vaccinations can result in Autism as well. > Regardless of the reasons behind Autism, there are some myths out > there that result from uneducated individuals. This includes the idea > that Autism is the result of poor parenting during the early years of > a child's development. There is also the myth that Autism is a mental > illness. There is no evidence to support that idea.... > > http://groups. / group/autismnvc > <http://groups. / group/autismnvc> > > Quote Link to comment Share on other sites More sharing options...
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